scholarly journals Challenges and Opportunities for Research Data Management in the Arts, Humanities and Social Sciences: a practitioner’s viewpoint

2017 ◽  
Author(s):  
Mary Banach ◽  
Kaye H Fendt ◽  
Johann Proeve ◽  
Dale Plummer ◽  
Samina Qureshi ◽  
...  

With the focus of the COVID-19 pandemic, we wanted to reach all stakeholders representing communities concerned with good clinical data management practices. We wanted to represent not only data managers but bio-statisticians, clinical monitors, data scientists, informaticians, and all those who collect, organize, analyze, and report on clinical research data. In our paper we will discuss the history of clinical data management in the US and its evolution from the early days of FDA guidance. We will explore the role of biomedical research focusing on the similarities and differences in industry and academia clinical research data management and what we can learn from each other. We will talk about our goals for recruitment and training for the CDM community and what we propose for increasing the knowledge and understanding of good clinical data practice to all – particularly our front-line data collectors i.e., nurses, medical assistants, patients, other data collectors. Finally, we will explore the challenges and opportunities to see CDM as the hub for good clinical data research practices in all of our communities.We will also discuss our survey on how the COVID-19 pandemic has affected the work of CDM in clinical research.


2019 ◽  
Vol 39 (06) ◽  
pp. 290-299
Author(s):  
Naushad Ali PM ◽  
Sidra Saeed

This study investigates perception of research scholars towards research data management and sharing. A survey was conducted among research scholars from Faculty of Life Sciences and Social Sciences, Aligarh Muslim University (AMU). In total, 352 participants filled out the questionnaire. The study shows that research scholars ofFaculty of Social Sciences are more willing to share their research data as compared to Research Scholars of Life Sciences. Contributing to scientific progress and increasing research citations and visibility were the key factors that motivated researchers to share data. However, confidentiality and data misuse were the main concerns among those who were unwilling to share. Finally, some recommendations to improve the of data management and sharing practices are presented.


2013 ◽  
Vol 8 (2) ◽  
pp. 68-88 ◽  
Author(s):  
Leigh Garrett ◽  
Marie-Therese Gramstadt ◽  
Carlos Silva

Research data is increasingly perceived as a valuable resource and, with appropriate curation and preservation, it has much to offer learning, teaching, research, knowledge transfer and consultancy activities in the visual arts. However, very little is known about the curation and preservation of this data: none of the specialist arts institutions have research data management policies or infrastructure and anecdotal evidence suggests that practice is ad hoc, left to individual researchers and teams with little support or guidance. In addition, the curation and preservation of such diverse and complex digital resources as found in the visual arts is, in itself, challenging. Led by the Visual Arts Data Service, a research centre of the University for the Creative Arts, in collaboration with the Glasgow School of Art; Goldsmiths College, University of London; and University of the Arts London, and funded by JISC, the KAPTUR project (2011-2013) seeks to address the lack of awareness and explore the potential of research data management systems in the arts by discovering the nature of research data in the visual arts, investigating the current state of research data management, developing a model of best practice applicable to both specialist arts institutions and arts departments in multidisciplinary institutions, and by applying, testing and piloting the model with the four institutional partners. Utilising the findings of the KAPTUR user requirement and technical review, this paper will outline the method and selection of an appropriate research data management system for the visual arts and the issues the team encountered along the way.


Author(s):  
Fabian Cremer ◽  
Silvia Daniel ◽  
Marina Lemaire ◽  
Katrin Moeller ◽  
Matthias Razum ◽  
...  

Neuroforum ◽  
2021 ◽  
Vol 0 (0) ◽  
Author(s):  
Michael Hanke ◽  
Franco Pestilli ◽  
Adina S. Wagner ◽  
Christopher J. Markiewicz ◽  
Jean-Baptiste Poline ◽  
...  

Abstract Decentralized research data management (dRDM) systems handle digital research objects across participating nodes without critically relying on central services. We present four perspectives in defense of dRDM, illustrating that, in contrast to centralized or federated research data management solutions, a dRDM system based on heterogeneous but interoperable components can offer a sustainable, resilient, inclusive, and adaptive infrastructure for scientific stakeholders: An individual scientist or laboratory, a research institute, a domain data archive or cloud computing platform, and a collaborative multisite consortium. All perspectives share the use of a common, self-contained, portable data structure as an abstraction from current technology and service choices. In conjunction, the four perspectives review how varying requirements of independent scientific stakeholders can be addressed by a scalable, uniform dRDM solution and present a working system as an exemplary implementation.


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