scholarly journals COPING WITH ANXIETY, DEPRESSION, BURDEN AND QUALITY OF LIFE IN INFORMAL PRIMARY CAREGIVERS OF COMMUNITY-DWELLING INDIVIDUALS WITH DEMENTIA

Author(s):  
M. Muscat ◽  
C. Scerri

Objective: This study aimed to investigate how informal primary caregivers of individuals with dementia living in the community cope with caring-related measures of anxiety, depression, burden and quality of life. Participants and Design: Participants included 60 informal caregivers (23 males and 37 females) of community-dwelling individuals with dementia who attended a state-run geriatric day hospital in Malta. Caregiver measures included the Hospital Anxiety and Depression Scale, the World Health Organization Quality of Life–BREF and Brief COPE questionnaires, and Zarit Burden Interview. The Mini Mental State Examination and Barthel Index of Activities of Daily Living scores were used to determine the degree of cognitive impairment and performance in activities of daily living of care-recipients. Results: Informal caregivers experienced anxiety and depression with both emotional distress states negatively affecting all quality of life domains. Depression and burden experienced by informal primary caregivers showed a strong association with individuals with dementia-related variables such as age, cognitive impairment and activities of daily living scores. The use of dysfunctional coping strategies was found to be related to caregivers’ emotional distress, low quality of life and burden. Conclusion: The findings indicate that informal primary caregivers experienced anxiety and depression, had a lower quality of life, and feel burdened during their caring role. However, caregivers making use of emotion-focused coping strategies were found to be protected against emotional distress. The results highlight the need of providing support services aimed at promoting the psychological wellbeing of informal carers of community-dwelling individuals with dementia.

2021 ◽  
Vol 23 (Supplement_G) ◽  
Author(s):  
Annalisa Matera ◽  
Francesco Santoro ◽  
Adriana Mallardi ◽  
Alessandra Leopizzi ◽  
Enrica Vitale ◽  
...  

Abstract Aims Takotsubo syndrome (TTS), also called stress cardiomyopathy, is an acute and transient left ventricular systolic dysfunction. Patients affected are usually postmenopausal woman with symptoms similar to myocardial infarction (angina pectoris, shortness of breath, palpitations, etc.) who experienced sudden emotional or physical stress. Emotional stressors are the mayor trigger in about 40% of cases, therefore an evaluation of psychological profile of these patients may have clinical relevance. Evaluate the quality of life, the level of anxiety and depression, the activities of daily life in patients with TTS in comparison with a control group with similar characteristics who haven’t developed this pathology. Methods and results 44 patients were recruited: 22 patients with TTS and 22 patients included in the control-group who didn’t develop the syndrome. Patients answered to three questionnaires for the evaluation of daily living activities, (Activities of daily living and Instrumental activities of daily living—ADL and IADL), levels of anxiety and depression (hospital anxiety and depression scale—HADS), and quality of life (36-Item Short Form Health Survey-SF—36). Mean age of the study population was 69 ± 9 years and patients were all female. No differences in term of cardiovascular and no risk factor were found between the two groups. Concerning daily living activities, no differences were present. However, when comparing levels of anxiety and depression, TTS patients had higher levels of anxiety (9.4 ± 5.3 vs. 7.7 ± 4.3; P = 0.3; HADS), meanwhile levels of depression were higher in patients of the control group (6.1 ± 3.4 vs. 6.7 ± 4.7; P = 0.7; HADS). Regarding the quality of life, patients with TTS reported to have reduced energy and had fewer social activities (respectively, 51.2 ± 15.7 vs. 62.8 ± 16.5; P = 0.03; 60.4 ± 29.1 vs. 66.6 ± 30.2 con P = 0.7; SF-36). Conclusions Patients with Takotsubo syndrome have typical psycho-emotional aspects including higher levels of anxiety and impaired quality of life (as reduced energy and fewer social activities). Further research is needed to better stratify these aspects.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Sanni Yaya ◽  
Dina Idriss-Wheeler ◽  
N’doh Ashken Sanogo ◽  
Maude Vezina ◽  
Ghose Bishwajit

Abstract Background Difficulties in performing the activities of daily living (ADL) are common among middle-aged and older adults. Inability to perform the basic tasks as well as increased healthcare expenditure and dependence on care can have debilitating effects on health and quality of life. The objective of this study was to examine the relationship between self-reported difficulty in activities of daily living (ADL), health and quality of life among community-dwelling, older population in South Africa and Uganda. Methods We analyzed cross-sectional data on 1495 men and women from South Africa (n = 514) and Uganda (n = 981) which were extracted from the SAGE Well-Being of Older People Study (WOPS 2011–13). Outcome variables were self-reported health and quality of life (QoL). Difficulty in ADL was assessed by self-reported answers on 12 different questions covering various physical and cognitive aspects. The association between self-reported health and quality of life with ADL difficulties was calculated by using multivariable logistic regression models. Results Overall percentage of good health and good quality of life was 40.4% and 20%, respectively. The percentage of respondents who had 1–3, 3–6, > 6 ADL difficulties were 42.4%7, 30.97% and 14.85%, respectively. In South Africa, having > 6 ADL difficulties was associated with lower odds of good health among men [Odds ratio = 0.331, 95%CI = 0.245,0.448] and quality of life among men [Odds ratio = 0.609, 95%CI = 0.424,0.874] and women [Odds ratio = 0.129, 95%CI = 0.0697,0.240]. In Uganda, having > 6 ADL difficulties was associated lower odds of good health [Odds ratio = 0.364, 95%CI = 0.159,0.835] and quality of life [Odds ratio = 0.584, 95%CI = 0.357,0.954]. Conclusion This study concludes that difficulty in ADL has a significant negative association with health and quality of life among community-dwelling older population (> 50 years) in South Africa and Uganda. The sex differences support previous findings on differential health outcomes among men and women, and underline the importance of designing sex-specific health intervention programs.


2021 ◽  
Vol 23 (4) ◽  
pp. 342-351
Author(s):  
Hayoung Park ◽  
Oksoo Kim

Purpose: The aim of this study was to investigate hearing handicaps, instrumental activities of daily living, and hearing-handicap-related quality of life among community-dwelling older adults and identify factors that influence hearing-handicap-related quality of life.Methods: A total of 129 older adults aged 65 and over participated in the study, and data collection was conducted from December 20th, 2020 to March 20th, 2021. Descriptive statistics, t-test, ANOVA, Pearson’s correlations, and multiple linear regression were used for data analysis.Results: Self-reported hearing handicaps positively associated with instrumental activities of daily living (r=.82, p<.001), and negatively associated with hearing-handicap-related quality of life (r=-.80, p<.001). Instrumental activities of daily living negatively associated with hearing-handicap-related quality of life (r=-.71, p<.001). Hearing handicaps influenced hearing-handicap-related quality of life (β=-.70, p<.001). A regression model explained 66% of the variance in hearing-handicap-related quality of life.Conclusion: Hearing handicaps affect hearing-handicap-related quality of life of older adults living in the community. Therefore, nursing interventions to prevent hearing handicaps are required to improve hearing-handicap-related quality of life of older adults.


Sign in / Sign up

Export Citation Format

Share Document