scholarly journals Caregiver Burden of Primary Caregivers for People with Spinal Cord Injury (SCI) Residing at Calicut District Kerala

2021 ◽  
Vol 10 (8) ◽  
pp. 458-462
Author(s):  
Abidfaheem Thelakkadan ◽  
Leena Kunnath Chacko

BACKGROUND The study aims to assess the caregiver burden of primary caregivers of people with spinal cord injury by using Caregiver Burden Scale (CBS), find the association between caregiver burden and selected socio-demographic variables and find the association between caregiver burden and characteristics of individuals with spinal cord injury. METHODS A cross sectional study was conducted from June 2019 to December 2019 among primary caregivers of patients with spinal cord injury (SCI) residing in selected communities of Calicut district, Kerala state, India. Purposive sampling technique was used to select samples. Caregiver burden was assessed by Zarit Caregiver Burden Interview. Characteristics of caregivers and individuals with spinal cord injury were collected by structured interview. RESULTS Study was conducted among 100 primary caregivers of individuals with spinal cord injury. The mean score of caregiver burden is 45.3 with SD 11.4. Out of the total sample, 40 % of the caregivers suffered from mild to moderate burden, another 40 % suffered from moderate to severe burden and the remaining 20 % of them suffered from severe caregiver burden. The study also found an association between caregiver burden score with characteristics of caregivers such as age (p = 0.038), gender (p = 0.02) and marital status (p = 0.048). Study also found an association between the gender of patient (p = 0.001) and level of injury (p = 0.001). CONCLUSIONS Majority of the sample showed moderate to severe level of caregiver burden. The study helped to find out multiple factors affecting caregiver burden. Health care system can identify these factors and consider them while planning and implementing different programs for individuals with SCI. Measures can be considered to alleviate caregiver burden by considering the findings of the current study and the community can plan different rehabilitative services which can reduce the burden of caregivers. KEY WORDS Caregiver Burden, Spinal Cord Injury, Primary Caregivers

2021 ◽  
Vol 30 (9-10) ◽  
pp. 1394-1402
Author(s):  
De Gong ◽  
Yingmin Wang ◽  
Lirong Zhong ◽  
Mengmeng Jia ◽  
Ting Liu ◽  
...  

2016 ◽  
Vol 39 (2) ◽  
pp. 180-189 ◽  
Author(s):  
Timo Hinrichs ◽  
Veronika Lay ◽  
Ursina Arnet ◽  
Inge Eriks-Hoogland ◽  
Hans Georg Koch ◽  
...  

2016 ◽  
Vol 41 (11) ◽  
pp. 1190-1196 ◽  
Author(s):  
Sonja de Groot ◽  
Jacinthe J. Adriaansen ◽  
Marga Tepper ◽  
Govert J. Snoek ◽  
Lucas H.V. van der Woude ◽  
...  

This study investigated (i) the prevalence of the metabolic syndrome (MetS) in people with a long-standing spinal cord injury (SCI); (ii) whether personal or lesion characteristics are determinants of the MetS; and (iii) the association with physical activity or peak aerobic capacity on the MetS. In a cross-sectional study, persons with SCI (N = 223; time since injury of ≥10 years) were tested. The individual components of the MetS were assessed together with the physical activity measured by the Physical Activity Scale for Individuals with Physical Disabilities (PASIPD), while peak aerobic capacity was tested during a graded wheelchair exercise test on a treadmill. Thirty-nine percent of the participants had MetS. In a multivariate logistic regression analyses and after performing a backward regression analysis, only age and education were significant determinants of the MetS. A 10-year increase in age leads to a 1.5 times more chance to have the MetS. Furthermore, people with a low education will multiply the relative risk of MetS compared with people with high education by almost 2. With and without correcting for confounders, no significant relationship was found between PASIPD or peak aerobic capacity and the MetS. It can be concluded that the prevalence of the MetS is high (39%) in people with a long-standing SCI but is comparable to the general Dutch population. Older people and those with a lower education level are most at risk for the MetS. Physical activity and peak aerobic fitness were not related to the MetS in this group with a long-standing SCI.


2021 ◽  
Vol 8 (3) ◽  
Author(s):  
Masoud Hatefi ◽  
AmirHosein Meisami ◽  
Alalleh Dalvand ◽  
Milad Borji

Background: Spinal cord injuries (SCI) are a variety of chronic diseases that various causes such as trauma may contribute to its onset. One of the problems in these patients is the problem of physical activity and, consequently, daily activities. Objectives: This study aimed to assess daily living of patients with SCI. Methods: In this descriptive cross-sectional study in 2019, 120 patients with SCI in Kermanshah were included in the study using purposive sampling. The instruments used in this study fell into two parts. One part included the demographic characteristics of the SCI patients, and the other part was a questionnaire of the rate of the Impact on Participation and Autonomy questionnaire (IPA-P). Data were analyzed by SPSS software version 16 using descriptive tests such as mean and standard deviation. Results: The result showed there was a significant relationship between demographic characteristics such as education (P < 0.007), time of spinal cord injury (P < 0.01), and income (P = 0.000). Also, the results showed there was a relationship between Autonomy and Participation, and the age of patients and their autonomy and participation decreased with age (P = 0.000, R = 0.72). Most of the patients had severe problems with daily activities. Also, most patients had very poor scores in relation to daily living activities. Conclusions: Considering the low rate of participation and autonomy in patients with SCI, it is suggested to conduct studies aimed at improving their self-care and social participation.


2011 ◽  
Vol 69 (3) ◽  
pp. 513-518 ◽  
Author(s):  
Janaina Vall ◽  
Carlos Mauricio de Castro Costa ◽  
Laura França Pereira ◽  
Tatiane Temmy Friesen

After spinal cord injury is common functionality is affected. OBJECTIVE: To evaluate the functionality of patients with spinal cord injury. METHOD: Cross-sectional study by means of the International Classification of Functionality (ICF). 109 adults with spinal cord injury in the city of Curitiba, Brazil were evaluated. RESULTS: The categories most compromised in body were intestines and bladder, sexuality, energy, sleep, emotion and weight. In the domain activities and participation, there was greater difficulty in tasks of bathing, toilet and dressing, self care and leisure. In the domain environmental factors, the categories classified as facilitators were: medications, orthoses and wheelchair, attitude of family, transport, social foresight and health services. The categories classified as barriers were: attitude of authorities, social attitudes, education and work. CONCLUSION: The application of the ICF in persons with spinal cord injury demonstrated a series of disabilities and limitations.


2019 ◽  
Vol 63 (2) ◽  
pp. 67-78 ◽  
Author(s):  
James S. Krause ◽  
Clara E. Dismuke-Greer ◽  
Melinda Jarnecke ◽  
Karla S. Reed

Our purpose was to identify demographic, educational, and injury-related characteristics associated with odds of employment and estimates of differential earnings among participants with spinal cord injury (SCI). Self-report assessments were obtained from 1,983 participants who had traumatic SCI, were 18+ years old, and less than 65 years of age. All were recruited into the current cross-sectional study from previous studies of health and aging from the Midwestern and Southeastern United States. Midwestern participants had 2.41 higher odds of employment. Older age at injury was associated with lower odds of employment. There were no sex differences in the odds of employment, but women had an estimated US$19,431 lower conditional earnings. Non-Hispanic Blacks had 69% lower odds of employment, and those working had an estimated US$12,058 lower earnings. Ambulatory participants had higher odds of employment (odds ratio [OR] = 4.66) and higher conditional earnings (US$17,277) than those with the most severe SCI. Those with 4-year or postgraduate degrees had substantially higher odds of employment (OR = 4.15, OR = 5.72, respectively) and higher conditional earnings (US$29,990, US$44,580, respectively) compared with those with a high school certificate or less. These findings underscore the importance of policies to promote the optimal quality employment outcomes for people with SCI.


Spinal Cord ◽  
2020 ◽  
Author(s):  
Matthias Walter ◽  
Ian Ruiz ◽  
Jordan W. Squair ◽  
Luis A. S. Rios ◽  
Marcio A. Averbeck ◽  
...  

Abstract Study design Cross-sectional study. Objectives To identify the prevalence of complications associated with intermittent catheterization in wheelchair athletes with spinal cord injury (SCI). Setting International and national sporting events. Methods A total 130 competitive wheelchair athletes living with SCI completed a self-reported questionnaire during international or national sporting events. The questionnaire collected information regarding demographics, injury characteristics, method of bladder emptying, and complications related to intermittent catheterization. Results Overall, 84% (109/130) of wheelchair athletes used intermittent catheterization. Within this group, 77% of athletes (84/109) experienced at least one complication associated with intermittent catheterization. Twenty-seven percent (29/109) sustained urethral injuries and 63% (69/109) had at least one episode of urinary tract infection during the last 12 months. Almost one-fourth of male athletes (22/95, 23%) had a history of inflammation / infection of genital organs associated with intermittent catheterization. Conclusions Here we report a high prevalence of self-reported complications associated with intermittent catheterization in wheelchair athletes with SCI. Considering their potential impact on lower urinary tract function, athletic performance, and health, further studies are needed to assess the role of preventative strategies to reduce complications related to intermittent catheterization in wheelchair athletes with SCI. Sponsorship Coloplast Brazil and Instituto Lado a Lado pela Vida (a nongovernmental, nonprofit organization based in São Paulo) and Wellspect provided funding for this study.


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