scholarly journals Prolonged Survival and End-of-Life Care Among End-Stage Patients With Duchenne Muscular Dystrophy (DMD)

CHEST Journal ◽  
2011 ◽  
Vol 140 (4) ◽  
pp. 1054A
Author(s):  
Jennifer Birnkrant ◽  
David Bennett ◽  
Garey Noritz ◽  
Michael Harrington ◽  
David Birnkrant
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
End Of Life ◽  
End Of Life Care ◽  
Prolonged Survival ◽  
Life Care ◽  
End Stage

End of life care in Duchenne muscular dystrophy

1993 ◽  
Vol 9 (3) ◽  
pp. 165-177 ◽  
Author(s):  
Tony Hilton ◽  
Robert D. Orr ◽  
Ron M. Perkin ◽  
Stephen Ashwal
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

Serious Mental Illness and Hospice Care

2021 ◽  
pp. 082585972110220
Author(s):  
Gwen Levitt
Keyword(s):  
Mental Health ◽  
End Of Life ◽  
End Of Life Care ◽  
Psychiatric Illness ◽  
Hospice Care ◽  
Treatment Options ◽  
Life Care ◽  
Case Review ◽  
Health Community ◽  
End Stage

There are a small number of articles in the literature discussing palliative and end-of-life care in the SMI population. Most tackle the questions relating to competency to refuse care in end-stage anorexia or terminal medical conditions. This is a case review of a 55 year old patient with a complex psychiatric and medical history, who despite extensive treatment and long hospitalizations has failed to regain any ability to care for her basic needs. She has exhausted all available treatment options and her prognosis is extremely poor. The mental health community is resistant to discussing and/ or confronting the fact that such a patient faces with the need for end-of-life care directly related to chronic psychiatric illness.

scholarly journals Preferences for Advance Directives in Korea

2012 ◽  
Vol 2012 ◽  
pp. 1-7 ◽  
Author(s):  
So-Sun Kim ◽  
Won-Hee Lee ◽  
JooYoung Cheon ◽  
Jung-Eun Lee ◽  
KiSun Yeo ◽  
...  
Keyword(s):  
End Of Life ◽  
Advance Directives ◽  
End Of Life Care ◽  
Healthcare Providers ◽  
Tube Feeding ◽  
Life Care ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Korean People ◽  
End Stage

Background. The goal of advance directives is to help patients retain their dignity and autonomy by making their own decisions regarding end-stage medical treatment. The purpose of this study was to examine preferences of advance directives among general population in Korea.Method. A descriptive cross-sectional survey was performed from October 2007 to June 2008 in Seoul, Korea. A total of 336 city-dwelling adults self-administered the questionnaire and returned it via mail. Data analyses were conducted using SPSS 17.0.Results. Subjects reported the need for healthcare providers' detailed explanations and recommendations regarding end-of-life care. When there is no hope of recovery and death is imminent, most subjects did not want to receive cardiopulmonary resuscitation nor an IV or tube feeding. However, most of the subjects wanted pain management care.Conclusions. The present study showed that many Korean people have an interest in advance directives. The results show that the autonomy and dignity of patient have increased in importance. To provide better end-of-life care, there is a need to educate patients on the definition and intent of an advance directive. Additional proactive communication between patients and their caregivers should be educated to healthcare providers.

Hospice Use and End-of-Life Care for Patients With End-stage Renal Disease

2018 ◽  
Vol 178 (6) ◽  
pp. 799 ◽  
Author(s):  
Margaret L. Schwarze ◽  
Kate Schueller ◽  
R. Allan Jhagroo
Keyword(s):  
Renal Disease ◽  
End Of Life ◽  
End Stage Renal Disease ◽  
End Of Life Care ◽  
Life Care ◽  
Hospice Use ◽  
Stage Renal Disease ◽  
End Stage

scholarly journals Current End-of-Life Care Needs and Care Practices in Acute Care Hospitals

2011 ◽  
Vol 2011 ◽  
pp. 1-8 ◽  
Author(s):  
Amy J. Thurston ◽  
Donna M. Wilson ◽  
Jessica A. Hewitt
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Chart Review ◽  
Life Care ◽  
Canadian Study ◽  
Care Needs ◽  
Common Diagnosis ◽  
Impending Death ◽  
Care Practices ◽  
End Stage

A descriptive-comparative study was undertaken to examine current end-of-life care needs and practices in hospital. A chart review for all 1,018 persons who died from August 1, 2008 through July 31, 2009 in two full-service Canadian hospitals was conducted. Most decedents were elderly (73.8%) and urbanite (79.5%), and cancer was the most common diagnosis (36.2%). Only 13.8% had CPR performed at some point during this hospitalization and 8.8% had CPR immediately preceding death, with 87.5% having a DNR order and 30.8% providing an advance directive. Most (97.3%) had one or more life-sustaining technologies in use at the time of death. These figures indicate, when compared to those in a similar mid-1990s Canadian study, that impending death is more often openly recognized and addressed. Technologies continue to be routinely but controversially used. The increased rate of end-stage CPR from 2.9% to 8.8% could reflect a 1994+ shift of expected deaths out of hospital.

The Transition to End-of-Life Care in End-Stage Liver Disease

2013 ◽  
Vol 15 (4) ◽  
pp. 209-215 ◽  
Author(s):  
Paula Cox-North ◽  
Ardith Doorenbos ◽  
Sarah E. Shannon ◽  
John Scott ◽  
Jared Randall Curtis
Keyword(s):  
Liver Disease ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
End Stage Liver Disease ◽  
End Stage

scholarly journals End-of-life care in patients with end-stage renal disease

2012 ◽  
Vol 27 (3) ◽  
pp. 879-881 ◽  
Author(s):  
N. Arulkumaran ◽  
P. Szawarski ◽  
B. J. Philips
Keyword(s):  
Renal Disease ◽  
End Of Life ◽  
End Stage Renal Disease ◽  
End Of Life Care ◽  
Life Care ◽  
Stage Renal Disease ◽  
End Stage

scholarly journals The Validation of Questionnaire on End of Life Care Knowledge, Perceptions and Preferences among End Stage Renal Disease Patients on Haemodialysis in Kuantan

2020 ◽  
Vol 18 (2) ◽  
Author(s):  
Nur Raziana Rozi ◽  
Wan Ahmad Syahril Rozli Wan Ali ◽  
Che Rosle Draman ◽  
Hafizah Pasi
Keyword(s):  
Factor Analysis ◽  
Renal Disease ◽  
End Of Life ◽  
End Stage Renal Disease ◽  
End Of Life Care ◽  
Internal Consistency Reliability ◽  
Life Care ◽  
Stage Renal Disease ◽  
End Stage ◽  
Esrd Patients

Introduction: There has been an increasing awareness on the end of life care for end stage renal disease (ESRD) patients and patients’ factors have been identified as pivotal elements in directing its implementation. Questionnaire has been a useful tool by researchers to assess on patients’ knowledge, perceptions and preferences on end of life care. However, up to date, there is no validated questionnaire developed in Malaysia for such purposes. Thus, this study aims to develop and validate questionnaires on end of life care knowledge, perceptions and preferences among ESRD patients in Kuantan. Materials and method: A cross-sectional study among haemodialysis (HD) patients aged 18 and above from 14 out-patient HD centres was performed. This study was divided into 4 phases i) developing the questionnaire involving related specialists and pre testing, ii) improving and editing the questionnaire and redistribution to 50 respondents for the pilot study, iii) factor analysis and iv) internal consistency reliability testing of the questionnaire.  Results:  The result of Factor analysis with Varimax rotation performed identified 3 domains for the 41 items, with 10 to 20 items in each domain. All the 41 analyzed items had a good factor loading of more than 0.4 with the lowest value of 0.421 and were nicely fit into 3 respective domains; knowledge, perception and preference. Internal consistency reliability analysis performed indicates that Cronbach’s α was between 0.5 to 0.7 for all factors which were higher than the level set for this study which is 0.5. Conclusion: The questionnaire is successfully validated and considered as a useful tool to be used. Nonetheless, improvement will still be necessary from time to time to ensure its relevance especially if it is to be used by different populations or countries of different background than Malaysia.

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