scholarly journals Perspectives of Community Advisory Board Members in a Community-Academic Partnership

2018 ◽  
Vol 29 (4) ◽  
pp. 1529-1543 ◽  
Author(s):  
Sigolène Ortega ◽  
Megan Stamey McAlvain ◽  
Katherine J. Briant ◽  
Sarah Hohl ◽  
Beti Thompson
Keyword(s):  
Advisory Board ◽  
Community Advisory Board ◽  
Board Members

scholarly journals Evaluation of 3 approaches for increasing patient engagement in clinical research: Feedback from a community engagement advisory board

2018 ◽  
Vol 2 (1) ◽  
pp. 14-19 ◽  
Author(s):  
Alicia K. Matthews ◽  
Kevin Rak ◽  
Emily Anderson ◽  
Amparo Castillo ◽  
Raymond Ruiz ◽  
...  
Keyword(s):  
Clinical Research ◽  
Community Engagement ◽  
Survey Data ◽  
Research Participation ◽  
Advisory Board ◽  
Community Advisory Board ◽  
Board Members ◽  
Patient Portals ◽  
Patient Registries ◽  
Advantages And Disadvantages

IntroductionThe purpose of this study was to obtain feedback from a diverse group of community advisory board members about different clinic or hospital-based approaches to increasing research participation.MethodsMembers of an established community engagement advisory board (n=16) provided qualitative and survey data regarding attitudes and preferences for 3 hospital and clinic system strategies to recruit patients into clinical research including universal consent for research, patient registries, and patient portals.ResultsOverall, there was moderate support for each of the 3 approaches discussed. Board members described advantages and disadvantages of each method. Based on the qualitative data, universal consent was viewed as the best strategy for consenting high volumes of patients for research. However, patient registries and portals were seen as more acceptable, less-intrusive and more likely to result in higher participation rates. Survey data were consistent with qualitative findings.ConclusionsInput from community stakeholders is needed to identify strategies to enhance participation and increase diversity in clinical research. Members of our CEAB identified patient registries and portals as feasible and nonintrusive approaches to increasing research participation. Additional research is needed to confirm these findings and to establish best practices for supporting patients in using registry approaches.

scholarly journals “We Were Queens.” Listening to Kānaka Maoli Perspectives on Historical and On-Going Losses in Hawai’i

Genealogy ◽  
2020 ◽  
Vol 4 (4) ◽  
pp. 116
Author(s):  
Antonia R.G. Alvarez ◽  
Val. Kalei Kanuha ◽  
Maxine K.L. Anderson ◽  
Cathy Kapua ◽  
Kris Bifulco
Keyword(s):  
Historical Trauma ◽  
The United States ◽  
Advisory Board ◽  
Community Advisory Board ◽  
Board Members ◽  
Health Issues ◽  
Kanaka Maoli ◽  
Racial And Ethnic Minorities ◽  
American Scholar ◽  
Ethics Of Research

This study examines a historical trauma theory-informed framework to remember Kānaka Maoli (Native Hawaiian) and lesbian, gay, bisexual, transgender, queer, and/or māhū (LGBTQM) experiences of colonization in Hawai`i. Kānaka Maoli people and LGBTQM Kānaka Maoli face health issues disproportionately when compared with racial and ethnic minorities in Hawai’i, and to the United States as a whole. Applying learnings from historical trauma theorists, health risks are examined as social and community-level responses to colonial oppressions. Through the crossover implementation of the Historical Loss Scale (HLS), this study makes connections between historical losses survived by Kānaka Maoli and mental health. Specifically, this manuscript presents unique ways that Kānaka Maoli describe and define historical losses, and place-based themes that emerged. These themes were: the militarization of land; the adoption of christianity by Kānaka Maoli ali`i; the overthrow of the sovereign Hawaiian monarch; and the importance of māhū and LGBTQ perspectives. Each of these themes will be presented in detail. Written by a queer, mestiza Pinay-American scholar, her mentor, a lesbian Kanaka Maoli scholar/activist, with contributions from Community Advisory Board members, there will also be discussion about ethics of research with and for Kānaka Maoli.

scholarly journals Partnering to Increase Colorectal Cancer Screening: Perspectives of Community Advisory Board Members

2021 ◽  
pp. 019394592199317 ◽  
Author(s):  
Susan M. Rawl ◽  
Sandra Bailey ◽  
Beatrice Cork ◽  
Matthew Fields ◽  
Thomas Griffin ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Cancer Screening ◽  
Colorectal Cancer Screening ◽  
Research Process ◽  
Advisory Board ◽  
Lessons Learned ◽  
Community Advisory Board ◽  
Board Members ◽  
Patient Centered ◽  
Study Results

The Patient-Centered Outcomes Research Institute (PCORI) defines engagement in research as the meaningful involvement of patients, caregivers, clinicians, insurers, and others throughout the entire research process—from planning to conducting the study to disseminating study results. The purposes of this paper are to (a) describe methods used to engage community members across the various phases of a PCORI-funded comparative effectiveness trial to increase colorectal cancer screening; and (b) report results of qualitative and quantitative evaluations of community advisory board members’ experiences on this project. Decisions to join and stay engaged with the study included feeling valued and appreciated, being compensated, the opportunity to contribute to research based on their skills and expertise, and being committed to colon cancer prevention efforts. Challenges identified by advisory board members included the significant time commitment, transportation, and meeting location. Lessons learned and guidance for researchers committed to patient and community engagement are described.

Highlights and new Editorial Advisory Board members of the Journal of Environmental Sciences

2016 ◽  
Vol 47 ◽  
pp. 1-6 ◽  
Author(s):  
Qingcai Feng ◽  
Suqin Liu ◽  
Zhengang Mao ◽  
Jian Xu ◽  
Zixuan Wang ◽  
...  
Keyword(s):  
Advisory Board ◽  
Board Members ◽  
Environmental Sciences ◽  
Editorial Advisory

scholarly journals EDITORIAL INDIAN DRUGS MARCH 2018

INDIAN DRUGS ◽  
2018 ◽  
Vol 55 (03) ◽  
pp. 5-6
Author(s):  
George Patani ◽  
Keyword(s):  
Scientific Journal ◽  
Pharmaceutical Research ◽  
Advisory Board ◽  
Board Members ◽  
Editorial Committee ◽  
Editorial Advisory ◽  
Dear Reader ◽  
Constant Source

Dear Reader, On the 22nd of February this year, INDIAN DRUGS celebrated its 55th Annual Day at the IIT Bombay campus in Powai. 55 years of publishing a Scientific Journal regularly every month is truly an accomplishment of which I am grateful to be able to contribute to. I sincerely appreciate all our Editorial Advisory Board and Editorial Board Members and the large number of reviewers who took time off and actively participated in the celebrations. The enthusiasm and support of all present at this grand event is an indication of the commitment to the cause of improving the quality of pharmaceutical research being conducted in India. The continued commitment of a large number of our Editorial Advisory Board and Editorial Board members has been a constant source of motivation for all of us in the Editorial Committee of INDIAN DRUGS to improve the publication.

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