scholarly journals A Scoping Review of Self-Management Interventions Following Spinal Cord Injury

2020 ◽  
Vol 26 (1) ◽  
pp. 36-63
Author(s):  
Amanda McIntyre ◽  
Stephanie L. Marrocco ◽  
Samantha A. McRae ◽  
Lindsay Sleeth ◽  
Sander Hitzig ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Scoping Review ◽  
Symptom Management ◽  
Self Management ◽  
Broad Perspective ◽  
Specific Symptom ◽  
Management Interventions ◽  
Management Concepts ◽  
Cord Injury

Objective: To conduct a scoping review to identify what components of self-management are embedded in self-management interventions for spinal cord injury (SCI). Methods: In accordance with the approach and stages outlined by Arksey and O'Malley (2005), a comprehensive literature search was conducted using five databases. Study characteristics were extracted from included articles, and intervention descriptions were coded using Practical Reviews in Self-Management Support (PRISMS) (Pearce et al, 2016), Barlow et al (2002), and Lorig and Holman's (2003) taxonomy. Results: A total of 112 studies were included representing 102 unique self-management programs. The majority of the programs took an individual approach (52.0%) as opposed to a group (27.4%) or mixed approach (17.6%). While most of the programs covered general information, some provided specific symptom management. Peers were the most common tutor delivering the program material. The most common Barlow components included symptom management ( n = 44; 43.1%), information about condition/treatment ( n = 34; 33.3%), and coping ( n = 33; 32.4%). The most common PRISMS components were information about condition and management ( n = 85; 83.3%), training/rehearsal for psychological strategies ( n = 52; 51.0%), and lifestyle advice and support ( n = 52; 51.0%). The most common Lorig components were taking action ( n = 62; 60.8%), resource utilization ( n = 57; 55.9%), and self-tailoring ( n = 55; 53.9%). Conclusion: Applying self-management concepts to complex conditions such as SCI is only in the earliest stages of development. Despite having studied the topic from a broad perspective, this review reflects an ongoing program of research that links to an initiative to continue refining and testing self-management interventions in SCI.

scholarly journals Self-management interventions for skin care in people with a spinal cord injury: part 1—a systematic review of intervention content and effectiveness

Spinal Cord ◽  
2018 ◽  
Vol 56 (9) ◽  
pp. 823-836 ◽  
Author(s):  
Justine S. Baron ◽  
Katrina J. Sullivan ◽  
Jillian M. Swaine ◽  
Arlene Aspinall ◽  
Susan Jaglal ◽  
...  
Keyword(s):  
Systematic Review ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Skin Care ◽  
Self Management ◽  
Management Interventions ◽  
Cord Injury ◽  
Intervention Content

scholarly journals Self-management of pain and depression in adults with spinal cord injury: A scoping review

2018 ◽  
Vol 43 (3) ◽  
pp. 280-297 ◽  
Author(s):  
Lauren Cadel ◽  
Claudia DeLuca ◽  
Sander L. Hitzig ◽  
Tanya L. Packer ◽  
Aisha K. Lofters ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Scoping Review ◽  
Self Management ◽  
Cord Injury

scholarly journals Self-management interventions for skin care in people with a spinal cord injury: part 2—a systematic review of use of theory and quality of intervention reporting

Spinal Cord ◽  
2018 ◽  
Vol 56 (9) ◽  
pp. 837-846 ◽  
Author(s):  
Justine S. Baron ◽  
Katrina J. Sullivan ◽  
Jillian M. Swaine ◽  
Arlene Aspinall ◽  
Susan Jaglal ◽  
...  
Keyword(s):  
Systematic Review ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Skin Care ◽  
Self Management ◽  
Management Interventions ◽  
Cord Injury ◽  
Intervention Reporting

scholarly journals Pain and its impact on functioning and disability in manual wheelchair users with spinal cord injury: a protocol for a mixed-methods study

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e044152
Author(s):  
Mokgadi Kholofelo Mashola ◽  
Elzette Korkie ◽  
Diphale Joyce Mothabeng
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
South African ◽  
Phase 1 ◽  
Pain Medication ◽  
Self Management ◽  
Medication Misuse ◽  
Wheelchair Users ◽  
Manual Wheelchair ◽  
Cord Injury

IntroductionApproximately 80% of people with spinal cord injury experience clinically significant chronic pain. Pain (whether musculoskeletal or neuropathic) is consistently rated as one of the most difficult problems to manage and negatively affects the individual’s physical, psychological and social functioning and increases the risk of pain medication misuse and poor mental health. The aim of this study is to therefore determine the presence of pain and its impact on functioning and disability as well as to develop a framework for self-management of pain for South African manual wheelchair users with spinal cord injury.Methods and analysisCommunity-dwelling participants with spinal cord injury will be invited to participate in this three-phase study. Phase 1 will use a quantitative, correlational design to determine factors related to pain such as pectoralis minor length, scapular dyskinesis, wheelchair functioning, physical quality of life, community reintegration and pain medication misuse. Demographic determinants of pain such as age, gender, type of occupation, completeness of injury and neurological level of injury will also be investigated. Participants with pain identified in phase 1 will be invited to partake in a qualitative descriptive and contextually designed phase 2 to explore their lived experience of pain through in-depth interviews. The results of phases 1 and 2 will then be used with the assistance from experts to develop a framework for self-management of pain using a modified Delphi study. Data analysis will include descriptive and inferential statistics (quantitative data) and thematic content analysis (qualitative data).Ethics and disseminationApproval for this study is granted by the Faculty of Health Sciences Research Ethics Committee of the University of the Pretoria (approval number 125/2018). This study is registered with the South African National Health Research Database (reference GP201806005). This study’s findings will be shared in academic conferences and published in scientific peer-reviewed journals.

Expectations of a Mobile Self-Management App Intervention Among Individuals With Spinal Cord Injury

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512515334p1
Author(s):  
W. Ben Mortenson ◽  
Gurkaran Singh ◽  
Ethan Simpson ◽  
Megan McGillivray ◽  
Jared Adams ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Self Management ◽  
Cord Injury

The effects of epidural stimulation on individuals living with spinal cord injury or disease: a scoping review

2021 ◽  
Vol 26 (5) ◽  
pp. 344-369
Author(s):  
Hope Jervis Rademeyer ◽  
Cindy Gauthier ◽  
Kei Masani ◽  
Maureen Pakosh ◽  
Kristin E. Musselman
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Scoping Review ◽  
Epidural Stimulation ◽  
Cord Injury

scholarly journals Factors Which Facilitate or Impede Interpersonal Interactions and Relationships after Spinal Cord Injury: A Scoping Review with Suggestions for Rehabilitation

2016 ◽  
Vol 2016 ◽  
pp. 1-13 ◽  
Author(s):  
Delena Amsters ◽  
Sarita Schuurs ◽  
Kiley Pershouse ◽  
Bettina Power ◽  
Yvonne Harestad ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Scoping Review ◽  
English Language ◽  
International Classification Of Functioning ◽  
Interpersonal Interactions ◽  
Self Image ◽  
Language Studies ◽  
Cord Injury ◽  
Review Question

Interpersonal interactions and relationships can influence an individual’s perceptions of health and quality of life in the presence of disability. In the case of people with spinal cord injury (SCI), positive interpersonal interactions and relationships have been shown to contribute to resilience and adaptability. Understanding factors which facilitate or impede the development and maintenance of relationships after SCI may form the basis for proactive relationship support for people with SCI. To gain a broad insight into these factors, a scoping review was undertaken. Databases were searched for English language studies published between 2000 and 2015 that informed the review question. Sixty-two (62) studies were identified. Thematic analysis was conducted on data extracted from the studies and 51 factors which may facilitate relationships and 38 factors which may impede relationships after SCI were noted. The majority of factors could be categorized as environmental or personal according to the domains of the International Classification of Functioning, Disability, and Health (ICF). The facilitating factors included partner and social support, reciprocity in relationships, and presenting oneself positively. Impeding factors included physical environmental barriers, real and perceived social biases, and poor self-image. Factors identified may inform the provision of supportive, holistic rehabilitation for people with SCI.

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