scholarly journals Using the Spinal Cord Injury Common Data Elements

2012 ◽  
Vol 18 (1) ◽  
pp. 23-27 ◽  
Author(s):  
Fin Biering-Sørensen ◽  
Susan Charlifue ◽  
Michael DeVivo ◽  
Stacie Grinnon ◽  
Naomi Kleitman ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Common Data Elements ◽  
Cord Injury ◽  
Data Elements

scholarly journals Increasing awareness of degenerative cervical myelopathy: a preventative cause of non-traumatic spinal cord injury

Spinal Cord ◽  
2021 ◽  
Author(s):  
Carl M. Zipser ◽  
Konstantinos Margetis ◽  
Karlo M. Pedro ◽  
Armin Curt ◽  
Michael Fehlings ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cervical Myelopathy ◽  
Cervical Spinal Cord ◽  
Neurological Impairment ◽  
Common Data Elements ◽  
Cord Injury ◽  
Data Elements ◽  
Degenerative Cervical Myelopathy ◽  
Work Up

AbstractDegenerative cervical myelopathy (DCM) is a common non-traumatic spinal cord disorder and characterized by progressive neurological impairment. Generally, it is still underdiagnosed and referral to spine specialists is often late, when patients already present with incomplete cervical spinal cord injury (SCI). To improve early diagnosis and accelerate referral, diagnostic criteria for DCM are required. Recently, AO Spine RECODE- DCM (REsearch Objectives and Common Data Elements for Degenerative Cervical Myelopathy) (aospine.org/recode), an international, interdisciplinary and interprofessional initiative, including patients with DCM, was funded with the aim to accelerate knowledge discovery that can change outcomes. In this perspective we advocate for the participation of SCI specialists in this process, where the expertise and perspective on this disorder and requirements for the diagnostic and therapeutic work up is well developed.

Validation of the National Institute of Neurological Disorders and Stroke Spinal Cord Injury MRI Common Data Elements Instrument

2021 ◽  
Vol 42 (4) ◽  
pp. 787-793 ◽  
Author(s):  
J. Fisher ◽  
L. Krisa ◽  
D.M. Middleton ◽  
B.E. Leiby ◽  
J.S. Harrop ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Neurological Disorders ◽  
Common Data Elements ◽  
Cord Injury ◽  
Data Elements

scholarly journals Common data elements for spinal cord injury clinical research: a National Institute for Neurological Disorders and Stroke project

Spinal Cord ◽  
2015 ◽  
Vol 53 (4) ◽  
pp. 265-277 ◽  
Author(s):  
F Biering-Sørensen ◽  
S Alai ◽  
K Anderson ◽  
S Charlifue ◽  
Y Chen ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Clinical Research ◽  
Neurological Disorders ◽  
Common Data Elements ◽  
Cord Injury ◽  
Data Elements

scholarly journals Incorporation of the International Spinal Cord Injury Data Set elements into the National Institute of Neurological Disorders and Stroke Common Data Elements

Spinal Cord ◽  
2010 ◽  
Vol 49 (1) ◽  
pp. 60-64 ◽  
Author(s):  
F Biering-Sørensen ◽  
S Charlifue ◽  
M J DeVivo ◽  
S T Grinnon ◽  
N Kleitman ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Neurological Disorders ◽  
Data Set ◽  
Common Data Elements ◽  
Injury Data ◽  
Cord Injury ◽  
Data Elements

scholarly journals Recommendations for the National Institute for Neurologic Disorders and Stroke spinal cord injury common data elements for children and youth with SCI

Spinal Cord ◽  
2016 ◽  
Vol 55 (4) ◽  
pp. 331-340 ◽  
Author(s):  
M J Mulcahey ◽  
L C Vogel ◽  
M Sheikh ◽  
J C Arango-Lasprilla ◽  
M Augutis ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Children And Youth ◽  
Common Data Elements ◽  
Neurologic Disorders ◽  
Cord Injury ◽  
Data Elements

scholarly journals Transforming Research and Clinical Knowledge in Spinal Cord Injury (TRACK-SCI): an overview of initial enrollment and demographics

2020 ◽  
Vol 48 (5) ◽  
pp. E6 ◽  
Author(s):  
Rachel E. Tsolinas ◽  
John F. Burke ◽  
Anthony M. DiGiorgio ◽  
Leigh H. Thomas ◽  
Xuan Duong-Fernandez ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Treatment Options ◽  
Clinical Information ◽  
Surgical Approaches ◽  
Clinical Knowledge ◽  
Common Data Elements ◽  
New Therapeutic Approaches ◽  
Cord Injury

OBJECTIVETraumatic spinal cord injury (SCI) is a dreaded condition that can lead to paralysis and severe disability. With few treatment options available for patients who have suffered from SCI, it is important to develop prospective databases to standardize data collection in order to develop new therapeutic approaches and guidelines. Here, the authors present an overview of their multicenter, prospective, observational patient registry, Transforming Research and Clinical Knowledge in SCI (TRACK-SCI).METHODSData were collected using the National Institute of Neurological Disorders and Stroke (NINDS) common data elements (CDEs). Highly granular clinical information, in addition to standardized imaging, biospecimen, and follow-up data, were included in the registry. Surgical approaches were determined by the surgeon treating each patient; however, they were carefully documented and compared within and across study sites. Follow-up visits were scheduled for 6 and 12 months after injury.RESULTSOne hundred sixty patients were enrolled in the TRACK-SCI study. In this overview, basic clinical, imaging, neurological severity, and follow-up data on these patients are presented. Overall, 78.8% of the patients were determined to be surgical candidates and underwent spinal decompression and/or stabilization. Follow-up rates to date at 6 and 12 months are 45% and 36.3%, respectively. Overall resources required for clinical research coordination are also discussed.CONCLUSIONSThe authors established the feasibility of SCI CDE implementation in a multicenter, prospective observational study. Through the application of standardized SCI CDEs and expansion of future multicenter collaborations, they hope to advance SCI research and improve treatment.

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