YouTube as an On-line Disability Self-Management Tool in Persons With Spinal Cord Injury

2011 ◽  
Vol 16 (3) ◽  
pp. 84-92 ◽  
Author(s):  
Alexander Libin ◽  
Manon Schladen ◽  
Inger Ljungberg ◽  
Brenda Tsai ◽  
Sydney Jacobs ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Management Tool ◽  
Self Management ◽  
Cord Injury ◽  
On Line

scholarly journals Participatory Design of an Online Self-Management Tool for Users With Spinal Cord Injury: Qualitative Study

2018 ◽  
Vol 5 (1) ◽  
pp. e6 ◽  
Author(s):  
Sonya Allin ◽  
John Shepherd ◽  
Jennifer Tomasone ◽  
Sarah Munce ◽  
Gary Linassi ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Participatory Design ◽  
Management Tool ◽  
Self Management ◽  
Cord Injury

scholarly journals Pain and its impact on functioning and disability in manual wheelchair users with spinal cord injury: a protocol for a mixed-methods study

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e044152
Author(s):  
Mokgadi Kholofelo Mashola ◽  
Elzette Korkie ◽  
Diphale Joyce Mothabeng
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
South African ◽  
Phase 1 ◽  
Pain Medication ◽  
Self Management ◽  
Medication Misuse ◽  
Wheelchair Users ◽  
Manual Wheelchair ◽  
Cord Injury

IntroductionApproximately 80% of people with spinal cord injury experience clinically significant chronic pain. Pain (whether musculoskeletal or neuropathic) is consistently rated as one of the most difficult problems to manage and negatively affects the individual’s physical, psychological and social functioning and increases the risk of pain medication misuse and poor mental health. The aim of this study is to therefore determine the presence of pain and its impact on functioning and disability as well as to develop a framework for self-management of pain for South African manual wheelchair users with spinal cord injury.Methods and analysisCommunity-dwelling participants with spinal cord injury will be invited to participate in this three-phase study. Phase 1 will use a quantitative, correlational design to determine factors related to pain such as pectoralis minor length, scapular dyskinesis, wheelchair functioning, physical quality of life, community reintegration and pain medication misuse. Demographic determinants of pain such as age, gender, type of occupation, completeness of injury and neurological level of injury will also be investigated. Participants with pain identified in phase 1 will be invited to partake in a qualitative descriptive and contextually designed phase 2 to explore their lived experience of pain through in-depth interviews. The results of phases 1 and 2 will then be used with the assistance from experts to develop a framework for self-management of pain using a modified Delphi study. Data analysis will include descriptive and inferential statistics (quantitative data) and thematic content analysis (qualitative data).Ethics and disseminationApproval for this study is granted by the Faculty of Health Sciences Research Ethics Committee of the University of the Pretoria (approval number 125/2018). This study is registered with the South African National Health Research Database (reference GP201806005). This study’s findings will be shared in academic conferences and published in scientific peer-reviewed journals.

Expectations of a Mobile Self-Management App Intervention Among Individuals With Spinal Cord Injury

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512515334p1
Author(s):  
W. Ben Mortenson ◽  
Gurkaran Singh ◽  
Ethan Simpson ◽  
Megan McGillivray ◽  
Jared Adams ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Self Management ◽  
Cord Injury

Chronic disease self-management for individuals with stroke, multiple sclerosis and spinal cord injury

2011 ◽  
Vol 33 (13-14) ◽  
pp. 1136-1146 ◽  
Author(s):  
Robert C. Hirsche ◽  
Beverly Williams ◽  
Allyson Jones ◽  
Patricia Manns
Keyword(s):  
Multiple Sclerosis ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Chronic Disease ◽  
Self Management ◽  
Cord Injury

Using the Exploratory Sequential Design for Complex Intervention Development: Example of the Development of a Self-Management Program for Spinal Cord Injury

2020 ◽  
Vol 15 (1) ◽  
pp. 37-60 ◽  
Author(s):  
Sarah E. P. Munce ◽  
Timothy C. Guetterman ◽  
Susan B. Jaglal
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Complex Intervention ◽  
Intervention Development ◽  
Management Program ◽  
Sequential Design ◽  
Self Management ◽  
Sequential Approach ◽  
Cord Injury ◽  
Exploratory Sequential Design

In the exploratory sequential design, the qualitative phase occurs first and is followed by the quantitative phase. The methodological purpose of this article is to demonstrate how an exploratory sequential approach, including the use of a joint display, can be used for complex intervention development. This article presents and integrates the qualitative and quantitative findings from a series of previously published studies on the considerations for a tailored self-management program for individuals with spinal cord injury. This article serves as a reference for other researchers, clinicians, and/or other stakeholders on using the exploratory sequential design for complex intervention development. The exploratory sequential design should be used more broadly for the development of relevant and sustainable interventions.

scholarly journals Feasibility of a Web-Based Self-management Intervention for Intermittent Urinary Catheter Users With Spinal Cord Injury

2016 ◽  
Vol 43 (5) ◽  
pp. 529-538 ◽  
Author(s):  
Mary H. Wilde ◽  
James M. McMahon ◽  
Eileen Fairbanks ◽  
Judith Brasch ◽  
Robert Parshall ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Urinary Catheter ◽  
Self Management ◽  
Web Based ◽  
Management Intervention ◽  
Cord Injury

scholarly journals A Preliminary Evaluation of the Motivational Model of Pain Self-Management in Persons With Spinal Cord Injury–Related Pain

2008 ◽  
Vol 9 (7) ◽  
pp. 606-612 ◽  
Author(s):  
Ivan R. Molton ◽  
Mark P. Jensen ◽  
Warren Nielson ◽  
Diana Cardenas ◽  
Dawn M. Ehde
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Self Management ◽  
Preliminary Evaluation ◽  
Cord Injury ◽  
Motivational Model

scholarly journals Improving Self-Management Skills Among People With Spinal Cord Injury: Protocol for a Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
W Ben Mortenson ◽  
Patricia Branco Mills ◽  
Jared Adams ◽  
Gurkaran Singh ◽  
Megan MacGillivray ◽  
...  
Keyword(s):  
Health Care ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Care Utilization ◽  
Self Efficacy ◽  
Self Management ◽  
Care Utilization ◽  
Management Skills ◽  
Secondary Complications ◽  
Cord Injury

BACKGROUND Most people with spinal cord injury will develop secondary complications with potentially devastating consequences. Self-management is a key prevention strategy for averting the development of secondary complications and their recurrence. Several studies have shown that self-management programs improve self-management behaviors and health outcomes in individuals living with chronic conditions such as asthma, diabetes, hypertension, and arthritis. Given the burgeoning health care costs related to secondary complications, we developed an alternative electronic health–based implementation to facilitate the development of self-management skills among people with spinal cord injury. OBJECTIVE This study aims to evaluate the efficacy of a self-management app in spinal cord injury populations. The primary outcome is attainment of self-selected, self-management goals. Secondary outcomes include increases in general and self-management self-efficacy and reductions in self-reported health events, health care utilization, and secondary complications related to spinal cord injury. This study also aims to explore how the intervention was implemented and how the app was experienced by end users. METHODS This study will employ a mix of qualitative and quantitative methods. The quantitative portion of our study will involve a rater-blinded, randomized controlled trial with a stepped wedge design (ie, delayed intervention control group). The primary outcome is successful goal attainment, and secondary outcomes include increases in self-efficacy and reductions in self-reported health events, health care utilization, and secondary conditions related to spinal cord injury. The qualitative portion will consist of semistructured interviews with a subsample of the participants. RESULTS We expect that the mobile self-management app will help people with spinal cord injury to attain their self-management goals, improve their self-efficacy, reduce secondary complications, and decrease health care utilization. CONCLUSIONS If the results are positive, this study will produce credible new knowledge describing multiple outcomes that people with spinal cord injury realize from an app-based self-management intervention and support its implementation in clinical practice. CLINICALTRIAL ClinicalTrials.gov NCT03140501; http://clinicaltrials.gov/ct2/show/NCT03140501 (Archived by WebCite at http://www.webcitation.org/73Gw0ZlWZ) INTERNATIONAL REGISTERED REPOR PRR1-10.2196/11069

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