The changing face of healthcare: a patient’s experience

2021 ◽  
pp. 1-3
Author(s):  
Beth Greenaway
Keyword(s):  
Patient Journey ◽  
Central Aspect ◽  
Patient’S Experience

As technology becomes an increasingly central aspect of modern-day life, Beth Greenaway reflects on its role throughout her patient journey, what it contributes and what it threatens to take away

scholarly journals P.030 The journey with CIDP- a Canadian perspective

2019 ◽  
Vol 46 (s1) ◽  
pp. S21-S22
Author(s):  
D Hartlen ◽  
T Mikhail
Keyword(s):  
Peripheral Nerves ◽  
Unmet Needs ◽  
Chronic Inflammatory Demyelinating Polyradiculoneuropathy ◽  
Patient Records ◽  
Emotional States ◽  
Structured Interviews ◽  
Patient Journey ◽  
Patient’S Experience ◽  
Yearly Incidence ◽  
Canadian Perspective

Background: Chronic Inflammatory demyelinating polyradiculoneuropathy is a rare disorder of the peripheral nerves. A disease affecting up to 8.9 out of 100,000 people, and a yearly incidence of 1.6/100,000 people, CIDP is a condition that is treatable but still relatively unknown outside of the neuromuscular community. The purpose of this research, initiated by the GBS/CIDP Foundation, is to better understand a patient’s journey living with the disease and identify unmet needs. Methods: The research consists of a mix of structured interviews, digital ethnography and patient records. A total of 10 Canadian patients living with CIDP and their caregivers, 7 Canadian neurologists and 3 Canadian neuroscience nurses will be the subjects for our research. Results: In order to identify key interactions between patients and the healthcare system, the report will map a patient’s experience on 4 distinct planes. Clinical journey (ex: first symptoms, diagnosis, disease progression), Patient emotional journey (the emotional states the patient undergoes throughout his/her journey), Caregiver emotional journey, and Outcomes (ex: delays in care, damaged relationships, commitment to therapy). The report will identify key areas along the patient journey where more intervention is possible and where more research may be needed. Conclusions: The research is expected to be completed by April 2019.

Clinical Update: Pain and Suffering

2003 ◽  
Vol 8 (1) ◽  
pp. 5-5
Author(s):  
Sheila Wendler
Keyword(s):  
Subjective Experience ◽  
Personal Injury ◽  
Treatment Interventions ◽  
Medical Expenses ◽  
Affective Component ◽  
Pain Behaviors ◽  
The Social ◽  
Patient’S Experience ◽  
Pain And Suffering ◽  
And Training

Abstract Attorneys use the term pain and suffering to indicate the subjective, intangible effects of an individual's injury, and plaintiffs may seek compensation for “pain and suffering” as part of a personal injury case although it is not usually an element of a workers’ compensation case. The AMA Guides to the Evaluation of Permanent Impairment (AMA Guides), Fifth Edition, provides guidance for rating pain qualitatively or quantitatively in certain cases, but, because of the subjectivity and privateness of the patient's experience, the AMA Guides offers no quantitative approach to assessing “pain and suffering.” The AMA Guides also cautions that confounders of pain behaviors and perception of pain include beliefs, expectations, rewards, attention, and training. “Pain and suffering” is challenging for all parties to value, particularly in terms of financial damages, and using an individual's medical expenses as an indicator of “pain and suffering” simply encourages excessive diagnostic and treatment interventions. The affective component, ie, the uniqueness of this subjective experience, makes it difficult for others, including evaluators, to grasp its meaning. Experienced evaluators recognize that a myriad of factors play a role in the experience of suffering associated with pain, including its intensity and location, the individual's ability to conceptualize pain, the meaning ascribed to pain, the accompanying injury or illness, and the social understanding of suffering.

Measuring the Patient's Experience of VA Health Care

2004 ◽  
Author(s):  
Charles Humble ◽  
Jim Schaefer ◽  
Barbara Fleming
Keyword(s):  
Health Care ◽  
Patient’S Experience

Persönliche Elektronische Patientenakte: Die Digitalisierung der Patient Journey

2019 ◽  
Vol 24 (11) ◽  
pp. 105-107
Author(s):  
Oliver Heinze ◽  
Gerd Schneider
Keyword(s):  
Elektronische Patientenakte ◽  
Patient Journey

Die am Universitätsklinikum Heidelberg entwickelte Persönliche Gesundheits- und Patientenakte (PEPA) ermöglicht den einrichtungsübergreifenden, elektronischen Datenaustausch des Universitätsklinikums mit seinen Partner-Krankenhäusern, mit niedergelassenen Ärzten und den Patienten in der Metropol-region Rhein-Neckar.

The Real Challenge of Plato's Republic

2019 ◽  
Vol 1 (2) ◽  
pp. 149-170
Author(s):  
Russell E. Jones
Keyword(s):  
The Real ◽  
Central Aspect ◽  
Real Challenge

Glaucon's Challenge at the beginning of Book 2 of Plato's Republic has long prompted interpretive difficulties, due to a misunderstanding of its central aspect. The task of this essay is to correct that misunderstanding, at which point The Challenge can be seen to be as simple and powerful as Glaucon seems to think it is. The Challenge is simple, insofar as it requires Socrates to show that justice is always good, that one is always better off cultivating a just character and acting justly than otherwise (and that's all there is to it). And it is powerful, insofar as Glaucon and Adeimantus provide plausible reasons to think not simply that justice is not always good, but that fully developed injustice is always good.

Nurse led parathyroid clinics - Improving the patient journey

2018 ◽  
Author(s):  
Alison Milne ◽  
Lynne Murray ◽  
Claire Stirling ◽  
Morag Middleton
Keyword(s):  
Patient Journey

Starting points for therapeutic change

2020 ◽  
Vol 16 (2) ◽  
pp. 117-128
Author(s):  
Claudio Scarvaglieri
Keyword(s):  
Societal Perspective ◽  
Therapeutic Change ◽  
Psychodynamic Therapy ◽  
Second Step ◽  
Change Processes ◽  
Collective Knowledge ◽  
Patient’S Experience ◽  
Client Centered Therapy ◽  
Therapy Sessions ◽  
Crucial Part

Based on a corpus of 70 tape-recorded therapy sessions (client-centered therapy, psychodynamic therapy), this paper presents analyses of therapists’ interventions that have the potential to trigger change processes. Using a conversation analytic approach, we identify utterances that re-formulate the patient’s experience from a different perspective. In a second step, we draw on concepts from cognitive and pragmatic linguistics, mainly “frame” and “category”, to analyze the conceptual side of these rewordings. We show that, besides processes of general abstraction, the conceptualization of the patient’s experience from a societal perspective is a crucial part of the rewordings. The verbal re-framing creates a potential for accessing stocks of societal knowledge that would not have been accessible based on the patient’s initial, individualistic and often erratic presentation of events. By changing the wording an experience is referred to, the therapist thus creates links to established collective knowledge about experiences of this category. Once such links to collective knowledge have been created, it then becomes possible to understand differently how the experience in question came to pass, which features it is characterized by and how it can be dealt with in a way that is collectively known to be helpful.

The Psoriasis Patient Journey: Progression from Topical to Biologic Treatment for Psoriasis Patients in the United States

2018 ◽  
Vol 2 ◽  
pp. S13
Author(s):  
Jashin J Wu ◽  
Minyi Lu ◽  
Karen A Veverka ◽  
Maartje Smulders ◽  
Eros Papademetriou ◽  
...  
Keyword(s):  
United States ◽  
Psoriasis Patient ◽  
The United States ◽  
Biologic Treatment ◽  
Patient Journey

Abstract not available. Disclosures: Study sponssored by LEO Pharma. Copyright 2018 SKIN

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