scholarly journals The Public Interest Liaison Group?s Contribution to the Future of Environmental Health Research

2005 ◽  
Author(s):  
Lisa M. Greenhill
Keyword(s):  
Environmental Health ◽  
Public Interest ◽  
Health Research ◽  
The Public ◽  
Environmental Health Research ◽  
The Future

Environmental Health Research and Ethics

2019 ◽  
pp. 753-764
Author(s):  
David B. Resnik
Keyword(s):  
Environmental Health ◽  
Health Research ◽  
Ethical Issues ◽  
Human Subjects ◽  
Environmental Interventions ◽  
Environmental Health Research ◽  
Research Designs ◽  
Research Regulations ◽  
Kennedy Krieger Institute ◽  
Privacy And Confidentiality

This chapter discusses some of the key ethical issues that arise in environmental health research involving human subjects, including returning individualized research results, protecting privacy and confidentiality, research on environmental interventions, intentional exposure studies, research regulations, autonomy, beneficence, informed consent, payments to subjects, and protecting vulnerable human subjects. The chapter will discuss issues that are common to all research designs, as well as those unique to certain types of designs, such as intentional exposure studies. It will also address ethical issues that arose in two important cases, the Kennedy Krieger Institute lead abatement study, and the Children’s Environmental Exposure Research Study.

scholarly journals Public Interest, Health Research and Data Protection Law: Establishing a Legitimate Trade-Off between Individual Control and Research Access to Health Data

Laws ◽  
2020 ◽  
Vol 9 (1) ◽  
pp. 6 ◽  
Author(s):  
Mark J. Taylor ◽  
Tess Whitton
Keyword(s):  
Public Interest ◽  
Data Protection ◽  
Health Research ◽  
Health Data ◽  
Personal Health ◽  
Positive Contribution ◽  
Data Governance ◽  
The Public ◽  
Individual Control ◽  
Data Protection Law

The United Kingdom’s Data Protection Act 2018 introduces a new public interest test applicable to the research processing of personal health data. The need for interpretation and application of this new safeguard creates a further opportunity to craft a health data governance landscape deserving of public trust and confidence. At the minimum, to constitute a positive contribution, the new test must be capable of distinguishing between instances of health research that are in the public interest, from those that are not, in a meaningful, predictable and reproducible manner. In this article, we derive from the literature on theories of public interest a concept of public interest capable of supporting such a test. Its application can defend the position under data protection law that allows a legal route through to processing personal health data for research purposes that does not require individual consent. However, its adoption would also entail that the public interest test in the 2018 Act could only be met if all practicable steps are taken to maximise preservation of individual control over the use of personal health data for research purposes. This would require that consent is sought where practicable and objection respected in almost all circumstances. Importantly, we suggest that an advantage of relying upon this concept of the public interest, to ground the test introduced by the 2018 Act, is that it may work to promote the social legitimacy of data protection legislation and the research processing that it authorises without individual consent (and occasionally in the face of explicit objection).

scholarly journals European Birth Cohorts for Environmental Health Research

2012 ◽  
Vol 120 (1) ◽  
pp. 29-37 ◽  
Author(s):  
Martine Vrijheid ◽  
Maribel Casas ◽  
Anna Bergström ◽  
Amanda Carmichael ◽  
Sylvaine Cordier ◽  
...  
Keyword(s):  
Environmental Health ◽  
Health Research ◽  
Birth Cohorts ◽  
Environmental Health Research

scholarly journals Lexical neutrality in environmental health research: Reflections on the term walkability

2017 ◽  
Vol 17 (1) ◽  
Author(s):  
Samantha Hajna ◽  
Nancy A. Ross ◽  
Simon J. Griffin ◽  
Kaberi Dasgupta
Keyword(s):  
Environmental Health ◽  
Health Research ◽  
Environmental Health Research
Sign in / Sign up

Export Citation Format

Share Document