scholarly journals Revalidation of the Holistic Comfort Questionnaire – Family for caregivers of people with advanced chronic disease

2016 ◽  
Vol IV Série (11) ◽  
pp. 91-100 ◽  
Author(s):  
Rita Marques ◽  
Maria Dixe ◽  
Ana Querido ◽  
Patrícia Sousa
Keyword(s):  
Chronic Disease ◽  
Advanced Chronic Disease

scholarly journals The Burden of Symptoms Among Community-Dwelling Older Persons With Advanced Chronic Disease

2004 ◽  
Vol 164 (21) ◽  
pp. 2321 ◽  
Author(s):  
Lisa M. Walke ◽  
William T. Gallo ◽  
Mary E. Tinetti ◽  
Terri R. Fried
Keyword(s):  
Chronic Disease ◽  
Older Persons ◽  
Community Dwelling ◽  
Advanced Chronic Disease

scholarly journals Variations in the cost of formal and informal health care for patients with advanced chronic disease and refractory breathlessness: A cross-sectional secondary analysis

2017 ◽  
Vol 31 (4) ◽  
pp. 369-377 ◽  
Author(s):  
Mendwas D Dzingina ◽  
Charles C Reilly ◽  
Claudia Bausewein ◽  
Caroline J Jolley ◽  
John Moxham ◽  
...  
Keyword(s):  
Palliative Care ◽  
Chronic Disease ◽  
Standard Deviation ◽  
Advanced Disease ◽  
Secondary Analysis ◽  
Formal Care ◽  
Cross Sectional ◽  
Informal Carers ◽  
The Cost ◽  
Advanced Chronic Disease

Background: Refractory breathlessness in advanced chronic disease leads to high levels of disability, anxiety and social isolation. These result in high health-resource use, although this is not quantified. Aims: To measure the cost of care for patients with advanced disease and refractory breathlessness and to identify factors associated with high costs. Design: A cross-sectional secondary analysis of data from a randomised controlled trial. Setting/participants: Patients with advanced chronic disease and refractory breathlessness recruited from three National Health Service hospitals and via general practitioners in South London. Results: Of 105 patients recruited, the mean cost of formal care was £3253 (standard deviation £3652) for 3 months. The largest contributions to formal-care cost were hospital admissions (>60%), and palliative care contributed <1%. When informal care was included, the total cost increased by >250% to £11,507 (standard deviation £9911). Increased patient disability resulting from breathlessness was associated with high cost (£629 per unit increase in disability score; p = 0.006). Increased breathlessness on exertion and the presence of an informal carer were also significantly associated with high cost. Patients with chronic obstructive pulmonary disease tended to have higher healthcare costs than other patients. Conclusion: Informal carers contribute significantly to the care of patients with advanced disease and refractory breathlessness. Disability resulting from breathlessness is an important clinical cost driver. It is important for policy makers to support and acknowledge the contributions of informal carers. Further research is required to assess the clinical- and cost-effectiveness of palliative care interventions in reducing disability resulting from breathlessness in this patient group.

scholarly journals Optimal participation in decision-making in advanced chronic disease: perspectives of patients, relatives and physicians

2021 ◽  
Vol 10 (3) ◽  
pp. 10-10
Author(s):  
Adam Houska ◽  
Anna Tučková ◽  
Karolína Vlčková ◽  
Kristýna Poláková ◽  
Martin Loučka
Keyword(s):  
Decision Making ◽  
Chronic Disease ◽  
Participation In Decision Making ◽  
Advanced Chronic Disease

scholarly journals Refusal of Medical and Surgical Interventions by Older Persons with Advanced Chronic Disease

2007 ◽  
Vol 22 (7) ◽  
pp. 982-987 ◽  
Author(s):  
Marc D. Rothman ◽  
Peter H. Van Ness ◽  
John R. O’Leary ◽  
Terri R. Fried
Keyword(s):  
Chronic Disease ◽  
Older Persons ◽  
Surgical Interventions ◽  
Advanced Chronic Disease
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