scholarly journals Ομαδική ψυχοεκπαιδευτική παρέμβαση σε ασθενείς με διαβήτη τύπου ΙΙ με στόχο τη βελτίωση της ποιότητας ζωής τους

2014 ◽  
Author(s):  
Φλωρεντία Μπακομήτρου

Σκοπός της έρευνας αυτής είναι η αξιολόγηση ενός προγράμματος ομαδικής ψυχοεκπαίδευσης που εφαρμόστηκε σε ασθενείς με Σακχαρώδη Διαβήτη τύπου 2 (ΣΔτ2). Εξήντα ασθενείς με ΣΔτ2, οι οποίοι παρακολουθούνταν σε εξωτερική βάση στο Διαβητολογικό Κέντρο του Γ.Ν.Ν. «Άγιος Παντελεήμων», χωρίστηκαν σε τρεις ομάδες, την Ομάδα 1, την Ομάδα 2 και την Ομάδα Ελέγχου, ενώ δε διέφεραν ως προς την ηλικία, το βάρος, το Δείκτη Μάζας Σώματος, τη διάρκεια του ΣΔτ2, τη ληφθείσα αγωγή και τη Γλυκοζυλιωμένη Αιμοσφαιρίνη (HbA1c) πριν την παρέμβαση. Τα ψυχομετρικά εργαλεία που χορηγήθηκαν στους συμμετέχοντες ήταν τα ακόλουθα: ένα αυτοσχέδιο Ερωτηματολόγιο Δημογραφικών Στοιχείων, το Ερωτηματολόγιο για την Ποιότητα Ζωής στο Σακχαρώδη Διαβήτη (Audit of Diabetes Dependent Quality of Life Questionnaire, ADDQoL-19) (Bradley, 1996), το Ερωτηματολόγιο Ικανοποίησης από τη Θεραπεία στο Διαβήτη (Diabetes Treatment Satisfaction Questionnaire–Status and Change Versions, D.T.S.Qs.) (Bradley, 1994), η Κλίμακα Άγχους και Κατάθλιψης στο Γενικό Νοσοκομείο (Hospital Anxiety and Depression Scale-HADS) (Zigmond & Snaith, 1983), το Αναθεωρημένο Ερωτηματολόγιο των Αντιλήψεων για την Ασθένεια-Διαβήτης (The Revised Illness Perception Questionnaire-Diabetes) (Moss-Morris et al., 2002), η Κλίμακα των Εμποδίων στην Αυτο-φροντίδα του Διαβήτη (Barriers to Diabetes Self-Care Scale) (Glasgow, 1994) και η Κλίμακα Αξιολόγησης της Συμπεριφοράς της Οικογένειας απέναντι στο Σακχαρώδη Διαβήτη (Diabetes Family Behavior Checklist-DFBC) (Schafer, McCaul & Glasgow, 1986). Παράλληλα, υπολογίστηκε και ο βιοχημικός δείκτης της Γλυκοζυλιωμένης Αιμοσφαιρίνης (HbA1c). Η Ομάδα 1 (Ν=20) ακολούθησε ένα δομημένο πρόγραμμα ψυχο-εκπαίδευσης και ψυχοθεραπείας 15 εβδομαδιαίων συναντήσεων διάρκειας τριών ωρών, η Ομάδα 2 (Ν=20) ακολούθησε ένα πρόγραμμα ψυχο-εκπαίδευσης 5 εβδομαδιαίων συναντήσεων διάρκειας τριών ωρών, ενώ η Ομάδα Ελέγχου (Ν=20) συμμετείχε στην κλασική ιατρική εξέταση και δεν ακολούθησε κανένα πρόγραμμα ψυχολογικής παρέμβασης. Οι ασθενείς των τριών ομάδων συμμετείχαν και σε μια συνάντηση επανελέγχου 3 μήνες μετά την ολοκλήρωση της παρέμβασης. Σύμφωνα με τα αποτελέσματα της παρούσας έρευνας φάνηκε ότι η ομαδική ψυχολογική παρέμβαση (πρόγραμμα ψυχο-εκπαίδευσης και ψυχοθεραπείας ή αποκλειστικά πρόγραμμα ψυχο-εκπαίδευσης) επέδρασε θετικά στη γλυκαιμική ρύθμιση (Γλυκοζυλιωμένη Αιμοσφαιρίνη-HbA1c) των ατόμων με ΣΔτ2, ενώ παρατηρήθηκε επιπλέον θετική επίδραση σε μια σειρά σημαντικών ψυχοκοινωνικών μεταβλητών (Ποιότητα Ζωής, Ικανοποίηση από τη θεραπεία, Άγχος, Εξέλιξη της ασθένειας (οξεία/χρόνια), Εμπόδια στη φροντίδα της διατροφής, Εμπόδια στη λήψη φαρμάκων, Συνοχή της ασθενείας, Συναισθηματικές αναπαραστάσεις). Η προαναφερθείσα θετική επίδραση διατηρήθηκε και μετά το τέλος της παρέμβασης σε αρκετές μεταβολικές και ψυχοκοινωνικές παραμέτρους. Θα πρέπει να σημειωθεί εδώ ότι οι Σχέσεις με την Οικογένεια δε φάνηκαν να επηρεάζονται από την παρέμβαση που εφαρμόστηκε στους διαβητικούς ασθενείς.

2015 ◽  
Vol 33 (1) ◽  
pp. 39-53 ◽  
Author(s):  
Helena Sousa ◽  
Leonor Lencastre ◽  
Marina Guerra

ResumoObjetivos: Caracterizar as variáveis alexitimia, espiritualidade (dimensão crenças espirituais/religiosas e dimensão esperança/otimismo), assertividade e qualidade de vida de mulheres com cancro de mama.Método: A amostra é composta por 85 mulheres com cancro de mama de um Hospital do Grande Porto, com uma média de 47 anos e maioritariamente casadas. As doentes foram avaliadas através de 6 instrumentos de autopreenchimento: Questionário Sociodemográfico e Clínico; Hospital Anxiety and Depression Scale (HADS); Escala de Alexitimia de Toronto (TAS-20); Escala de Avaliação da Espiritualidade; Escala de Assertividade de Rathus e The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQC-30, v.3.0). Resultados: Os resultados indicam que a alexitimia se correlaciona de forma negativa com a dimensão esperança/otimismo e com a assertividade e que estas três variáveis têm influência na qualidade de vida. Mostram ainda a existência de uma correlação positiva entre a idade e a qualidade de vida global, bem como uma correlação negativa do número de anos de escolaridade com a alexitimia e com a dimensão crenças. O modelo preditor da qualidade de vida obtido exclui a influência da assertividade e mostra o impacto negativo da alexitimia e a influência positiva da dimensão esperança/otimismo na qualidade de vida de mulheres com cancro de mama, mesmo depois de controladas as variáveis ansiedade e depressão.


2016 ◽  
Vol 45 (2) ◽  
pp. 93-108 ◽  
Author(s):  
Charlotte J. Auer ◽  
Tobias Kube ◽  
Johannes A. C. Laferton ◽  
Stefan Salzmann ◽  
Meike Shedden-Mora ◽  
...  

Zusammenfassung. Theoretischer Hintergrund: Depressivität und Ängstlichkeit beeinträchtigen den Behandlungserfolg von herzchirurgischen Patienten. Fragestellung: Untersucht wurde, ob und wie präoperative Patientenerwartungen mit postoperativer Depressivität und Ängstlichkeit zusammenhängen und welche präoperativen Erwartungen hierbei den höchsten prädiktiven Wert haben. Methoden: 124 aortocoronare Bypass-Patienten bearbeiteten eine Woche vor der Operation einen Fragebogen, der verschiedene Aspekte von Erwartungen mischt (Positive Health Expectation Questionnaire; PHES) und einen Fragebogen, der einzelne Erwartungsaspekte getrennt erfasst (Expected Illness Perception Questionnaire, IPQ-E) und eine Woche vor sowie eine Woche nach der Operation Fragen zu ihrer Depressivität und Ängstlichkeit (Hospital Anxiety and Depression Scale (HADS)). Ergebnisse: Postoperative Depressivität wird durch präoperative Erwartungen vorhergesagt (R2 = 0.32, F = 3.13, p = .02). Der einzig signifikante Prädiktor hierbei sind positive Gesundheitserwartungen gemessen mit dem PHES. Auch postoperative Ängstlichkeit wird durch präoperative Erwartungen vorhergesagt (R2 = 0.27, F = 2.55, p < .05). Bei der Vorhersage postoperativer Ängstlichkeit haben erwartete Konsequenzen gemessen mit dem IPQ-E den stärksten prädiktiven Wert. Schlussfolgerungen: Die Studie belegt die Relevanz von präoperativen Erwartungen bei herzchirurgischen Patienten. Interventionen, die auf die Verringerung von Depressivität herzchirurgischer Patienten abzielen, sollten den Fokus auf verschiedene Aspekte von Erwartungen legen. Bei der Verringerung postoperativer Ängstlichkeit könnten hingegen einzeln erfasste Erwartungsaspekte von Bedeutung sein.


2021 ◽  
Vol 39 (1) ◽  
pp. 77-91
Author(s):  
Cátia Andreia Clara ◽  
Sara Otília Marques Monteiro ◽  
Ana Cláudia Pereira Bártolo

Lung cancer (LC) is one of the most common types of cancer disease worldwide. Studies in the field show that the appearance of a pathology of this form causes changes not only in the patient’s life, namely psychological problems, functional limitations and poorer health due to the clinical consequences of treatments, but also in their family, where caregivers often face the challenge of providing long-term daily care that induces a physical, psychosocial and financial burden (Borges et al., 2017; Hewitt et al., 2003; Tan et al., 2018). The main objective of the present study is to compare and relate the two groups (patients and caregivers) considering the quality of life (QoL) and symptoms of psychological distress (anxiety and depression). The total sample consisted of 30 patient/caregiver dyads. The instruments used were: Hospital Anxiety and Depression Scale; European Organization for Research and Treatment of Quality of Life Questionnaire (EORTC QLQ C-30) and its specific module for lung cancer (LC13); Caregiver Oncology Quality of Life Questionnaire (CarGOQoL) and Zarit Burden Interview Scale (ZBI). The results suggest the influence of depressive symptomatology on patients’ QoL [F(1)=6.390; p<0.05] and depressive and anxious symptomatology and burden on caregivers’ QoL [F(3)=7.815; p<0.001]. A positive association was found between depressive symptomatology of patients and caregivers (r=0.458; p=0.011) and differences in anxious symptomatology were also observed, with a higher result in the patient’s group.


2010 ◽  
Vol 20 (6) ◽  
pp. 1017-1024 ◽  
Author(s):  
Soo Hyun Kim ◽  
Sokbom Kang ◽  
Yong-Man Kim ◽  
Byoung-Gie Kim ◽  
Seok Ju Seong ◽  
...  

Purpose:With increasing survival rates of women with cervical cancer, quality of life of the survivors becomes a more important issue. However, little is known about the mental health of cervical cancer survivors (CCSs). This study investigated the prevalence of anxiety and depression in CCSs compared with healthy controls and identified factors associated with multidimensional model including sociodemographic, clinical, functioning and well-being, and symptom variables.Methods:The participants included 828 CCSs (mean time since treatment, 6.9 years) enrolled at 6 tertiary hospitals from 1983 to 2004 and 500 control subjects selected randomly from a representative sample of Korean women. Subjects completed the following questionnaires: the Hospital Anxiety and Depression Scale, the European Organization for Research and Treatment of Cancer Quality of Life questionnaire-C30, its Cervical Cancer module, and the McGill Quality of Life Questionnaire.Results:Hospital Anxiety and Depression Scale-defined anxiety in CCSs did not differ from that in healthy controls (39.5% and 32.2%, respectively; P = 0.218). Anxiety was significantly more prevalent in younger CCSs (≤50 years) than in controls (40% vs 26.4%, respectively; P < 0.001). Hospital Anxiety and Depression Scale-defined depression was even lower in CCSs than in controls (34.6% vs 48.0%, respectively; P < 0.001). In multivariate analyses, the Hospital Anxiety and Depression Scale-defined anxiety and depression in CCSs were commonly associated with financial difficulty, poor body image, sexual inactivity, and low existential well-being. Low support and insomnia were uniquely related to anxiety, with older age and decrement role function uniquely related to depression. However, disease-related clinical factors were not related to either anxiety or depression.Conclusions:Cervical cancer survivors showed relatively good mental health compared with healthy controls; however, women who have low functioning and well-being could be at high risk of anxiety or depression or both.


2006 ◽  
Vol 120 (12) ◽  
pp. 1049-1054 ◽  
Author(s):  
P Martinez-Devesa ◽  
M L Barnes ◽  
C J Alcock ◽  
R S C Kerr ◽  
C A Milford

In general, patients with malignant tumours of the skull base have a poor prognosis. Treatment may have a disfiguring physical and disabling mental effect on patients.To evaluate the effect of treatment on physical and mental quality of life in patients with skull base malignancy, we conducted a cross-sectional patient survey of 18 patients treated for such tumours, using the University of Washington (version 4) quality of life questionnaire and the hospital anxiety and depression scale.The total quality of life score (median value) was 980 (550–1125). Patients with anterior skull base malignancy scored lower than those with lateral skull base malignancy (p=0.003).In general, the worst individual domain scores were: mood (64 per cent); activity (69 per cent); and, specifically for patients with anterior skull base malignancy, taste (54 per cent, p=0.004) and anxiety (60 per cent, p=0.034).One-third of skull base cancer patients were at risk of suffering from mental distress and psychiatric morbidity (indicated as a score of more than seven on the hospital anxiety and depression scale).


2019 ◽  
Vol 11 (2) ◽  
Author(s):  
Carlos Queiroz do Nascimento ◽  
Edilma Fernandes Fireman ◽  
Sônia Oliveira Lima ◽  
João Araújo Barros-Neto

OBJETIVO: Comparar a percepção da qualidade de vida (QV) e a presença de sintomas ansiosos e depressivos de pacientes em tratamento quimioterápico, usuários de um hospital público e de um privado na cidade de Maceió/AL.MÉTODOS: Estudo do tipo transversal observacional, realizado com pacientes em tratamento oncológico com quimioterápicos em um hospital público e outro privado de Maceió no período de novembro de 2015 a julho de 2016. A QV foi avaliada por meio do protocolo European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire (EORTC) e a presença de sintomas ansiosos e depressivos foram observados pela Escala Hospital Anxiety and Depression (HAD). Os dados coletados foram organizados em banco de dados eletrônicos e analisados quantitativamente por meio do software estatístico Statistical Package for Social Sciences (SPSS), respeitando a natureza de distribuição das variáveis estudadas.RESULTADOS: A amostra constituiu-se de 65 pacientes, 33 (50,9%) foram atendidos em hospital conveniado ao Sistema Único de Saúde (SUS) e 32 (49,1%) no hospital particular. A média da idade foi de 54,2 anos (±11,8 DP), não havendo diferença entre os grupos (p=0,184). A maioria da amostra foi do sexo feminino (67,7%). Avaliando a frequência de indivíduos com sinais de ansiedade, observou-se que o grupo de indivíduos atendidos através do convênio particular sofre com maior possibilidade de apresentar sinais de ansiedade em comparação com o grupo atendido pelo convênio SUS (n=26, 81,2% versus n=7, 21,2%; respectivamente) (p<0,001). A frequência de indivíduos com sintomas depressivos foi maior no grupo atendido pelo convênio particular (n=27, 84,3% versus n=7, 21,2%; respectivamente) (p<0,001). Nas funções física, cognitiva e social, a média foi de 73,2 pontos para pacientes do SUS e 62,6 pontos para pacientes atendidos em hospital particular (p=0,005). Nas escalas de sintomas, a média foi de 29,7 para pacientes do hospital público e 34,9 para clientes do hospital particular (p = 0,043).CONCLUSÕES: A doença e o tratamento quimioterápico parecem exercer impacto mais negativo sobre a QV dos pacientes em tratamento pelo convênio particular. Entretanto, a presença de sintomas ansiosos e depressivos foi bastante frequente nos usuários de ambos os serviços hospitalares.


2020 ◽  
Vol 28 (11) ◽  
pp. 5469-5478
Author(s):  
Yemataw Wondie ◽  
Andreas Hinz

Abstract Purpose Cancer is of increasing prevalence in less-developed countries. However, research on the patients’ quality of life (QoL) in these countries is very limited. The aim of this study was to examine QoL of cancer patients in Africa. Method A sample of 256 cancer patients treated in an Ethiopian hospital was examined with the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire EORTC QLQ-C30, the Multidimensional Fatigue Inventory, and the Hospital Anxiety and Depression Scale. A group of 1664 German cancer patients served as a comparison group. Results Most of the scales of the EORTC QLQ-C30 showed acceptable reliability in the Ethiopian sample. Compared with the German cancer patients, the Ethiopian patients showed lower QoL in most dimensions, especially in financial difficulties, physical functioning, pain, and appetite loss (effect sizes between 0.52 and 0.75). Illiteracy, tumor stage, and treatment (surgery and chemotherapy) were associated with QoL in the Ethiopian sample. QoL was strongly correlated with fatigue, anxiety, and depression. Conclusion The EORTC QLQ-C30 is a suitable instrument for measuring QoL in Ethiopia. The detriments in QoL in the Ethiopian patients indicate specific cancer care needs for the patients in a developing country.


Author(s):  
Susan DeSanto-Madeya ◽  
Jennifer Tjia ◽  
Christina Fitch ◽  
Amy Wachholtz

Background: This study examined the feasibility, burden and acceptability of a legacy-making intervention in adults with cancer and preliminary effects on patient quality-of-life (QOL) measures. Method: We conducted a Stage IB pilot, intervention study. The intervention was a digital video legacy-making interview of adults with advanced cancer to create a digital video of their memories and experiences. Baseline and post-video QOL assessments included: Functional Assessment of Cancer Therapy—General (FACT-G), Patient Dignity Inventory (PDI), Hospital Anxiety and Depression Scale (HADS), and Emotional Thermometers for distress, anxiety, anger, help and depression. Participants received a final copy of the digital video for distribution to their families. Results: Adults (n = 16) ages 38-83 years old with an advanced or life-limiting cancer diagnosis completed an intervention. Feasibility and acceptability was strong with 0% attrition. While the pilot study was not powered for quantitative significance, there were changes from baseline to post-intervention in the participants’ total or subscale FACT-G scores, PDI, HADS anxiety or depression scores, and Emotional Thermometer scores. Conclusions: A digital video legacy-making intervention is feasible for adults with cancer without significant negative outcomes for individuals completing the study. It remains unclear whether this intervention contributes to positive quality of life outcomes.


Sign in / Sign up

Export Citation Format

Share Document