Palliative care in paediatric oncology

2004 ◽  
pp. 684-703
Author(s):  
Richard Hain ◽  
Janet Hardy
Keyword(s):  
Palliative Care ◽  
Paediatric Oncology

scholarly journals Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

2015 ◽  
Vol 36 (2) ◽  
pp. 56-62 ◽  
Author(s):  
Adriana Ferreira da Silva ◽  
Helena Becker Issi ◽  
Maria da Graça Corso da Motta ◽  
Daisy Zanchi de Abreu Botene
Keyword(s):  
Palliative Care ◽  
Multidisciplinary Team ◽  
Structured Interview ◽  
Paediatric Oncology ◽  
Lessons Learned ◽  
Team Members ◽  
Descriptive Research ◽  
The Family ◽  
Research Questions ◽  
Oncology Unit

OBJECTIVE: To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD: Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS: The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS: The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the child's care.

Schooling as a part of palliative care in paediatric oncology

1997 ◽  
Vol 11 (2) ◽  
pp. 133-139 ◽  
Author(s):  
E. Bouffet ◽  
V. Zucchinelli ◽  
P. Costanzo ◽  
P. Blanchard
Keyword(s):  
Palliative Care ◽  
Paediatric Oncology

scholarly journals GPs and paediatric oncology palliative care: a Q methodological study

2017 ◽  
Vol 10 (2) ◽  
pp. e11-e11 ◽  
Author(s):  
Sue Neilson ◽  
Faith Gibson ◽  
Stephen Jeffares ◽  
Sheila M Greenfield
Keyword(s):  
Palliative Care ◽  
Q Methodology ◽  
Paediatric Oncology ◽  
Diverse Range ◽  
Training Support ◽  
Team Player ◽  
Using Data ◽  
Consensus Time ◽  
The Uk ◽  
Knowledge Deficits

ObjectiveThis mixed-methods study set in the West Midlands region of the UK demonstrates the effectiveness of Q methodology in examining general practitioners' (GPs') perception of their role in children's oncology palliative care.MethodsUsing data obtained from the analysis of semistructured interviews with GPs who had cared for a child receiving palliative care at home and bereaved parents, 50 statements were identified as representative of the analysis findings. 32 GPs with a non-palliative child with cancer on their caseload were asked to rank the statements according to their level of agreement/disagreement on a grid. They were then asked to reflect and comment on the statements they most and least agreed with. The data were analysed using a dedicated statistical software package for Q analysis PQMethod V.2.20 (Schmolck 2012). A centroid factor analysis was undertaken initially with 7 factors then repeated for factors 1–6. Varimax and manual flagging was then completed.Results4 shared viewpoints were identified denoting different GP roles: the GP, the compassionate practitioner, the team player practitioner and the pragmatic practitioner. In addition consensus (time pressures, knowledge deficits, emotional toll) and disagreement (psychological support, role, experiential learning, prior relationships) between the viewpoints were identified and examined.ConclusionsQ methodology, used for the first time in this arena, identified 4 novel and distinct viewpoints reflecting a diverse range of GP perspectives. Appropriately timed and targeted GP education, training, support, in conjunction with collaborative multiprofessional working, have the potential to inform their role and practice across specialities.

Creation of the paediatric oncology unit pain and palliative care clinic

2020 ◽  
Vol 3 ◽  
Author(s):  
Valesca Paes ◽  
Erica Ferreira ◽  
Geisa Souza ◽  
Maria Freitas
Keyword(s):  
Palliative Care ◽  
Paediatric Oncology ◽  
Care Clinic ◽  
Oncology Unit

Place and Provision of Palliative Care for Children With Progressive Cancer: A Study by the Paediatric Oncology Nurses’ Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group

2007 ◽  
Vol 25 (28) ◽  
pp. 4472-4476 ◽  
Author(s):  
Jan Vickers ◽  
Anne Thompson ◽  
Gary S. Collins ◽  
Margaret Childs ◽  
Richard Hain
Keyword(s):  
Palliative Care ◽  
United Kingdom ◽  
Home Visit ◽  
Paediatric Oncology ◽  
Home Death ◽  
Incurable Cancer ◽  
Cancer Study Group ◽  
Care Working Group ◽  
Hospital Visits ◽  
Team Model

Purpose The purpose of this study was to describe and show effectiveness of the outreach team model of palliative care (PC) in allowing home death for children with incurable cancer. Patients and Methods Over 7 months, 185 children from 22 United Kingdom oncology centers were recruited to a prospective questionnaire survey. Results One hundred sixty-four children from 22 centers died (median age, 8.7 years; 88 boys, 76 girls). One hundred twenty-six families completed two or more questionnaires. One hundred twenty (77%) of 155 with complete data died at home. Preference for home death was recorded in 90 (68%) of 164 and 132 (80%) 164 at study entry and last month of life, respectively. Death occurred in preferred place for 84 (80%) of 105 with recorded preference at entry. Forty-one (25%) of 164 and 68 (41.5%) of 164 needed no outpatient or inpatient hospital visits, respectively. A named individual provided on-call PC advice by phone or home visit in 22 (100%) and 18 (82%) of 22 oncology centers, respectively. As PC progressed, involvement of oncologist and social worker appeared less, whereas pediatric oncology outreach nurse specialists (POONSs) remained prominent. Conclusion Preference for home death expressed by families in our study is similar to others, but the proportion of children actually able to die there is higher. Home death is facilitated by this model. Key components are POONSs, pediatric palliative and/or oncology specialist, and general practitioner. Professional roles change during PC and after death. An ongoing role for the oncology team in bereavement support is highlighted.

Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study

2009 ◽  
Vol 23 (3) ◽  
pp. 228-237 ◽  
Author(s):  
ME Bensink ◽  
NR Armfield ◽  
R Pinkerton ◽  
H Irving ◽  
AR Hallahan ◽  
...  
Keyword(s):  
Palliative Care ◽  
Paediatric Oncology

scholarly journals Challenges of paediatric palliative care in Romania: a focus groups study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Nadia Pacurari ◽  
Eva De Clercq ◽  
Monica Dragomir ◽  
Anca Colita ◽  
Tenzin Wangmo ◽  
...  
Keyword(s):  
Palliative Care ◽  
Focus Groups ◽  
Healthcare Professionals ◽  
Paediatric Oncology ◽  
Pediatric Palliative Care ◽  
Charitable Organizations ◽  
Number Of Children ◽  
Care Services ◽  
Paediatric Palliative Care ◽  
Palliative Care Services

Abstract Background The availability of palliative care facilities for children vary considerably among the European member states. In Romania, a country where health expenditure is among the lowest in Europe, palliative care has been mainly provided by charitable organizations. Despite the high number of children needing palliative care, there is scant literature and research available on paediatric palliative care in Romania. The study explores the viewpoints of various paediatric oncology providers with regard to paediatric palliative care provision in Romania. Methods Four mixed focus groups were conducted at four university-affiliated paediatric oncology centres located in three distinct Romanian regions (Bucuresti-llfov, Nord-Est and Nord-Vest). The focus groups were analyzed using thematic coding. Results For many healthcare professionals, emotional burden inherent to the profession; unhealthy work-life balance and understaffing were among the biggest barriers to the successful integration of pediatric palliative care. The lack of staff was attributed to a shortage of financial resources, and to the persisting cultural stigma surrounding palliative care and oncology. Also political turmoil was identified as an important obstacle to palliative care implementation. Conclusion Significant barriers persist limiting the broader implementation of pediatric palliative care in Romania. In order to render palliative care in pediatric oncology more sustainable, more attention should be paid to the mental health care of healthcare professionals working in this field, to the development of mobile palliative care services and to the emigration of skilled medical staff.

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