Universal Data Standards

2016 ◽  
pp. 39-60 ◽  
Author(s):  
Colleen Willis
Keyword(s):  
Data Standards

scholarly journals Internet of Samples (iSamples): Toward an interdisciplinary cyberinfrastructure for material samples

GigaScience ◽  
2021 ◽  
Vol 10 (5) ◽  
Author(s):  
Neil Davies ◽  
John Deck ◽  
Eric C Kansa ◽  
Sarah Whitcher Kansa ◽  
John Kunze ◽  
...  
Keyword(s):  
Best Practices ◽  
Built Environment ◽  
21St Century ◽  
Natural Science ◽  
Natural World ◽  
The Internet ◽  
Data Standards ◽  
Meta Data ◽  
Cross Domain ◽  
Data Stewardship

Abstract Sampling the natural world and built environment underpins much of science, yet systems for managing material samples and associated (meta)data are fragmented across institutional catalogs, practices for identification, and discipline-specific (meta)data standards. The Internet of Samples (iSamples) is a standards-based collaboration to uniquely, consistently, and conveniently identify material samples, record core metadata about them, and link them to other samples, data, and research products. iSamples extends existing resources and best practices in data stewardship to render a cross-domain cyberinfrastructure that enables transdisciplinary research, discovery, and reuse of material samples in 21st century natural science.

scholarly journals Gap between real-world data and clinical research within hospitals in China: a qualitative study

BMJ Open ◽  
2020 ◽  
Vol 10 (12) ◽  
pp. e038375
Author(s):  
Feifei Jin ◽  
Chen Yao ◽  
Xiaoyan Yan ◽  
Chongya Dong ◽  
Junkai Lai ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Clinical Research ◽  
Real World ◽  
Data Standards ◽  
Medical Record Data ◽  
Real World Data ◽  
World Data ◽  
Electronic Medical Record Data ◽  
Research Platform ◽  
Record Data

ObjectiveTo investigate the gap between real-world data and clinical research initiated by doctors in China, explore the potential reasons for this gap and collect different stakeholders’ suggestions.DesignThis qualitative study involved three types of hospital personnel based on three interview outlines. The data analysis was performed using the constructivist grounded theory analysis process.SettingSix tertiary hospitals (three general hospitals and three specialised hospitals) in Beijing, China, were included.ParticipantsIn total, 42 doctors from 12 departments, 5 information technology managers and 4 clinical managers were interviewed through stratified purposive sampling.ResultsElectronic medical record data cannot be directly downloaded into clinical research files, which is a major problem in China. The lack of data interoperability, unstructured electronic medical record data and concerns regarding data security create a gap between real-world data and research data. Updating hospital information systems, promoting data standards and establishing an independent clinical research platform may be feasible suggestions for solving the current problems.ConclusionsDetermining the causes of gaps and targeted solutions could contribute to the development of clinical research in China. This research suggests that updating the hospital information system, promoting data standards and establishing a clinical research platform could promote the use of real-world data in the future.

Factors affecting the future of the Scottish hydrometric network

1987 ◽  
Vol 78 (4) ◽  
pp. 269-274 ◽  
Author(s):  
T. Poodle
Keyword(s):  
Data Acquisition ◽  
Computer Systems ◽  
Economic Recession ◽  
Data Standards ◽  
Factors Affecting ◽  
Economic Climate ◽  
A Minor ◽  
The Cost ◽  
Minor Extent

ABSTRACTThe Scottish Hydrometric Network consists of a number of river gauging stations which have been located at sites considered suitable to provide long term flow records. Economic recession has placed some stress on the gauging programme, and has given rise to extensive closures of gauging stations in England and, to a minor extent so far, in Scotland. The way in which the network became established provides a mixture of strengths and weaknesses which could have unpredictable consequences in an adverse economic climate. Changing technology provides some opportunity to reduce the cost of data acquisition and improve the deployment of manpower, while maintaining data standards. In these changing circumstances, particularly with extensive use of computer systems, it is important that standards are established for data returned to the Water Archive and that the network is not allowed to degenerate by default.

scholarly journals The Cardiology Audit and Registration Data Standards (CARDS), European data standards for clinical cardiology practice

2004 ◽  
Vol 26 (3) ◽  
pp. 308-313 ◽  
Author(s):  
M. Rachel Flynn ◽  
Conor Barrett ◽  
Francisco G. Cosío ◽  
Anselm K. Gitt ◽  
Lars Wallentin ◽  
...  
Keyword(s):  
Data Standards ◽  
Registration Data ◽  
Clinical Cardiology ◽  
European Data

A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care

2017 ◽  
Vol 54 (5) ◽  
pp. 540-554 ◽  
Author(s):  
Alexander C. Allori ◽  
Thomas Kelley ◽  
John G. Meara ◽  
Asteria Albert ◽  
Krishnamurthy Bonanthaya ◽  
...  
Keyword(s):  
Health Care ◽  
Outcome Measures ◽  
Comparative Effectiveness ◽  
Cleft Lip ◽  
Effectiveness Research ◽  
Data Standards ◽  
Prospective Data ◽  
Treatment Protocols ◽  
Multidisciplinary Working ◽  
Standard Set

Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes- particularly those that matter most to patients and their families-and to standardize the methods by which these outcomes will be measured. This report summarizes the recommendations of an international, multidisciplinary working group with regard to which outcomes a typical cleft team could track, how those outcomes could be measured and recorded, and what strategies may be employed to sustainably implement a system for prospective data collection. It is only by agreeing on a common, standard set of outcome measures for the comprehensive appraisal of cleft care that intercenter comparisons can become possible. This is important for quality-improvement endeavors, comparative effectiveness research, and value-based health-care reform.

scholarly journals Data standards can boost metabolomics research, and if there is a will, there is a way

Metabolomics ◽  
2015 ◽  
Vol 12 (1) ◽  
Author(s):  
Philippe Rocca-Serra ◽  
Reza M. Salek ◽  
Masanori Arita ◽  
Elon Correa ◽  
Saravanan Dayalan ◽  
...  
Keyword(s):  
Data Standards
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