scholarly journals Evaluating the Quality of Supportive Oncology Using Patient-Reported Data

2014 ◽  
Vol 10 (4) ◽  
pp. e223-e230 ◽  
Author(s):  
Sydney M. Dy ◽  
Anne M. Walling ◽  
Jennifer W. Mack ◽  
Jennifer L. Malin ◽  
Philip Pantoja ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Medical Record ◽  
Self Report ◽  
Medical Record Data ◽  
Patient Reported ◽  
Record Data ◽  
Supportive Oncology ◽  
Reported Data

Quality of care for symptoms measured using patient self-report was higher than when including medical record data.

scholarly journals Depression Quality of Care: Measuring Quality over Time Using VA Electronic Medical Record Data

2016 ◽  
Vol 31 (S1) ◽  
pp. 36-45 ◽  
Author(s):  
Melissa M. Farmer ◽  
Lisa V. Rubenstein ◽  
Cathy D. Sherbourne ◽  
Alexis Huynh ◽  
Karen Chu ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Medical Record ◽  
Electronic Medical Record ◽  
Medical Record Data ◽  
Electronic Medical Record Data ◽  
Record Data ◽  
Over Time

scholarly journals Conducting Research on the Internet: Medical Record Data Integration with Patient-Reported Outcomes

2012 ◽  
Vol 14 (5) ◽  
pp. e137 ◽  
Author(s):  
Elisa Cascade ◽  
Paige Marr ◽  
Matthew Winslow ◽  
Andrew Burgess ◽  
Mark Nixon
Keyword(s):  
Data Integration ◽  
Medical Record ◽  
Patient Reported Outcomes ◽  
The Internet ◽  
Medical Record Data ◽  
Patient Reported ◽  
Record Data ◽  
Conducting Research

scholarly journals Patient-Reported Experiences with a Relicensed Generic: Thioguanine for the Treatment of Inflammatory Bowel Diseases

2018 ◽  
Vol 27 (4) ◽  
pp. 385-389
Author(s):  
Melek Simsek ◽  
Tineke M.L. Markus-de Kwaadsteniet ◽  
Danielle Van der Horst ◽  
Chris J.J. Mulder ◽  
Nanne K.H. De Boer
Keyword(s):  
Quality Of Care ◽  
Inflammatory Bowel Diseases ◽  
Patient Reported Outcomes ◽  
Daily Life ◽  
Self Report ◽  
Patient Reported ◽  
Bowel Diseases ◽  
Inflammatory Bowel ◽  
The Impact

Background & Aim: Patient-reported outcomes and experiences are indicative of the impact and the quality of care. Thioguanine, a generic drug initially developed for leukemia, has been explored and relicensed as a certified treatment for patients with inflammatory bowel diseases (IBD). The patients‘ perception of this treatment has not been evaluated before. In this study, we aimed to assess self-reported experiences with thioguanine for IBD.Methods: Questionnaires were sent out to members of the Dutch National Crohn‘s and Colitis patient organization. The Treatment Satisfaction with Medicines Questionnaire (SATMED-Q) was used to address questions regarding the satisfaction and impact of thioguanine therapy on the disease and their daily life. Furthermore, data on demographics, disease and (historical) treatment characteristics were collected. Openended questions were used for additional comments to the questionnaire.Results: A total of 173 organization members (73% female) reported to be previous or current users of thioguanine. A total of 74% were satisfied with the effectiveness of thioguanine, whereas 5% were not. Eighty percent of the respondents were satisfied with the quality of care. A good or excellent impact on daily life was reported by 54%. A neutral or bad impact on daily life was reported by 40% and 6%, respectively. Improvement of disease activity was reported by 58%. This remained stable or worsened in 39% and 3%, respectively.Conclusion: In this self-report survey, among thioguanine treated patients with IBD who had failed with traditional therapies, 80% reported satisfaction with medical care and 74% with the effectiveness of the therapy. In the evaluation of new or rediscovered therapies, patient-reported outcomes and experiences should be considered as a key instrument.

The Accuracy of Eclampsia Cases Reported to the Victorian Inpatient Minimum Database and the Perinatal Data Collection Unit

1998 ◽  
Vol 28 (1) ◽  
pp. 13-15 ◽  
Author(s):  
Merilyn Riley ◽  
Jane Halliday
Keyword(s):  
Data Collection ◽  
Medical Record ◽  
Routine Data ◽  
Data Sets ◽  
Medical Record Data ◽  
Use Of Data ◽  
Record Data ◽  
Perinatal Data ◽  
Data Collections

The aim of this study was to compare the quality of the reporting and coding of eclampsia in two routine data collections: the Victorian Inpatient Minimum Database (VIMD) and the Perinatal Data Collection Unit (PDCU). The validity of cases in the two data sets was confirmed by reference to the original medical record data. Only 12 cases were the same in both data sets (i.e., 35.3% agreement). There were an additional 51 cases that were reported to either one or the other of the data sets and, of these, only 15 (i.e., 29%) were confirmed as eclampsia. The overall number of cases confirmed for both systems in 1995 was 27, or 0.4 per 1000 confinements. Reasons for these discrepancies were investigated and three basic problems identified: quality of documentation in the medical record, coding errors, and use of data from computer-generated forms. Neither the VIMD nor the PDCU was regarded as having sufficiently accurate data for adequate reporting of maternal morbidity. By combining the information from both databases a better estimate of incidence can be obtained, but improved reporting and coding is essential for accurate assessment of this condition.

Number of HbA1c tests unrelated to quality of diabetes control: An electronic medical record data linkage study

2011 ◽  
Vol 93 (1) ◽  
pp. e37-e40 ◽  
Author(s):  
Richard H. Glazier ◽  
Stewart B. Harris ◽  
Jordan W. Tompkins ◽  
Andrew S. Wilton ◽  
Vijaya Chevendra ◽  
...  
Keyword(s):  
Medical Record ◽  
Electronic Medical Record ◽  
Data Linkage ◽  
Linkage Study ◽  
Diabetes Control ◽  
Medical Record Data ◽  
Electronic Medical Record Data ◽  
Record Data

Evaluating the quality of supportive oncology using patient-reported survey data.

2012 ◽  
Vol 30 (34_suppl) ◽  
pp. 42-42
Author(s):  
Anne M. Walling ◽  
Sydney Morss Dy ◽  
Jennifer Malin ◽  
Jennifer W. Mack ◽  
Benjamin Kim ◽  
...  
Keyword(s):  
Quality Of Care ◽  
End Of Life ◽  
Survey Data ◽  
Quality Indicators ◽  
Symptom Management ◽  
Patient Reported Outcome ◽  
Patient Reported ◽  
Oncology Care ◽  
Supportive Oncology

42 Background: Quality indicators for supportive oncology care are critical for measuring and monitoring improvement in domains such as symptom management and communication. Patient-reported outcome (PRO) data may complement medical record documentation in assessing quality of care patients receive and perceive. To evaluate how PRO data may be used in quality indicators for key supportive oncology domains, we conducted a study using patient-reported data from a national cohort study, the Cancer Care Outcomes Research and Surveillance Consortium initiative. Methods: We analyzed patient survey responses with utilization and outcomes data from 4,174 patients diagnosed with lung or colorectal cancer of any tumor stage between 2003 and 2005, which included a variety of validated PRO instruments administered within approximately five months of diagnosis. We defined existing supportive oncology indicators addressing symptom management and end-of-life discussions, primarily from Cancer Quality-ASSIST and the American Society of Clinical Oncology Quality Oncology Practice Initiative, that could be feasibly obtained from the survey data, with adaptations as needed. For example, all patients were asked whether they had pain; for pain screening, a survey item asked patients who reported pain whether a provider knew about the patient’s pain, and for treatment, the survey asked patients whether the provider provided help for the pain. Results: See Table. Conclusions: In summary, quality of care for symptom management as measured by patient-reported survey data was highest for pain screening and treatment, and lowest for fatigue treatment and significant depressive symptoms. Quality was much lower for end-of-life discussions. Patient-reported outcome data can provide a valuable, patient-centered perspective on the quality of supportive oncology care. [Table: see text]

Influential Factors in The Law Enforcement Process of Sexual Violence Cases in Children in The City of Semarang

SOEPRA ◽  
2020 ◽  
Vol 6 (2) ◽  
pp. 4
Author(s):  
Liya Suwarni
Keyword(s):  
Law Enforcement ◽  
Sexual Violence ◽  
Medical Record ◽  
Child Protection ◽  
Influential Factors ◽  
Medical Record Data ◽  
Violence Against Children ◽  
Record Data ◽  
The Law ◽  
The City

Background. Cases of sexual violence increase every year, victims ranging from adolescents, children to toddlers. Based on data from the Indonesian Child Protection Commission, abuse and violence against children in Indonesia in 2013 were 23 cases, in 2014 there were 53 cases, in 2015 there were 133 cases, 2017 reached 1,337 cases, and as of July 2018 there were 424 cases. Purpose. Knowing the factors that influence the law enforcement process of sexy violence cases in Semarang City. Method This study uses descriptive analytical methods for cases of violence against children, based on medical record data in hospitals, documents in Mapolrestabes, the District Attorney's Office and the Semarang City Court for the period of January 2015 to December 2018. Results. Based on research results obtained 213 experimental cases section from medical record data in hospitals in the city of Semarang. Most cases of child abuse occurred in 2018 with 72 cases. Most victims are 12-14 years old age group, female. Most types of cases are cases of intercourse. The majority of violations are persons known as victims, perpetrators not working, and most of the places of occurrence are in the defendant's house. At the time of prosecution and trial, the number of cases was significantly reduced to only 8 cases. Factors related to this include lack of evidence, difficulty in obtaining information from victims, convoluted statements of coverage, lack of election, and obtaining diversion rates. Conclusion Cases of sexual violence have increased from year to year. The process of law enforcement on this problem still has many difficulties in each manufacturing process which is still difficult to overcome.

scholarly journals P89 Patient reported comorbidity is not a reliable data source: a systematic review of the literature

BJS Open ◽  
2021 ◽  
Vol 5 (Supplement_1) ◽  
Author(s):  
Chung Mun Alice Lin ◽  
Alexander Orman ◽  
Nicholas D Clement ◽  
David J Deehan ◽  
Chung M A Lin
Keyword(s):  
Medical Record ◽  
Meta Analysis ◽  
Analysis Data ◽  
Fundamental Factor ◽  
Resource Limitations ◽  
Patient Reported ◽  
Data Source ◽  
Reported Data ◽  
Operative Assessment ◽  
Source Of Information

Abstract Introduction There is currently an increased demand for elective orthopaedic surgery. However, due to the ever-growing financial, time and resource limitations, there is a pressing need to identify those who would benefit most from surgery but with the lowest risk of complications. Comorbidities are a fundamental factor in this decision and the traditional way to ascertain this is through medical record data abstraction during pre-operative assessment. However, this can be time consuming and expensive. We therefore set out to establish whether patient reported comorbidities are reliable as a principal source of information. Method Searches were performed on PubMed and Medline, and citations independently screened. Included studies were published between 2010 to 2020 assessing the reliability of at least one patient reported comorbidity against their medical record or clinical assessment as gold standard. Cohen’s kappa coefficient values were grouped into systems and a meta-analysis performed comparing the reliability between studies. Results Meta-analysis data showed poor-to-moderate reliability for diseases in cardiovascular, musculoskeletal, neurological and respiratory systems as well as for malignancy and depression. Endocrine diseases showed good-to-excellent reliability. Factors found to affect the concordance included sex, age, ethnicity, education, living alone, marital status, number or severity of comorbidities, mental health and disability. Conclusion Our study showed poor-to-moderate reliability for all systems except endocrine, consisting of thyroid disease and diabetes mellitus, which demonstrated good-to-excellent reliability. Although patient reported data is useful and can facilitate a complete pre-operative overview of the patient, it is not reliable enough to be used as a standalone measure.

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