scholarly journals Establishing Accra Population-Based Cancer Registry

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 66s-66s
Author(s):  
P. Opoku
Keyword(s):  
Cancer Registry ◽  
Policy Development ◽  
Cancer Control ◽  
Population Based ◽  
Cancer Surveillance ◽  
Comprehensive Cancer Control ◽  
Control Plan ◽  
Cancer Data ◽  
The Impact ◽  
Analyze Data

Background: The African Cancer Organization (ACO) seeks to establish Accra Population-Based Cancer Registry (ACR). The whole idea is to collect, store and analyze data on persons with cancer to provide complete, accurate and timely cancer report for interventional programs. Such information would guide us to monitor patient care, prioritize and allocate resources effectively, give understanding of the things we do not yet know, and also act as a driver for policy development for the urgent need of comprehensive cancer control in Ghana. Countries require cancer surveillance programs to collect and analyze data on the scale of the cancer burden in each country. These are urgently needed in Africa as cancer data sources are scarce. Data can help to evaluate the impact of prevention, early detection/screening, treatment and palliative care programs. The proposed population-based cancer registry will help to act as a driver for policy development and program evaluation as recommended by the WHO. ACR intends to capture cancer cases diagnosed and/or treated within the Greater Accra region of Ghana and then further extend to cover the Central, Eastern, Western and the Volta regions of Ghana later. Aim: The goal of ACR to collect, store and analyze data on persons with cancer to generate incidence, prevalence, trends, mortality, and survival rates which is required to help develop a realistic and sustainable cancer control plan for Ghana. Methods: Cancer registry staff will be trained to abstract cancer cases diagnosed and/or treated within the southern regional geography of Ghana using a customized cancer notification form designed to capture detailed information on cancer patient demographics, tumor details, treatment, reporting sources and follow-up information based on both analytic and nonanalytic active case-finding reportability methods. These cases will then be classified and coded using the ICD-O-3, FIGO and/or SEER Summary Staging 2000 Manual. The data will be stored in customized cancer registry software which will be configured with various address codes from the registry geography. The cancer registry software checks for duplicate cases, data edits and consolidation. The software tracks down duplicate records and multiple primaries using a probability matching and consistency checking for impossible or rare cases. Conclusion: Establishing a cancer registry in Africa is challenging but very possible. Conflicts of interests are common norms among new cancer registries. With a good budget and working plan backed by few sincere and dedicated staff, it will be very possible to sustain the registry to capture all cancer cases within the catchment area, to take advantage of available modern technology to produce timely results. ACO is by this seeking for partnership to raise the needed support to embark on this national cancer registry campaign in the region.

Cancer control planning

2016 ◽  
pp. 245-255
Author(s):  
Massoud Samiei
Keyword(s):  
Public Health ◽  
Cancer Control ◽  
Policy Makers ◽  
Control Plan ◽  
The Public ◽  
Cancer Data ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
The Impact ◽  
National Cancer Control Plan

Despite all the progress made in cancer research and in the fight against cancer, the disease cannot be completely eradicated in the foreseeable future. A logical public health measure must therefore focus all efforts on preventing and confining the disease, i.e. a systematic and coordinated approach to reduce the impact of cancer on populations. Such an organised approach is called cancer control. It forms part of a holistic and coordinated approach, called a national cancer control plan/ programme (NCCP), involving the public sector, non-governmental organizations, academia, and the private sector. Policy makers and cancer advocacy groups should consider cancer control planning, and its financing and implementation, a public health necessity and not an option. The model proposed here is a hybrid one. The success of cancer control planning depends greatly on the availability and functionality of local cancer data and knowledge, in addition to adequate resources and government commitment.

scholarly journals Using Hospital-Based Cancer Registry Data to Inform Establishment of Population-Based Cancer Registries in Western Kenya

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 215s-215s
Author(s):  
G.C. Chesumbai ◽  
A.C. Koskei ◽  
N.G. Buziba ◽  
F.A. Chite
Keyword(s):  
Cancer Patients ◽  
Cancer Registry ◽  
Cultural Beliefs ◽  
Cancer Control ◽  
Cancer Registries ◽  
Population Based ◽  
Referral Hospital ◽  
Catchment Population ◽  
Cancer Data ◽  
Cancer Registry Data

Background: Eldoret Cancer Registry (ECR) is both a population-based cancer registry (PBCR) and hospital-based cancer registry (HBCR) located in Uasin Gishu County, western region of Kenya. As HBCR, it collects data on cancer cases seen at the Moi Teaching and Referral Hospital (M.T.R.H.), which is the second largest public referral hospital in Kenya and has a robust cancer diagnosis, treatment facilities and medical specialists. The catchment population of MTRH is estimated at 24 million. Aim: The aim of this study is to determine the number of cancer patients seen at MTRH by county and determine which counties will benefit most from establishment of a PBCR, based on their high incidence. Methods: Case finding is an active process. The E.C.R seeks clearance to collect data from the various data sources within MTRH. Trained cancer registrars visit the units on a regular basis to abstract and update cancer data into CanReg5. Quality checks and analysis of data are mainly done using CanReg5. Results: 16 years of HBCR data were analyzed. Out 20,423 cancer cases, Uasin Gishu county registered 39%. Nandi, Bungoma, Kakamega and Trans-Nzoia counties each registered 8%, 7%, 6% and 6% respectively. E-Marakwet and Busia both had 4% while other counties had below 2% of cancers cases registered for the period of analysis. Conclusion: Notably, there were high numbers of cancer patients registered from counties bordering Uasin Gishu. There is a high likelihood that there are more cases in these areas for patients who did not make it to MTRH due to preference, distance, SES, traditional/cultural beliefs etc. Establishing PBCRs will ensure a more comprehensive capture and reporting of cancer incidence and therefore necessitate proper planning for cancer control programs in those areas to reduce cancer burden and improve services for cancer patients and their families.

scholarly journals Surveillance for Jordan Cancer Burden: Jordan Cancer Registry Data 2010-2014

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 241s-241s
Author(s):  
O. Nimri
Keyword(s):  
Breast Cancer ◽  
Early Detection ◽  
Cancer Registry ◽  
Cancer Control ◽  
Control Program ◽  
Population Based ◽  
Control Measures ◽  
Mortality Data ◽  
Cancer Data ◽  
Knowledge To Action

Background: Cancer registry is an important tool for any successful cancer control program. The cancer-related data from Jordan was vague scarcity. This, urged scholars to set up the first and only population-based cancer registry in Jordan. Which did the Ministry of Health and the Middle East Cancer Consortium (MECC) established it jointly. The registry started to collect data from cases of cancer referred to the treatment and diagnostic facilities throughout the country to improve cancer reporting in the country and define the size of the cancer problem and the pattern of cancer in Jordan; distribution of cancer by geographical locations; age; gender; type and cancer sites for both Jordanians and non-Jordanians. Strategy/Tactics: The Jordan Cancer Registry (JCR) collects cancer data in passive and active methods of case finding, the collected data coded by means of ICD_O3. Quality control measures applied, and the data stored and computerized using CanReg_4 and CanReg_5; then analyzed statistically. World standard population for age adjustment and standardization to facilitate national and international comparison and contrast. Outcomes: Incidence of the most common cancers among Jordanians, distributed by site, age, gender, and geographically for the period 2010-2014. The leading cancer among adults, males was colorectal (11.9%) followed by lung (11.7%), leukemia (9.1%), urinary bladder (8.9%) and prostate (8.1%). While among female cancers are breast (34.4%), colorectal (9.4%); leukemia (6.7%); lymphomas (5.8%) and thyroid (5.3%). Childhood cancers were about (4.9%) of all cancers; leukemia was 1st (34.8%) followed by brain and CNS (20.9%) and lymphomas (17.5%). Whereas the most recent mortality data showed lung is responsible for (21.03%) deaths among males followed by colorectal (11.0%) and leukemia (8.02%). Among females breast deaths (26.8%); colorectal (9.3%) and leukemia (7.2%). What was learned: Knowledge to action, based on the JCR data, Jordan started the Jordan Breast Cancer Program for early detection and screening of breast cancer. We are looking forward starting early detection for colorectal cancer soon.

scholarly journals What are cancer registries

2004 ◽  
Vol 57 (1-2) ◽  
pp. 27-29
Author(s):  
Marica Miladinov-Mikov
Keyword(s):  
Cancer Registry ◽  
Geographical Area ◽  
Cancer Control ◽  
Cancer Registries ◽  
Population Based ◽  
International Agency ◽  
World Population ◽  
The World ◽  
The Individual ◽  
The Impact

Introduction Population-based cancer registries attempt to collect, process, analyze, store and interpret data on persons with cancer in a certain population (most frequently a geographical area). Hospital-based cancer registries register all cases in a given hospital, usually without knowledge of the background population; the emphasis is to serve the needs of the hospital administration, the hospital cancer program, and, above all, the individual patient. History of Cancer Registries Registration of persons suffering from cancer is a slow process. Around the year 1900, England and Germany demanded improvement of statistical investigation on spread of cancer in population in order to undertake etiological researches. The oldest example of a modern cancer registry is that in Hamburg. Today there are more than 200 population-based cancer registries, but they cover only 5% of the world population, mainly in developed countries of the world. Cancer registry of Vojvodina Cancer registry of Vojvodina was established in 1966; it is a member of International Agency for Research on Cancer (IARC) and it is still the only cancer registry from our country whose data are cited in scientific monographs of IARC. The main purpose of cancer registries is to produce statistics on the occurrence of cancer in a defined populatin and to provide a framework for assessing and controlling the impact of cancer on the community. Cancer registries are essential parts of any rational program of cancer control. Their data can be used in a wide variety of areas of cancer control, ranging from etiological research in epidemiology, through primary and secondary prevention to health-care planning and patient care, so benefiting both the individual and society.

scholarly journals Historical Evolution of the Malawi National Cancer Registry: A Collaborative Effort to Develop and Sustain an Impactful Cancer Control Resource in a Low-Income Country

2017 ◽  
Vol 3 (2_suppl) ◽  
pp. 3s-3s
Author(s):  
Steady Chasimpha ◽  
Marie-Josèphe Horner ◽  
Charles Dzamalala ◽  
Satish Gopal
Keyword(s):  
Cancer Registry ◽  
Low Income ◽  
Conflicts Of Interest ◽  
Cancer Control ◽  
Population Based ◽  
Cancer Registration ◽  
High Quality ◽  
Cancer Burden ◽  
Cancer Data ◽  
National Cancer Registry

Abstract 26 Background: Population-based cancer registration is essential to inform cancer control, yet high-quality cancer registration is absent in much of Africa. We undertook this work to initiate and sustain the Malawi National Cancer Registry (MNCR) to: collect high-quality, population-based cancer data to describe the national burden; inform national cancer control programs and policies; provide a rich national resource for epidemiologic cancer research; and develop collaborations with other partners to increase MNCR impact. Methods: MNCR began in 1989 as a hospital-based pathology registry in Blantyre, Malawi. A population-based component was introduced in 1993 that initially covered the Blantyre district with active case finding. By using this platform, regular national surveys were initiated in 2005 and are carried out every 5 years. Building on this surveillance program, MNCR has pursued collaborations with the Malawi HIV unit to conduct a national HIV-Cancer Match Study to assess the evolving cancer burden in the antiretroviral scale-up era. MNCR has also collaborated with other regional registries through the African Cancer Registry Network. Results: MNCR has published descriptions of the cancer burden in Malawi and is one of few African data sources to contribute to the WHO’s Cancer Incidence in Five Continents. Kaposi sarcoma and cervical cancer are the most common cancers in men and women, respectively. Approximately 93,000 records from MNCR and the two largest HIV cohorts in Malawi have been linked, with preliminary data demonstrating 3,499 cancers among 15,920 antiretroviral initiators in Lilongwe. MNCR has also contributed to regional studies that have described the high incidence and young age for esophageal cancer in Africa. Conclusion: We must continue to improve the quality and coverage of population-based cancer registration throughout Malawi, update the HIV-cancer record linkage at regular intervals, and pursue further opportunities for collaboration. AUTHORS' DISCLOSURES OF POTENTIAL CONFLICTS OF INTEREST No COIs from the authors.

scholarly journals FORMAÇÃO DO ENFERMEIRO: POLÍTICAS PÚBLICAS NA ATENÇÃO ONCOLÓGICA

2018 ◽  
Vol 9 (3) ◽  
Author(s):  
Andresa Mendonça Oliveira ◽  
Katia Stancato ◽  
Eliete Maria Silva
Keyword(s):  
Public Policy ◽  
Nursing Education ◽  
Professional Practice ◽  
Policy Development ◽  
Positive Impact ◽  
National Policy ◽  
Cancer Control ◽  
Nurse Training ◽  
The Public ◽  
The Impact

Objetivo: Refletir teoricamente sobre a Política Nacional (brasileira) para Prevenção e Controle do Câncer na Rede de Atenção à Saúde das Pessoas com Doenças Crônicas e articulações na formação do enfermeiro e na prática profissional. Metodologia: Reflexão teórica, por meio de questionamentos das pesquisadoras, discussões em grupo e busca na literatura. Resultados: Os trabalhadores que atuam no cuidado ao paciente oncológico possuem papel essencial na efetivação dessa política. Porém, para que sejam implementadas, é necessário que seus princípios estabelecidos façam sentido na formação e nas práticas profissionais. Conclusão: O ensino reflexivo sobre essa política na formação do enfermeiro contribui para melhorias em sua prática, assim como, práticas reflexivas e melhor qualificadas certamente impactam positivamente na formação profissional. O desenvolvimento de políticas públicas com ênfase nas demandas da população pressupõe articulação teórica e prática e transformações sociais.Descritores: Educação Superior; Educação em enfermagem; Políticas públicas de saúde; Prática profissional; Enfermagem Oncológica.NURSING EDUCATION : PUBLIC POLICY AT ONCOLOGI C ATTENTIONObjective: Reflect theoretically about the Public Policies on the Oncological Care, especially the National Policy(Brazilian) for Prevention and Cancer Control in Health Care Network of People with Chronic Diseases and the impact on nurse training and professional practice. Methodology: Theoretical speculation by means of interviews with researchers, group discussions and literature research. Results: Caregivers of oncological patients have an essential role on the effecting this Policy. However, in order to implement this policy, it is necessary that its established principles make sense for nursing education and professional practices. Conclusion: The reflective teaching about this policy in the formation of nurses contributes to improve its practice, as reflective and better qualified practices certainly have a positive impact on vocational education. The public policy development with emphasis on population demands assumes theoretical and practical articulation and social transformations.Descriptors: Education Higher; Education; Nursing; Public Health Policy; Professional Practice; Oncology Nursing.EDUCACIÓN EN ENFERMERÍA: POLÍTICA PÚBLICA EN ATEN CIÓN ONCOLÓGICAObjetivo: reflexionar teóricamente sobre las políticas públicas para atención oncológica, especialmente para la Política Nacional (brasileña) para Prevención y Control del Cáncer en la Red de Salud de Personas con Enfermedades Crónicas e articulaciones en la formación de enfermeras y en la práctica profesional. Metodología: Reflexión teórica por medio de cuestionamientos de los pesquisidores, discusiones en grupo y pesquisa en la literatura. Resultados: Los cuidadores de enfermos oncológicos tienen un papel esencial en la implementación de políticas. Sin embargo, para funcionar, es necesario que sus principios hagan sentido en la formación y en las prácticas profesionales. Conclusión: La enseñanza reflexiva sobre la política en la formación de enfermeros contribuye para mejoras en su práctica, como tal, prácticas reflexivas y más calificadas, sin duda, causan impacto positivo en las prácticas de formación profesional. El desarrollo de las políticas públicas con énfasis en las demandas de la población presupone la articulación teórica y práctica y la transformación social.Descriptores: Educación Superior; Educación en Enfermería; Políticas Públicas de Salud; Práctica Profesional; Enfermería Oncológica.

scholarly journals Establishing a Cancer Registry in a Resource-Constrained Region: Process Experience From Ghana

2020 ◽  
pp. 610-616
Author(s):  
Joel Yarney ◽  
Naomi O. Ohene Oti ◽  
Benedict N. L. Calys-Tagoe ◽  
Richard K. Gyasi ◽  
Isaac Agyeman Duah ◽  
...  
Keyword(s):  
Cancer Registry ◽  
Good Governance ◽  
Focal Point ◽  
Cancer Control ◽  
Cancer Registries ◽  
Lessons Learned ◽  
External Support ◽  
Administrative Structure ◽  
Policy Document ◽  
Control Plan

PURPOSE In a review of cancer incidence across continents (GLOBOCAN 2012), data sources from Ghana were classified as Frequencies, the lowest classification for inclusion, signifying the worst data quality for inclusion in the analysis. Recognizing this deficiency, the establishment of a population-based cancer registry was proposed as part of a broader cancer control plan. METHODS The registry was examined under the following headings: policy, data source, and administrative structure; external support and training; and definition of geographic coverage. RESULTS The registry was set up based on the Ghana policy document on the strategy for cancer control. The paradigm shift ensured subscription to one data collection software (CanReg 5) in the country. The current approach consists of trained registrars based in the registry who conduct active data abstraction at the departments and units of the hospital and pathologic services. To ensure good governance, an administrative structure was created, including an advisory board, a technical committee, and registry staff. External support for the establishment of the Accra Cancer Registry has come mainly from Stanford University and the African Cancer Registry Network, in collaboration with the University of Ghana. Unlike previous attempts, this registry has a well-defined population made up of nine municipal districts. CONCLUSION The Accra Cancer Registry was established as a result of the lessons learned from failed previous attempts and aim to provide a model for setting up other cancer registries in Ghana. It will eventually be the focal point where all the national data can be collated.

scholarly journals Pilot Study on the Application of Telemedicine as a Tool for a Population-Based Cancer Registry in Hlegu Township, Yangon Region, Myanmar

2018 ◽  
Vol 4 (Supplement 1) ◽  
pp. 22s-22s
Author(s):  
Khin Saw Aye ◽  
KhinThet Wai ◽  
Yan Naing Swe ◽  
Ssu Wynn Mon ◽  
Nan Cho Nwe Mon ◽  
...  
Keyword(s):  
Information Technology ◽  
Palliative Care ◽  
Pilot Study ◽  
Cancer Registry ◽  
Conflicts Of Interest ◽  
Cancer Registries ◽  
Population Based ◽  
Public Hospitals ◽  
Cancer Data ◽  
Patients With Cancer

Abstract 57 Purpose The cancer burden is rising and threatens the social and economic development of low- and middle-income countries, including Myanmar, in the ASEAN region. A quality cancer registry plays a unique role in planning, the evaluation of cancer control program, treatment, and palliative care. To date, there is a paucity of studies in Myanmar that have focused on the implementation of a population-based cancer registry. In addition, the concept of telemedicine with the use of information technology applications as appropriate during implementation needs to be introduced. Such an approach may be beneficial to those working at the grassroots level for the overall improvement of the processes of community reporting, confirmation of diagnoses, effective referral for palliative care, and the establishment of cancer registries. Methods A pilot study was therefore carried out to formulate the strategic approach for establishing a population-based cancer registry in Hlegu Township in Northern Yangon District, Myanmar. First, the cancer data entry software was created and installed on mobile phones as an information technology tool to initialize telemedicine. Next, 15 health assistants in Hlegu Township were trained in the collection of data and the entry of basic information on patients with cancer, including name, age, gender, national ID, education, occupation, primary diagnosis, and the site of metastasis of confirmed cancer cases through mobile phone applications and reported to the cancer database unit at the Department of Medical Research. Results A total of 126 patients with cancer were registered in Hlegu Township from June 2016 to May 2017. The estimated prevalence of disease is 4.6 per 10,000 people. The most common age at cancer diagnosis was 46 to 65 years (73.58%). Female sex was 2.5 times predominant than male sex (72% v 27%). Among 91 registered female patients with cancer, the three most common cancers were breast (32.35%), cervix (16.17%) and uterine (15.17%). Eighty-five patients with cancer (67.46%) received their diagnosis in public hospitals. Overall, 59% of patients received combination treatment, 19% received surgery only, 16% were treated with traditional medicine, 3% were treated with radiotherapy only, and 3% were treated with chemotherapy only. Conclusion This study is a first step in applying the concept of telemedicine to the creation of a population-based cancer registry in a resource-limited setting. More concerted efforts are needed to move toward a well-established population-based cancer registry in Myanmar. AUTHORS' DISCLOSURES OF POTENTIAL CONFLICTS OF INTEREST No COIs from the authors.

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