Data Protection Act: Subject Access to Personal Health Information (DA 8523): DHSS Consultation Paper

1986 ◽  
Vol 10 (7) ◽  
pp. 185-185 ◽  
Author(s):  
R. G. Priest
Keyword(s):  
Health Information ◽  
Data Protection ◽  
Personal Health Information ◽  
Personal Health ◽  
Consultation Paper

scholarly journals Data protection, data management, and data sharing: Stakeholder perspectives on the protection of personal health information in South Africa

PLoS ONE ◽  
2021 ◽  
Vol 16 (12) ◽  
pp. e0260341
Author(s):  
Ciara Staunton ◽  
Kathrina Tschigg ◽  
Gayle Sherman
Keyword(s):  
South Africa ◽  
Health Information ◽  
Data Protection ◽  
Personal Information ◽  
Data Use ◽  
Personal Health Information ◽  
Personal Health ◽  
Structured Interviews ◽  
Laboratory Service ◽  
The Impact

The Protection of Personal Information Act (POPIA) 2013 came into force in South Africa on 1 July 2020. It seeks to strengthen the processing of personal information, including health information. While POPIA is to be welcomed, there are concerns about the impact it will have on the processing of health information. To ensure that the National Health Laboratory Service [NHLS] is compliant with these new strict processing requirements and that compliance does not negatively impact upon its current screening, treatment, surveillance and research mandate, it was decided to consider the development of a NHLS POPIA Code of Conduct for Personal Health. As part of the process of developing such a Code and better understand the challenges faced in the processing of personal health information in South Africa, 19 semi-structured interviews with stakeholders were conducted between June and September 2020. Overall, respondents welcomed the introduction of POPIA. However, they felt that there are tensions between the strengthening of data protection and the use of personal information for individual patient care, treatment programmes, and research. Respondents reported a need to rethink the management of personal health information in South Africa and identified 5 issues needing to be addressed at a national and an institutional level: an understanding of the importance of personal information; an understanding of POPIA and data protection; improve data quality; improve transparency in data use; and improve accountability in data use. The application of POPIA to the processing of personal health information is challenging, complex, and likely costly. However, personal health information must be appropriately managed to ensure the privacy of the data subject is protected, but equally that it is used as a resource in the individual’s and wider public interest.

How Research Will Adapt to HIPAA: A View from Within the Healthcare Delivery System

2002 ◽  
Vol 28 (4) ◽  
pp. 491-502
Author(s):  
Mary L. Durham
Keyword(s):  
Health Information ◽  
Healthcare Delivery ◽  
Healthcare Providers ◽  
The United States ◽  
Personal Health Information ◽  
Personal Health ◽  
Business Associations ◽  
Electronic Information ◽  
Healthcare Delivery System ◽  
Institutional Review

While the new Health Insurance Privacy and Accountability Act (HIPAA) research rules governing privacy, confidentiality and personal health information will challenge the research and medical communities, history teaches us that the difficulty of this challenge pales in comparison to the potential harms that such regulations are designed to avoid. Although revised following broad commentary from researchers and healthcare providers around the country, the HIPAA privacy requirements will dramatically change the way healthcare researchers do their jobs in the United States. Given our reluctance to change, we risk overlooking potentially valid reasons why access to personal health information is restricted and regulated. In an environment of electronic information, public concern, genetic information and decline of public trust, regulations are ever-changing. Six categories of HIPAA requirements stand out as transformative: disclosure accounting/tracking, business associations, institutional review board (IRB) changes, minimum necessary requirements, data de-identification, and criminal and civil penalties.

Keeping Personal Health Information Safe

JAMA ◽  
2015 ◽  
Vol 313 (14) ◽  
pp. 1424 ◽  
Author(s):  
David Blumenthal ◽  
Deven McGraw
Keyword(s):  
Health Information ◽  
Personal Health Information ◽  
Personal Health

scholarly journals HIV patients’ willingness to share personal health information electronically

2011 ◽  
Vol 84 (2) ◽  
pp. e9-e12 ◽  
Author(s):  
Paul A. Teixeira ◽  
Peter Gordon ◽  
Eli Camhi ◽  
Suzanne Bakken
Keyword(s):  
Health Information ◽  
Personal Health Information ◽  
Personal Health ◽  
Hiv Patients
Sign in / Sign up

Export Citation Format

Share Document