scholarly journals Childhood intellectual disability and parents' mental health: integrating social, psychological and genetic influences

2020 ◽  
pp. 1-8 ◽  
Author(s):  
Kate Baker ◽  
Rory T. Devine ◽  
Elise Ng-Cordell ◽  
F. Lucy Raymond ◽  
Claire Hughes ◽  
...  
Keyword(s):  
Mental Health ◽  
Intellectual Disability ◽  
Chromosomal Rearrangements ◽  
Copy Number Variants ◽  
Genetic Diagnosis ◽  
Well Being ◽  
Parental Distress ◽  
Single Nucleotide Variants ◽  
Behavioural Difficulties ◽  
The Uk

Background Intellectual disability has a complex effect on the well-being of affected individuals and their families. Previous research has identified multiple risk and protective factors for parental mental health, including socioeconomic circumstances and child behaviour. Aims This study explored whether genetic cause of childhood intellectual disability contributes to parental well-being. Method Children from across the UK with intellectual disability due to diverse genetic causes were recruited to the IMAGINE-ID study. Primary carers completed the Development and Well-being Assessment, including a measure of parental distress (Everyday Feeling Questionnaire). Genetic diagnoses were broadly categorised into aneuploidy, chromosomal rearrangements, copy number variants (CNVs) and single nucleotide variants. Results Compared with the UK general population, IMAGINE-ID parents (n = 888) reported significantly elevated emotional distress (Cohen's d = 0.546). Within-sample variation was related to recent life events and the perceived impact of children's difficulties. Impact was predicted by child age, physical disability, autistic characteristics and other behavioural difficulties. Genetic diagnosis also predicted impact, indirectly influencing parental well-being. Specifically, CNVs were associated with higher impact, not explained by CNV inheritance, neighbourhood deprivation or family structure. Conclusions The mental health of parents caring for a child with intellectual disability is influenced by child and family factors, converging on parental appraisal of impact. We found that genetic aetiologies, broadly categorised, also influence impact and thereby family risks. Recognition of these risk factors could improve access to support for parents, reduce their long-term mental health needs and improve well-being of individuals with intellectual disability.

scholarly journals In-patient services for people with intellectual disability and mental health or behavioural difficulties

2015 ◽  
Vol 21 (2) ◽  
pp. 116-123 ◽  
Author(s):  
John Devapriam ◽  
Alan Rosenbach ◽  
Regi Alexander
Keyword(s):  
Mental Health ◽  
Intellectual Disability ◽  
General Population ◽  
Patient Care ◽  
Mental Healthcare ◽  
Healthcare Provision ◽  
The Past ◽  
Behavioural Difficulties ◽  
Quality And Outcomes ◽  
The Uk

SummaryOver the past few decades, care for people with intellectual disability in the UK has moved from long-stay hospitals to the community. As in the general population, a number of these people have mental health and behavioural difficulties for which they may require in-patient services. Consequently, psychiatrists need to be aware of the in-patient mental healthcare provision for these individuals. This article describes the different categories of in-patient bed for patients with intellectual disability and ways to monitor the quality and outcomes of in-patient care.

A positive psychology study and intervention on the well-being of French PhD students in biology

2017 ◽  
Author(s):  
Gabriel Marais ◽  
Rebecca Shankland ◽  
Pascale Haag ◽  
Robin Fiault ◽  
Bridget Juniper
Keyword(s):  
Mental Health ◽  
Positive Psychology ◽  
Large Fraction ◽  
Reference Sample ◽  
Well Being ◽  
Attrition Rates ◽  
Human Costs ◽  
The Uk ◽  
And Control ◽  
Health And Well Being

In France, little data are available on mental health and well-being in academia, and nothing has been published about PhD students. From studies abroad, we know that doing a PhD is a difficult experience resulting in high attrition rates with significant financial and human costs. Here we focused on PhD students in biology at university Lyon 1. A first study aimed at measuring the mental health and well-being of PhD students using several generalist and PhD-specific tools. Our results on 136 participants showed that a large fraction of the PhD students experience abnormal levels of stress, depression and anxiety, and their mean well-being score is significantly lower than that of a British reference sample. French PhD student well-being is specifically affected by career uncertainty, perceived lack of progress in the PhD and perceived lack of competence, which points towards possible cultural differences of experiencing a PhD in France and the UK. In a second study, we carried out a positive psychology intervention. Comparing the scores of the test and control groups showed a clear effect of the intervention on reducing anxiety. We discuss our results and the possible future steps to improve French PhD students’ well-being.

Leveraging Twitter Using Artificial Intelligence to Explore Mental Health Insights in the UK During the COVID-19 Pandemic (Preprint)

2021 ◽  
Author(s):  
Christopher Marshall ◽  
Kate Lanyi ◽  
Rhiannon Green ◽  
Georgie Wilkins ◽  
Fiona Pearson ◽  
...  
Keyword(s):  
Mental Health ◽  
Artificial Intelligence ◽  
Language Processing ◽  
Mental Health Problems ◽  
Well Being ◽  
Research Activity ◽  
Health Crisis ◽  
Key Topics ◽  
The Uk ◽  
The Impact

BACKGROUND There is increasing need to explore the value of soft-intelligence, leveraged using the latest artificial intelligence (AI) and natural language processing (NLP) techniques, as a source of analysed evidence to support public health research activity and decision-making. OBJECTIVE The aim of this study was to further explore the value of soft-intelligence analysed using AI through a case study, which examined a large collection of UK tweets relating to mental health during the COVID-19 pandemic. METHODS A search strategy comprising a list of terms related to mental health, COVID-19, and lockdown restrictions was developed to prospectively collate relevant tweets via Twitter’s advanced search application programming interface over a 24-week period. We deployed a specialist NLP platform to explore tweet frequency and sentiment across the UK and identify key topics of discussion. A series of keyword filters were used to clean the initial data retrieved and also set up to track specific mental health problems. Qualitative document analysis was carried out to further explore and expand upon the results generated by the NLP platform. All collated tweets were anonymised RESULTS We identified and analysed 286,902 tweets posted from UK user accounts from 23 July 2020 to 6 January 2021. The average sentiment score was 50%, suggesting overall neutral sentiment across all tweets over the study period. Major fluctuations in volume and sentiment appeared to coincide with key changes to any local and/or national social-distancing measures. Tweets around mental health were polarising, discussed with both positive and negative sentiment. Key topics of consistent discussion over the study period included the impact of the pandemic on people’s mental health (both positively and negatively), fear and anxiety over lockdowns, and anger and mistrust toward the government. CONCLUSIONS Through the primary use of an AI-based NLP platform, we were able to rapidly mine and analyse emerging health-related insights from UK tweets into how the pandemic may be impacting people’s mental health and well-being. This type of real-time analysed evidence could act as a useful intelligence source that agencies, local leaders, and health care decision makers can potentially draw from, particularly during a health crisis.

scholarly journals Use of online cultural content for mental health and well-being during COVID-19 restrictions: cross-sectional survey

2021 ◽  
pp. 1-10
Author(s):  
Rebecca J. Syed Sheriff ◽  
Helen Adams ◽  
Evgenia Riga ◽  
Andrew K. Przybylski ◽  
Laura Bonsaver ◽  
...  
Keyword(s):  
Mental Health ◽  
Well Being ◽  
Vulnerable Groups ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Online Culture ◽  
Reported Data ◽  
June July ◽  
The Uk ◽  
Health And Well Being

Aims and method To gain a deeper understanding of the use of online culture and its potential benefits to mental health and well-being, sociodemographic characteristics and self-reported data on usage, perceived mental health benefits and health status were collected in an online cross-sectional survey during COVID-19 restrictions in the UK in June–July 2020. Results In total, 1056 people completed the survey. A high proportion of participants reported finding online culture helpful for mental health; all but one of the benefits were associated with regular use and some with age. Reported benefits were wide-ranging and interconnected. Those aged under 25 years were less likely to be regular users of online culture or to have increased their use during lockdown. Clinical implications There may be benefits in targeting cultural resources for mental health to vulnerable groups such as young adults.

Mental health and emotional well being

2009 ◽  
pp. 213-248
Keyword(s):  
Mental Health ◽  
Primary Care ◽  
Intellectual Disability ◽  
Anxiety Disorders ◽  
Secondary Care ◽  
Psychotic Disorders ◽  
Tertiary Care ◽  
Well Being ◽  
Prevalence Rates

Introduction 214 Promoting emotional well-being 216 Promoting assertiveness 218 Primary care 220 Secondary care 222 Tertiary care 224 Prevalence rates 226 Factors contributing to mental health 228 Anxiety disorders 230 Psychotic disorders 232 Organic disorders 234 Dementia (in people with intellectual disability) 236 Psychopathology 238...

Research watch: Coronavirus (COVID-19), mental health and social inclusion in the UK and Ireland

2020 ◽  
Vol 24 (3) ◽  
pp. 117-123 ◽  
Author(s):  
Sue Holttum
Keyword(s):  
Mental Health ◽  
Low Income ◽  
Social Inclusion ◽  
Design Methodology ◽  
Well Being ◽  
Anxiety And Depression ◽  
Children And Young People ◽  
Content Type ◽  
The Uk ◽  
Mental Well Being

Purpose This paper aims to examine recent papers on the effects of the COVID-19 pandemic on mental health, including implications for some of the groups of people already less included in society. Design/methodology/approach A search was carried out for recent papers on mental health and the COVID-19 pandemic. Findings Two papers describe surveys of adults in the UK and Irish Republic in the first days of lockdown. Low income and loss of income were associated with anxiety and depression. These surveys could not examine distress in Black and minority ethnicities, who have higher death rates from COVID-19. Two surveys of children and young people report distress and what can help. One paper summarises a host of ways in which the pandemic may affect mental well-being in different groups, and what might help. Another calls for research to understand how to protect mental well-being in various groups. Originality/value These five papers give a sense of the early days of the pandemic, especially in the UK. They also highlight the needs of some specific groups of people, or the need to find out more about how these groups experience the pandemic. They suggest some ways of trying to ensure that everyone has the best chance to thrive in the aftermath of the pandemic.

scholarly journals The health and well-being effects of drought: assessing multi-stakeholder perspectives through narratives from the UK

2020 ◽  
Vol 163 (4) ◽  
pp. 2073-2095
Author(s):  
Kimberly Bryan ◽  
Sarah Ward ◽  
Liz Roberts ◽  
Mathew P. White ◽  
Owen Landeg ◽  
...  
Keyword(s):  
Climate Change ◽  
Mental Health ◽  
At Risk ◽  
Health Effects ◽  
Well Being ◽  
Risk Groups ◽  
Potential Health ◽  
Positive Effects ◽  
The Uk ◽  
Health And Well Being

AbstractThe global literature on drought and health highlights a variety of health effects for people in developing countries where certain prevailing social, economic and environmental conditions increase their vulnerability especially with climate change. Despite increased focus on climate change, relatively less is known about the health-drought impacts in the developed country context. In the UK, where climate change–related risk of water shortages has been identified as a key area for action, there is need for better understanding of drought-health linkages. This paper assesses people’s narratives of drought on health and well-being in the UK using a source-receptor-impact framing. Stakeholder narratives indicate that drought can present perceived health and well-being effects through reduced water quantity, water quality, compromised hygiene and sanitation, food security, and air quality. Heatwave associated with drought was also identified as a source of health effects through heat and wildfire, and drought-related vectors. Drought was viewed as potentially attributing both negative and positive effects for physical and mental health, with emphasis on mental health. Health impacts were often complex and cross-sectoral in nature indicating the need for a management approach across several sectors that targets drought and health in risk assessment and adaptation planning processes. Two recurring themes in the UK narratives were the health consequences of drought for ‘at-risk’ groups and the need to target them, and that drought in a changing climate presented potential health implications for at-risk groups.

The role of specialist inpatient rehabilitation services for people with intellectual disability, autism and mental health, behavioural or forensic needs

2019 ◽  
Vol 13 (5) ◽  
pp. 204-215
Author(s):  
Mahesh Odiyoor ◽  
Samuel Joseph Tromans ◽  
Regi T. Alexander ◽  
Srinaveen Akbari ◽  
Gill Bell ◽  
...  
Keyword(s):  
Mental Health ◽  
Intellectual Disability ◽  
Outcome Measures ◽  
Community Support ◽  
Inpatient Rehabilitation ◽  
High Standard ◽  
Standard Of Care ◽  
Rehabilitation Services ◽  
Content Type ◽  
The Uk

Purpose The purpose of this paper is to provide a professional consensus position with regard to the provision of specialist inpatient rehabilitation services for people with intellectual disability (ID), autism and mental health, behavioural or forensic needs in the UK. Design/methodology/approach The concept of rehabilitation is discussed, as well as the functions and goals of specialist inpatient rehabilitation services with regard to the aforementioned contexts. Current use of rehabilitation beds is considered, both on a regional and national scale, as well as various outcome measures, including effectiveness, patient safety and patient experience. Findings There is a clear need for specialist inpatient rehabilitation services, though historically there have been instances of inappropriate admissions, as well as lengthy inpatient stays that could have been significantly reduced with the right type of community support package. Such services should be subjected to rigorous measurement of outcome measures, to determine that patients within such services are receiving a consistently high standard of care. Additionally, amendments to current legal frameworks should be considered, with a view to accommodating for individuals with capacity who require continuous community-based supervision. Originality/value To the best of the author’s knowledge, this is the first article detailing a professional consensus position for specialist inpatient rehabilitation services for people with ID, autism and mental health, behavioural or forensic needs.

scholarly journals Understanding the lived experiences of Healthcare Professionals during the COVID-19 Pandemic: An Interpretative phenomenological analysis

2020 ◽  
Author(s):  
Emily McGlinchey ◽  
Catherine Hitch ◽  
Sarah Butter ◽  
Laura Mccaughey ◽  
Emma Berry ◽  
...  
Keyword(s):  
Mental Health ◽  
Northern Ireland ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Healthcare Professionals ◽  
Well Being ◽  
Phenomenological Analysis ◽  
Snowball Sampling ◽  
The Uk ◽  
Qualitative Methodologies

Background: Little research has examined mental health and well-being in the context of healthcare professionals (HCP) working during the COVID-19 pandemic within the UK. To our knowledge, no research has employed qualitative methodologies in order to examine this. We therefore aim to address this gap in research by qualitatively examining the lived experiences of HCPs in Northern Ireland, working during the early stages of the pandemic and lockdown period (14.04.20 and 29.04.20).Method: Interpretative phenomenological analysis (IPA) was used to qualitatively examine the lived experiences of healthcare professionals, who were working during the COVID-19 outbreak. Ten HCPs were recruited via a social media campaign and snowball sampling. All interviews were conducted via telephone and transcribed verbatim. Results: Three superordinate themes with subordinate themes were elicited through the analysis. Theme one broadly captured present and future challenges of HCPs working during the pandemic. Theme two captured the mental health and wellbeing of HCPs and theme three captured HCPs’ perceptions of the attitudes of the general public towards HCPs. Conclusions: To the authors’ knowledge this is the first study to explore in depth, the unique experiences of frontline HCPs in Northern Ireland, offering a detailed account of the challenges confronted in these unprecedented circumstances and highlighting support needs within this cohort.

scholarly journals Wellbeing during the COVID-19 pandemic in the UK: a secondary data analysis

2021 ◽  
Author(s):  
Jen Murphy ◽  
Mark Elliot
Keyword(s):  
Mental Health ◽  
Online Survey ◽  
National Level ◽  
Secondary Data ◽  
Well Being ◽  
Ordinary Least Squares ◽  
Least Squares Regression ◽  
The Uk ◽  
Survey Responses ◽  
The Impact

Introduction: In March 2020 in response to the COVID pandemic the UK government declared a national lockdown where citizens were required to stay at home. The impact of this lockdown on levels of well-being has been a source of concern for citizens and mental health professionals.Objectives: We investigated the trajectory of well-being over the course of the ?first wave and sought to determine whether the change in well-being is distributed equally across the population. Speci?fically we investigated pre-existing medical conditions, social isolation, ?financial stress and deprivation as a predictor for well-being and whether there were community level characteristics which protect against poorer well-being.Methods: Using online survey responses from the COVID19 modules of Understanding society, we linked 8,379 English cases across ?five waves of data collection to location based deprivation statistics. We used ordinary least squares regression to estimate the association between deprivation, pre-existing conditions and socio-demographic factors and the change in well-being scores over time, as measured by the GHQ-12 questionnaire.Results: A decline in well-being was observed at the beginning of the fi?rst lock down period at the beginning of March 2020. This was matched with a corresponding recovery between April and July as restrictions were gradually lifted. There was no association between the decline and deprivation, nor between deprivation and recovery. The strongest predictor of well-being during the lockdown, was the baseline score, with the counterintuitive finding that for those will pre-existing poor well-being, the impact of pandemic restrictions on mental health were minimal, but for those who had previously felt well, the restrictions and the impact of the pandemic on well-being were much greater.Conclusion: These data show no evidence of a social gradient in well-being related to the pandemic. In fact, wellbeing was shown to be highly elastic in this period indicating a national level of resilience which cut across the usually observed health inequalities.

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