scholarly journals Ketamine treatment for depression: qualitative study exploring patient views

BJPsych Open ◽  
2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Sagar Jilka ◽  
Clarissa Mary Odoi ◽  
Emma Wilson ◽  
Sazan Meran ◽  
Sara Simblett ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Large Scale ◽  
Qualitative Data ◽  
Public Perceptions ◽  
Clinical Use ◽  
Treatment Focus ◽  
Promising Treatment ◽  
Roll Out

Background Ketamine is a new and promising treatment for depression but comes with challenges to implement because of its potential for abuse. Aims We sought the views of patients to inform policy and practical decisions about the clinical use of ketamine before large-scale roll-out is considered. Method This qualitative study used three focus groups and three validation sessions from 14 patients with prior diagnoses of depression but no experience of ketamine treatment. Focus groups explored their views about clinical use of ketamine and the best way for ketamine to be administered and monitored. The qualitative data were analysed by three service-user researchers using thematic analysis. Results Five themes were generated: changing public perceptions, risks, monitoring, privacy and data protection, and practical aspects. Participants were conscious of the stigma attached to ketamine as a street drug and wanted better public education, and evidence on the safety of ketamine after long-term use. They felt that monitoring was required to provide evidence for ketamine's safe use and administration, but there were concerns about the misuse of this information. Practical aspects included discussions about treatment duration, administration and accessibility (for example who would receive it, under what criteria and how). Conclusions Patients are enthusiastic about ketamine treatment but need more information before national roll-out. The wider societal impact of ketamine treatment also needs to be considered and patients need to be part of any future roll-out to ensure its success.

scholarly journals Exploring patients’ and carers’ views about the clinical use of ketamine to inform policy and practical decisions: mixed-methods study

BJPsych Open ◽  
2019 ◽  
Vol 5 (5) ◽  
Author(s):  
Sagar Jilka ◽  
Claire Murray ◽  
Ania Wieczorek ◽  
Helena Griffiths ◽  
Til Wykes ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Focus Groups ◽  
Large Scale ◽  
Online Survey ◽  
Mixed Methods Study ◽  
Clinical Use ◽  
Framework Analysis ◽  
Using Data ◽  
Support Cost ◽  
Roll Out

Background Only one-third of patients with major depressive disorder achieve remission. One new and promising treatment, ketamine, may prove challenging to implement because of its abuse potential. Although clinicians' views have been sought, we need patients' views before large scale roll-out is considered. Aims To explore patients’ and carers' views to inform policy and practical decisions about the clinical use of ketamine. Method We carried out a mixed-methods study using data from 44 participants in 21 focus groups in three sessions and an online survey with patients, carers and advocates during a consultation day. Focus groups explored participant's views about ketamine as a form of treatment and the best way for ketamine to be prescribed and monitored. The qualitative data were analysed by two patient–researchers using an exploratory framework analysis and was supplemented by a survey. Results The ten themes generated were monitoring, information, effect on daily life, side-effects, recreational use, effectiveness, appropriate support, cost, stigma and therapy. Participants wanted better evidence on the safety of ketamine after long-term use and felt that monitoring was required. Collecting this information would provide evidence for ketamine's safe use and administration. There were, however, concerns about the misuse of this information. Practical issues of access were important: repeated travelling to clinics and a lack of sufficiently informed medical staff were key barriers. Conclusions Clinicians have some similar and some different views to those of patients, carers and advocates, which need to be considered in any future roll-out of ketamine. Declaration of interest R.M. has had UK National Institute for Health Research grant funding to study ketamine, is participating in trials of esketamine, runs a clinic that provides ketamine treatment, and has consulted for Johnson & Johnson and Eleusis.

scholarly journals Mindfulness-Based Cognitive Therapy Experiences in Youth With Inflammatory Bowel Disease and Depression: Protocol for a Mixed Methods Qualitative Study (Preprint)

2019 ◽  
Author(s):  
Tatjana Ewais ◽  
Jakob Begun ◽  
Maura Kenny ◽  
Alan Headey ◽  
Steve Kisely
Keyword(s):  
Inflammatory Bowel Disease ◽  
Young Adults ◽  
Mixed Methods ◽  
Qualitative Study ◽  
Focus Groups ◽  
Bowel Disease ◽  
Qualitative Data ◽  
Adolescents And Young Adults ◽  
Inflammatory Bowel

BACKGROUND Mindfulness-based programs are increasingly used as a part of integrated treatment for inflammatory bowel disease (IBD). However, the majority of research has been quantitative with limited qualitative exploration of patients’ experiences of mindfulness programs and no studies among adolescents and young adults with IBD. Furthermore, there has been a paucity of research exploring the role of common psychotherapy and group factors within mindfulness programs. OBJECTIVE This study aims to explore the experiences of adolescents and young adults with IBD and depression who completed a mindfulness-based cognitive therapy (MBCT) group program, as well as the role of therapeutic alliance, group affiliation, and other common psychotherapy and group factors. METHODS This mixed methods qualitative study, nested within a randomized controlled trial (RCT) of MBCT for adolescents and young adults with IBD, will obtain qualitative data from focus groups and open-ended survey questions. The study aims to conduct three to four focus groups with 6-8 participants in each group. It will employ data and investigator triangulation as well as thematic analysis of the qualitative data. RESULTS The study was approved by the Mater Hospital Human Research Ethics Committee and recruitment commenced in May 2019; study completion is anticipated by early 2020. CONCLUSIONS The study will contribute to the assessment of acceptability and feasibility of the MBCT program for adolescents and young adults with IBD. It will also elucidate the role of previously unexplored common psychotherapy and group factors within mindfulness training and help inform the design of a future large-scale RCT of MBCT in this cohort. CLINICALTRIAL Australian New Zealand Clinical Trials Registry (ANZCTR) ACTRN12617000876392; https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=373115 INTERNATIONAL REGISTERED REPOR PRR1-10.2196/14432

scholarly journals Codependency in the Relations of Couples of Imprisoned Women

2020 ◽  
Vol 9 (11) ◽  
pp. 189
Author(s):  
Luz Adriana Aristizábal
Keyword(s):  
Identity Development ◽  
Qualitative Study ◽  
Focus Groups ◽  
Criminal Behavior ◽  
Qualitative Data ◽  
Violent Relationships ◽  
Female Crime ◽  
Depth Interview ◽  
Partner Relationships ◽  
Emotional Repression

Female criminal behavior has sparked the interest of many researchers who, from different perspectives, have tried to identify what are the factors that lead them to commit a crime. Studies indicate that female affective bonds change into a potentiator of crime behavior and/or withdrawal of it. The objective of this study was to find out if the couple’s bonds (previous or during the prison) were codependent, and to analyze the possible relation between the latter and female crime. This qualitative study used mixed tools in a sample of 27 women in the Bucaramanga prison (Colombia). The I-CO instrument was applied analyzing the four codependency factors: (1) denial mechanisms; (2) incomplete identity development; (3) emotional repression and (4) rescue orientation. The qualitative data obtained through the in-depth interview and focus groups were also analyzed, showing mainly three emerging categories: (1) I did it for him; (2) Although he doesn’t love me; and (3) I preferred to remain silent. The results suggested the difficulty of leaving violent relationships and the possible interaction between codependency, violent partner relationships and female crime. This research raises the need to strengthen the empowerment of women inside and outside the prison.

scholarly journals Educating a health service workforce about dementia: a qualitative study

2016 ◽  
Vol 17 (2) ◽  
pp. 119-130 ◽  
Author(s):  
Lesley Baillie ◽  
Eileen Sills ◽  
Nicola Thomas
Keyword(s):  
Health Service ◽  
Qualitative Study ◽  
Focus Groups ◽  
Large Scale ◽  
Longitudinal Design ◽  
Phase 1 ◽  
Organisational Culture ◽  
Long Term Effects ◽  
Content Type ◽  
Support Person

Purpose – People who are living with dementia are core health service users, but there are ongoing concerns about the quality of their care and the need for improved education of healthcare staff. The purpose of this paper is to report a qualitative study that investigated staff perspectives on an ethnodrama (“Barbara’s Story”) which was used to educate an entire health service workforce and promote a person-centred approach to care. Design/methodology/approach – The study used a qualitative, longitudinal design with focus groups held with clinical (nurses, allied health professionals, medical) and non-clinical staff. In Phase 1 there were ten focus groups (n=67 participants) and one individual interview. In Phase 2 there were 16 focus groups (n=77 participants) and three individual interviews. Findings – Barbara’s Story raised awareness of dementia, engaged staff emotionally and prompted empathetic responses and improved interactions. The project’s senior leadership, whole organisation and mandatory approach were well-supported, with a perceived impact on organisational culture. The project helped to embed practice developments and initiatives to support person-centred care. Barbara’s Story is now well-integrated into the organisation’s practices, supporting its sustainability in use. Originality/value – Whilst there are increasing resources for educating about dementia, there are fewer evaluations, particularly for large-scale educational initiatives, and a lack of focus on long-term effects. The study findings indicate that education about dementia can be delivered to a whole workforce in a sustainable manner, to prompt empathy, raise awareness, support person-centred care and impact on individual behaviour and organisational culture.

scholarly journals I Don’t Want to Think About It: A Qualitative Study of Children’s and Parents' Experiences with Regular Needle Injections at Home

2020 ◽  
Author(s):  
Kari Sørensen ◽  
Helge Skirbekk ◽  
Gunnvald Kvarstein ◽  
Hilde Wøien
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Coping Strategies ◽  
Healthcare Providers ◽  
Needle Stick ◽  
Self Confidence ◽  
Injection Treatment ◽  
Children And Parents ◽  
At Home

Abstract Background Overall outcomes of pediatric rheumatic diseases (RD) have improved due to treatment with biologic agents and methotrexate. For many children, this treatment often entails regular needle injections. Pain and fair of needle injections are common in childhood, but how children and parents handle long-term needle injections at home has not been fully explored. This study aimed to explore how regular needle injections affect children with RD and their parents in their daily living.Methods This explorative qualitative study used individual interviews and focus groups to ensure a comprehensive investigation of the topic. Children aged 6 to 16 years (n = 7) and their parents (n = 8) were interviewed individually 4 to 6 months after the onset of needle injection treatment. The focus groups included children aged 11 to 17 years (n = 9) and parents (n = 8) with a minimum of 6 months of experience with injection treatment. Data were analyzed using thematic analysis. Results The main themes; “challenges,” “motivational factors,” and “routines” captured experiences and strategies that influenced the continuation of needle injections at home. Many children feared the moment immediately before the needle stick, although they had become accustomed to the pain. Most parents felt insecure about handling needle injections and lacked follow-up from healthcare providers. The experience of treatment effects and self-confidence were essential to maintain motivation for further injections. A number of coping strategies helped children focus away from injection related discomfort, often discovered by chance. Facilitating firm routines and shared responsibility within families helped children develop self-confidence during the procedure. Children and parents struggled to find suitable information on the Internet. Conclusions Children and parents experienced long-term needle injections challenging. They used their own limited resources and cooperated within the families to create routines and to introduce coping strategies necessary to manage and keep up with the procedure. Although the injection itself was not experienced very painful, the discomfort, worries and impact on daily life represented far more than a little needle stick, and thus needs more attention from healthcare providers.

scholarly journals I don’t want to think about it: a qualitative study of children (6 -18 years) with rheumatic diseases and parents' experiences with regular needle injections at home

2020 ◽  
Author(s):  
Kari Sørensen ◽  
Helge Skirbekk ◽  
Gunnvald Kvarstein ◽  
Hilde Wøien
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Coping Strategies ◽  
Rheumatic Diseases ◽  
Healthcare Providers ◽  
Needle Stick ◽  
Self Confidence ◽  
Children And Parents ◽  
At Home

Abstract Background Overall outcomes of pediatric rheumatic diseases (RD) have improved due to treatment with biologic agents and methotrexate. For many children, this treatment often entails regular needle injections. Pain and fear of needle injections are common in childhood, but how children and parents handle long-term needle injections at home has not been fully explored. This study aimed to explore how regular needle injections affect children with RD and their parents in their daily living.Methods This explorative qualitative study used individual interviews and focus groups to ensure a comprehensive investigation of the topic. Children aged 6 to 16 years (n = 7) and their parents (n = 8) were interviewed individually 4 to 6 months after the onset of needle injection treatment. The focus groups included children aged 11 to 17 years (n = 9) and parents (n = 8) with a minimum of 6 months of experience with injection treatment. Data were analyzed using thematic analysis. Results The main themes; “challenges,” “motivational factors,” and “routines” captured experiences and strategies that influenced the continuation of needle injections at home. Many children feared the moment immediately before the needle stick, although they had become accustomed to the pain. Most parents felt insecure about handling needle injections and lacked follow-up from healthcare providers. The children’s experience of treatment effects and self-confidence were essential to maintain motivation for further injections. A number of coping strategies helped children focus away from injection related discomfort, often discovered by chance. Facilitating firm routines and shared responsibility within families helped children develop self-confidence during the procedure. Children and parents struggled to find suitable information on the Internet. Conclusions Children and parents experienced long-term needle injections challenging. They used their own limited resources and cooperated within the families to create routines and to introduce coping strategies necessary to manage and keep up with the procedure. Although the injection itself was not experienced very painful, the discomfort, worries and impact on daily life represented far more than a little needle stick, and thus needs more attention from healthcare providers.

“Mourning With the Morning Bell”: An Examination of Secondary Educators’ Attitudes and Experiences in Managing the Discourse of Death in the Classroom

2017 ◽  
Vol 80 (3) ◽  
pp. 397-419
Author(s):  
Danielle M. Case ◽  
Wai Hsien Cheah ◽  
Min Liu
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Death And Dying ◽  
Secondary Educators ◽  
Student Death ◽  
Teachers Experiences ◽  
Perceived Preparedness ◽  
Research Questions ◽  
Classroom Data

A plethora of research exists about death and dying, particularly with regard to the prescriptive strategy on how teachers should address death in their classrooms. However, there is a gap in the literature about teachers’ perceived preparedness to discuss a student’s death in their classrooms. The following qualitative study used focus groups to explore teachers’ experiences with and beliefs about death, dying, coping, student death, and preparedness to address student death in the classroom. Data were transcribed and thematically analyzed. Themes and subthemes for all research questions are presented and explained; some themes explored include teachers’ views of death, death versus dying, initial and long-term coping, difficulties in addressing student death, the teachers’ role after a student’s death, feelings of being prepared versus unprepared to address student death in the classroom.

scholarly journals I don’t want to think about it: a qualitative study of children (6–18 years) with rheumatic diseases and parents’ experiences with regular needle injections at home

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Kari Sørensen ◽  
Helge Skirbekk ◽  
Gunnvald Kvarstein ◽  
Hilde Wøien
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Coping Strategies ◽  
Rheumatic Diseases ◽  
Healthcare Providers ◽  
Needle Stick ◽  
Self Confidence ◽  
Children And Parents ◽  
At Home

Abstract Background Overall outcomes of pediatric rheumatic diseases (RD) have improved due to treatment with biologic agents and methotrexate. For many children, this treatment often entails regular needle injections. Pain and fear of needle injections are common in childhood, but how children and parents handle long-term needle injections at home has not been fully explored. This study aimed to explore how regular needle injections affect children with RD and their parents in their daily living. Methods This explorative qualitative study used individual interviews and focus groups to ensure a comprehensive investigation of the topic. Children aged 6 to 16 years (n = 7) and their parents (n = 8) were interviewed individually 4 to 6 months after the onset of needle injection treatment. The focus groups included children aged 11 to 17 years (n = 9) and parents (n = 8) with a minimum of 6 months of experience with injection treatment. Data were analyzed using thematic analysis. Results The main themes; “challenges,” “motivational factors,” and “routines” captured experiences and strategies that influenced the continuation of needle injections at home. Many children feared the moment immediately before the needle stick, although they had become accustomed to the pain. Most parents felt insecure about handling needle injections and lacked follow-up from healthcare providers. The children’s experience of treatment effects and self-confidence were essential to maintain motivation for further injections. A number of coping strategies helped children focus away from injection related discomfort, often discovered by chance. Facilitating firm routines and shared responsibility within families helped children develop self-confidence during the procedure. Children and parents struggled to find suitable information on the Internet. Conclusions Children and parents experienced long-term needle injections challenging. They used their own limited resources and cooperated within the families to create routines and to introduce coping strategies necessary to manage and keep up with the procedure. Although the injection itself was not experienced very painful, the discomfort, worries and impact on daily life represented far more than a little needle stick, and thus needs more attention from healthcare providers.

Advancing the Theory and Measurement of Collective Empowerment: A Qualitative Study

2005 ◽  
Vol 25 (3) ◽  
pp. 211-238 ◽  
Author(s):  
Belinda Reininger ◽  
David W. Martin ◽  
Michael Ross ◽  
Pamela Smith Sinicrope ◽  
Tho Dinh-Zarr
Keyword(s):  
Qualitative Research ◽  
Qualitative Study ◽  
Focus Groups ◽  
Research Method ◽  
Ethnically Diverse ◽  
Structured Interviews ◽  
Long Term Outcomes ◽  
Grass Roots ◽  
Collective Empowerment

Grounded Theory, a qualitative research method, was used to fully describe the construct of empowerment and its measurement in racially and ethnically diverse urban and rural neighborhoods. Forty-nine grass roots experts, primarily from six communities in Texas, participated via semi-structured interviews and focus groups. Observational data were also collected. Results revealed that the framework of collective empowerment has two main dimensions: ten processes necessary for developing greater empowerment and eight long-term outcomes that result from the process strategies. The two main dimensions of collective empowerment are cyclically, rather than linearly, related. While the results are unique to the communities studied because of the nature of the analysis, the process by which they were elucidated can be replicated in any setting. These findings suggest that the construct of collective empowerment can be both operationalized and evaluated at the community level.

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