Ethical aspects of palliative care in lung cancer and end stage lung disease

2006 ◽  
Vol 3 (2) ◽  
pp. 93-101 ◽  
Author(s):  
J Neerkin ◽  
J Riley
Keyword(s):  
Lung Cancer ◽  
Palliative Care ◽  
Lung Disease ◽  
Ethical Aspects ◽  
End Stage

scholarly journals Quality of dying and death in patients with interstitial lung disease compared with lung cancer: an observational study

Thorax ◽  
2020 ◽  
pp. thoraxjnl-2020-215917
Author(s):  
Takafumi Koyauchi ◽  
Yuzo Suzuki ◽  
Kazuki Sato ◽  
Hironao Hozumi ◽  
Masato Karayama ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Decision Making ◽  
Palliative Care ◽  
Interstitial Lung Disease ◽  
Lung Disease ◽  
End Of Life ◽  
Symptom Relief ◽  
Mail Survey ◽  
Quality Of Dying

BackgroundThere is limited knowledge regarding the quality of dying and death (QODD) and end-of-life interventions in patients with interstitial lung disease (ILD). Hence, differences in QODD and end-of-life interventions between patients with ILD and those with lung cancer (LC) remain poorly understood.MethodsThe primary aim of this study was to explore the differences in QODD and end-of-life interventions among patients dying with ILD versus those dying with LC. We performed a mail survey to quantify the QODD of a bereaved family’s perspective using the Good Death Inventory (GDI) score. Moreover, we examined the end-of-life interventions by medical chart review.ResultsOf 361 consecutive patients analysed for end-of-life interventions, 167 patients whose bereaved families completed questionnaires were analysed for QODD. Patients with ILD had lower GDI scores for QODD than those with LC (p=0.04), particularly in domains related to ‘physical and psychological distress relief’ and ‘prognosis awareness and participation in decision making’ (p=0.02, respectively). In end-of-life interventions, patients with ILD were less likely to receive specialised palliative care services (8.5% vs 54.3%; p<0.001) and opioids (58.2% vs 73.4%; p=0.003). Additionally, lower frequencies of participation of patients with ILD in end-of-life discussion were also observed (40.8% vs 62.4%; p=0.007).ConclusionPatients with ILD had lower QODD and poorer access to palliative care and decision making than those with LC. Additional efforts to improve QODD in patients with ILD, particularly in symptom relief and decision-making processes, are urgently warranted.

scholarly journals Patients with end-stage interstitial lung disease may have more problems with dyspnea than end-stage lung cancer patients

2016 ◽  
Vol 22 (3) ◽  
pp. 282 ◽  
Author(s):  
Ryo Matsunuma ◽  
Hazuki Takato ◽  
Yoshihiro Takeda ◽  
Satoshi Watanabe ◽  
Yuko Waseda ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Interstitial Lung Disease ◽  
Lung Disease ◽  
Cancer Patients ◽  
Lung Cancer Patients ◽  
End Stage ◽  
Stage Lung Cancer

scholarly journals Palliative Care in Pediatric Pulmonology

Children ◽  
2021 ◽  
Vol 8 (9) ◽  
pp. 802
Author(s):  
Taylor Baumann ◽  
Shailendra Das ◽  
Jill Ann Jarrell ◽  
Yuriko Nakashima-Paniagua ◽  
Edith Adriana Benitez ◽  
...  
Keyword(s):  
Palliative Care ◽  
Lung Disease ◽  
Low Income ◽  
Clinical Course ◽  
Low Income Countries ◽  
Pediatric Pulmonology ◽  
Specialized Palliative Care ◽  
End Stage ◽  
Developmental Conditions ◽  
Growing Population

Children with End Stage Lung Disease (ESLD) are part of the growing population of individuals with life-limiting conditions of childhood. These patients present with a diverse set of pulmonary, cardiovascular, neuromuscular, and developmental conditions. This paper first examines five cases of children with cystic fibrosis, bronchopulmonary dysplasia, neuromuscular disease, pulmonary hypertension, and lung transplantation from Texas Children’s Hospital. We discuss the expected clinical course of each condition, then review the integration of primary and specialized palliative care into the management of each diagnosis. This paper then reviews the management of two children with end staged lung disease at Hospital Civil de Guadalajara, providing an additional perspective for approaching palliative care in low-income countries.

Palliative care

2021 ◽  
pp. 507-514
Author(s):  
Terry Robinson ◽  
Jane Scullion
Keyword(s):  
Palliative Care ◽  
Lung Disease ◽  
End Of Life ◽  
Respiratory Disease ◽  
Terminal Phase ◽  
Life Care ◽  
Disease Experience ◽  
Palliative Phase ◽  
End Stage ◽  
Anxiety Depression

Although there are respiratory diseases that are acute and respond well to treatments, many end in what could be viewed as an essentially palliative or terminal phase. Many respiratory disease processes are essentially chronic in nature and some patients should be considered palliative from diagnosis. There is increasing evidence that patients with end-stage lung disease experience declining heath, anxiety, depression, fatigue, coping difficulties, and somatic preoccupation, and if this is unrecognized then there is a potential for basic needs to remain unmet. This chapter describes the management of breathlessness, chest clearance, and relaxation during the palliative phase of care, methods for managing anxiety, depression, and pain, and the nurse’s role in care during end-of-life care.

scholarly journals The clinicopathological study of lung cancer concealed in end-stage of interstitial lung disease

2020 ◽  
Vol 9 (2) ◽  
pp. 536-546
Author(s):  
Bei Wang ◽  
Xiaoyan Zhang ◽  
Huang Chen ◽  
Lei Yang ◽  
Jie Li ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Interstitial Lung Disease ◽  
Lung Disease ◽  
Clinicopathological Study ◽  
End Stage
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