scholarly journals How mHealth can facilitate collaboration in diabetes care: qualitative analysis of co-design workshops

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Meghan Bradway ◽  
Rebecca L. Morris ◽  
Alain Giordanengo ◽  
Eirik Årsand
Keyword(s):  
Data Sharing ◽  
Diabetes Care ◽  
Healthcare Providers ◽  
End Users ◽  
Self Management ◽  
Afternoon Session ◽  
Data Types ◽  
Joint Workshop ◽  
And Performance ◽  
Management Recommendations

Abstract Background Individuals with diabetes are using mobile health (mHealth) to track their self-management. However, individuals can understand even more about their diabetes by sharing these patient-gathered data (PGD) with health professionals. We conducted experience-based co-design (EBCD) workshops, with the aim of gathering end-users’ needs and expectations for a PGD-sharing system. Methods N = 15 participants provided feedback about their experiences and needs in diabetes care and expectations for sharing PGD. The first workshop (2017) included patients with Type 2 Diabetes (T2D) (n = 4) and general practitioners (GPs) (n = 3). The second workshop (2018) included patients with Type 1 Diabetes (T1D) (n = 5), diabetes specialists (n = 2) and a nurse. The workshops involved two sessions: separate morning sessions for patients and healthcare providers (HCPs), and afternoon session for all participants. Discussion guides included questions about end-users’ perceptions of mHealth and expectations for a data-sharing system. Activities included brainstorming and designing paper-prototypes. Workshops were audio recorded, transcribed and translated from Norwegian to English. An abductive approach to thematic analysis was taken. Results Emergent themes were mHealth technologies’ impacts on end-users, and functionalities of a data-sharing system. Within these themes, similarities and differences between those with T1D and T2D, and between HCPs, were revealed. Patients and providers agreed that HCPs could use PGD to provide more concrete self-management recommendations. Participants’ paper-prototypes revealed which data types should be gathered and displayed during consultations, and how this could facilitate shared-decision making. Conclusion The diverse and differentiated results suggests the need for flexible and tailorable systems that allow patients and providers to review summaries, with the option to explore details, and identify an individual’s challenges, together. Participants’ feedback revealed that both patients and HCPs acknowledge that for mHealth integration to be successful, not only must the technology be validated but feasible changes throughout the healthcare education and practice must be addressed. Only then can both sides be adequately prepared for mHealth data-sharing in diabetes consultations. Subsequently, the design and performance of the joint workshop sessions demonstrated that involving both participant groups together led to efficient and concrete discussions about realistic solutions and limitations of sharing mHealth data in consultations.

scholarly journals How mHealth can facilitate collaboration in diabetes care: qualitative analysis of co-design workshops

2020 ◽  
Author(s):  
Meghan Bradway ◽  
Rebecca L Morris ◽  
Alain Giordanengo ◽  
Eirik Årsand
Keyword(s):  
Data Sharing ◽  
Diabetes Care ◽  
Healthcare Providers ◽  
End Users ◽  
Self Management ◽  
Afternoon Session ◽  
Data Types ◽  
Joint Workshop ◽  
And Performance ◽  
Management Recommendations

Abstract Background: Individuals with diabetes are using mobile health (mHealth) to track their self-management. However, individuals can understand even more about their diabetes by sharing these patient-gathered data (PGD) with health professionals. We conducted experience-based co-design (EBCD) workshops, with the aim of gathering end-users’ needs and expectations for a PGD-sharing system. Methods: N=15 participants provided feedback about their experiences and needs in diabetes care and expectations for sharing PGD. The first workshop (2017) included patients with Type 2 Diabetes (T2D) (n=4) and general practitioners (GPs) (n=3). The second workshop (2018) included patients with Type 1 Diabetes (T1D) (n=5), diabetes specialists (n=2) and a nurse. The workshops involved two sessions: separate morning sessions for patients and healthcare providers (HCPs), and afternoon session for all participants. Discussion guides included questions about end-users’ perceptions of mHealth and expectations for a data-sharing system. Activities included brainstorming and designing paper-prototypes. Workshops were audio recorded, transcribed and translated from Norwegian to English. An abductive approach to thematic analysis was taken. Results: Emergent themes were mHealth technologies’ impacts on end-users, and functionalities of a data-sharing system. Within these themes, similarities and differences between those with T1D and T2D, and between HCPs, were revealed. Patients and providers agreed that HCPs could use PGD to provide more concrete self-management recommendations. Participants’ paper-prototypes revealed which data types should be gathered and displayed during consultations, and how this could facilitate shared-decision making. Conclusion: The diverse and differentiated results suggests the need for flexible and tailorable systems that allow patients and providers to review summaries, with the option to explore details, and identify an individual’s challenges, together. Participants’ feedback revealed that both patients and HCPs acknowledge that for mHealth integration to be successful, not only must the technology be validated but feasible changes throughout the healthcare education and practice must be addressed. Only then can both sides be adequately prepared for mHealth data-sharing in diabetes consultations. Subsequently, the design and performance of the joint workshop sessions demonstrated that involving both participant groups together led to efficient and concrete discussions about realistic solutions and limitations of sharing mHealth data in consultations.

scholarly journals How mHealth can facilitate collaboration in diabetes care: qualitative analysis of co-design workshops

2020 ◽  
Author(s):  
Meghan Bradway ◽  
Rebecca L Morris ◽  
Alain Giordanengo ◽  
Eirik Årsand
Keyword(s):  
Data Sharing ◽  
Diabetes Care ◽  
Healthcare Providers ◽  
End Users ◽  
Self Management ◽  
Afternoon Session ◽  
Data Types ◽  
Joint Workshop ◽  
And Performance ◽  
Management Recommendations

Abstract Background: Individuals with diabetes are using mobile health (mHealth) to track their self-management. However, individuals can understand even more about their diabetes by sharing these patient-gathered data (PGD) with health professionals. We conducted experience-based co-design (EBCD) workshops, with the aim of gathering end-users’ needs and expectations for a PGD-sharing system. Methods: N=15 participants provided feedback about their experiences and needs in diabetes care and expectations for sharing PGD. The first workshop (2017) included patients with Type 2 Diabetes (T2D) (n=4) and general practitioners (GPs) (n=3). The second workshop (2018) included patients with Type 1 Diabetes (T1D) (n=5), diabetes specialists (n=2) and a nurse. The workshops involved two sessions: separate morning sessions for patients and healthcare providers (HCPs), and afternoon session for all participants. Discussion guides included questions about end-users’ perceptions of mHealth and expectations for a data-sharing system. Activities included brainstorming and designing paper-prototypes. Workshops were audio recorded, transcribed and translated from Norwegian to English. An abductive approach to thematic analysis was taken. Results: Emergent themes were mHealth technologies’ impacts on end-users, and functionalities of a data-sharing system. Within these themes, similarities and differences between those with T1D and T2D, and between HCPs, were revealed. Patients and providers agreed that HCPs could use PGD to provide more concrete self-management recommendations. Participants’ paper-prototypes revealed which data types should be gathered and displayed during consultations, and how this could facilitate shared-decision making. Conclusion: The diverse and differentiated results suggests the need for flexible and tailorable systems that allow patients and providers to review summaries, with the option to explore details, and identify an individual’s challenges, together. Participants’ feedback revealed that both patients and HCPs acknowledge that for mHealth integration to be successful, not only must the technology be validated but feasible changes throughout the healthcare education and practice must be addressed. Only then can both sides be adequately prepared for mHealth data-sharing in diabetes consultations. Subsequently, the design and performance of the joint workshop sessions demonstrated that involving both participant groups together led to efficient and concrete discussions about realistic solutions and limitations of sharing mHealth data in consultations.

scholarly journals How mHealth can facilitate collaboration in diabetes care: qualitative analysis of co-design workshops

2020 ◽  
Author(s):  
Meghan Bradway ◽  
Rebecca L Morris ◽  
Alain Giordanengo ◽  
Eirik Årsand
Keyword(s):  
Data Sharing ◽  
Healthcare Providers ◽  
End Users ◽  
Self Management ◽  
Afternoon Session ◽  
Data Types ◽  
Full Effect ◽  
Joint Workshop ◽  
Management Recommendations

Abstract Background: Individuals with diabetes are using mobile health (mHealth) to make and track their decisions regarding self-management. However, individuals can understand even more about their diabetes by sharing these patient-gathered data (PGD) with health professionals. We conducted experience-based co-design (EBCD) workshops, with the aim of gathering end-users’ needs and expectations for a PGD-sharing system. Methods: The first workshop (2017) included patients with Type 2 Diabetes (T2D) (n=4) and general practitioners (GPs) (n=3). The second workshop (2018) included patients with Type 1 Diabetes (T1D) (n=5), diabetes specialists (n=2) and a nurse. The workshops involved two sessions: separate morning sessions for patients and healthcare providers (HCPs), followed by a joint lunch and afternoon session for all participants together. A discussion guide was used to gather input regarding end-users’ expectations for the system. Participants then created and explained their own ideas for a data-sharing system, using paper-prototypes. Workshops were audio recorded, transcribed and translated from Norwegian to English. Inductive thematic analysis was performed. Results: The main emergent themes were mHealth technologies’ impacts on end-users, and functionalities of a data-sharing system. Patients and providers agreed that PGD could be used by HCPs to provide more concrete self-management recommendations. Participants made paper-prototypes to explain which data types to gather and display, and how the systems could be used to facilitate shared-decision making. However, all also agreed that a data-sharing system alone was not enough to achieve the full effect of mHealth. Conclusion: Participants’ feedback revealed that both patients and HCPs alike acknowledge that for mHealth integration to be successful, not only must the technology be validated but feasible changes throughout the healthcare education and practice must be addressed. Only then can both sides be adequately prepared for mHealth data-sharing in diabetes consultations. Subsequently, the design of the joint workshop sessions demonstrated that involving both participant groups in the same sessions led to efficient and concrete discussions about realistic solutions and limitations of sharing mHealth data in consultations.

scholarly journals How mHealth can facilitate collaboration in diabetes care: qualitative analysis of co-design workshops

2019 ◽  
Author(s):  
Meghan Bradway ◽  
Rebecca L Morris ◽  
Alain Giordanengo ◽  
Eirik Årsand
Keyword(s):  
Data Sharing ◽  
Healthcare Providers ◽  
End Users ◽  
Self Management ◽  
Afternoon Session ◽  
Health Care Education ◽  
Data Types ◽  
Full Effect ◽  
Management Recommendations

Abstract Background Individuals with diabetes are using mobile health (mHealth) to make decisions regarding self-management. However, individuals can understand even more about their diabetes by sharing these patient-gathered data (PGD) with health professionals. We conducted experience-based co-design (EBCD) workshops, with the aim of gathering end-users’ needs and expectations for a PGD-sharing system.Methods The first workshop (2017) included patients with Type 2 Diabetes (T2D) (n=4) and general practitioners (GPs) (n=3). The second workshop (2018) included patients with Type 1 Diabetes (T1D) (n=5), diabetes specialists (n=2) and a nurse. The workshops involved two sessions: separate morning sessions for patients and healthcare providers (HCPs), followed by a joint lunch and afternoon session for all participants together. A discussion guide was used to gather input regarding end-users’ expectations for the system. Participants then created and explained their own ideas for a data-sharing system, using paper-prototypes. Workshops were audio recorded, transcribed and translated from Norwegian to English. Inductive thematic analysis was performed.Results The main emergent themes were mHealth technologies’ impacts on end-users, and functionalities of a data-sharing system. Patients and providers agreed that PGD could be used by HCPs to provide more concrete self-management recommendations. Participants made paper-prototypes to explain which data types to gather and display, and how the systems could be used to facilitate shared-decision making. However, all also agreed that a data-sharing system alone was not enough to achieve the full effect of mHealth.Conclusion While seemingly contradictory, these results revealed that by bringing both together in the joint sessions, they were also able to equally elaborate their understanding of realistic limitations and solutions for mHealth integration. These workshops not only demonstrated the value of involving both parties together in co-design, they enabled participants to highlight that mHealth integration requires both validation of the technology as well as research into feasible changes throughout health care education and practice.

scholarly journals Perspectives from Underserved African Americans and their Healthcare Providers on the Development of a Diabetes Self-Management Smartphone Application: Exploratory Study (Preprint)

2020 ◽  
Author(s):  
Tai Barber-Gumbs ◽  
Ylva Trolle Lagerros ◽  
Laura M. Sena ◽  
Joel Gittelsohn ◽  
Larry W. Chang ◽  
...  
Keyword(s):  
African American ◽  
African Americans ◽  
Low Income ◽  
Diabetes Education ◽  
Healthcare Providers ◽  
Smartphone Application ◽  
Self Management ◽  
The Us ◽  
Management Recommendations ◽  
P Type

BACKGROUND Type 2 diabetes mellitus (T2DM) affects ~10% of the US population, disproportionately affecting African Americans. Smartphone applications (apps) have emerged as promising tools to improve diabetes self-management, yet little is known about the use of this approach in low-income minority communities. OBJECTIVE The goal of the study was to explore which features of an app were prioritized for people with T2DM in a low-income African-American community. METHODS Between February 2016 and May 2018, we conducted formative qualitative research with 78 participants to explore how a smartphone app could be used to improve diabetes self-management. Information was gathered on desired features and app mockups were presented to receive comments and suggestions of improvements from smartphone users with prediabetes/T2DM, their friends and family members, and healthcare providers (in 6 interactive forums, 1 focus group and 15 in-depth interviews). We carried out thematic data analysis using an inductive approach. RESULTS All three types of participants reported that difficulties with access to healthcare was a main problem and suggested that an app could help address this. Participants also indicated that an app could provide information for diabetes education and self-management. Other suggestions included that the app should allow people with T2DM to log and track diabetes care-related behaviors and receive feedback on their progress in a way that would increase a person with T2DM’s engagement in self-management. CONCLUSIONS We identified educational and tracking smartphone features that can guide development of diabetes self-management apps for a low-income African-American population. Considering those features in combination gives rise to opportunities for more advanced support, such as determining self-management recommendations based on data in user's logs. CLINICALTRIAL

scholarly journals Patients and clinicians’ vision of a future Internet-of-things (IoT) systems to support asthma self-management: a mixed method study from the A4A+ group (Preprint)

2020 ◽  
Author(s):  
Chi Yan Hui ◽  
Hilary Pinnock ◽  
Brian McKinstry ◽  
Olivia Fulton ◽  
Mark Buchner
Keyword(s):  
Internet Of Things ◽  
Weight Control ◽  
Healthcare Providers ◽  
Future Internet ◽  
Community Services ◽  
Living Environment ◽  
Self Management ◽  
Data Types ◽  
Online Questionnaire ◽  
The Uk

BACKGROUND Supported self-management for asthma reduces acute attacks and improves control. The Internet-of-Things (IoT) could connect patients to their healthcare providers, the community services and their living environment to provide over-arching support for self-management. OBJECTIVE We aimed to identify patients’ and clinicians’ preferences for a future IoT system and explore their vision of its potential to support holistic self-management. METHODS We recruited patients from volunteer databases and charities’ social media. We purposively sampled participants for interviews about their vision of the design and utility of the IoT as a future strategy for supporting self-management; other respondents completed an online questionnaire about the features they wanted. Clinicians were recruited from professional networks. Interviews were transcribed and analysed thematically with reference to the PRISMS self-management taxonomy. RESULTS We interviewed twelve patients and twelve clinicians in the UK. 140 patients completed the questionnaires. Patients mostly wanted the system to log their asthma automatically and provide real-time advice to help them learn about their asthma, identify and avoid triggers and to advise on treatment adjustment and other actions. Peak flow (23.6%), environmental (pollen, humidity/air temperature) (23.6%), and asthma symptoms (17.9%) were the top three data types that patients most wanted. Information about asthma and text/email access to clinical advice, provided a feeling of ‘safety’ for patients. Clinicians wanted automated, objective logs about patients’ conditions that they could access during consultations. The potential reduction in face-to-face consultations was appreciated by clinicians, potentially saving patients’ travel time and health service resources. Lifestyle logs of fitness regimes or weight control were valued by some patients, though of less interest to clinicians. CONCLUSIONS An IoT system can address the range of components needed to support self-management for people with asthma. An automated IoT system requiring minimal input from the user could improve health outcomes and potentially conserve healthcare resources.

scholarly journals Young adults’ perceptions of living with atopic dermatitis in relation to the concept of self-management: a qualitative study

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e044777
Author(s):  
Susanne Lundin ◽  
Marina Jonsson ◽  
Carl-Fredrik Wahlgren ◽  
Emma Johansson ◽  
Anna Bergstrom ◽  
...  
Keyword(s):  
Young Adults ◽  
Atopic Dermatitis ◽  
Qualitative Study ◽  
Healthcare Providers ◽  
Transition Process ◽  
Population Based ◽  
Self Management ◽  
School Age ◽  
Perceived Availability ◽  
Semistructured Interviews

ObjectivesLearning to take control of one’s health is an important part of the transition from adolescence to adulthood. This study aimed to explore young adults’ perceptions of living with atopic dermatitis (AD) in relation to the concept of self-management.DesignA qualitative study with an inductive approach was performed through semistructured interviews (n=15). The interviews were recorded, transcribed verbatim and analysed with systematic text condensation.ParticipantsYoung adults (mean age 23,4 years) with persistent AD in a longitudinal population-based birth cohort. To capture experience of living with persistent AD (preschool/school-age onset) of different severity (mild to severe/very severe), a purposive selection was performed. In total, 15 young adults were included. Persistent AD (preschool/school-age onset) was defined as dry skin in combination with itchy rash of typical localisation in the 12 months preceding the 16-year and the 24-year follow-ups. Severity was self-assessed using the Patient Oriented Eczema Measure.ResultsDespite having experience of AD since childhood, the respondents expressed uncertainty about treatment and how it affected their bodies. Their uncertainties and feelings affected how they used topical corticosteroids. The respondents emphasised that they perceived availability of healthcare and knowledge about treatment of AD among healthcare providers to be limited. The participants did not state any experiences of support to self-management from healthcare, which affect young adults’ possibilities to take full control of their AD care.ConclusionsYoung adults with preschool/school-age onset of AD are unsure how to treat and manage the disease. One explanation may be insufficient transition process.

scholarly journals Patient-led use of patient-reported outcome measure in self-Management of a Rotator Cuff Injury

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Maria J. Santana ◽  
Darrell J. Tomkins
Keyword(s):  
Rotator Cuff ◽  
Healthcare Providers ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Self Management ◽  
Care Organization ◽  
Surgical Interventions ◽  
Patient Reported ◽  
Rotator Cuff Injury ◽  
Dash Questionnaire

Abstract Introduction The patient is the person who experiences both the processes and the outcomes of care. Information held by the patient is vital for clinical and self-management, improving health outcomes, delivery of care, organization of health systems, and formulation of health policies. Patient-reported outcome measures (PROMs) play an important role in supporting patient’s self-management. This narrative describes a patient-led use of a PROM to self-manage after a rotator cuff injury. Methods This is a narrative of a patient who tore the supraspinatus tendon in her right shoulder in an accident. The Disabilities of the Arm, Shoulder and Hand, the DASH questionnaire, was used to monitor and self-manage recovery after the accident. The DASH questionnaire is a self-reported questionnaire that measures the difficulty in performing upper extremity activities and pain in the arm, shoulder or hand. It has been widely used in research studies, but here the patient initiated its use for self-management while waiting for and after rotator cuff surgery. The patient created separate sub-scale scores for function and for pain to answer questions from healthcare providers about her recovery. Results There was noticeable improvement over 3 months of conservative treatment, from a high level of disability of 56 to 39 (score changed 17); however, the scores were nowhere near the general population normative score of 10.1. Surgery improved the score from 39 pre-surgery to 28. Post-surgical interventions included physiotherapy, pain management and platelet-riched plasma treatment (PRP). The score was 14 4 weeks post-PRP. Conclusions The patient found the DASH useful in monitoring recovery from a rotator cuff injury (before and after surgery). The DASH contributed to communication with healthcare professionals and supported the clinical management. The DASH questionnaire was able to capture the patient’s experience with the injury and surgical recovery, corroborating an improvement in function while there was persistent post-surgical pain.

Sign in / Sign up

Export Citation Format

Share Document