scholarly journals A model for active and healthy ageing with a rare genetic disease: cystic fibrosis

2016 ◽  
Vol 47 (3) ◽  
pp. 714-719 ◽  
Author(s):  
Raphael Chiron ◽  
Davide Caimmi ◽  
Arunas Valiulis ◽  
Isabelle Durieu ◽  
Patrick Tejedor ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Genetic Disease ◽  
Healthy Ageing ◽  
Rare Genetic Disease ◽  
Active And Healthy Ageing

Epigenetics in Cystic Fibrosis: Epigenetic Targeting of a Genetic Disease

2015 ◽  
Vol 16 (9) ◽  
pp. 976-987 ◽  
Author(s):  
Nualpun Sirinupong ◽  
Zhe Yang
Keyword(s):  
Cystic Fibrosis ◽  
Genetic Disease

scholarly journals AIoTES: Setting the principles for a Semantic Interoperable and modern IoT-enabled Reference Architecture for Active and Healthy Ageing ecosystems

2021 ◽  
Author(s):  
Clara I. Valero ◽  
Alejandro M. Medrano Gil ◽  
Regel Gonzalez-Usach ◽  
Matilde Julian ◽  
Giuseppe Fico ◽  
...  
Keyword(s):  
Healthy Ageing ◽  
Reference Architecture ◽  
Active And Healthy Ageing

scholarly journals Perceptions and experiences of frailty interventions: quantitative and qualitative results from a survey of partners within the European Innovation Partnership on Active and Healthy Ageing (EIP-AHA)

2017 ◽  
Vol 38 (9) ◽  
pp. 1843-1867 ◽  
Author(s):  
HOLLY GWYTHER ◽  
RICHARD COOKE ◽  
RACHEL SHAW ◽  
MAURA MARCUCCI ◽  
ANTONIO CANO ◽  
...  
Keyword(s):  
Older Adults ◽  
Mixed Method ◽  
Online Survey ◽  
Healthy Ageing ◽  
Social Aspect ◽  
Free Text ◽  
Active And Healthy Ageing ◽  
Perceived Benefit ◽  
Inductive Thematic Analysis ◽  
Method Approach

ABSTRACTThe European Innovation Partnership on Active and Healthy Ageing (EIP-AHA) was launched by the European Commission in 2011 to promote innovation in ageing research. This paper explores the experiences of partners delivering frailty interventions within Europe, registering their programmes with the EIP-AHA. Data were collected using an online survey from 21 partners in seven countries. A mixed-method approach was used with inductive thematic analysis of free-text responses to improve data richness. Responses indicated that there was a lack of consistency between EIP-AHA partners in methods of defining, screening and measuring for frailty and pre-frailty. Open responses to survey questions about intervention facilitators, moderators and barriers were coded into two themes: working with stakeholders and project management. We concluded that EIP-AHA partners are providing interventions addressing physical, cognitive and wellbeing elements of frailty. However, there needs to be an increase in the proportion of interventions that consistently apply valid methods of screening and/or measuring frailty and pre-frailty. Most, but not all projects are targeting pre-frail older adults, suggesting an appropriate balance of prevention in a useful ‘intervention window’ but also a growing understanding that frailty at later stages is amenable to intervention. Findings suggest design manipulations to improve outcomes and adherence to interventions, specifically inclusion of a perceived benefit/reward for older adults, e.g. a social aspect or health-care promotion.

EP165 Significant renal arteriovenous malformation in the context of a rare genetic disease: The Bannayan Riley Ruvalcaba syndrome

2014 ◽  
Vol 13 (5) ◽  
pp. 175
Author(s):  
A.D. Urbina Lima ◽  
A.B. Albano Del Pozo ◽  
J.J. Colombo Stenstrom ◽  
J. Murillo Mirat ◽  
A. Pijierro Amador ◽  
...  
Keyword(s):  
Arteriovenous Malformation ◽  
Genetic Disease ◽  
Rare Genetic Disease ◽  
Renal Arteriovenous Malformation

scholarly journals Enabling active and healthy ageing decision support systems with the smart collection of TV usage patterns

2016 ◽  
Vol 3 (1) ◽  
pp. 46-50 ◽  
Author(s):  
Antonis S. Billis ◽  
Asterios Batziakas ◽  
Charalampos Bratsas ◽  
Marianna S. Tsatali ◽  
Maria Karagianni ◽  
...  
Keyword(s):  
Decision Support ◽  
Decision Support Systems ◽  
Support Systems ◽  
Healthy Ageing ◽  
Active And Healthy Ageing ◽  
Usage Patterns

Study protocol for Prospective RELOC-AGE: A longitudinal mixed-methods study exploring associations of housing, relocation and active and healthy ageing in Sweden (Preprint)

2021 ◽  
Author(s):  
Magnus Zingmark ◽  
Jonas Björk ◽  
Marianne Granbom ◽  
Giedre Gefenaite ◽  
Frida Nordeström ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Data Collection ◽  
Healthy Ageing ◽  
Health Care Use ◽  
Active Ageing ◽  
Telephone Interviews ◽  
Active And Healthy Ageing ◽  
Home Help ◽  
The Individual ◽  
Housing Attributes

BACKGROUND Background: While housing and neighbourhood features have the potential to impact opportunities for active ageing, there is a lack of knowledge related to how older people reason regarding their housing situation and how housing and fulfilment of relocation are associated with active and healthy ageing. OBJECTIVE Objective: The objectives of Prospective RELOC-AGE are to study housing choices and relocation and explore effects on active and healthy ageing among men and women 55 years or older in Sweden considering relocation. METHODS Methods: The estimated sample (n=2800) will include people aged 55+ being listed for relocation at either of two housing companies: a local public housing company in Southern Sweden and a national condominium provider (NCP). Prospective RELOC-AGE has a two-level longitudinal mixed-methods design and include quantitative surveys (implemented by a professional survey company) and a telephone interview for a baseline data collection in 2021, with follow-ups with the same procedures in 2022 and 2023. The survey and interviews include questions related to present housing and neighbourhood, relocation plans and expectations, a range of perspectives on active and healthy ageing, and demographics. Linking to national registers will provide additional data on e.g., home help and health care use, objective housing and neighbourhood characteristics. The study is registered at ClinicalTrials.gov NCT04765696 [1]. To explore what housing attributes older adults considering relocation find important, and to what extent, when making their decisions on housing, we will develop a Discrete Choice Experiment to be implemented with a subsample of participants. Further, a Grounded Theory (GT) approach will be applied to collect in-depth interview data from participants who have moved to another dwelling, within 6 months after the move. A follow-up interview 12 months later will focus on participants´ deepened experience over time in terms of fulfilled expectations relocation experiences. RESULTS Results: As of submission of this protocol (June 2021) recruitment has commenced with approximately n=960 respondents to the survey and with ongoing telephone interviews. We anticipate recruitment and data collection based on surveys and interviews to continue during 2021. CONCLUSIONS Conclusions: Prospective RELOC-AGE has the capacity to generate new policy-relevant knowledge on associations of housing, relocation and active and healthy ageing. Such knowledge is relevant for the development of proactive approaches to housing in old age on the individual, group as well as societal levels. CLINICALTRIAL ClinicalTrials.gov NCT04765696

Sign in / Sign up

Export Citation Format

Share Document