scholarly journals Parent perspectives on autistic girls’ friendships and futures

2018 ◽  
Vol 3 ◽  
pp. 239694151879449 ◽  
Author(s):  
Felicity Sedgewick ◽  
Vivian Hill ◽  
Elizabeth Pellicano
Keyword(s):  
Mental Health ◽  
Peer Relationships ◽  
Transition To Adulthood ◽  
Peer Interactions ◽  
Negative Influence ◽  
Sexual Relationships ◽  
Future Research ◽  
Structured Interviews ◽  
Social Lives ◽  
The Future

Background and aims Young people’s parents often play a key role in facilitating friendships and have their own views on these friendships. Yet parents have rarely been asked to report on the friendships and peer relationships of their autistic children. This study therefore sought to examine parents’ perspectives on the friendships and social difficulties of their autistic daughters, and their views and concerns about their daughters’ futures. Methods Twenty parents of autistic adolescent girls, aged between 11 and 18 years, took part in semi-structured interviews on the topics of friendships, conflict and thoughts about adulthood and the future. Results Results demonstrated that parents often have significant involvement in their daughters’ social lives and friendships and have a range of views on these relationships. They highlighted both benefits and pitfalls of their daughters’ peer interactions, and the perceived negative influence of these interactions on their daughters’ mental health. Most parents had significant concerns about their daughters’ futures, either about their ability to live independently, or their potential vulnerability to exploitation. Despite these concerns around sexual relationships, some parents were avoiding raising the issue with their daughters. Conclusions Adolescent autistic girls often have positive, close friendships, but can also be the victims of bullying, with significant negative impacts on their mental health, at least according to their parents. Concerns about girls’ development into adulthood were commonplace, with parents taking a range of approaches to attempt to talk about the future with their daughters. Implications There is an urgent need for more open conversations to help autistic girls stay safe and secure as they mature, supporting their ability to understand and negotiate more intimate social relationships. Future research should examine these changing relationships as autistic girls’ transition to adulthood and should seek to combine the views of parents alongside the young people themselves.

scholarly journals Male autistic youth experiences of belonging in integrated physical education

Autism ◽  
2021 ◽  
pp. 136236132110186
Author(s):  
Justin A Haegele ◽  
Anthony J Maher
Keyword(s):  
Physical Education ◽  
Peer Relationships ◽  
Peer Interactions ◽  
Physical Space ◽  
The United States ◽  
Educational Needs ◽  
Subjective Experiences ◽  
Structured Interviews ◽  
Autistic People ◽  
Locker Room

The study examined the subjective experiences of autistic youth regarding the role of peer interactions and relationships in feelings of belonging in integrated physical education classes. The term integrated is used to describe a setting in which all students, regardless of educational needs, are educated in the same physical space. Eight autistic youth (all male, aged 13–18 years) who had received most of their physical education in integrated classes acted as participants. Semi-structured interviews were used to generate qualitative data, which were analyzed using a reflexive thematic approach. Findings are presented in three themes: (a) bullying can lead to self-harm and self-isolation, (b) peer interactions and relationships in the locker room, and (c) peer relationships are based on shared interests and take time to develop. Even though autistic students were educated in the same spaces as their non-autistic peers, feelings of belonging were largely unavailable to them. Lay abstract Recent years have seen calls to amplify the voices of autistic people in research about their subjective experiences. Despite this, we know little about how autistic youth experience integrated physical education, particularly in the United States. The term integrated is used to describe a setting in which all students, regardless of educational needs, are educated in the same physical space. In this study, we sought to explore the perspectives of autistic youth toward their experiences in integrated physical education, and the roles of social interactions and relationships with peers in those experiences. Findings noted that several factors influenced the ways and extent to which our participants interacted with their peers during physical education. Unfortunately, most of our participants recalled experiencing bullying, and that physical education offered an environment where bullying was most frequent and comparatively unique compared to other contexts throughout the school day. The locker room, a space linked to physical education, was of particular concern because of a lack of teacher presence. Despite the negative views of and experiences in physical education, there was evidence of participants actively pursuing to connect with peers in this context. However, most instances where participants recalled pursuing friendship were not welcomed from others, which stunted their sense of belonging in this space. Given the role that belonging plays in what it means “to be included,” our research supports emerging ideas that even though autistic students were educated in the same physical spaces as their non-autistic peers, feelings of inclusion were largely absent.

The Formation of Postsecondary Expectations Among Parents of Youth With Autism Spectrum Disorder

2019 ◽  
Vol 35 (2) ◽  
pp. 118-128 ◽  
Author(s):  
Anne V. Kirby ◽  
Nancy Bagatell ◽  
Grace T. Baranek
Keyword(s):  
Autism Spectrum Disorder ◽  
Transition To Adulthood ◽  
Autism Spectrum ◽  
Parent Expectations ◽  
Spectrum Disorder ◽  
Future Research ◽  
Structured Interviews ◽  
The Family ◽  
Postsecondary Expectations

Research suggests higher parent expectations can predict more independent outcomes of youth with autism spectrum disorder (ASD), yet little is known about how parents’ expectations are formed. To gain an understanding of their formation, we conducted semi-structured interviews with seven parents of adolescents with ASD. Three main types of influences on parent expectations were identified: factors related to the youth, to the parent, and to social and societal forces external to the family. Although not directly probed, all of the participants also discussed their approaches to planning for the future, suggesting a connection with their expectations. These findings contribute to a growing body of literature on the role of parent expectations during the transition to adulthood. Future research and clinical practice implications include designing interventions aimed at expanding parent expectations in addition to approaches directly preparing youth with ASD for adulthood as a means to improve outcomes.

Interracial Relationships and the Transition to Adulthood

2005 ◽  
Vol 70 (4) ◽  
pp. 563-581 ◽  
Author(s):  
Kara Joyner ◽  
Grace Kao
Keyword(s):  
Transition To Adulthood ◽  
Social Life ◽  
Family Formation ◽  
Interracial Relationships ◽  
Sexual Relationships ◽  
Life Course Perspective ◽  
Future Research ◽  
Changing Patterns ◽  
Nationally Representative ◽  
Interracial Relationship

This study tracks and explains changing patterns of involvement in interracial sexual relationships during the transition to adulthood. Using a life course perspective that highlights the role of historical changes as well as age-graded changes in contexts and relationships, the authors hypothesize that involvement in interracial sexual relationships declines with increasing age among young adults. The analyses are based on some of the first nationally representative surveys to collect detailed information on sexual relationships: the National Longitudinal Study of Adolescent Health and the National Health and Social Life Survey. Findings from these surveys show that individuals are decreasingly likely to be in an interracial relationship between the ages of 18 and 35 years. They also suggest that the age decline in interracial involvement is a by-product of the transition to marriage in young adulthood and the increasing formation of interracial relationships in recent years. These findings have implications for future research on interracial relationships and family formation.

scholarly journals The Perfect Storm: A Developmental–Sociocultural Framework for the Role of Social Media in Adolescent Girls’ Body Image Concerns and Mental Health

2021 ◽  
Author(s):  
Sophia Choukas-Bradley ◽  
Savannah Roberts ◽  
Anne J. Maheux ◽  
Jacqueline Nesi
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Body Image ◽  
Peer Relationships ◽  
Adolescent Girls ◽  
Physical Appearance ◽  
Future Research ◽  
Body Image Concerns ◽  
Perfect Storm

In this theoretical review paper, we provide a developmental–sociocultural framework for the role of social media (SM) in contributing to adolescent girls’ body image concerns, and in turn, depressive symptoms and disordered eating. We propose that the features of SM (e.g., idealized images of peers, quantifiable feedback) intersect with adolescent developmental factors (e.g., salience of peer relationships) and sociocultural gender socialization processes (e.g., societal over-emphasis on girls’ and women’s physical appearance) to create the “perfect storm” for exacerbating girls’ body image concerns. We argue that, ultimately, body image concerns may be a key mechanism underlying associations between adolescent girls’ SM use and mental health. In the context of proposing this framework, we provide empirical evidence for how SM may increase adolescent girls’ body image concerns through heightening their focus on: (1) other people’s physical appearance (e.g., through exposure to idealized images of peers, celebrities, and SM influencers; quantifiable indicators of approval); and (2) their own appearance (e.g., through appearance-related SM consciousness; exposure to one’s own image; encouraging over-valuing of appearance; and peer approval of photos/videos). Our framework highlights new avenues for future research on adolescent girls’ SM use and mental health, which recognize the central role of body image.

scholarly journals The crucible of co-production: Case study interviews with Recovery College practitioner trainers

2019 ◽  
Vol 78 (8) ◽  
pp. 977-987
Author(s):  
Mark Dalgarno ◽  
Jennifer Oates
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Healthcare Professionals ◽  
Mental Healthcare ◽  
Single Site ◽  
Future Research ◽  
Service Users ◽  
Structured Interviews

Objectives: This study explored healthcare professionals’ accounts of being practitioner trainers in a mental health Recovery College, where they worked with peer trainers, who were people with lived experience of mental illness, to co-produce workshops for mental health service users and staff. The aim of this study was to understand the process of co-production in the Recovery College from the perspective of practitioner trainers. Design: Single-site case study. Setting: A Recovery College in the South of England, open to staff and service users from one mental health care provider organisation. Methods: Semi-structured interviews with eight mental healthcare professionals. Transcripts were thematically analysed. Results: A central image of ‘the workshop as crucible’ emerged from the three themes derived from the analysis. Co-facilitating the workshop was a ‘structured’ encounter, within which health professionals experienced ‘dynamism’ and change. For them, this involved experiences of ‘challenge and discomfort’. Conclusion: Findings from this study contribute to the evidence base for the evaluation of Recovery Colleges by focusing on the training impact on staff. Findings suggest that taking on a trainer role in Recovery College co-production is beneficial for healthcare professionals as well as mental health service users, especially if healthcare professionals are open to the dynamism and possible discomfort of these workshop encounters. Future research, however, should expand beyond single-site case studies to test the extent to which this metaphor and themes are appropriate to describing the ‘transformative’ element of co-production.

scholarly journals A Scoping Review of the Factors That Influence Families’ Ability or Capacity to Provide Young People With Emotional Support Over the Transition to Adulthood

2021 ◽  
Vol 12 ◽  
Author(s):  
Emily Stapley ◽  
Isabella Vainieri ◽  
Elizabeth Li ◽  
Hannah Merrick ◽  
Mairi Jeffery ◽  
...  
Keyword(s):  
Young People ◽  
Transition To Adulthood ◽  
Scoping Review ◽  
Emotional Support ◽  
Data Extraction ◽  
Romantic Partners ◽  
Research Area ◽  
Future Research ◽  
Structured Interviews ◽  
Parent Child Relationship

The transition to adulthood is typically marked by changes in relationships with family members, peers, and romantic partners. Despite this, the family often maintains a prominent role in young adults’ lives. A scoping review was conducted to identify the factors that influence families’ ability or capacity to provide young people with emotional support during the transition to adulthood, and to understand the gaps in this research area. Title and abstract searches were conducted from January 2007 to February 2021 in multiple databases, including PsycINFO, MEDLINE, and Sociological Abstracts. Fifteen semi-structured interviews were also conducted with stakeholders (professionals from relevant sectors/working within this field). In total, 277 articles were eligible for inclusion in the review. Following data extraction, 19 factors were identified. Factors with the most research (more than 20 articles) included: family proximity or co-residence; mental health; sex or gender differences; and family communication. Factors with less research included: societal context; young person’s sexual orientation or gender identity; social networks; and adverse life events. Gaps in the research area were also identified, including methodological issues (e.g., lack of mixed methods and longitudinal study designs), a disproportionate focus on the parent–child relationship, and a lack of contextually situated research. Our findings indicate that future research in this area could benefit from taking an intersectional, multi-method approach, with a focus on the whole family and diverse samples.

scholarly journals Experiences of renal healthcare practitioners during the COVID-19 pandemic: a multi-methods approach

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Clare Mc Keaveney ◽  
Joanne Reid ◽  
Claire Carswell ◽  
Ann Bonner ◽  
Ilaria de Barbieri ◽  
...  
Keyword(s):  
Mental Health ◽  
Emotional Exhaustion ◽  
Online Survey ◽  
General Health Questionnaire ◽  
Maslach Burnout Inventory ◽  
Future Research ◽  
Structured Interviews ◽  
Health Distress ◽  
Mental Health Distress ◽  
The Impact

Abstract Background Globally, renal healthcare practitioners provide intensive and protracted support to a highly complex multi-morbid patient population however knowledge about the impact of COVID-19 on these practitioners is extremely limited. Objective This study aimed to explore the experiences of COVID-19 with renal healthcare practitioners during the first global lockdown between June 2020 and September 2020. Methods A multi-methods approach was carried out including a quantitative survey and qualitative interviews. This was a multinational study of renal healthcare practitioners from 29 countries. Quantitative: A self-designed survey on COVID-19 experiences and standardised questionnaires (General Health Questionnaire-12; Maslach Burnout Inventory). Descriptive statistics were generated for numerical data. Qualitative: Online semi-structured interviews were conducted. Data was subjected to thematic analysis. Renal healthcare practitioners (n = 251) completed an online survey. Thirteen renal healthcare practitioners took part in semi-structured interviews (12 nurses and 1 dietician). Results The majority of participants surveyed were female (86.9 %; n = 218), nurses (86.9 %; n = 218) with an average 21.5 (SD = 11.1) years’ experience since professional qualification, and 16.3 years (SD = 9.3) working in renal healthcare. Survey responses indicated a level of preparedness, training and satisfactory personal protective equipment during the pandemic however approximately 40.3 % experienced fear about attending work, and 49.8 % experienced mental health distress. The highest prevalence of burnout was emotional exhaustion (35.9 %). Three themes emerged from the qualitative analysis highlighting the holistic complexities in managing renal healthcare, a neglected specialist workforce, and the need for appropriate support at work during a pandemic. Conclusions Results have highlighted the psychological impact, in terms of emotional exhaustion and mental health distress in our sample of renal healthcare practitioners. As the pandemic has continued, it is important to consider the long-term impact on an already stretched workforce including the risk of developing mental health disorders. Future research and interventions are required to understand and improve the provision of psychological support for specialist medical and nursing personnel.

An interpretative phenomenological analysis of prisoners’ experience of riotous behaviour in an adult male prison

2014 ◽  
Vol 16 (3) ◽  
pp. 203-215 ◽  
Author(s):  
Niamh Kennedy
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Motivational Factors ◽  
Future Research ◽  
Structured Interviews ◽  
Prison Staff ◽  
Content Type ◽  
The Future ◽  
The Individual ◽  
Insight Into

Purpose – Prison violence generates much public interest with concerns for the financial costs, staff safety and public safety. The purpose of this paper is to explore the experience of riotous behaviour from the perspective of prisoners in a maximum secure adult prison. It also seeks gather information and to generate discussion on areas for future research. Design/methodology/approach – A purposive sampling method and in-depth semi-structured interviews were carried out. Interpretative phenomenological analysis identified super ordinate themes and related sub-themes within the participants’ narratives. Emergent themes were then considered in relation to the theories and concepts that underpinned and connected them. Findings – Super ordinate themes emerged centred around the subject of social processing and relationships. Prisoners emphasised the role of prisoner-staff relationships in feeling valued as part of the social structure and considered riotous behaviour the best method of communication at that time. Social comparison highlighted the value they placed in being part of the prisoner culture and the nostalgic nature of the riotous behaviour for them. It lends support to earlier theory on prison adjustment and social psychological explanations for rioting. Research limitations/implications – It is not assumed that the findings of this study can be universally applied given the sample size and the idiosyncratic nature of participants’ experiences. This research may provide greater insight into the motivational factors related to individuals involved in riotous behaviour. With such insight prison staff may be more able to consider whether prisoners’ needs are being sufficiently met to help prevent such behaviour in the future. Practical implications – This research may help inform training on the identification and management of potential riots. With insight into the individual motivational factors prison staff may be more able to consider whether prisoners’ needs are being sufficiently met to help prevent such behaviour in the future. Originality/value – This paper reports on the prisoners’ individual experience of being involved in riotous behaviour. Due to the paucity of literature on this behaviour, this exploratory study is intended to add to existing knowledge.

Palliative care in the emergency department: A qualitative study exploring barriers, facilitators, desired clinician qualities, and future directions

2021 ◽  
pp. 1-6
Author(s):  
Alexa Gips ◽  
Bethany-Rose Daubman ◽  
Laura A. Petrillo ◽  
Jason Bowman ◽  
Kei Ouchi ◽  
...  
Keyword(s):  
Emergency Department ◽  
Palliative Care ◽  
Qualitative Study ◽  
Barriers And Facilitators ◽  
Future Research ◽  
Structured Interviews ◽  
Two Phase ◽  
Financial Model ◽  
The Future ◽  
The Impact

Abstract Objective To describe the perceived qualities of successful palliative care (PC) providers in the emergency department (ED), barriers and facilitators to ED–PC, and clinicians’ perspectives on the future of ED–PC. Method This qualitative study using semi-structured interviews was conducted in June–August 2020. Interviews were analyzed via a two-phase Rapid Analysis. The study's primary outcomes (innovations in ED–PC during COVID) are published elsewhere. In this secondary analysis, we examine interviewee responses to broader questions about ED–PC currently and in the future. Results PC providers perceived as successful in their work in the ED were described as autonomous, competent, flexible, fast, and fluent in ED language and culture. Barriers to ED–PC integration included the ED environment, lack of access to PC providers at all times, the ED perception of PC, and the lack of a supporting financial model. Facilitators to ED–PC integration included proactive identification of patients who would benefit from PC, ED-focused PC education and tools, PC presence in the ED, and data supporting ED–PC. Increased primary PC education for ED staff, increased automation, and innovative ED–PC models were seen as areas for future growth. Significance of results Our findings provide useful information for PC programs considering expanding their ED presence, particularly as this is the first study to our knowledge that examines traits of successful PC providers in the ED environment. Our findings also suggest that, despite growth in the arena of ED–PC, barriers and facilitators remain similar to those identified previously. Future research is needed to evaluate the impact that ED–PC initiatives may have on patient and system outcomes, to identify a financial model to maintain ED–PC integration, and to examine whether perceptions of successful providers align with objective measures of the same.

scholarly journals Leisure Experiences and Social Support Systems of Latino Students With DACA Status

2019 ◽  
Vol 14 (2) ◽  
pp. 79-98
Author(s):  
C. Austin Langley ◽  
Gwynn M. Powell ◽  
Toni Liechty ◽  
Willaim Haller ◽  
Denise Anderson
Keyword(s):  
Higher Education ◽  
Young Adults ◽  
Transition To Adulthood ◽  
Previous Literature ◽  
Future Research ◽  
Access To Higher Education ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Recreation Participation ◽  
Leisure And Recreation

The purpose of this study was to gain a better understanding of the leisure experiences of undocumented Latino young adults with Deferred Action for Childhood Arrivals (DACA) status in order to note any potential links between leisure experience and success in reaching higher education. This population faces a unique set of challenges in their transition to adulthood and their pursuit of and access to higher education. Research suggests that 3 common factors among undocumented young adults who have been successful in reaching higher education are extra-familial mentors, positive social supports, and supplementary educational programming. This study used these 3 factors and the principles of contact theory to examine leisure experiences of undocumented young adults with DACA status. Qualitative semi-structured interviews were conducted with 7 young adults with DACA status who were enrolled in higher education. The data were transcribed verbatim and analyzed thematically. Due to the difficulty accessing this population, snowball sampling was used beginning with a volunteer database from a local Hispanic Alliance. The results support previous literature that has identified constraints this population faces when striving for higher education, as well as the capacity of populations that experience disadvantages for leisure constraint negotiation. The findings show leisure and recreational pursuits support the development of the above mentioned 3-factor support system, helpful in reaching higher education, from previous literature and document a severe drop off of both leisure and recreation participation after high school graduation. Limitations of the study and implications for practice and future research are discussed.

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