Evaluating quality of life and well-being at the intersection of dementia care and creative engagement

Dementia ◽  
2021 ◽  
pp. 147130122199730
Author(s):  
Gail Kenning ◽  
Mandy Visser
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Dementia Care ◽  
Assessment Tools ◽  
Art And Design ◽  
The Social ◽  
The Many ◽  
Arts Engagement ◽  
Consistent Approach

Increasingly, art and design projects are used in dementia care settings to support the well-being of people living with dementia. However, the way well-being is defined and evaluated varies significantly in reporting. This study briefly examines the development of the concept of well-being and how it is intertwined with concepts of health and quality of life. It presents a scoping review of studies that use art and design to support the well-being of people living with dementia. We examined the characteristics and methodologies of the studies, how well-being is understood and operationalized, and how the outcomes are reported. The aim of this study was to understand whether there is any consistency in how well-being and related terminology are understood, the methodologies used, how projects are evaluated, the assessment tools used, and in what outcomes and implications are discussed. Results showed well-being and related terminology are used to reference the social, physical, states of mind and feelings, and in opposition to identified deficits. There was no consistent approach to how arts engagement for well-being in the dementia care space is carried out and evaluated. However, this study suggests that this is not necessarily problematic across arts engagement activities for well-being, providing the use of terminology and approaches, and means of evaluation are consistent and retain integrity within the design of individual projects. It suggests that well-designed projects provide frameworks that are able to take into account the many variables in relation to art and creativity and dementia care, and can offer transferability.

Improving the Perception of Patient-Centered Wellness in a Virtual Population During the COVID-19 Pandemic

2021 ◽  
pp. JDNP-D-20-00078
Author(s):  
Sybilla Myers ◽  
Christopher Kennedy
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
Shared Decision Making ◽  
Cognitive Theory ◽  
Well Being ◽  
Mobile App ◽  
Shared Decision ◽  
Patient Centered ◽  
The Social

BackgroundPerceived health-related quality of life (HRQOL) is fundamental to well-being and is a meaningful way to measure physical and mental health.Local ProblemNo standard method exists for measuring perceived HRQOL during the COVID-19 pandemic in participants as they attempt to improve their self-determined wellness goals. An implementation plan that considers the social distancing limitations imposed can be used to predict an individual’s likelihood of long-term success.MethodsDuring the four, 2-week plan-do-study-act (PDSA) cycles, the Social Cognitive Theory model informed the implementation of the four core interventions. To guide iterative changes, the data was analyzed through Excel and run charts.InterventionsThe four core interventions were the shared decision-making tool (SDMT), health mobile app tool (HMAT), wellness tracker tool (WTT), and the team engagement plan.ResultsAmong 28 participants, perceived quality of life increased by 70%, engagement in shared decision-making increased to 82%, app use and confidence increased to 85%, and goal attainment reached 81%.ConclusionsThe SDMT, health app, and wellness tracker created a methodical plan of accountability for increasing participant wellness. The contextual barrier of the COVID-19 pandemic added a negative wellness burden which was mitigated by creating a patient-centered culture of wellness.

scholarly journals The Gendering of Cancer Survivorship

2012 ◽  
Vol 3 (1) ◽  
pp. 63-76 ◽  
Author(s):  
D Skinner
Keyword(s):  
Quality Of Life ◽  
Medical Research ◽  
Cancer Survivorship ◽  
Clinical Studies ◽  
Well Being ◽  
Social Awareness ◽  
Social Production ◽  
The Social ◽  
The Relationship

This article examines the relationship between gender and cancer survivorship. I argue that gender is as critical as a category of analysis for understanding cancer survivorship as it is missing from survivorship studies, particularly as concerns the identificatory basis of survivor culture and clinical studies regarding survivors’ quality of life (QOL). This under-studied question of the gendering of survivorship is critical because the consequences of the social production of disease is far-reaching, from the nature of medical research to social awareness, to funding to the well-being of cancer survivors themselves.

PSYCHOLOGICAL WELL-BEING OF THE DYAD OF PARTNERS WITH DISABILITIES

2019 ◽  
Vol 7 ◽  
pp. 133
Author(s):  
Natalya Shipova ◽  
Ulyana Sevastyanova
Keyword(s):  
Quality Of Life ◽  
Close Relationships ◽  
Well Being ◽  
Structured Interview ◽  
Subjective Well Being ◽  
Psychological Well Being ◽  
Level Of Satisfaction ◽  
The Social ◽  
High Level

The relevance of the scientific problem and the scientific novelty are due to the social demand of society for studying problems related to the subjective well-being of people with disabilities. The focus of our attention is the psychological well-being of dyads in close relationships (romantic or marital). The aim of the study is to analyze the psychological well-being in a dyad of partners who are in close relationships. The article analyzes the characteristics inherent in close relations of couples in which one of the partners has a disability. Using the Scale of Adaptation and Cohesion (FACES-3)), the levels of adaptation and cohesion of the dyads were revealed. Methods Quality of life Enjoyment and Satisfaction Questionnaire examines quality of life and subjective well-being, assesses the degree of subjective satisfaction with emotional and social spheres, health, activity in free time. Particularly analyzed data of a semi-structured interview. Empirically revealed differences in the understanding of their own close relationships depending on the health status of the partner. Dyads, including partners with disabilities, demonstrate a high level of satisfaction, average cohesion values, partial balance. The study is complex, and now there is a clear prospect for its continuation.  

scholarly journals Human-dog relationships during COVID-19 pandemic; booming dog adoption during social isolation

2020 ◽  
Author(s):  
Liat Morgan ◽  
Alexandra Protopopova ◽  
Rune Isak Dupont Birkler ◽  
Beata Itin-Shwartz ◽  
Gila Abells Sutton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Isolation ◽  
Behavioral Problems ◽  
Life Quality ◽  
Well Being ◽  
The Social ◽  
Potential Benefits ◽  
The One ◽  
Impaired Quality

The recent COVID-19 pandemic led to uncertainty and severe health and economic concerns, which may have impacted human-dog relationships. Our objectives were to investigate how people perceived and acted during the COVID-19 pandemic social isolation, in regards to dog adoption and abandonment; and to examine the bidirectional relationships between dog owners’ well-being to that of their dogs. Overall, according to our analysis, the stricter the social isolation became during the pandemic, the interest in dog adoption as well as adoption rate increased significantly, while abandonment did not change. Moreover, there was a clear association between individuals’ impaired quality of life and their perceptions of poorer life quality of their dogs as well as the development of new behavioral problems. These findings suggest potential benefits for human-dog relationship during the COVID-19 pandemic, in compliance with the One Welfare approach.

scholarly journals Quality of Life, Needs and Fears of Mothers of Children with Disabilities in Saudi Arabia during the COVID-19 Lockdown

2021 ◽  
Vol 18 (21) ◽  
pp. 11442
Author(s):  
Nisreen Al Awaji ◽  
Monira Aldhahi ◽  
Shahnaz Akil ◽  
Salwa Awad ◽  
Eman Mortada
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Children With Disabilities ◽  
Well Being ◽  
Cross Sectional Study ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Raising Children ◽  
The Social

Substantial changes in life dynamics resulting from the outbreak of the coronavirus disease 2019 (COVID-19) could have an impact on the quality of life (QoL) of mothers of children with and without disabilities. This study compared the quality of life (QoL) of mothers of children with disabilities (MCD) to the QoL of mothers of children without disabilities (CON) in Saudi Arabia during COVID-19 lockdown. It explored mothers’ concerns and the type of support they need during the quarantine. A comparative cross-sectional study was conducted during the lockdown. An online questionnaire was distributed to mothers raising children with and without disabilities in Saudi Arabia. A total of 340 mothers participated in the study by completing the survey: 93 MCD and 247 CON. The QoL of MCD and CON was assessed using the WHOQOL-BREF questionnaire. Furthermore, detailed information was provided by the mothers regarding their needs and concerns during the lockdown. The results of the study revealed that the overall QoL was significantly higher in the CON group, compared to the MCD group, during the COVID-19 lockdown. The social well-being and environmental well-being reported by MCD were significantly lower on the total scale of the WHOQOL-BREF than those reported by the CON group. The comparison between the two groups revealed significant differences in the support required by mothers during the COVID-19 pandemic: a higher percentage of MCD needed emotional and psychological support, especially from family members. The major concerns reported by MCD were the deterioration of their children’s medical conditions and the lack of medical supplies during the lockdown.

scholarly journals Psychological Well-Being of Children in Covid Scenario – Ayurvedic Approach

2020 ◽  
pp. 1-4
Author(s):  
Febin H ◽  
◽  
Jithesh M ◽  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Well Being ◽  
Vulnerable Groups ◽  
Psychological Well Being ◽  
Psychological Issues ◽  
The Social ◽  
Learning Platforms

The entire health scenario have been transformed or even altered with the COVID pandemic. Each and every one in the society is being affected in the scenario of mental health, with the resulting drastic changes happened in the society. One of the key vulnerable groups in the society is none other than children. Even though the educational scenario has been supplemented by the learning platforms, the social scenario have been affected so adversely. They are having several psychological issues as per reported studies from various parts of the globe. Ayurvedic principles of psychiatry and psychology including preventive principles, medicines and psychotherapy will do fine if applied in this area, so as to enhance the quality of life of the affected children. The various possibilities are discussed in the article

scholarly journals Situación Familiar, Protección Social y Bienestar de las Personas Mayores en Perspectiva Europea Comparada

2016 ◽  
Vol 4 (2) ◽  
pp. 96 ◽  
Author(s):  
Almudena Moreno ◽  
Juan Antonio Vicente-Virseda
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Welfare States ◽  
Comparative Approach ◽  
Social Policies ◽  
Subjective Well Being ◽  
Association Analyses ◽  
Multigenerational Households ◽  
The Social

The aim of this research is therefore to analyse the well-being of people over 65 living in multi-generational households, compared to those who live in their own home, either with a partner or alone. The analysis takes a comparative approach, and seeks to analyse and unravel the differences between countries in terms of the subjective well-being of this segment according to the type of household they live in, against a backdrop of the framework of the welfare state, social policies on dependent care, and family models. The methodology used in this comparative approach consists of applying association analyses based on “decision trees”. The data source used is the European Quality of Life Survey, 2011-2012. The findings show that live in multigenerational households is inversely related to the perception of well-being and quality of life in the group of people over 65 years in the countries of southern Europe. Indeed the results suggest that the social policies implemented by welfare States can satisfactorily contribute to the well-being and quality of life of these groups in the same or greater measure as family solidarity, as evidenced by the results obtained for Nordic countries.

scholarly journals OPPORTUNITIES OF THE SOCIAL PROTECTION SYSTEM TO IMPROVE THE QUALITY OF LIFE OF SUBSTITUTE FAMILIES IN THE REPUBLIC OF MORDOVIA: ANALYSIS OF THE RESEARCH RESULTS

2020 ◽  
Vol 11 (3) ◽  
pp. 40-44
Author(s):  
T.V. Soloveva ◽  
◽  
E.G. Pankova ◽  
D.A. Bistyaikina ◽  
◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Services ◽  
Social Protection ◽  
Well Being ◽  
Protection System ◽  
Traumatic Experience ◽  
Adoptive Families ◽  
The Social ◽  
The Republic

The article presents the results of a study of the possibilities of the social protection system to improve the quality of life of substitute families in the Republic of Mordovia. The authors conclude that a substitute family is not a legally defined term for any type of family that accepts a child (children) left without parental care. Social protection of a substitute family is a system of support provided by providing a set of social services to the family in order to preserve and strengthen the social, psychological and physical health of members of the foster family and prevent secondary abandonment of the child. Professional formation and support of substitute families is one of the most important stages in the work of specialists working with a child placed in a family and members of this family. The results of the research presented in the article suggest that in General, substitute parents in the Republic of Mordovia are satisfied with the socio-psychological and socio-legal knowledge obtained during the preparation and decision-making on the creation of a substitute family. Adaptation and upbringing of a foster child, the features of children who have a traumatic experience of breaking up with their biological parents and the features of their development in adolescence – are the topics that were most significant for the substitute parents. The authors observed that adoptive families are heterogeneous both in terms of social well-being in General, and by the presence and intensity of elements, and therefore family policies should focus not only on the institution of foster families in General, but to be differentiated in relation to different groups. The results obtained provide a scientific basis for such a differentiated policy, which corresponds to the principle of targeting, widely declared in social policy and social work.

scholarly journals Quality of Life in Young Adults With Cerebral Palsy: A Longitudinal Analysis of the SPARCLE Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Nicolas Vidart d'Egurbide Bagazgoïtia ◽  
Virginie Ehlinger ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt-Schuchert ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Social Relationships ◽  
Young Adulthood ◽  
Associated Factors ◽  
Well Being ◽  
Psychological Well Being ◽  
The Social

Introduction: While most people with cerebral palsy (CP) will have a life expectancy similar to that of the general population, international research has primarily focused on childhood and adolescence; and knowledge about the quality of life (QoL) of young adults with CP, its trajectories, and associated factors remains scarce.Methods: This longitudinal study included young adults with CP living in five European regions and who had previously participated in the SPARCLE cohort as children and/or adolescents. Their QoL in the psychological well-being and social relationships domains was estimated using age-appropriate validated instruments (KIDSCREEN-52 in childhood/adolescence and WHOQOL-Bref in young adulthood). We used generalized linear mixed-effect models with random intercept to estimate long-term trajectories of QoL in both domains and to investigate whether severity of impairment, pain, and seizure influenced these trajectories. We sought to identify potentially different trajectories of QoL from childhood to adulthood using a shape-based clustering method.Results: In total, 164 young adults with CP aged 22–27 years participated in the study. Psychological well-being linearly decreased by 0.78 points (scale 0–100) per year (95% confidence interval (CI) −0.99 to −0.56) from childhood to young adulthood, whereas QoL in the social relationships domain increased (β coefficient 1.24, 95% CI 0.92–1.55). Severity of impairment was associated with reduced QoL in all life periods of the study (childhood, adolescence, and young adulthood): motor impairment with social relationships, and more nuancedly intellectual disability with psychological well-being and social relationships. At all periods, frequent pain significantly reduced psychological well-being, and seizures were associated with lower QoL in the social relationships domain. In both domains, we identified a group of individuals with CP who presented a reverse trajectory compared with the general QoL trajectory.Conclusion: Identification of QoL trajectories and their associated factors yields improved knowledge about the experience of individuals with CP until young adulthood. Further studies are needed to better understand the determinants that have the greatest influence on the different shapes of long-term trajectories of QoL.

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