scholarly journals Understanding Supportive Care Factors Among African American Breast Cancer Survivors

2016 ◽  
Vol 29 (1) ◽  
pp. 21-29 ◽  
Author(s):  
Claudia M. Davis ◽  
Adeline M. Nyamathi ◽  
Alham Abuatiq ◽  
Geraldine C. Fike ◽  
Anna M. Wilson

Introduction: Comprehensive breast cancer care includes not only diagnosis, staging, and treatment of cancer but also assessment and management of the physical, psychological, social, and informational needs, collectively known as supportive care. Several studies have documented the importance of addressing supportive care factors among breast cancer survivors. However, there appears to be a paucity of research concerning African American breast cancer survivors (AABCS). Therefore, the purpose of this study was to describe and understand the patient-centered supportive care factors among self-identified AABCS. Method: Using a qualitative descriptive approach, an open-ended question explored supportive care factors that were used by N = 155 AABCS. Results: Four supportive care factors were identified: faith, supportive structures, optimism, and access to information. Discussion: An understanding of these factors might facilitate discussion between survivors and the health care team. The resultant effect could also inform and promote the delivery of culturally specific health care to address the supportive care needs among these women.

2018 ◽  
Vol 18 (6) ◽  
pp. e1237
Author(s):  
Christina Kozul ◽  
Lesley Stafford ◽  
Chad Bousman ◽  
Allan Park ◽  
Kerry Shanahan ◽  
...  

2018 ◽  
pp. 1-11 ◽  
Author(s):  
Renee Stubbins ◽  
Tiancheng He ◽  
Xiaohui Yu ◽  
Mamta Puppala ◽  
Chika F. Ezeana ◽  
...  

Purpose Only 34% of breast cancer survivors engage in the recommended level of physical activity because of a lack of accountability and motivation. Methodist Hospital Cancer Health Application (MOCHA) is a smartphone tool created specifically for self-reinforcement for patients with cancer through the daily accounting of activity and nutrition and direct interaction with clinical dietitians. We hypothesize that use of MOCHA will improve the accountability of breast cancer survivors and help them reach their personalized goals. Patients and Methods Women with stages I to III breast cancer who were at least 6 months post–active treatment with a body mass index (BMI) greater than 25 kg/m2 were enrolled in a 4-week feasibility trial. The primary objective was to demonstrate adherence during weeks 2 and 3 of the 4-week study period (14 days total). The secondary objective was to determine the usability of MOCHA according to the system usability scale. The exploratory objective was to determine weight loss and dietitian-participant interaction. Results We enrolled 33 breast cancer survivors who had an average BMI of 31.6 kg/m2. Twenty-five survivors completed the study, and the average number of daily uses was approximately 3.5 (range, 0 to 12) times/day; participants lost an average of 2 lbs (+4 lbs to −10.6 lbs). The average score of usability (the second objective) was 77.4, which was greater than the acceptable level. More than 90% of patients found MOCHA easy to navigate, and 84% were motivated to use MOCHA daily. Conclusion This study emphasizes the importance of technology use to improve goal adherence for patients by providing real-time feedback and accountability with the health care team. MOCHA focuses on the engagement of the health care team and is integrated into clinical workflow. Future directions will use MOCHA in a long-term behavior modification study.


2015 ◽  
Vol 24 (2) ◽  
pp. 737-746 ◽  
Author(s):  
Lori Mandelzweig ◽  
Angela Chetrit ◽  
Tova Amitai ◽  
Bernice Oberman ◽  
Nava Siegelmann Danieli ◽  
...  

2016 ◽  
Vol 2016 ◽  
pp. 1-9 ◽  
Author(s):  
Emmanuel Joseph Fong ◽  
Whye Lian Cheah

Background.Recognizing the needs of cancer survivors is one of the important aspects in healthcare delivery. This study aimed to determine the prevalence of unmet supportive care needs and its associated factors among the breast cancer survivors of community-based support group in Kuching, Sarawak.Materials and Methods.This was a cross-sectional study using Supportive Care Needs Survey (SCNS-SF34). All the members of community-based breast cancer support groups in Kuching were invited. A total of 101 respondents were face-to-face interviewed after the consent was obtained. Data was entered and analyzed using SPSS version 20.Results.The respondents endorsedhealth system and informationdomain with the highest mean score (2.48; 95% CI: 2.32–2.64). Top 10 items with “moderate to high” level unmet needs had a prevalence of 14.9% to 34.7% of respondents indicating need. Significantly higher level of unmet needs was associated with survivors who were younger (less than 60 years old), had higher education attainment, were unemployed, had survival duration of up to 5 years, and were undergoing active treatment.Conclusion. Systematic delivery of health information which is targeted, culturally sensitive, and linguistically appropriate for addressing younger age, education level, employment status, length of survivorship, and treatment stage should be considered not only at hospital-based setting but also at the community-based support groups.


Cancer ◽  
2010 ◽  
Vol 117 (12) ◽  
pp. 2643-2651 ◽  
Author(s):  
Emily K. Hill ◽  
Stacey Sandbo ◽  
Emily Abramsohn ◽  
Jennifer Makelarski ◽  
Kristen Wroblewski ◽  
...  

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