Equality for followers of South Asian religions in end-of-life care

2012 ◽  
Vol 20 (4) ◽  
pp. 382-391 ◽  
Author(s):  
Jo Samanta
Keyword(s):  
End Of Life ◽  
South Asian ◽  
End Of Life Care ◽  
British Society ◽  
Minority Populations ◽  
Life Care ◽  
The Public ◽  
Asian Religions ◽  
The Government ◽  
Enhance Patient Care

Significant minority populations confer richness and diversity to British society. Responsive end-of-life care is a universal need that has ascended the public agenda following myriad reports of inadequate provision. Nevertheless, the potential exists for unwitting discrimination when caring for terminally ill patients on the basis of their religion or faith. Recent implementation of the Equality Act 2010, together with the government and professional initiatives, promises to positively impact upon this area of contemporary relevance and concern, although the extent to which facilitative policies can truly enhance patient care will depend upon how these are translated into care at the bedside. The contributions of health professionals will be central in meeting the challenges and seizing the opportunities for meeting the religion and faith interests of patients of South Asian descent.

scholarly journals The public health end-of-life care movement: history, principles, and styles of practice

2018 ◽  
Author(s):  
Aliki Karapliagou ◽  
Allan Kellehear ◽  
Klaus Wegleitner
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Psychosocial Care ◽  
Care Practice ◽  
Life Care ◽  
The Public ◽  
Civic Practice ◽  
Practice Methods

This chapter briefly outlines the history, key concepts, and main practice methods from public health approaches to end-of-life care. Although linked to psychosocial care approaches, its main methods draw not from psychology or health services inspired approaches but rather from health promotion, community development, and civic engagement. Key methods covered include community volunteering, social networking, community engagement, and compassionate communities and cities. The aim of these kinds of approaches is to embed palliative care practice as a social and civic practice in all sectors of society and to ensure that palliative care as a policy is represented in all civic policies (e.g. schools, workplaces, faith groups, and cultural activities) and not solely in health care.

Comfort while Dying: a Transnational History of Pediatric End of Life Care

2018 ◽  
Author(s):  
Emilie Hill-Smith
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Hospice Care ◽  
Well Being ◽  
Life Care ◽  
The Public ◽  
Depth Analysis ◽  
Personal Experiences ◽  
History Of ◽  
Being There

Through an in-depth analysis of current and historical literature, this thesis explores the question: what is hospice and end of life care for children? I will dissect the various dimensions of children’s hospice care and how it has evolved over time. Also in my thesis, I will draw from my personal experiences in volunteering at a children’s hospice to discuss the support and care that volunteers receive. Through this literature review I hope to bring to light to a subject that is often overlooked or too difficult for people to discuss. I will propose plans to better the care for children and families who are facing the end of life. My thesis will summarize the current literature available about the type of care that children receive worldwide and how this care affects families and children’s well-being. There has been minimal research done on children in end of life due to the topic’s sensitive nature. My goals is to inform the public of an under discussed but important topic in paediatric medicine.

Patienthood, Body, and Life Span

2020 ◽  
Vol 15 (1) ◽  
pp. 10-29
Author(s):  
Kathleen Longwaters
Keyword(s):  
Life Span ◽  
End Of Life ◽  
South Asian ◽  
End Of Life Care ◽  
The Body ◽  
Life Care ◽  
Medical Technologies ◽  
Letting Go ◽  
Medical Traditions ◽  
Limits Of Medicine

Abstract Changes in medical technologies have increased questions about how best to handle end-of-life care at the same time as raising questions about the extent to which death can be held off or the life span extended. This article is an offshoot from a broader examination of medical approaches to the dying in two South Asian medical traditions. In this piece, tensions between letting go of life and extending it are illuminated by an exploration of patienthood and body in the context of dying via the Carakasaṃhitā, a foundational text of Ayurveda. These tensions continue in the tradition and speak to questions raised in biomedicine as well. An acknowledgment of the limits of medicine comes up against the desire to continually do more, to cure us of our mortality. Much work has been done on the concept of the body in South Asian medicines, but little has focused on the stage of dying.

Implementation and evaluation of a palliative and end-of-life care peer-learning initiative

2021 ◽  
Vol 30 (4) ◽  
pp. 244-249
Author(s):  
Michelle Buono
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Hospice Care ◽  
Peer Learning ◽  
Research Approach ◽  
Life Care ◽  
Hospice Nurses ◽  
Action Research Approach ◽  
Level Of Training ◽  
Enhance Patient Care

Background: Palliative and end-of-life care skills for nurses in acute care are dependent on the level of training received. Hospices are seen as fountains of knowledge in end-of-life and complex care issues. Aim: This study evaluated peer learning between registered nurses (RNs) at West Suffolk Foundation Trust and St Nicholas Hospice Care. Six acute and six hospice nurses spent 1 week each, over a 6-month period, shadowing in the opposite of their usual acute or hospice setting. Method: The study used an action research approach. Reflective diaries, questionnaires and evaluation forms provided feedback, giving nursing practice perspectives on learning gained during the shadowing process. Findings: Key features were improved knowledge in medications for symptom management in end of life; understanding holistic assessments to enhance patient care; key competencies completed. Conclusion: This study led to the development of the West Suffolk Foundation Trust 2-day shadowing model offering access to end-of-life care learning.

scholarly journals Providing a “Good Death”: Critical Care Nurses’ Suggestions for Improving End-of-Life Care

2006 ◽  
Vol 15 (1) ◽  
pp. 38-45 ◽  
Author(s):  
Renea L. Beckstrand ◽  
Lynn Clark Callister ◽  
Karin T. Kirchhoff
Keyword(s):  
Critical Care ◽  
Intensive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Critical Care Nurses ◽  
Good Death ◽  
Primary Concern ◽  
Major Theme ◽  
Life Care ◽  
The Public

• Background Providing appropriate end-of-life care has become a primary concern of nurses and the public. The highly technological critical care environment may not facilitate such care. • Objective To collect suggestions from critical care nurses for improving end-of-life care in intensive care units. • Methods A geographically dispersed, random sample of 1409 members of the American Association of Critical-Care Nurses was sent a 72-item survey on perceptions of end-of life care. The survey included a request for suggestions on ways to improve end-of life care. • Results Of the 861 critical care nurses who responded to the survey, 485 offered 530 suggestions for improving end-of-life care. Providing a “good death” was the major theme; specific suggestions included ways to help ensure death with dignity and peace. Barriers to providing good deaths included nursing time constraints, staffing patterns, communication challenges, and treatment decisions that were based on physicians’ rather than patients’ needs. Suggestions for providing a good death included facilitating dying with dignity; not allowing patients to be alone while dying; managing patients’ pain and discomfort; knowing, and then following, patients’ wishes for end-of-life care; promoting earlier cessation of treatment or not initiating aggressive treatment at all; and communicating effectively as a health-care team. Educational initiatives for professionals and the public were also suggested. • Conclusions Implementation of specific suggestions provided by experienced critical care nurses might increase the quality of end-of-life care, facilitating a good death for intensive care patients.

scholarly journals Evaluasi Kinerja Perawat dalam Pemberian Asuhan Keperawatan end of life Rumah Sakit X di Jakarta

2021 ◽  
Vol 15 (1) ◽  
pp. 71-80
Author(s):  
Teresa Teresa ◽  
Hanny Handiyani ◽  
Dewi Gayatri
Keyword(s):  
End Of Life ◽  
Nursing Care ◽  
End Of Life Care ◽  
Employment Status ◽  
Strong Relationship ◽  
Life Care ◽  
Chi Square ◽  
Cross Sectional ◽  
Purposive Sampling ◽  
The Government

Evaluating the performance of nurses in providing end-of-life care among nurses in the government hospital in JakartaBackground: The application of end-of-life nursing care has not been optimal. The effect on nursing performance. These factors include liking civil servants, attitude, and leadership.Purpose: To find out the determinants of nurse performance that must be done in the final period of nursing care in the hospital.Method: A quantitative-based cross-sectional with the population and sample are staff nurses at Jakarta Hospital. The samples taken with purposive sampling method (220 nurses). Analyzing by correlation’s chi square and logistic regression.Results: Finding that there was a relationship between nursing performance and employment status (p-0,018), attitude (p-0,000), and leadership (p-0,044). Multivariate result show nursing performance has a relationship with employment status (p-0,004), attitude (p-0,978) and leadership (p-0,855).Conclusion: Nursing performance related to job status, attitude, and leadership has a strong relationship. Suggestions to hospital management to support nurses attending workshops or training in stimulating nursing behavior and leadership related to patient care in end-of-life nursing performance and following by rewards in employment status.Keywords: Evaluating; Performance of nurses; Providing end-of-life care; Nurses; HospitalPendahuluan: Penerapan asuhan keperawatan pasien end of life belum optimal. Hal ini dapat dipengaruhi oleh kinerja perawat. Faktor-faktor yang mempengaruhi kinerja perawat adalah status kepegawaian, sikap, dan kepemimpinan. Tujuan: Mengetahui  kinerja perawat dalam menerapkan asuhan keperawatan end of life di RS.Metode: Metode penelitian yang digunakan adalah penelitian kuantitatif cross sectional.  Populasi dalam penelitian ini adalah perawat pelaksana yang bekerja di rumah sakit X di Jakarta. Tehnik pengambilan sampel yang digunakan dengan purposive sampling sebanyak 220 perawat pelaksana. Analisis dilakukan dengan  uji chi square  dan regresi logistic.Hasil: Menunjukkan ada hubungan yang bermakna antara kinerja perawat dengan status kepegawaian (p-0,018), sikap (p-0,000), dan kepemimpinan (p-0,044). Hasil multivariat menunjukkan adanya hubungan antara kinerja perawat dengan status kepegawaian (p-0,044), sikap (p-0,978), dan kepemimpinan (p-0,855).Simpulan: Kinerja dalam kategori baik bila status kepegawaian baik, sikap positif, kepemimpinan dijalankan dalam mengarahkan perawat pada penerapan asuhan keperawatan EOL. Saran dibutuhkan pembinaan  sikap,  kepemimpinan dan  perlunya  peningkatan status kepegawaian bila memungkinkan.

scholarly journals Dödshjälpsdebatten i Finland

2020 ◽  
pp. 75-102
Author(s):  
Kalle Mäki
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Political Process ◽  
Public Debate ◽  
The Political ◽  
Expert Group ◽  
Life Care ◽  
The Public ◽  
Expert Opinions ◽  
Health Committee

The citizens’ initiative to legalise euthanasia was addressed in the Finnish Parliament in 2017. The Parliament rejected the initiative and appointed an expert group to investigate the need for legislation regarding end-of-life care and the need for euthanasia. Thus, the debate continues. This chapter provides an overview of the public debate and the political process associated with the citizens’ initiative. The initiative is critically examined on the basis of expert opinions requested by the Parliament’s Social and Health Committee. In a vote, the MPs rejected the initiative. One of the central arguments has been that it is not appropriate to legalise euthanasia when end-of-life care is not sufficiently developed in Finland. From many quarters, opinions were raised against the legalisation of euthanasia, promoting support for legislation on end-of-life care instead.

scholarly journals Exploring end-of-life care for South Asian kidney patients: interviewer reflections

2017 ◽  
Vol 23 (3) ◽  
pp. 120-128 ◽  
Author(s):  
Emma Wilkinson ◽  
Muhammad Waqar ◽  
Balbir Gill ◽  
Pina Hoque ◽  
Champa Jetha ◽  
...  
Keyword(s):  
End Of Life ◽  
South Asian ◽  
End Of Life Care ◽  
Life Care
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