scholarly journals Psychological Distress Among Latino Family Caregivers of Adults With Schizophrenia: The Roles of Burden and Stigma

2007 ◽  
Vol 58 (3) ◽  
pp. 378-384 ◽  
Author(s):  
Sandy M. Magaña ◽  
Jorge I. Ramírez García ◽  
María G. Hernández ◽  
Raymond Cortez
2018 ◽  
Vol 17 (04) ◽  
pp. 448-452
Author(s):  
Tomohiro Uchida ◽  
Noriaki Satake ◽  
Toshimichi Nakaho ◽  
Akira Inoue ◽  
Hidemitsu Saito

AbstractObjectivesThe Bereavement Risk Assessment Tool (BRAT) seems to be useful in identifying those who are likely to suffer from the more severe consequences of bereavement. To date, however, only a few studies have examined bereavement risk using the BRAT. This study investigated bereavement risk in family caregivers of patients with cancer using the Japanese version of the Bereavement Risk Assessment Tool (BRAT-J). We also investigated the relationship of bereavement risk with psychological distress and resilience among caregivers to determine the validity of the BRAT-J.MethodsWe conducted family psychoeducation in the palliative care unit of Tohoku University Hospital with participants who were recruited in this study. Among the participants, 50 family caregivers provided their written informed consent and were included in this study. Participants were assessed using the BRAT-J and completed the Japanese version of the Kessler Psychological Distress Scale (K6) and the Tachikawa Resilience Scale (TRS).ResultsAccording to the BRAT-J, five individuals (10%) were in the high category of bereavement risk (level 4 or 5). We also found that family caregivers of patients experienced many different pressures, such as facing the unknown; their own work; and insufficient financial, practical, or physical resources. These issues are associated with various mental problems. Additionally, the level of bereavement risk was significantly correlated with K6 scores (ρ = 0.30, p = 0.032), and the TRS score (ρ = –0.44, p = 0.001). These correlations confirmed previous findings and that the BRAT-J can be an efficient screening tool for the bereavement risk of family caregivers of patients with cancer.Significance of resultsIt appears that the BRAT-J is useful in predicting the likelihood of difficulties or complications in bereavement for family caregivers and could help to provide support with these issues when needed.


2021 ◽  
Author(s):  
Mehrdad Abdullahzadeh ◽  
Narjes Khosravi

Abstract PurposeThe family of leukemia patients, due to their caring role, often feel psychological distress. This paper describes the efficacy of a designed family-need-based program on relieving depression, anxiety, and stress of family caregivers of leukemia patients by meeting the specific psychological needs of caregivers.MethodsIn this clinical trial, 64 family caregivers of leukemia patients referring to a medical center in Iran were recruited by convenience sampling and divided into study and control groups randomly. The study group attended a designed need-based program. The control group did not receive the intervention. Stress, anxiety, and depression before, right after, and one month after the intervention in family caregivers were compared using DASS-42. Data were analyzed using descriptive and inferential statistics; the significance level adopted was 5%.ResultsBefore the intervention, the mean score of depression, anxiety, and stress scale in both study and control groups showed no considerable difference (P > 0.05). After the intervention, the mean score of DASS-42 revealed a significant difference between the two groups and the study group did better on outcomes (P < 0.001).ConclusionThis family-need-based program can decrease the level of stress, anxiety, and depression of the family caregivers of leukemia patients and may potentially alleviate the psychological distress of family caregivers over their caring role.Trial registration number: IRCT2013093011895N2. Date of registration: 2014-05-06


2018 ◽  
Vol 2 (suppl_1) ◽  
pp. 851-852
Author(s):  
K Corey ◽  
M McCurry ◽  
K Sethares ◽  
M Bourbonniere ◽  
K Hirschman ◽  
...  

2019 ◽  
Vol 16 (3) ◽  
pp. 263-272 ◽  
Author(s):  
Laura S Porter ◽  
Gregory Samsa ◽  
Jennifer L Steel ◽  
Laura C Hanson ◽  
Thomas W LeBlanc ◽  
...  

Background/Aims Pain is a major concern of patients with advanced cancer and their caregivers. There is strong evidence that pain coping skills training interventions based on cognitive-behavioral principles can reduce pain severity and pain interference. However, few such interventions have been tested for patients with advanced cancer and their family caregivers. This study aims to test the efficacy of a caregiver-guided pain coping skills training protocol on patient and caregiver outcomes. Methods A total of 214 patients age ≥18 with Stage III–Stage IV cancer and moderate to severe pain, along with their family caregivers, are being identified and randomized with a 1:1 allocation to the caregiver-guided pain coping skills training intervention or enhanced treatment-as-usual. Dyads in both conditions receive educational resources on pain management, and the caregiver-guided pain coping skills training intervention includes three weekly 60-min sessions conducted with the patient–caregiver dyad via videoconference. Measures of caregiver outcomes (self-efficacy for helping the patient manage pain, caregiver strain, caregiving satisfaction, psychological distress) and patient outcomes (self-efficacy for pain management, pain intensity and interference, psychological distress) are collected at baseline and post-intervention. Caregiver outcomes are also collected 3 and 6 months following the patient’s death. The study is enrolling patients from four tertiary care academic medical centers and one free-standing hospice and palliative care organization. The primary outcome is caregiver self-efficacy for helping the patient manage pain. Results This article describes challenges in the design and implementation of the CaringPals trial. Key issues for trial design include the identification and recruitment of patients with advanced cancer and pain, and the follow-up and collection of data from caregivers following the patient’s death. Conclusion The CaringPals trial addresses a gap in research in pain coping skills training interventions by addressing the unique needs of patients with advanced cancer and their caregivers. Findings from this study may lead to advances in the clinical care of patients with advanced cancer and pain, as well as a better understanding of the effects of training family caregivers to help patients cope with pain.


2016 ◽  
Vol 96 ◽  
pp. 78-82 ◽  
Author(s):  
Xiaoyun Chen ◽  
Yixuan Mao ◽  
Linghua Kong ◽  
Guopeng Li ◽  
Minglan Xin ◽  
...  

2015 ◽  
Vol 33 (6) ◽  
pp. 527-536 ◽  
Author(s):  
Dulce M. Cruz-Oliver ◽  
Theodore K. Malmstrom ◽  
Natalia Fernández ◽  
Manas Parikh ◽  
Jessica García ◽  
...  

2014 ◽  
Vol 40 (2) ◽  
pp. 65-70 ◽  
Author(s):  
Isabel Cuéllar-Flores ◽  
M. Pilar Sánchez-López ◽  
Rosa María Limiñana-Gras ◽  
Lucía Colodro-Conde

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