scholarly journals The Transition to the Adult Health Care System Among Youths With Autism Spectrum Disorder

2017 ◽  
Vol 68 (7) ◽  
pp. 735-738 ◽  
Author(s):  
Robert A. Nathenson ◽  
Benjamin Zablotsky
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Health Care System ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adult Health ◽  
Adult Health Care ◽  
Care System

Development and implementation of health care transition resources for youth with autism spectrum disorders within a primary care medical home

Autism ◽  
2020 ◽  
pp. 136236132097449
Author(s):  
Jill F Harris ◽  
Leigh P Gorman ◽  
Aditi Doshi ◽  
Shannon Swope ◽  
Shayleigh D Page
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Health Care Provider ◽  
Care Provider ◽  
Transition Process ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adult Health ◽  
Medical Providers ◽  
Adult Health Care

Transition from pediatric to adult health care systems presents unique challenges for adolescents with autism spectrum disorder who often have complex medical and mental health needs. Without a coordinated transition plan, pediatric providers often continue to provide care to young adults with autism spectrum disorder beyond the scope of their medical training. Adult providers may be unwilling and untrained to accept care for young adults with autism spectrum disorder. This quality improvement study identified baseline transition-related practices within a pediatric medical home practice and developed a model to promote transition to adult heath care for patients with autism spectrum disorder. Participants were 251 patients with autism spectrum disorder aged 12–21 years. Baseline data revealed limited and inconsistent communication directed to patients and families regarding transition. An evidence-based and replicable transition checklist, templated documentation, and resources geared to patients aged 12–21 years were developed. While improvement was noted in number of visits addressing transition, medical providers skipped or deferred transition discussion in approximately half of well visits for targeted patients. Challenges in implementing the transition process included finding time to discuss transition-related issues with patients/families, preference of medical providers to defer to social work to address transition, and difficulty identifying adult providers with whom to collaborate regarding care needs. Lay abstract As adolescents become adults, they typically change from seeing a pediatric health care provider to seeing a health care provider who specializes in working with adults. Adolescents with autism spectrum disorder may have more difficulty finding an adult health care provider who is trained to address the varied needs and medical and mental health issues that often are seen with autism spectrum disorder. Without careful planning for transition to adult health care, patients may continue to be seen by pediatric providers who may not be familiar with adult health needs. This quality improvement project focused on improving transition to adult health care by creating varied supports for the patient, family, and the health care team and putting them into action within a pediatric medical practice that serves over 250 adolescent and young adult patients with autism spectrum disorder. Before the supports were put into place, patients and families received limited and inconsistent communication to help them with transition. While the supports helped increase the amount and quality of help patients and families received, medical providers skipped or put off transition discussion in approximately half of well visits for targeted patients. Challenges in implementing the transition process included finding time to discuss transition-related issues with patients/families, preference of medical providers to have social workers discuss transition, and difficulty identifying adult health care providers for patients. This suggests more work is needed to both train and partner with patients, families, and health staff to promote smooth and positive health transitions.

scholarly journals Sociocultural Barriers to Early Diagnosis of Autism Spectrum Disorder

2020 ◽  
Vol 1 (4) ◽  
pp. 6
Author(s):  
Anum Farooq ◽  
Shoaib Ahmed
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Early Diagnosis ◽  
Health Care System ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Educational Outreach ◽  
Diagnostic Process ◽  
Pathway To Care ◽  
Care System

Objective: To qualitatively explore community, family, and health care system barriers to early diagnosis of autism spectrum disorder (ASD) in children. Study Design: A phenomenological qualitative approach was used to explore mothers' experiences of receiving ASD diagnosis for their children. Place and Duration of Study: The study was conducted at Autism Resource Centre Islamabad, from March 2018 to August 2018. Materials and Methods: In-depth qualitative interviews of eight mothers of children diagnosed with ASD, who were above 36 months of age. Results: Using thematic analysis, three major themes were identified as barriers in reaching ASD diagnosis i.e. parent's lack of knowledge and misperceptions of ASD; health care system issues like undefined pathway to care, dissatisfaction with medical or associated professionals, delays due to structural and process barriers; and family factors such as stigma around mental health and disability, family denial and financial constraints. Conclusion: Additional educational outreach to families, de-stigmatization of ASD, streamlining the ASD diagnostic process, and providing additional support to parents of at-risk children may decrease delays in ASD diagnosis among children.

Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions

Autism ◽  
2014 ◽  
Vol 19 (3) ◽  
pp. 262-271 ◽  
Author(s):  
Karen A Kuhlthau ◽  
Marji E Warfield ◽  
Jill Hurson ◽  
Jennifer Delahaye ◽  
Morgan K Crossman
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adult Health ◽  
New Directions ◽  
Adult Health Care

scholarly journals Pharmacological treatments prescribed to people with autism spectrum disorder (ASD) in primary health care

2013 ◽  
Vol 231 (6) ◽  
pp. 1011-1021 ◽  
Author(s):  
Macey L. Murray ◽  
Yingfen Hsia ◽  
Karen Glaser ◽  
Emily Simonoff ◽  
Declan G. M. Murphy ◽  
...  
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Primary Health Care ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Pharmacological Treatments ◽  
Primary Health

Health Care Quality for Children: The Position of Autism Spectrum Disorder

2014 ◽  
pp. 139-165 ◽  
Author(s):  
Christina D. Bethell ◽  
Olivia Lindly ◽  
Michael Kogan ◽  
Katharine Zuckerman
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Health Care Quality ◽  
Autism Spectrum ◽  
Care Quality ◽  
Spectrum Disorder

Early intervention of Autism Spectrum Disorder: translating research into practice

2018 ◽  
Vol 1 (01) ◽  
pp. 1-7
Author(s):  
Preeti Kandasamy ◽  
Harshini Manohar
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorder ◽  
Early Intervention ◽  
Behavioral Interventions ◽  
Health Care Policy ◽  
Neurodevelopmental Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Treatment Modalities ◽  
Training Of Trainers

Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder, with increasing prevalence globally. Early intervention has been shown to improve the core deficits and result in a favorable outcome in children with ASD. Various interventional methods, novel mechanisms, and approaches are being widely researched. Though accelerating interventional research in ASD is observed globally, evidence from Indian setting is sparse. Given the uniqueness of cultural, socio-economic conditions, population statistics, existing health care and referral system, it is pivotal to develop and test interventional methods that are applicable and acceptable to the indigenous population. This paper reviews the currently available evidence-based treatment modalities in the Indian settings, with a specific focus on the behavioral interventions. Early diagnosis is seldom seen to translate into early intervention. In the background of the existing challenges, strategies to translate research into practice in terms of developing sustainable methods of service delivery, capacity building, training of trainers, need for liaison between experts and role of health care policy makers are discussed. Improving awareness among parents, medical professionals and stakeholders is the first step forward, towards translating research into practice.

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