scholarly journals Needs of patients in palliative care from the perspective of family members

2021 ◽  
Vol 26 (1) ◽  
pp. 14-18
Author(s):  
Valentina Novak ◽  
Amer Ovčina ◽  
Marijana Neuberg ◽  
Tina Cikač
Keyword(s):  
Palliative Care ◽  
Family Members ◽  
Holistic Approach ◽  
Structured Interview ◽  
Social Needs ◽  
Spiritual Needs ◽  
Holistic Nursing ◽  
Four Dimensions ◽  
Educating Nurses ◽  
Made In

Introduction: Every person is a multidimensional being and certain needs arise from each dimension. In palliative care, the emphasis is on alleviating the physical, emotional, spiritual, and social needs of patients through a holistic approach. The aim of the study was to determine how family members recognize and experience the needs of their family members who are in palliative care. Methods: A qualitative research method was used. Data were obtained through interviews. Coding determined categories and codes that were later linked into grounded theory. For the purposes of the research, a semi-structured interview was conducted via the Google Meet application. The study involved 4 participants. Results: The analysis of the interviews defined four categories that talk about the segments of holistic care: physical, psychological, social and spiritual needs. The presented codes are supported by the statements of the participants. Discussion: Family members of patients in palliative care recognize the needs arising from all four dimensions of human – physical, psychological, social and spiritual needs, but in practice, the emphasis is still on caring for physical needs. Conclusion: The best results of palliative care are recognized in taking care of the physical needs of patients, especially pain, but more effort should be made in educating nurses and organizing changes to completely implement holistic nursing care in which psychological, social and spiritual needs are also taken care of

scholarly journals Competências do enfermeiro para o cuidado paliativo em cardiologia

2018 ◽  
Vol 12 (9) ◽  
pp. 2341 ◽  
Author(s):  
Bruna Christine Floriano Brabo ◽  
Manoela Gomes Grossi Laprano
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
Intensive Care ◽  
Clinical Decision Making ◽  
Clinical Decision ◽  
Structured Interview ◽  
Social Needs ◽  
Joint Decision ◽  
Multiprofessional Team ◽  
Terapia Intensiva

RESUMOObjetivo: analisar as competências profissionais do enfermeiro para o cuidado paliativo em Unidade de Terapia Intensiva Cardiológica. Método: estudo qualitativo, descritivo e exploratório fundamentado no referencial teórico das Competências Centrais em Cuidados Paliativos e realizado na UTI de um hospital cardiológico. Realizou-se a entrevista semiestruturada com oito enfermeiros. Para a interpretação dos dados, utilizaram-se a análise de conteúdo e a categorização. Resultados: prevaleceram enfermeiras de 31 a 41 anos, com mais de dez anos de experiência na profissão e com, ao menos, um curso de pós-graduação. As competências mais citadas estão relacionadas aos constituintes centrais dos cuidados paliativos, à família, ao autoconhecimento, ao desenvolvimento profissional e ao conforto físico. As categorias menos citadas retratam as necessidades psicológicas, espirituais, o trabalho em equipe, a comunicação e a tomada de decisão ética e clínica. Não houve relatos das necessidades sociais. As competências não aplicadas referem-se à atuação na equipe multiprofissional, à tomada de decisão conjunta e à educação dos profissionais e da família. Conclusão: prevaleceram citações de competências relacionadas à assistência. Após recente implantação do serviço, observa-se a necessidade do fortalecimento da equipe multiprofissional e da educação dos profissionais de Enfermagem. Descritores: Cuidados Paliativos; Competência Profissional; Cuidados Críticos; Enfermagem; Unidade de Terapia Intensiva; Cardiologia.ABSTRACT Objective: to analyze the professional competencies of the nurse for palliative care in the Cardiology Intensive Care Unit. Method: a qualitative, descriptive, exploratory study based on the theoretical reference of the Central Skills in Palliative Care and carried out at the ICU of a cardiological hospital. A semi-structured interview was conducted with eight nurses. For the interpretation of the data, the content analysis and the categorization were used. Results: nurses from 31 to 41 years old, with more than ten years of experience in the profession and with at least one postgraduate course prevailed. The most cited competences are related to the central constituents of palliative care, family, self-knowledge, professional development and physical comfort. The less-quoted categories portray psychological, spiritual, teamwork, communication, and ethical and clinical decision-making. There were no reports of social needs. The competences that were not applied, refer to the performance in the multiprofessional team, the joint decision making and the education of the professionals and the family. Conclusion: citations of competence related to care prevailed. After the recent implementation of the service, the need to strengthen the multiprofessional team and the education of nursing professionals is observed. Descritores: Palliative Care; Profissional Competence; Critical Care; Nursing; Intensive Care Units; Cardiology.RESUMEN Objetivo: analizar las competencias profesionales del enfermero para el cuidado paliativo en Unidad de Terapia Intensiva Cardiológica. Método: estudio cualitativo, descriptivo, exploratorio fundamentado en el referencial teórico de las Competencias Centrales en Cuidados Paliativos y realizado en la UTI de un hospital cardiológico. Se realizó la entrevista semiestructurada con ocho enfermeros. Para la interpretación de los datos, se utilizaron el análisis de contenido y la categorización. Resultados: prevalecieron enfermeras de 31 a 41 años, con más de diez años de experiencia en la profesión y con, al menos, un curso de postgrado. Las competencias más citadas están relacionadas a los constituyentes centrales de los cuidados paliativos, a la familia, al autoconocimiento, al desarrollo profesional y al confort físico. Las categorías menos citadas retratan las necesidades psicológicas, espirituales, el trabajo en equipo, la comunicación y la toma de decisión ética y clínica. No hubo informes de las necesidades sociales. Las competencias no aplicadas se refieren a la actuación en el equipo multiprofesional, a la toma de decisión conjunta y a la educación de los profesionales y de la familia. Conclusión: prevalecieron citaciones de competencias relacionadas a la asistencia. Después de la reciente implantación del servicio, se observa la necesidad del fortalecimiento del equipo multiprofesional y de la educación de los profesionales de Enfermería. Descritores: Cuidados Paliativos; Competencia Profissional; Cuidados críticos; Enfermería; Unidades de cuidados intensivos; Cardiología.   

scholarly journals A qualitative exploration of interactional and organizational determinants of collaboration in cancer palliative care settings: Family members’, health care professionals’ and key informants’ perspectives

PLoS ONE ◽  
2021 ◽  
Vol 16 (10) ◽  
pp. e0256965
Author(s):  
Marco Bennardi ◽  
Nicola Diviani ◽  
Georg Stüssi ◽  
Piercarlo Saletti ◽  
Claudia Gamondi ◽  
...  
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
Focus Groups ◽  
Health Care Professionals ◽  
Care Delivery ◽  
Family Members ◽  
Personal Characteristics ◽  
Social Needs ◽  
Framework Analysis ◽  
Key Informants

As life expectancy has increased, a growing number of people experience conditions, including cancers, that carry complex health and social needs. Palliative care services have the potential to address these needs but face significant obstacles. One major obstacle is suboptimal interprofessional collaboration. This study’s goal was an in-depth exploration of interactional and organizational barriers and supports of collaboration in palliative care in Switzerland. We sought the perspectives of health care professionals, patients’ family members and leaders and experts in oncology/palliative care delivery (key informants) through interviews and focus groups with fifty HPs and key informants and ten patients’ family members. Qualitative analyses of interviews and focus groups used framework analysis. We identified three major themes of interaction: personal characteristics, communication, and connectedness with other health care professionals; and three major organizational themes: service characteristics, standardized communication and processes, and service coordination and promotion. Based on our findings, we recommend that health care professionals consider strategies to increase their collaboration and communication skills and opportunities to interact. We advocate the implementation of methods for coordinating services, standardization of consultation/referral procedures and communication between health care professionals, and the promotion of underutilized services to foster successful, sustainable collaboration.

Care of children with advanced illness

2015 ◽  
Author(s):  
John J. Collins ◽  
Kirsty Campbell ◽  
Wendy Edmonds ◽  
Judith Frost ◽  
Martha F. Mherekumombe ◽  
...  
Keyword(s):  
Palliative Care ◽  
Treatment Options ◽  
Geographical Location ◽  
Holistic Approach ◽  
Global Perspective ◽  
World Health ◽  
Spiritual Needs ◽  
Advanced Illness ◽  
Paediatric Palliative Care ◽  
Health Organization

The World Health Organization supports the global application of the principles of palliative care to every child with a life-limiting illness, irrespective of geographical location whilst acknowledging that treatment options are limited in some countries. The care of the child with advanced and progressive illness and their family requires a holistic approach to the often complex physical, social, psychological, and spiritual needs as well as support in bereavement. This inevitably requires a paediatric palliative care team with diverse skills and abilities to meet these needs. This chapter discusses the global perspective of paediatric palliative care and the role of the team, nursing, and volunteers in that care. The significant physical and psychosocial issues for the child with advanced illness are discussed, as well as bereavement support of families. The necessity of quality improvement and strategies for setting up such a programme are outlined.

Assessment of Health Problems and Social Needs of Elderly in old age Homes of Biratnagar Metropolitan

2020 ◽  
Vol 10 (1) ◽  
pp. 169-184
Author(s):  
Menuka Bhandari ◽  
Alweena Niroula ◽  
Shamila Chaudhary
Keyword(s):  
Old Age ◽  
Sampling Method ◽  
Total Population ◽  
Sampling Technique ◽  
The Elderly ◽  
Structured Interview ◽  
Social Needs ◽  
Spiritual Needs ◽  
Cross Sectional ◽  
The Government

Nepal is also witnessing the expansion of life span and hence an enhancement in the population of the elderly. In Nepal, individuals over 60 years of age are considered elderly. According to the 2011 census of Nepal, there were 2.1 million elderly inhabitants, which constitute 8.1percent of the total population in the country. Pashupati Bridrashram the only one shelter for elderly people run by the government which was established in 1976 as the first residential facility for elders. This study was conducted to assess the health and social needs of elderlyresiding at Birateshwor Briddhashram and Mahila Jagriti Briddhashram Biratnagar. Descriptive cross sectional research design has been used to describe characteristics of apopulation. There are four registered old age home in Biratnagar Metropolitan City, amongthem only two were selected purposively. Non random sampling technique has been used in which Purposive Sampling method has been adopted. Both health and social needs we reassessed using semi-structured interview schedule which consisted of multiple response questionnaire. There were fifty-seven elders, only forty were selected purposively who can give their information, twenty-four females and sixteen males were selected for interview. Most of the elders came to old age home because of lack of own shelter, sixty percent elders have no any children; mostly they were widow or widower. Majority of them had vision (60 %), walking (46%), hearing problems (33 %) and minority (10 %) have inability problems in moving extremities, difficulty in talking. Only a few elders came there because of maltreatment by their family members. The study has suggested for establishment of health post or healthcare center, provision of ambulance to meet their health needs and importance of care taker to make their life easier, provision of television, kitchen garden, temple to meet their social and spiritual needs.

Family experiences of oncological palliative and supportive care in children: can we do better?

2019 ◽  
Vol 25 (9) ◽  
pp. 421-430
Author(s):  
Jan Plessis ◽  
David Stones ◽  
Michelle Meiring
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
Healthcare Professionals ◽  
Psychosocial Support ◽  
Family Members ◽  
Hospital Setting ◽  
Structured Interview ◽  
Theory Approach ◽  
Children With Cancer ◽  
Care Services

Aims: Families were interviewed as a quality improvement assessment for palliative and supportive care services for children. Methods: This exploratory qualitative study of family members of children with cancer was conducted at an academic hospital in central South Africa and a grounded theory approach was used. Face-to-face interviews using a semi-structured interview guide were conducted with 16 family members of 16 children. Findings: Parents felt supported by the healthcare professionals who were caring for their child, but several shortcomings were identified. These included erratic psychosocial support, minimal financial support and poor parental access to basic needs and food provision, preventable errors in procedures and a lack of support available for siblings. It is also worth noting that healthcare professionals did not always seem sufficiently equipped to attend to palliative care patients. Conclusion: Strategies to improve supportive and palliative care are needed for children with cancer and their families in a hospital setting. The interviews identified a number of themes and current shortcomings that should be considered to improve services.

The feelings and spirituality identified in relatives of terminally ill patients in intensive care

2011 ◽  
Vol 5 (10) ◽  
pp. 2391
Author(s):  
Jefferson Nery Correia ◽  
Karina Da Rosa
Keyword(s):  
Intensive Care Unit ◽  
Palliative Care ◽  
Intensive Care ◽  
Family Members ◽  
Terminally Ill ◽  
Spiritual Needs ◽  
Adult Intensive Care Unit ◽  
Terminally Ill Patients ◽  
Registration Number ◽  
Terapia Intensiva

ABSTRACT Objective: to analyze the feelings and the presence of spirituality on the behavior and decisions taken by relatives of patients without possibility of cure admitted to an adult intensive care unit. Methodology: this is qualitative study, conducted with the families of terminally ill patients hospitalized in a critical care unit. The criteria for inclusion in the study were: be over 18 years of a patient hospitalized in an adult intensive care unit with a diagnosis of pathology with no chance of cure. Data collection was performed through interviews. Data were examined using content analysis. The study was approved by the Ethics Committee of the Faculdade Integrado de Campo Mourão (PR) with the registration number 65457. Results: after analysis of the speeches, two categories were identified, the first related to the feelings experienced by family members, and the second on the presence of spirituality on the decision of palliative care in intensive care. Conclusion: the family members are influenced by feelings and spirituality regarding the decision to adopt orthothanasia to the terminal patient. The nurse should be aware of the holistic and humanizing aspects, especially the emotional and spiritual needs in the possibility of palliative care in the intensive care unit. Descriptors: palliative care, intensive care units, family, spirituality, nursing.RESUMO Objetivo: analisar os sentimentos e a presença da espiritualidade no comportamento e nas decisões tomadas por familiares de pacientes fora de possibilidade de cura internados em uma unidade de terapia intensiva adulto. Metodologia: estudo qualitativo, realizado com familiares de pacientes terminais internados em uma unidade de cuidados críticos. Os critérios de inclusão na pesquisa foram: ser familiar maior de 18 anos de paciente internado em uma unidade de terapia intensiva adulto com o diagnóstico de patologia fora de possibilidade de cura. A coleta de dados foi realizada por meio de entrevista. Os dados foram analisados pela técnica de análise de conteúdo. A pesquisa foi aprovada pelo Comitê de Ética da Faculdade Integrado de Campo Mourão (PR) com o registro número 52/10. Resultados: após análise das falas foram identificadas duas categorias, a primeira relacionada aos sentimentos vivenciados pelos familiares e a segunda sobre a presença da espiritualidade na decisão dos cuidados paliativos em terapia intensiva. Conclusão: os familiares são influenciados pelos sentimentos e pela espiritualidade quando se trata da decisão de adotar ortotanásia ao paciente terminal. O enfermeiro deve considerar maior atenção aos aspectos holísticos e de humanização, em especial as necessidades emocionais e espirituais na possibilidade de cuidados paliativos na unidade de terapia intensiva. Descritores: cuidados paliativos; unidades de terapia intensiva; família; espiritualidade; enfermagem.RESUMEN Objetivo: analizar los sentimientos de la espiritualidad y la presencia en el comportamiento y las decisiones adoptadas por familiares de pacientes ajenos a posibilidad de una curación ingresados en unidades de cuidados intensivos para adultos. Metodología: estudio cualitativo, realizado con familias de pacientes terminales hospitalizados en una unidad de cuidados intensivos. Los criterios de inclusión en el estudio fueron: la família, mayores de 18 años de pacientes ingresados en una unidad de cuidados intensivos de adultos, con un diagnóstico de la patología oportunidad ajena a curación. La recolección de datos se realizó mediante entrevistas. Los datos fueron analizados utilizando el análisis de contenido. El estudio fue aprobado por el Comité de Ética de la Faculdade Integrado de Campo Mourão (PR) con el número de registración 52/10. Resultados: tras el análisis de los discursos se identificaron dos categorías, la primera relacionada con los sentimientos que prueban los familiares y el segunda sobre la presencia de la espiritualidad en la decisión de los cuidados paliativos en terapia intensiva. Conclusión: los miembros familiares se influencian por los sentimientos y espiritualidad con respeto a la decisión para adoptar el ortotanasia al paciente terminal. La enfermera debe considerar uma mayor atención a los aspectos de humanización y holístico, sobre todo las necesidades emocionales y espirituales de la posibilidad de cuidado paliativo en la unidad del cuidado intensivo. Descriptores: cuidados paliativos, unidades de cuidados intensivos, familia, espiritualidad, enfermería.

scholarly journals CARING FOR OLDER INDIGENOUS PEOPLE WITH DEMENTIA: ATTENDING TO THE PERSONALITY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S433-S433
Author(s):  
Kathleen R Mason ◽  
Tess H Moeke-Maxwell ◽  
Merryn Gott
Keyword(s):  
Indigenous People ◽  
Family Members ◽  
Holistic Approach ◽  
Spiritual Needs ◽  
Care Needs ◽  
Face To Face ◽  
Community Activities ◽  
People With Dementia ◽  
The Individual ◽  
Person With Dementia

Abstract Māori, the indigenous people of New Zealand, are living longer and dying older. The prevalence of conditions associated with older people, such as Dementia are expected to increase amongst the Māori population. Pae Herenga, a qualitative research project investigating traditional Māori end-of-life care customs, identified an indigenous narrative of Dementia care, as carried out by their families. Sixty participants took part in face-to-face interviews to systematically record the traditional care customs employed by Māori families. Of these families, five experienced caring for someone with dementia. A traditional Māori family values approach based on biological connections, relationships, empathy, love, patience and inclusiveness aimed to care for the individual with Dementia as an important member of the family, and sought to maintain as much of the person’s autonomy as possible, for as long as possible. Sharing care roles between family members and maintaining connections to Māori communities helped to prevent isolation of the person with Dementia and their family members caring for them. Involvement in family and community activities, and attending to the individual’s personality and their spiritual needs were just as important as tending to their physical care needs. These findings emphasize the importance of a holistic approach to caring for indigenous people with Dementia.

scholarly journals Five Pillars of Islam in Relation to Physical Health, Spiritual Health and Nursing Implications

2018 ◽  
Vol 17 (1) ◽  
Author(s):  
Cho Cho Zaw @ Raheema ◽  
Myat Min @ Mohd Omar
Keyword(s):  
Personal Growth ◽  
Well Being ◽  
Spiritual Health ◽  
World Health ◽  
Spiritual Needs ◽  
Holistic Nursing ◽  
Physical Strength ◽  
Four Dimensions ◽  
Positive Effects ◽  
Health Organization

This study aimed to examine five pillars of Islam and their relationship with physical and spiritual health. The five pillars of Islam are the foundation of Muslim life, considered mandatory by believers, and Muslims are required to observe them with utmost dedication. They are summarized as Shahadah, Salah, Zakat Saum, and Hajj.  he first pillar of Islam, declaration of faith (Shahadah) includes the most important concept, which is the complete submission to the will of Allah (SWT) by obeying and believing in Him. Spirituality in general is defined as “religious belief or the spiritual quality of something”, “a search for the sacred”, “personal growth, or an encounter with one's own inner dimension”. The World Health Organization (WHO) mentions spiritual health as one of four dimensions to well-being; physical, mental, social, and spiritual”. Moreover, holistic nursing practice includes treating people as a whole and attending to a client’s physiological, psychological, and spiritual needs. Thus, this study intends to further explore the unitary aspect of Islam that infuse each of the pillars, and their effects on physical, spiritual well-being and nursing implications associated with it. Five pillars of Islam are discussed from the Quran, Alhadith, and Sunnah (the sayings and traditions of the Prophet) as baselines, and further additions from the knowledge of the Islamic scholars. And it is noted that our practices based on the five pillars of Islam have not only positive effects on physical but also spiritual health. This paper pointed out that while performing obligatory duties as stipulated by Islam, one could achieve spiritual enhancement as well as physical strength and well being.

scholarly journals Felt Needs of Cancer Palliative Care Professionals Working in India: A Qualitative Study

2021 ◽  
Vol 0 ◽  
pp. 1-8
Author(s):  
Amanpreet Kaur ◽  
Mahendra P. Sharma ◽  
Santosh K. Chaturvedi
Keyword(s):  
Palliative Care ◽  
Self Care ◽  
Structured Interview ◽  
Psychological Needs ◽  
Direct Patient Care ◽  
Future Research ◽  
Spiritual Needs ◽  
Cross Sectional ◽  
Professional Experiences ◽  
Interview Guide

Objectives: Cancer palliative care professionals face a plethora of challenges related to death, dying and suffering apart from limited workforce and other resources in India. However, the grief held by them is underappreciated and psychological needs are under explored. The aim of the present study was to explore felt needs of cancer palliative care professionals working in India. Materials and Methods: The study was cross-sectional, qualitative and in-depth in nature. It was conducted across four cancer palliative care centers in Bengaluru city of India. sample consisted of 15 professionals (mean age = 42 years and standard deviation = 8.41) with at least six months of experience, involved in direct patient care who gave an additional consent for audio-recording. The tools used were sociodemographic and professional datasheet and semi-structured interview guide, which were developed for the present study and validated from five experts. Thematic analysis was used to generate and analyze patterns within the qualitative data. Results: Five themes were identified, namely, death and grief; challenges in practice; strategies for self-care; positive professional experiences; and vision for palliative care. Conclusion: The cancer palliative care professionals need regular support in coping with death and grief, regular trainings and supervision across workplace to deal with occupational challenges, and to address their self-care and spiritual needs. The study highlights need to introduce more specialized training courses in handling pediatric patients, increase palliative care workforce, and hospice units. This can have implications in future research and training with development of innovative interventions to address these needs and challenges.

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