scholarly journals A Bibliometric Assessment of Global Ice Bucket Challenge (Amyotrophic Lateral Sclerosis) Research

2016 ◽  
Vol 23 (4) ◽  
pp. 209-217 ◽  
Author(s):  
Shri Ram
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Lateral Sclerosis ◽  
Ice Bucket Challenge

Carnivalizing Other’s Misery: From Human Ice Cream Sundae to Polar Plunge to Ice Bucket Challenge

2020 ◽  
Vol 20 (6) ◽  
pp. 539-541
Author(s):  
Shing-Ling S. Chen ◽  
Susan Cusmano ◽  
Zhuojun Joyce Chen
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Social Dynamics ◽  
Traumatic Events ◽  
Ice Cream ◽  
Communication Processes ◽  
The Social ◽  
Lateral Sclerosis ◽  
Ice Bucket Challenge

Reflecting on Shing-Ling Chen’s experience of being a Leukemia child’s mother encountering others’ seemingly hurtful support of her misery, the authors address the ethics of having fun activities as fundraisers for victims of traumatic events. The authors question the adequacy of hosting entertaining activities to fundraise for victims of Asian Tsunami, or patients of amyotrophic lateral sclerosis (ALS; that is, the ALS ice-bucket challenge) and cancers (e.g., polar plunge), and so on. The social dynamics and communication processes involved in these events are analyzed.

scholarly journals Ice bucket challenge bears fruit for amyotrophic lateral sclerosis

2016 ◽  
Vol 263 (11) ◽  
pp. 2355-2357 ◽  
Author(s):  
James Hrastelj ◽  
Neil P. Robertson
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Lateral Sclerosis ◽  
Ice Bucket Challenge

Using propinquital loops to blend social media and offline spaces: a case study of the ALS Ice-Bucket Challenge

2016 ◽  
Vol 160 (1) ◽  
pp. 78-88 ◽  
Author(s):  
Karen E Sutherland
Keyword(s):  
Social Media ◽  
Amyotrophic Lateral Sclerosis ◽  
Public Relations ◽  
Non Profit ◽  
The Social ◽  
Temporal Flow ◽  
Theoretical Component ◽  
Lateral Sclerosis ◽  
Ice Bucket Challenge

The social media phenomenon of the amyotrophic lateral sclerosis (ALS) Ice-Bucket Challenge attracted more than 3 million donors to upload 1.2 million Facebook videos and give more than US$115 million. In fundraising terms, it was a social media anomaly. This article applies Kent and Taylor’s dialogic theoretical component of propinquity (immediacy of presence, temporal flow and engagement) to explore how the ALS Ice-Bucket Challenge leveraged a propinquital loop (and subsequent chain), to enable participants to move between social media and offline spaces, while creating relational elasticity between participant and cause. Propinquity and its function within a social media context is an area of research that has not yet been greatly considered in the literature, yet may have the potential of informing public relations professionals from the non-profit sector and more widely about social media practice.

Automated Acoustic Analysis of Oral Diadochokinesis to Assess Bulbar Motor Involvement in Amyotrophic Lateral Sclerosis

2020 ◽  
Vol 63 (1) ◽  
pp. 59-73 ◽  
Author(s):  
Panying Rong
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Acoustic Analysis ◽  
Speaking Rate ◽  
Disease Stage ◽  
Healthy Controls ◽  
Tongue Movement ◽  
Major Barrier ◽  
Syllable Repetition ◽  
Oral Diadochokinesis ◽  
Lateral Sclerosis

Purpose The purpose of this article was to validate a novel acoustic analysis of oral diadochokinesis (DDK) in assessing bulbar motor involvement in amyotrophic lateral sclerosis (ALS). Method An automated acoustic DDK analysis was developed, which filtered out the voice features and extracted the envelope of the acoustic waveform reflecting the temporal pattern of syllable repetitions during an oral DDK task (i.e., repetitions of /tɑ/ at the maximum rate on 1 breath). Cycle-to-cycle temporal variability (cTV) of envelope fluctuations and syllable repetition rate (sylRate) were derived from the envelope and validated against 2 kinematic measures, which are tongue movement jitter (movJitter) and alternating tongue movement rate (AMR) during the DDK task, in 16 individuals with bulbar ALS and 18 healthy controls. After the validation, cTV, sylRate, movJitter, and AMR, along with an established clinical speech measure, that is, speaking rate (SR), were compared in their ability to (a) differentiate individuals with ALS from healthy controls and (b) detect early-stage bulbar declines in ALS. Results cTV and sylRate were significantly correlated with movJitter and AMR, respectively, across individuals with ALS and healthy controls, confirming the validity of the acoustic DDK analysis in extracting the temporal DDK pattern. Among all the acoustic and kinematic DDK measures, cTV showed the highest diagnostic accuracy (i.e., 0.87) with 80% sensitivity and 94% specificity in differentiating individuals with ALS from healthy controls, which outperformed the SR measure. Moreover, cTV showed a large increase during the early disease stage, which preceded the decline of SR. Conclusions This study provided preliminary validation of a novel automated acoustic DDK analysis in extracting a useful measure, namely, cTV, for early detection of bulbar ALS. This analysis overcame a major barrier in the existing acoustic DDK analysis, which is continuous voicing between syllables that interferes with syllable structures. This approach has potential clinical applications as a novel bulbar assessment.

Amyotrophic Lateral Sclerosis Assessment Questionnaire-5--Turkish Version

2019 ◽  
Author(s):  
Naile Alankaya ◽  
Zeliha Tülek ◽  
Aylin Özakgül ◽  
Alper Kaya ◽  
Aynur Dik
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Turkish Version ◽  
Assessment Questionnaire ◽  
Lateral Sclerosis
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