Validation of the Italian Version of the Haemophilia Activities List

2016 ◽  
Vol 136 (3) ◽  
pp. 152-156 ◽  
Author(s):  
Elena Balestri ◽  
Jorge Hugo Villafañe ◽  
Lucia Bertozzi ◽  
Stefano Berlini ◽  
Angiola Rocino ◽  
...  
Keyword(s):  
Internal Consistency ◽  
Convergent Validity ◽  
Functional Tests ◽  
Impact Measurement ◽  
Measurement Scales ◽  
Italian Version ◽  
Medical Centers ◽  
The Everyday ◽  
Internal Coherence

Background: The aim of this study was to provide an Italian version of the Haemophilia Activities List (HAL) and check its reliability in Italian medical centers. Methods: The Italian version of this assessment was administered to 80 patients (aged 18-65 years) affected by haemophilia A and B (moderate or severe). The validation was accomplished by comparing it to the revised and expanded Arthritis Impact Measurement Scales (AIMS2). Results: The internal consistency of the Italian version of the HAL had statistically high results: Cronbach's α 0.957-0.579. The highest internal consistency was measured in the domains ‘leg functionality' and in the overall points of the HAL questionnaire. The correlation between the AIMS2, which has been translated into Italian, and the version of the HAL questionnaire that we proposed, yielded good results for the following correlations: AIMS2 all and HAL overall (r = 0.64), AIMS2 physical function and HAL overall (r = 0.66), AIMS2 pain and HAL overall (r = 0.66). Conclusion: The Italian version of the HAL questionnaire presents both internal coherence and convergent validity. It can be used in addition to other functional tests to measure outcomes in moderate and severe haemophiliac diseases or to determine the quality of life as observed in the everyday life of patients.

Translation and Validation of the Thai Version of the Wisconsin Quality of Life Questionnaire (TH WISQoL) for Kidney Stone Patients

2020 ◽  
Vol 103 (11) ◽  
pp. 1194-1199
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Kidney Stone ◽  
Convergent Validity ◽  
Large Scale ◽  
Short Form ◽  
Outcome Measurement ◽  
Life Questionnaire ◽  
Sf 36

Objective: To develop and validate a Thai version of the Wisconsin Quality of Life (TH WISQoL) Questionnaire. Materials and Methods: The authors developed the TH WISQoL Questionnaire based on a standard multi-step process. Subsequently, the authors recruited patients with kidney stone and requested them to complete the TH WISQoL and a validated Thai version of the 36-Item Short Form Survey (TH SF-36). The authors calculated the internal consistency and interdomain correlation of TH WISQoL and compared the convergent validity between the two instruments. Results: Thirty kidney stone patients completed the TH WISQoL and the TH SF-36. The TH WISQoL showed acceptable internal consistency for all domains (Cronbach’s alpha 0.768 to 0.909). Interdomain correlation was high for most domains (r=0.698 to 0.779), except for the correlation between Vitality and Disease domains, which showed a moderate correlation (r=0.575). For convergent validity, TH WISQoL demonstrated a good overall correlation to TH SF-36, (r=0.796, p<0.05). Conclusion: The TH WISQoL is valid and reliable for evaluating the quality of life of Thai patients with kidney stone. A further large-scale multi-center study is warranted to confirm its applicability in Thailand. Keywords: Quality of life, Kidney stone, Validation, Outcome measurement

scholarly journals Psychometric Testing of the Spanish Modified Version of the Mini-Suffering State Examination

2021 ◽  
Vol 18 (15) ◽  
pp. 7821
Author(s):  
Daniel Gutiérrez-Sánchez ◽  
Rafael Gómez-García ◽  
Isabel María López-Medina ◽  
Antonio I. Cuesta-Vargas
Keyword(s):  
Internal Consistency ◽  
Content Validity ◽  
Convergent Validity ◽  
Informal Caregivers ◽  
Psychometric Testing ◽  
Spanish Version ◽  
Measurement Properties ◽  
Quality Of Dying ◽  
State Examination

Background: The mini-suffering state examination is a valid and reliable measure that have been used to assess suffering in patients with advanced cancer. The aim of this study was to carry out a psychometric analysis of the Spanish version of the mini-suffering state examination. Method: A validation study was conducted. Seventy-two informal caregivers of deceased patients in palliative care were included in this study. A psychometric testing of content validity, internal consistency, and convergent validity with the Spanish version of the quality of dying and death questionnaire was performed. Results: The original instrument was modified to be used by informal caregivers. The content validity was acceptable (0.96), and the internal consistency was moderate (α = 0.67). Convergent validity was demonstrated (r = −0.64). Conclusion: The Spanish modified version of the MSSE showed satisfactory measurement properties. The Spanish modified version of MSSE can be useful to facilitate screening, monitor progress, and guide treatment decisions in end-of-life cancer patients.

Translation and initial validation of the occupational balance questionnaire to Arabic—Occupational Balance Questionnaire-A

2021 ◽  
pp. 030802262110394
Author(s):  
Brightlin N Dhas ◽  
Petra Wagman ◽  
Firas A Marji ◽  
Carita Håkansson ◽  
Ricardo Carrasco
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Content Validity ◽  
Convergent Validity ◽  
Occupational Therapists ◽  
Health Indicators ◽  
Family Quality Of Life ◽  
Cognitive Debriefing ◽  
Arabic Speaking

Introduction Occupational balance (OB) is related to many health indicators, including quality of life. The Occupational Balance Questionnaire (OBQ11) was developed to measure OB, and to date, no Arabic translations of the questionnaire exist. The aim of the study was to describe the translation process of OBQ11 to Arabic and to evaluate its content validity, internal consistency, construct validity, and convergent validity. Methods OBQ11 was translated to Arabic (OBQ11-A) following standard guidelines. Content validity feedback was obtained from ten Arabic-speaking occupational therapists and in a cognitive debriefing with seven volunteers. In addition, OBQ11-A and the Family Quality of Life Survey-2006 were administered to 67 Arabic-speaking participants from a larger study about OB among parents. Results High level of agreement was found on the content of OBQ11-A from the occupational therapists. Cognitive debriefing interviews indicated that OBQ11-A was easy to understand. Cronbach’s alpha for the total OBQ11-A score was 0.864 indicating good internal consistency. Exploratory factor analysis showed acceptable factor loadings for all items. The total scores showed positive statistically significant associations with Family Quality of Life Scores ( r = 0.561, p < 0.001). Conclusions OBQ11-A may prove useful for assessing OB in Arabic-speaking populations. Further research is needed to establish its reliability.

Preliminary Validation of the HS-QoL: A Quality-of-Life Measure for Hidradenitis Suppurativa

2017 ◽  
Vol 22 (2) ◽  
pp. 142-146 ◽  
Author(s):  
Chelsea McLellan ◽  
Mia Sisic ◽  
Hazel H. Oon ◽  
Jerry Tan
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Convergent Validity ◽  
Hidradenitis Suppurativa ◽  
Online Survey ◽  
Preliminary Evidence ◽  
Life Measure ◽  
Preliminary Validation ◽  
Excellent Internal Consistency

Background: Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease with adverse physical and psychosocial impacts. The development of an HS quality-of-life measure, HS-QoL, has been recently described. Objective: This study was designed to validate the HS-QoL. Method: Fifty-five patients with HS from 4 dermatology clinics completed the 30-minute online survey. Item reduction, reliability (internal consistency), and correlation analysis (to assess convergent validity) were conducted. Results: The HS-QoL was reduced from 53 items to 44 items, resulting in a 7-subscale questionnaire. All subscales demonstrated excellent internal consistency, except for the support subscale, which had adequate internal consistency. All 7 HS-QoL subscales were related to other measures of QoL, life satisfaction, and mental health, which demonstrates convergent validity. Conclusion: The 44-item HS-QoL demonstrated strong preliminary evidence of reliability (internal consistency) and convergent validity.

Assessment of quality of life in outpatients with osteoarthritis

2017 ◽  
Author(s):  
Anna Maria Pudelewicz ◽  
Kamila Mazurkiewicz ◽  
Grażyna Bączyk
Keyword(s):  
Quality Of Life ◽  
Treatment Process ◽  
Negative Impact ◽  
Health Centre ◽  
Impact Measurement ◽  
Measurement Scales ◽  
Household Tasks ◽  
Human Functioning ◽  
Polish Version

Introduction. Osteoarthritis is a chronic and one of the most often appearing causes of the afflictions on the part of the motor organ. A chronic condition has a negative impact on all areas of human functioning. Its occurrence, but mainly the severity of its symptoms results in significant reduction in quality of life, which is why it is important to assess the effects of the treatment process and rehabilitation. Aim. Assessment of quality of life of patients with osteoarthritis as regards variables such as age, gender, duration of the disease.Material and Methods. The study includes a group of 40 patients diagnosed with osteoarthritis treated in the Health Centre of General Physicians in Mieścisko, Poland in the period from October 2014 to January 2015. The tool which was used to investigate the quality of life of people with osteoarthritis was the Polish version of the scale Arthritis Impact Measurement Scales 2 (AIMS-2).Results. The lowest level of the quality of life was indicated by the subjects in the areas of: arthritis pain (6.54 ± 1.96), walking and bending (6.51 ± 2.81) and mobility (7.21 ± 2.06). The highest level of quality of life occurred in the areas of: support from family and friends (1.56 ± 2.16), household tasks (2.47 ± 3.16), self‑care (2.50 ± 2.92), arm function (2.58 ± 2.72), hand and finger function (2.71 ± 3.03), work (2.67 ± 2.38) and mood (3.14 ± 1.56). The youngest participants obtained a result of higher level of the quality of life, which was subject to deteriorate with age.Conclusions. Patients with osteoarthritis require a permanent, comprehensive, multifaceted and multidirectional proceedings in order to improve comfort and quality of life.

scholarly journals Instrumentos de avaliação de qualidade de vida relacionada à saúde no diabetes melito

2008 ◽  
Vol 52 (6) ◽  
pp. 931-939 ◽  
Author(s):  
Carlos Clayton Torres Aguiar ◽  
Anya Pimentel G. Fernandes Vieira ◽  
André Ferrer Carvalho ◽  
Renan M. Montenegro-Junior
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Well Being ◽  
Impact Measurement ◽  
Measurement Scales ◽  
Sf 36 ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Patients With Diabetes

A avaliação da qualidade de vida (QV) vem se tornando cada vez mais utilizada para medir o impacto geral de doenças na vida dos indivíduos. O diabetes melito (DM) é uma doença crônica associada com morbimortalidade elevada e prejuízo na QV. Em estudos longitudinais, o impacto psicossocial da DM prediz a mortalidade nessa doença. Esta revisão busca descrever e analisar os principais instrumentos de avaliação da QV em pacientes com DM. Foram analisados instrumentos genéricos, como Quality of Well-Being Scale (QWB), The Medical Outcomes Study 36-item Short-Form Health Survey (SF-36) e EuroQol (EQ-5D), e instrumentos específicos, como Diabetes Care Profile (DCP), Diabetes Quality of Life Measure (DQOL), Diabetes Impact Measurement Scales (DIMS), Appraisal of Diabetes Scale (ADS), Audit of Diabetes-Dependent Quality of Life (ADDQoL), Diabetes Health Profile (DHP-1 e DHP-18), Questionnaire on Stress in Patients with Diabetes-Revised (QSD-R), Well-Being Enquiry for Diabetics (WED), Diabetes-Specific Quality-of-life Scale (DSQOLS), Diabetes 39 (D-39) e Problems Areas in Diabetes (PAID). O PAID é o único instrumento traduzido e validado para uso no Brasil. Tanto os instrumentos genéricos quanto os específicos têm vantagens e desvantagens na aferição da QV de pacientes com DM. O uso combinado de instrumentos genéricos (como o SF-36) e específicos (como o PAID) parece ser uma forma consistente de avaliação da QV em pacientes diabéticos no Brasil. O presente artigo revisa os vários instrumentos e enfatiza a necessidade urgente de estudos para validação desses instrumentos em pacientes diabéticos brasileiros.

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