scholarly journals Self-Management and Transition Among Adolescents/Young Adults with Chronic or End-Stage Kidney Disease

2015 ◽  
Vol 39 (1-3) ◽  
pp. 99-104 ◽  
Author(s):  
Maria E. Ferris ◽  
Jessica R. Cuttance ◽  
Karina Javalkar ◽  
Sarah E. Cohen ◽  
Alexandra Phillips ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Young Adults ◽  
Kidney Disease ◽  
Self Management ◽  
Care Transition ◽  
End Stage Kidney Disease ◽  
Health Care Transition ◽  
End Stage

Background: Adolescents/young adults (AYA) with chronic kidney disease (CKD) or end-stage kidney disease (ESKD) are at risk for poor health outcomes related to self-management. To improve their health and quality of life, AYA must build self-management (for those in the pediatric- and adult-focused setting) and/or health care transition (HCT) skills (for those in the pediatric setting). Methods: Self-management and/or HCT encompass a variety of domains that must be tailored to each individual. Annual assessments should begin between the ages of 12 and 14 and continue in the adult-focused setting until patients have achieved demonstrated self-management and/or HCT skills mastery. These assessments will guide interventions that are congruent in terms of literacy, development and culture. Facilitation of this process from the perspective of both the pediatric and the adult health-care systems is described. Conclusions: Deficiencies and barriers to self-management and/or HCT for AYA with ESKD remain. There is no consensus on the definition of successful HCT preparation, with few tools to assess transition readiness and/or self-management. It is important for health providers to promote the self-management and/or health-care transition skills of AYA with ESKD. Customization of these activities and involvement of the whole family will contribute towards better health-related quality of life and patient outcomes.

Self-Management and Health Care Transition Among Adolescents and Young Adults With Chronic Kidney Disease: Medical and Psychosocial Considerations

2017 ◽  
Vol 24 (6) ◽  
pp. 405-409 ◽  
Author(s):  
Maria E. Díaz-González de Ferris ◽  
Marta Del Villar-Vilchis ◽  
Ricardo Guerrero ◽  
Victor M. Barajas-Valencia ◽  
Emily B. Vander-Schaaf ◽  
...  
Keyword(s):  
Health Care ◽  
Chronic Kidney Disease ◽  
Young Adults ◽  
Kidney Disease ◽  
Adolescents And Young Adults ◽  
Self Management ◽  
Care Transition ◽  
Health Care Transition

scholarly journals Quality Of Life And Health Related Quality Of Life Among End-Stage Kidney Disease Patients: Methodology Assessment

2020 ◽  
Vol 6 (3) ◽  
pp. 1-11
Author(s):  
Issa Al Salmi ◽  
Keyword(s):  
Quality Of Life ◽  
Kidney Disease ◽  
Health Related Quality ◽  
End Stage Kidney Disease ◽  
Related Quality ◽  
Health Related ◽  
End Stage ◽  
The Impact

End-Stage Kidney Disease (ESKD) is a serious and irreversible condition. Understanding the impact of ESKD and its treatment on an individual's Quality of Life (QoL) is important.

scholarly journals Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Sima Sadat Hejazi ◽  
Meimanat Hosseini ◽  
Abbas Ebadi ◽  
Hamid Alavi Majd
Keyword(s):  
Quality Of Life ◽  
Content Analysis ◽  
Kidney Disease ◽  
Family Caregivers ◽  
Hemodialysis Patients ◽  
End Stage Kidney Disease ◽  
The Family ◽  
End Stage ◽  
The Impact

Abstract Background Patients with end-stage kidney disease experience serious complications which affect their lives. Few studies have investigated the patients’ quality of life qualitatively from the perspective of family caregivers as the closest individuals to the patients. The family caregivers are directly involved in the patients’ disease progression and observe the changes, problems, and complications of disease and hemodialysis. This study aimed to explain the components of quality of life in hemodialysis patients from the family caregivers’ perspective. Methods In this qualitative inductive content analysis, 16 family caregivers of hemodialysis patients, presenting to the teaching hospitals of Tehran, Iran, were enrolled via maximum-variation purposive sampling; sampling continued until reaching data saturation. The data collection method included in-depth semi-structured interviews. Also, an inductive content analysis was carried out based on Elo and Kyngas’ method. Results A total of 311 codes, 19 subcategories, eight generic categories, and three main categories were extracted in this study. The main (and the generic categories) included mental and psychological problems (depressive mood, incompatibility and reduced tolerance, mental exhaustion, and deprivation of basic needs), social disruption (social isolation and social threats), and physical problems (general complications and disabilities and defects in the normal functioning of organs). Conclusion Family caregivers can be valuable information sources for formal caregivers to plan treatment for chronically ill patients who are mainly cared for at home. The present results can help us increase the existing knowledge on the impact of end-stage kidney disease and hemodialysis on the patients’ quality of life. It seems that addressing the issues related to quality of life, mentioned by the caregivers, can positively affect the patients’ quality of life and even reduce the caregivers’ burden.

Quality of life of caregivers of end‐stage kidney disease patients: Caregivers or care recipients?

2021 ◽  
Author(s):  
Stavroula Vovlianou ◽  
Vasilios Koutlas ◽  
Margarita Ikonomou ◽  
Theodore Vassilikopoulos ◽  
Fani Papoulidou ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Kidney Disease ◽  
End Stage Kidney Disease ◽  
Care Recipients ◽  
End Stage
Sign in / Sign up

Export Citation Format

Share Document