Factors Associated with Caregivers’ Underestimation of Quality of Life in Patients with Alzheimer’s Disease

2012 ◽  
Vol 33 (1) ◽  
pp. 11-17 ◽  
Author(s):  
Hongmei Zhao ◽  
Jean-Luc Novella ◽  
Moustapha Dramé ◽  
Rachid Mahmoudi ◽  
Coralie Barbe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Factors Associated

scholarly journals Factors associated with quality of life in the perspective of the elderly caregiver with Alzheimer's disease

2020 ◽  
Vol 36 (2) ◽  
Author(s):  
Clélia Santana Reis Damasio ◽  
Adélia Dalva da Silva Oliveira ◽  
Ana Maria Ribeiro Santos ◽  
Camila Aparecida Pinheiro Landim Almeida
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
The Elderly ◽  
Factors Associated

Este estudo teve como objetivo conhecer os fatores associados à qualidade de vida (QV) de cuidadores de idosos diagnosticados com doença de Alzheimer na perspectiva desses indivíduos. Foi um estudo descritivo, com abordagem qualitativa, baseado no método do Discurso do Sujeito Coletivo. Vinte cuidadores de idosos com diagnóstico de doença de Alzheimer participaram, durante um mês, no período de 18 de setembro a 18 de outubro de 2017. A coleta de dados foi realizada por meio de entrevistas com cuidadores de idosos com doença de Alzheimer. As perguntas foram feitas e gravadas em gravador, com a permissão do entrevistado. Os dados foram analisados ​​pela Classificação Hierárquica Descendente (DHC). Foram obtidas cinco classes: Conceito de qualidade de vida do cuidador idoso; Comportamento do idoso com Alzheimer; Problemas de memória do idosos e repercussões no trabalho do cuidador; Mudança no estilo de vida do cuidador familiar; e Repercussão de "ser cuidador" na qualidade de vida. A QV esteve relacionada a uma série de fatores (emocional, físico, financeiro, estado da doença dos idosos e o grau de conhecimento do cuidador sobre a doença). Os cuidadores apontaram que a não harmonia entre esses fatores pode ser crucial para afetar sua vida pessoal e profissional, bem como sua QV.

scholarly journals Factors associated with quality of life in patients with Alzheimer’s disease

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
Coralie Barbe ◽  
Damien Jolly ◽  
Isabella Morrone ◽  
Aurore Wolak-Thierry ◽  
Moustapha Dramé ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Factors Associated

Quality of life in Alzheimer's disease: different factors associated with complementary ratings by patients and family carers

2012 ◽  
Vol 24 (5) ◽  
pp. 708-721 ◽  
Author(s):  
Pascalle R. Bosboom ◽  
Helman Alfonso ◽  
Joanna Eaton ◽  
Osvaldo P. Almeida
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Clinical Information ◽  
Primary Outcome Measure ◽  
Community Dwelling ◽  
Family Carers ◽  
Cross Sectional ◽  
Factors Associated

ABSTRACTBackground: Quality of life (QoL) in dementia is a complex construct and factors that predict QoL ratings are unclear. We designed this study to determine: (1) the agreement in QoL ratings between community-dwelling patients with mild to moderate dementia and family carers; and (2) the factors associated with self-reported and two types of carer-reported QoL ratings: carer–carer perspective and carer–patient perspective.Methods: A cross-sectional study was carried out of 80 community-dwelling patients with the diagnosis of probable Alzheimer's disease (AD) of mild or moderate severity according to NINCDS-ADRD criteria, and their 80 family carers. The QoL-AD was the primary outcome measure. We collected patients’ self-reported QoL ratings and two types of carer-reported QoL ratings: carer–patient and carer–carer perspectives. Explanatory variables included demographics, lifestyle, and clinical information from patients and carers, along with cognition, awareness, psychopathology, burden-of-care, and functionality in daily life. Bland-Altman plots guided the interpretation of agreement by visualizing the distribution of all the ratings. Univariate and multivariate regression analyses were conducted to examine the contribution of candidate explanatory factors.Results: Patients and their carers showed good agreement in their QoL ratings, although the total scores of carers (regardless of perspective) were lower than the scores of patients. Depression, insight and use of anti-dementia agents were associated with QoL self-ratings, whereas cognitive function was directly associated and depression inversely associated with carers’ QoL ratings.Conclusion: Mild to moderate community-dwelling AD patients and their carers (with different perspectives) agree within an acceptable range in QoL ratings but the ratings are driven by different factors, and consequently are not interchangeable but complementary. They provide valuable information when used separately, not in a composite score.

Factors associated with health‐related quality of life among family caregivers of people with Alzheimer's disease

2020 ◽  
Vol 20 (4) ◽  
pp. 398-405
Author(s):  
Xiangping Liao ◽  
Ying Huang ◽  
Ziliang Zhang ◽  
Shanquan Zhong ◽  
Gaosheng Xie ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Family Caregivers ◽  
Health Related Quality ◽  
Factors Associated ◽  
Related Quality ◽  
Health Related

Validación de la escala Quality of Life in Alzheimer’s Disease (QOL-AD) en pacientes mexicanos con demencia tipo Alzheimer, vascular y mixta

2010 ◽  
Vol 51 (02) ◽  
pp. 72 ◽  
Author(s):  
Oscar Rosas Carrasco ◽  
Laura del Pilar Torres Arreola ◽  
María de Guadalupe Guerra Silla ◽  
Sara Torres Castro ◽  
Luis Miguel Gutiérrez Robledo
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease

Assessing Alzheimer's disease patients' quality of life: Discrepancies between patient and caregiver perspectives

2015 ◽  
Vol 12 (4) ◽  
pp. 427-437 ◽  
Author(s):  
Sandrine Andrieu ◽  
Nicola Coley ◽  
Yves Rolland ◽  
Christelle Cantet ◽  
Catherine Arnaud ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease

CLINICAL AND COST-EFFECTIVENESS OF DONEPEZIL, RIVASTIGMINE, AND GALANTAMINE FOR ALZHEIMER'S DISEASE

2002 ◽  
Vol 18 (3) ◽  
pp. 497-507 ◽  
Author(s):  
Andrew Clegg ◽  
Jackie Bryant ◽  
Tricia Nicholson ◽  
Linda McIntyre ◽  
Sofie De Broe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Cost Effectiveness ◽  
Global Health ◽  
Cochrane Library ◽  
The Impact ◽  
Health Cognition ◽  
Economic Studies

Objectives: Systematic review of the clinical and cost-effectiveness of donepezil, rivastigmine, and galantamine for people suffering from Alzheimer's disease.Methods: Sixteen electronic databases (including MEDLINE, the Cochrane Library, and Embase) and bibliographies of related papers were searched for published/unpublished English language studies, and experts and pharmaceutical companies were consulted for additional information. Randomized controlled trials (RCTs) and economic studies were selected. Clinical effectiveness was assessed on measurement scales assessing progression of Alzheimer's disease on the person's global health, cognition, functional ability, behavior and mood, and quality of life. Cost-effectiveness was presented as incremental cost per year spent in a nonsevere state (by Mini Mental Health State Examination) or quality-adjusted life-year.Results: Twelve of 15 RCTs included were judged to be of good quality. Although donepezil had beneficial effects in Alzheimer's patients on global health and cognition, rivastigmine on global health, and galantamine on global health, cognition, and functional scales, these improvements were small and may not be clinically significant. Measures of quality of life and behavior and mood were rarely assessed. Adverse effects were usually mild and transient. Cost-effectiveness base case estimates ranged from £2,415 savings to £49,476 additional cost (1997 prices) per unit of effect for donepezil and a small savings for rivastigmine. Estimates were not considered robust or generalizable.Conclusions: Donepezil, rivastigmine, and galantamine appear to have some clinical effect for people with Alzheimer's disease, although the extent to which these translate into real differences in everyday life remains unclear. Due to the nature of current economic studies, cost-effectiveness remains uncertain and the impact on different care sectors has been inadequately investigated. Further research is needed to establish the actual benefits of acetylcholinesterase inhibitors (AChEls) for people with Alzheimer's disease and their caregivers, the relationship of these changes to clinical management, and careful prospective evaluation of resource and budgetary consequences.

scholarly journals Quality of life of elderly with alzheimer’s disease: a comparative study between the patient’s and the caregiver’s report

2010 ◽  
Vol 18 (1) ◽  
pp. 26-32 ◽  
Author(s):  
Keika Inouye ◽  
Elisete Silva Pedrazzani ◽  
Sofia Cristina Iost Pavarini ◽  
Cristina Yoshie Toyoda
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Life Assessment ◽  
Quality Of Life Assessment ◽  
Patient Reports ◽  
The Family ◽  
Final Score ◽  
High Level

This paper aimed to compare the reports of patients and caregivers about how they perceive quality of life (QoL) in general and each of its dimensions in elderly with Alzheimer’s Disease (AD). The participants were elderly diagnosed with AD (n=53) attended by the Exceptional Medication Program in a city in the interior of Sao Paulo; and their respective family caregivers. The QoL measures were obtained through the Quality of Life Assessment Scale on Alzheimer’s Disease. The results showed statistically significant differences in the “memory” (p<0.05) and “you in general” (p<0.005) dimensions. Regarding the final score, the average in the patient’s version was 29.32 points (sd=6.27), against 28.33 points (sd=5.58) in the family version, p>0.100. Although the relative and patient reports were not identical, the results pointed to a high level of consistency among information.

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