scholarly journals Parent Knowledge of Screening and Genetic Testing in Retinoblastoma

2020 ◽  
Vol 2020 ◽  
pp. 1-7
Author(s):  
Wei Xiao ◽  
Xian Ji ◽  
Huijing Ye ◽  
Huiqi Zeng ◽  
Yang Gao ◽  
...  

Purpose. To evaluate parent knowledge of screening and genetic testing for retinoblastoma and its potential correlation with demographics, clinical features, and socioeconomical factors. Methods. It was a cross-sectional study conducted at the ocular oncology unit of a tertiary ophthalmic center in Southern China. A face-to-face interview was administered to parents of retinoblastoma children during hospitalization. Parent knowledge was assessed using the sum score of a 7-item questionnaire. Demographics and socioeconomic status were collected from the interview, and clinical data were retrieved from the medical records. Results. A total of 126 parents of retinoblastoma children were included. Parents accurately answered 66.7% to 84.9% of each item in the questionnaire. Only 37 (29.4%) parents correctly answered all 7 questions. Parent knowledge was positively correlated with education, but it was not associated with patients’ laterality, sex, or household income. Physicians and the Internet were the major sources of parental health-related information. During the median follow-up of 492 days, 13 (61.9%) of 21 patients in the full-score group without genetic testing at baseline actually conducted testing during follow-up compared to 29 of 67 (43.3%) in the less-than-full-score group (P=0.136). Conclusion. Overall parent knowledge about retinoblastoma screening and genetic testing was moderate. Higher education was associated with greater parent knowledge. Future studies should validate our findings in other populations, especially in those with different cultural background and healthcare systems.

BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e050557
Author(s):  
Li Ming Wen ◽  
Huilan Xu ◽  
Danielle Jawad ◽  
Limin Buchanan ◽  
Chris Rissel ◽  
...  

ObjectivesThis study aimed to investigate perceived impacts, ways of communication with professionals and information sources related to COVID-19, and explore whether these impacts or information sources were associated with ethnicity that is, language spoken at home.DesignA cross-sectional study.SettingSydney, Australia during the period from March to October 2020.ParticipantsMothers of young children participating in an existing trial.Outcome measuresMothers were asked to respond to a set of survey questions related to COVID-19 via telephone. The questions included a mental health scale, and how they communicated with health professionals and their information sources related to COVID-19 during the COVID-19 pandemic.ResultsOf 537 mothers who completed the survey (81% response rate), 45% reported they spoke a language other than English at home. Overall, 136 (26%) reported experiencing mental distress. 234 (44%) reported that COVID-19 affected the way they receive and communicate health-related information with health professionals, especially for those from non-English speaking backgrounds with an adjusted odds ratio (AOR) 1.58 (95% CI 1.10 to 2.27). They were less likely to use a face-to-face service (AOR 0.55, 95% CI 0.37 to 0.80) and more likely to use social media (AOR 2.11, 95% CI 1.40 to 3.17) for health-related information. Regarding sources of COVID-19-related information, mothers from non-English-speaking backgrounds were more likely to rely on family members (AOR 1.49, 95% CI 1.01 to 2.19) and social media (AOR 3.34, 95% CI 2.05 to 5.43).ConclusionsCOVID-19 has significantly impacted mothers with young children in regard to their mental health, means of communication with health professionals and sources of health information. Mothers from non-English-speaking communities were less likely to use a face-to-face service, and more likely to seek information from family members and social media. Appropriate health support for non-English-speaking community needs to take these factors into account.Trial registration numberANZCTR:12618001571268.they


Avicenna ◽  
2021 ◽  
Vol 2022 (1) ◽  
Author(s):  
Yaman M. AlAhmad ◽  
Duaa Mahmoud Haggeer ◽  
Abrar Yaser Alsayed ◽  
Mahmoud Y. Haik ◽  
Leen Maen AbuAfifeh ◽  
...  

Introduction: Telemedicine is the delivery of health care services to patients distantly. During the Coronavirus Disease 2019 (COVID-19) pandemic, telemedicine has become an essential implement in delivering healthcare services worldwide. Accordingly, in March 2020, the Primary Health Care Centers (PHCCs) in Qatar has started telephone consultation follow-up appointments in Family Medicine (FM) clinics instead of conventional consultation. Given the limited data about telephone consultations in Qatar, our aim of this study is to investigate the possible impact of telemedicine on chronic disease patients’ follow-up compliance. Methods: This study compares the compliance of adult patients with chronic diseases following-up within FM clinics in Qatar's PHCC through telephone consultations with a minimum of three telephone consultations ordered between April to November 2020, in comparison to the compliance of the same group of patients to their prior face-to-face follow-up consultations in FM clinics with a minimum of three face-to-face ordered follow up appointments between April to November 2019. A cross-sectional study will be carried out to investigate the effect of telephone consultation in PHCC on patients’ compliance with reference to conventional face-to-face consultation. Patients’ data will be received from Health Information Management in twenty-seven PHCCs in Qatar. Conclusion: Due to the limited studies on the effectiveness of telemedicine on patient compliance in FM follow-ups within Qatar's PHCC, comparing patients’ follow-up compliance with telephone consultations to their prior face-to-face consultations would be helpful in assessing patients’ quality of care delivering within FM clinics. With telecommunication being easily accessible and time-efficient, it is believed, when used correctly, it might improve compliance and adherence to the management prescribed by the physician and follow-up appointments in Qatar's PHCC. In addition, this study will help in providing recommendations that could guide the organization on forming policies to be applied in PHCCs after the resolution of the COVID-19 pandemic.


BMJ Open ◽  
2020 ◽  
Vol 10 (7) ◽  
pp. e036106
Author(s):  
Bikila Regassa Feyisa ◽  
Mekdes Tigistu Yilma ◽  
Belachew Etana Tolessa

ObjectiveTo assess health-related quality of life (HRQoL) and its predictors among patients with diabetes on follow-up at Nekemte Specialised Hospital in Western Ethiopia.Design, setting and participantsThis facility-based cross sectional study was conducted among 224 patients with diabetes mellitus (types I and II) on follow-up at one of the public hospitals in western Ethiopia. Respondents were selected by systematic random sampling and interviewed with the aid of a questionnaire.Main outcome measuredHRQoL was measured by using the Medical outcomes study 36-item Short Form (SF-36) Health Survey from 15 April to 5 June 2019. A structured questionnaire was used for data collection from participants selected by systematic random sampling. Multiple linear regression was used for the final model.ResultA total of 215 patients with diabetes consented and completed the study, giving a response rate of 96%. The mean score of the overall HRQoL of the study participants was 50.3±18.1. The highest mean score was obtained in the physical functioning domain and the lowest mean score in the general health domain. Age, education status, history of smoking, feeling of stigmatisation and body mass index were inversely associated with the overall HRQoL. Gender (male), marital status (currently married), absence of comorbidity and absence of chronic complications related to diabetes mellitus were positively associated with overall HRQoL.ConclusionThe overall HRQoL of patients with diabetes on follow-up at the study area was found to be moderate. General health, mental health, bodily pain and vitality were the most affected domains. Both the mental and physical components need to be considered when caring for the patients with diabetes on follow-up beyond provision of treatment.


2017 ◽  
Vol 31 (3) ◽  
pp. 439-462 ◽  
Author(s):  
Deborah Noujaim ◽  
Richard H. Fortinsky ◽  
Lisa C. Barry

Objective: To determine whether emotional support, and proportion of emotional support provided by specific sources (e.g., family, other prisoners, clinicians), is associated with health-related self-efficacy among older prisoners. Method: Cross-sectional study of 140 older prisoners age ≥50 with chronic medical illness who completed face-to-face interviews. Logistic regression, controlling for demographic, incarceration, and clinical/behavioral factors evaluated the association between emotional support, operationalized as a score and as a proportion of total emotional support from specific sources, and health-related self-efficacy. Results: Higher emotional support scores, and greater proportion of support from clinicians, were associated with lower likelihood of poor health-related self-efficacy. Those with >50% of their emotional support coming from other prisoners had higher likelihood of poor self-efficacy. Discussion: Among older prisoners with chronic illness, higher emotional support, particularly from clinicians, is associated with lower likelihood of poor self-efficacy; relying on other prisoners for emotional support is associated with poor health-related self-efficacy.


Author(s):  
Marie Niwayama ◽  
Kayako Sakisaka ◽  
Pongthep Wongwatcharapaiboon ◽  
Valika Rattanachun ◽  
Satoshi Miyata ◽  
...  

While locomotive organ impairment among older people is attracting worldwide attention, this issue has not yet been widely investigated in Thailand. This study aimed to measure locomotive organ impairment prevalence and identify the determinants of locomotive function decline among middle-aged and older people in Nan Province, Thailand. This cross-sectional study included anthropometric measurements, a two-step test to investigate locomotive function, and a structured questionnaire to obtain socio-demographic and related information. Logistic regression analysis and multiple regression analysis were used to identify the determinants of locomotive organ impairment. The study participants were aged 50–87 years old (n = 165), and 71.5% of them had begun experiencing declining locomotive function; < 6 years of school education (adjusted odds ratio: 4.46), body mass index ≥25 kg/m2 (AOR: 3.06), comorbidities (AOR: 2.55), and continuous walking for <15 min (AOR: 2.51) were identified as factors associated with locomotive organ impairment. Moreover, age, knee pain, anxiety about falling in daily life, and difficulty with simple tasks were identified as factors significantly associated with exacerbated locomotive organ impairment (p < 0.05). Appropriate interventions such as guidance or follow-up and recommendations for exercises are needed to prevent locomotive organ impairment and improve treatment.


2017 ◽  
Vol 3 (1) ◽  
pp. 01-08
Author(s):  
S. Kiran Kumar ◽  
Kirthana Somasundaram ◽  
M. Keerthana ◽  
R. Kiruthiga ◽  
Maya Ramesh ◽  
...  

2019 ◽  
Author(s):  
Bikila Regassa Feyisa ◽  
Mekdes Tigistu Yilma ◽  
Belachew Etana Tolessa

AbstractObjectiveTo assess health related quality of life (HRQoL) and its predictors among diabetic patients on follow up at Nekemte Specialized Hospital (NSH) in Western Ethiopia.Design, setting and participantsThis facility based cross sectional study was conducted among 224 diabetic patients on follow up at one of the public hospitals in western Ethiopia.Main outcome measuredHRQoL was measured by using the Medical Outcome Study 36-item Short Form Health Survey from 15th April to 5th June. Structured questionnaire was used for data the collection from participants selected by systematic random sampling. Multiple linear regression was used for final model.ResultA total of 215 diabetic patients were involved in the study with the response rate of 96%. The mean score of the overall HRQoL of the study participants was found to be 50.30 ± 18.08 with highest mean score in physical functioning and lowest mean score in general health domain. Age, education status, history of smoking, feeling of stigmatized and Body mass index (BMI) were inversely associated while being male, being married, absence of co morbidity and absence of chronic complications related to diabetes mellitus were found to be positively associated with overall HRQoL.ConclusionThe overall HRQoL of diabetic patients on follow up at the study area was found to be moderate. General health, mental health, bodily pain and vitality were the most affected domains. Both the mental and physical components need to be considered when caring the diabetic patients on follow up beyond provision of treatment.Strength and limitations of this studyThe study was the first of its kind in assessing the predictors of health-related quality of life (HRQoL) among both diabetes mellitus type I and type II in Ethiopia.The tools used was validated across different culturesEight domains of HRQoL and two component summary scores were used to make the measurement more specific.The cross sectional nature of the study design made the result of the study difficult to identify either the cause or the effect comes first.


2018 ◽  
Vol 7 (2) ◽  
pp. 400 ◽  
Author(s):  
Durdane Yılmaz Güven ◽  
Hülya Bulut ◽  
Sercan Öztürk

<p><strong>Abstract</strong></p><p>This study aims to examine the health literacy levels of health sciences faculty students. This descriptive and cross-sectional study was carried out between April 07 and June 1, 2017, with the students of Karabük University Health Sciences Faculty, who accepted to participate in the study (n = 300). The research data was collected using a survey form questioning participants' socio-demographic characteristics, and the "Turkish Health Literacy Scale 32 (THLS-32)". The chi-square, Mann Whitney U and Kruskal Wallis H tests were used for statistical evaluation. The Bonferroni correction was used in the post hoc evaluation of the differences found as a result of the Kruskal Wallis H test. The mean age of the participant students was 20,89 ± 1,74 years. Of the 85,3% (n=256) of them were female and 14,7% (n=44) were male. In addition 33,3% (n=100), 26,3% (n=79), 22,3% (n=67) and 18% (n=54) of the students were studying in nursing, midwifery, child development, and physiotherapy &amp; rehabilitation faculties. The 55,7% of the students obtained a score corresponding to an "adequate or excellent health literacy" level on the whole scale, 62% in subscale of "treatment and service", and 55% in subscale of "protecting from diseases and improving health". It was determined that the students had the highest and lowest mean scores on the subscales of "using/applying health-related information" and "evaluating health-related information", respectively. Moreover, it was found that the students in midwifery and physiotherapy &amp; rehabilitation faculties obtained the highest (36,24 ± 6,16) and lowest (31,26 ± 6,32) total scores on the THLS-32 scale, respectively (p &lt;0.001). The study results suggest that students studying in health education do not have the desired level of health literacy. Health professionals who will serve as health educators and counsellors in their professional fields should have good levels of health literacy for fulfilling their roles in this regard. Therefore, it is recommended to add the subject of health literacy to pre-graduation health curriculum and course schedule in universities.</p><p><strong>Öz</strong><strong></strong></p><p>Bu çalışma Sağlık Bilimleri Fakültesi öğrencilerinin sağlık okuryazarlığı düzeylerinin incelenmesi amacıyla yapılmıştır. Çalışma<strong> </strong>tanımlayıcı ve kesitsel tiptedir.  Çalışma Karabük Üniversitesi Sağlık Bilimleri Fakültesi’nde 07.04 - 01.06.2017 tarihleri arasında, araştırmayı kabul eden öğrencilerle (n=300) yapılmıştır. Verilerin toplanmasında sosyo-demografik özelliklerinin sorgulandığı anket formu ve “Türkiye Sağlık Okuryazarlığı Ölçeği-32 (TSOY-32)” kullanılmıştır. İstatistiksel değerlendirmede ki-kare testi, Mann Whitney U testi ve Kruskal Wallis H testinden yararlanılmıştır. Kruskal Wallis H testinde çıkan farklılıkların post hoc değerlendirmesinde Bonferroni düzeltmesi kullanılmıştır. Öğrencilerin yaş ortalaması 20,89±1,74 yıl olup, %85,3’ü (n=256) kadın, %14,7’sı (n=44) erkektir. Öğrencilerin % 33,3’ü (n=100), hemşirelik, %26,3’ü (n=79) ebelik, %22,3’ü (n=67) çocuk gelişimi, % 18,0’ı (n=54) fizyoterapi ve rehabilitasyon bölümünde eğitim görmektedir. Ölçek puanlarına göre öğrencilerin “yeterli ya da mükemmel sağlık okuryazarlığı” düzeyine sahip olma oranı, ölçek toplamında %55,7, “tedavi ve hizmet” alt boyutunda %62,0, “hastalıklardan korunma ve sağlığın geliştirilmesi” alt boyutunda %55,0’dır. Öğrencilerin “sağlıkla ilgili bilgiyi kullanma/uygulama” boyutunda en yüksek puanlara sahip olduğu, en düşük puanların ise “Sağlıkla ilgili bilgiyi değerlendirme” boyutunda olduğu belirlenmiştir. TSOY-32 ölçeği toplam puanları, bölümlere göre değerlendirildiğinde, en yüksek puanı ebelik bölümü öğrencilerinin (36,24±6,16) aldığı, fizyoterapi ve rehabilitasyon bölümü öğrencilerinin ise (31,26±6,32) en düşük puana sahip olduğu saptanmıştır (p&lt;0,001). Çalışmanın sonuçları sağlık alanında eğitim gören öğrencilerin istenilen sağlık okuryazarlığı düzeyine sahip olmadığını göstermektedir. Mesleki alanlarıyla ilgili sağlık eğitimcisi ve danışmanı olarak görev yapacak olan sağlık çalışanlarının, bu rollerini yerine getirebilmeleri için sağlık okuryazarlığı düzeylerinin iyi olması gerekir. Bu nedenle mezuniyet öncesi müfredat ve ders programları içinde sağlık okuryazarlığı konusunun yer alması önerilmektedir.</p>


Author(s):  
F. Ceccato ◽  
G. Voltan ◽  
C. Sabbadin ◽  
V. Camozzi ◽  
I. Merante Boschin ◽  
...  

Abstract Context The COVID-19 outbreak in Italy is the major concern of Public Health in 2020: measures of containment were progressively expanded, limiting Outpatients’ visit. Objective We have developed and applied an emergency plan, tailored for Outpatients with endocrine diseases. Design Cross-sectional study from March to May 2020. Setting Referral University-Hospital center. Patients 1262 patients in 8 weeks. Interventions The emergency plan is based upon the endocrine triage, the stay-safe procedures and the tele-Endo. During endocrine triage every patient was contacted by phone to assess health status and define if the visit will be performed face-to-face (F2F) or by tele-Medicine (tele-Endo). In case of F2F, targeted stay-safe procedures have been adopted. Tele-Endo, performed by phone and email, is dedicated to COVID-19-infected patients, to elderly or frail people, or to those with a stable disease. Main outcome measure To assess efficacy of the emergency plan to continue the follow-up of Outpatients. Results The number of visits cancelled after endocrine triage (9%) is lower than that cancelled independently by the patients (37%, p < 0.001); the latter reduced from 47 to 19% during the weeks of lockdown (p = 0.032). 86% of patients contacted by endocrine-triage received a clinical response (F2F and tele-Endo visits). F2F visit was offered especially to young patients; tele-Endo was applied to 63% of geriatric patients (p < 0.001), visits’ outcome was similar between young and aged patients. Conclusions The emergency plan respects the WHO recommendations to limit viral spread and is useful to continue follow-up for outpatients with endocrine diseases.


2013 ◽  
Vol 15 (9) ◽  
pp. e204 ◽  
Author(s):  
Aida Bianco ◽  
Rossella Zucco ◽  
Carmelo Giuseppe A Nobile ◽  
Claudia Pileggi ◽  
Maria Pavia

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