scholarly journals Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

2018 ◽  
Vol 2018 ◽  
pp. 1-10 ◽  
Author(s):  
Teresa Santos ◽  
Margarida Gaspar de Matos ◽  
Adilson Marques ◽  
Celeste Simões ◽  
Isabel Leal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Hospital Setting ◽  
Outpatient Department ◽  
Health Related Quality ◽  
Psychosomatic Health ◽  
Related Quality ◽  
Health Related

Living with a chronic disease (CD) in adolescence involves new multifaceted challenges. This study aims to conduct a psychosocial characterization of a group of adolescents with chronic diseases in a hospital setting and to compare such dimensions for the total group and for different diseases. A cross-sectional study included 135 adolescents with chronic diseases (51.9% boys; 48.1% girls), having an average age of 14±1.5 years (SD=1.5) and attending a paediatric outpatient department in a hospital setting. Statistically significant differences were found among the different chronic diseases for the variables self-regulation (adolescents with diabetes had significantly higher competencies) and multiple psychosomatic symptoms (adolescents with neurologic diseases reported significantly more complaints). Boys presented both better health-related quality of life and psychosomatic health when compared to girls. No statistically significant differences were observed for health-related quality of life, psychosomatic health, resilience, and social support. These findings bring important suggestions especially while planning interventions, which must take into account the promotion of a healthy psychosocial development, through an inclusive perspective (covering different chronic diseases), that take into consideration specific and gendered approaches. Such suggestions might help healthcare professionals to better plan interventions in order to increase their effectiveness.

scholarly journals Assessment of Health-Related Quality of Life (HRQOL) in Patients with Chronic Diseases

2021 ◽  
Vol 68 (2) ◽  
Author(s):  
Mohammed Safeer V S ◽  
Dr M Umesh
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Medication Adherence ◽  
Chronic Diseases ◽  
Health Related Quality ◽  
Patient Counselling ◽  
Information Leaflets ◽  
Related Quality ◽  
Health Related

According to various studies conducted on HRQoL it was found that patient counselling provided by a pharmacist play an appreciable role in improving the HRQoL of the patients. Patient counselling plays a pivotal role in improving patient understanding about the disease and medications. Patient counselling can be provided through various mediums such as face-to-face counselling, patient information leaflets. The HRQoL of the patients can be assessed using various questionnaires available. The aim of the study is to assess influence of pharmacist provided counselling on improving the Health related quality of life (HRQoL) in patients with chronic diseases. Over a period of nine months, a prospective interventional study was held in the department of General Medicine JSS Hospital, Mysuru. Ethics committee approval was obtained for this study. Patients that fulfilled the requirements were included in the research and were educated about the disease, medications, importance of medication adherence and lifestyle modifications. All the necessary data have been gathered and recorded. The HRQoL was determined before and after educating using HRQoL (SF-20) questionnaire respectively. Paired student t-test had been used to compare the pre and post HRQoL scores. Out of 227 subjects admitted in the study, 66(29%) had Diabetes Mellitus, 55(24%) had been diagnosed with hypertension, 52(23%) had been diagnosed with stroke and 54(24%) were diagnosed with bronchial asthma. All the study participants with different chronic disease were given with the HRQoL questionnaire before education (baseline) and after education (follow up). There was a significant increase in the patients’ HRQoL scores after education as p-value which has been calculated was <0.001. Educating or counselling the patients regarding disease, medication and medication adherence helps in improving the Health related quality of life (HRQoL) in chronic disease patients.

scholarly journals The impact of multimorbidity patterns on health-related quality of life in the general population: results of the Belgian Health Interview Survey

2021 ◽  
Author(s):  
Lisa Van Wilder ◽  
Brecht Devleesschauwer ◽  
Els Clays ◽  
Stefanie De Buyser ◽  
Johan Van der Heyden ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Diseases ◽  
Disease Burden ◽  
Health Related Quality ◽  
Health Interview Survey ◽  
Related Quality ◽  
Health Related ◽  
Interview Survey ◽  
The Impact

Abstract Background Chronic diseases and multimorbidity are a major cause of disease burden—for patients, caregivers, and society. Little is known however about potential interaction effects between specific disease combinations. Besides an additive effect, the presence of multiple conditions could also act synergistically or antagonistically regarding the impact on patients’ health-related quality of life (HRQoL). The aim was to estimate the impact of coexisting chronic diseases on HRQoL of the adult general Belgian population. Methods The Belgian Health Interview Survey 2018 provided data on self-reported chronic conditions and HRQoL (EQ-5D-5L) for a nationally representative sample. Linear mixed models were used to analyze two-way and three-way interactions of disease combinations on HRQoL. Results Multimorbidity had a prevalence of 46.7% (≥ 2 conditions) and 29.7% (≥ 3 conditions). HRQoL decreased considerably with the presence of multiple chronic diseases. 14 out of 41 dyad combinations and 5 out of 13 triad combinations showed significant interactions, with a dominant presence of negative/synergistic effects. Positive/antagonistic effects were found in more subjective chronic diseases such as depression and chronic fatigue. Conditions appearing the most frequently in significant disease pair interactions were dorsopathies, respiratory diseases, and arthropathies. Conclusions Diverse multimorbidity patterns, both dyads and triads, were synergistically or antagonistically associated with lower HRQoL. Tackling the burden of multimorbidity is needed, especially because most disease combinations affect each other synergistically, resulting in a greater reduction in HRQoL. Further knowledge about those multimorbidity patterns with a greater impact on HRQoL is needed to better understand disease burden beyond mortality and morbidity data.

scholarly journals Cross-cultural validation of the “DISABKIDS” questionnaire for quality of life among Colombian children with chronic diseases

2018 ◽  
Vol 26 (0) ◽  
Author(s):  
Nadia Carolina Reina-Gamba ◽  
Miguel Richart-Martinez ◽  
Julio Cabrero-García
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Chronic Diseases ◽  
Cross Cultural ◽  
Health Related Quality ◽  
Validation Process ◽  
Related Quality ◽  
Health Related ◽  
Cultural Validation

ABSTRACT Objective: to describe the cross-cultural validation process of the “DISABKIDS” questionnaire in Colombia, for both the children and adolescents’ version and the parents’ version, an instrument intended to measure the health-related quality of life of Colombian children and adolescents with chronic diseases. Method: the cross-cultural validation process was conducted according to an international consensual systematic methodology, called standardized linguistic validation, to ensure linguistic equivalence with the original questionnaire. Results: the pretest’s cognitive interviews revealed a need to adjust the questionnaire, which consisted of asking for “health condition” rather than only asking for “condition”. Due to the cultural context, the word “condition” used in the original version, when translated to Spanish, refers to socioeconomic conditions rather than health conditions. For this reason, 11 items in the children’s version and eight items in the parents’ version were adjusted. Conclusions: the Colombian version of DISABKIDS-37 to measure health-related quality of life among children and adolescents with chronic diseases in both the children’s and parents’ versions is equivalent to the original version and is appropriate for use in Colombia. Future studies can assess the questionnaire’s psychometric properties.

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