scholarly journals The Importance of Connection to Others in QoL in MSA and PSP

2017 ◽  
Vol 2017 ◽  
pp. 1-9 ◽  
Author(s):  
Louise Wiblin ◽  
Rory Durcan ◽  
Mark Lee ◽  
Katie Brittain

Multiple System Atrophy (MSA) and Progressive Supranuclear Palsy (PSP) are atypical Parkinsonian disorders with extended morbidity and reduced lifespan, known to have marked and early impact upon quality of life (QoL). This study aimed to address the lack of studies in the literature regarding personal perspectives on QoL in MSA and PSP in both patients and carers. Participants took part in qualitative, in-depth interviews in the North East of England, exploring what impacts their QoL and their experiences of living with these complex conditions. Connection to others was found to be a prevailing theme, encompassing difficulty communicating, social isolation, impact on personal relationships, and stigma. This work is helpful in that it emphasises the personal experiences of these patients and carers, which can provide insights into important areas for clinical service planning and best clinical management of individual patients as well as considerations for future research into QoL in these rare disorders.

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Noorfariza Nordin ◽  
Suhaily Mohd Hairon ◽  
Najib Majdi Yaacob ◽  
Anees Abdul Hamid ◽  
Seoparjoo Azmel Mohd Isa ◽  
...  

Abstract Background People with type 2 diabetes mellitus (T2DM) are best managed by a chronic care model that is associated with enhanced quality of care and improved patient outcome. Assessing patients’ perceived quality of care is crucial in improving the healthcare delivery system. Hence, this study determined the perceived quality of care among people with T2DM and explored its associations with (i) sociodemographic and clinical characteristics and (ii) types of healthcare clinics to guide future planning. Methods A cross-sectional study involving 20 primary healthcare clinics in the North East Region of Peninsular Malaysia and people with T2DM as the sampling unit was conducted from February to May 2019. The pro forma checklist, interview-guided Skala Kepuasan Interaksi Perubatan-11, and Patient Assessment of Chronic Illness Care (Malay version; PACIC-M) questionnaire were used for data collection. Univariate analysis and linear regression were used to determine the status of perceived quality of care and the factors associated with the perceived quality of care, respectively. Results Overall, data from 772 participants were analyzed. The majority was from the Malay ethnic group (95.6%) with a mean (standard deviation [SD]) glycated hemoglobin A1c (HbA1c) level of 8.91% (2.30). The median (interquartile range [IQR]) of the number of medical officers available at each clinic was 6 (7), with Family Doctor Concept (FDC) clinics having a higher number of medical officers than non-FDC clinics (p = 0.001). The overall mean (SD) PACIC-M score was 2.65 (0.54) with no significant difference between scores of patients treated in the two clinic types (p = 0.806). Higher perceived quality of care was associated with lower number of medical officers (adjusted regression coefficient [Adj.β], − 0.021; p-value [p], 0.001), and greater doctor–patient interaction in all domains: distress relief (Adj.β, 0.033; p, < 0.001), rapport (Adj.β, 0.056; p, < 0.001), and interaction outcome (Adj.β, 0.022; p, 0.003). Conclusion Although there was no significant difference found between clinic type, this study reflects that patients are comfortable when managed by the same doctor, which may support a better doctor-patient interaction. A larger specialized primary care workforce could improve diabetes care in Malaysia.


BMJ Leader ◽  
2021 ◽  
pp. leader-2020-000403
Author(s):  
Victoria Smith ◽  
Claire Maxwell ◽  
Lisa Robinson

ObjectivesSelection of effective leadership styles within healthcare is linked to high quality, safe care for patients. Within the literature attention has been given to medical and nursing professions, failing to acknowledge the contribution made by physiotherapy leaders. This study aims to consider the leadership styles used by physiotherapists in a designated leadership role, specifically exploring the barriers they face and the strategies employed to overcome current leadership dilemmas.DesignA qualitative, phenomenological design was used. Consent was obtained from each participant for one semistructured interview which was audio recorded and transcribed verbatim. Framework analysis was used to analyse the data.SettingA large National Health Service Foundation Trust within the North East of England.ParticipantsA purposive sample of ten physiotherapy team leaders.ResultsThe theoretical leadership framework that emerged demonstrated the daily tensions experienced by physiotherapy team leaders in regard to being a transactional or transformational leader. Within this, three superordinate themes exist: the individual, the team and the organisation and beyond. Each theme contained barriers and enablers which related to transactional and transformational leadership styles, respectively.ConclusionsThe framework identified gives insight into a group of clinical leaders not yet explored and provides a foundation for the development of leadership behaviours throughout physiotherapy. These clinicians should be supported by senior leaders to develop more transformational styles which have the potential to impact on staff well-being and patient care. Future research should compare these findings with studies involving larger sample sizes that span the health and social care system.


2018 ◽  
Vol 18 (2) ◽  
pp. 137-154 ◽  
Author(s):  
Augustin Ignatov

Abstract Entrepreneurship is the driving force of economic development and progress. A successful state, first of all, provides favourable conditions motivating the businesses to grow and flourish. Presently, the European Union is developing unevenly with multiple economic misbalances across the community, the West and the North being more competitive than the South and the East. The aim of the present research is to examine the framework of interdependence between the degree to which the governance quality and economic freedom in the European Union are supporting entrepreneurial activities and the performance of the community in terms of entrepreneurial innovation. The results reached through applying both qualitative and quantitative analyses show that the interdependence between entrepreneurial innovation and regulatory efficiency is strong for many of the European Union states which is determined by multiple factors including the institutional and economic ones. Also, the present paper underlines the importance of the proper regulatory framework for the efficient development of business innovation. The future research on this matter could consider in depth the impact of socio-cultural environment, its influence on the quality of governance and the impact of both upon the European entrepreneurial innovation.


2017 ◽  
Vol 13 (6) ◽  
pp. 559-572 ◽  
Author(s):  
Asadusjjaman Suman ◽  
Fiona Dyer ◽  
Duanne White

Abstract. Thirty-six borehole temperature–depth profiles were analysed to reconstruct the ground surface temperature history (GSTH) of eastern Tasmania for the past 5 centuries. We used the singular value decomposition method to invert borehole temperatures to produce temperature histories. The quality of borehole data was classified as high or low based on model misfit. The quality of the borehole data was not dependent on topography or land use. Analysis reveals that three to five high-quality borehole temperature–depth profiles were adequate to reconstruct robust paleotemperature records from any area. Average GSTH reconstructed from Tasmanian boreholes shows temperature increases about 1.2 ± 0.2 °C during the past 5 centuries. Reconstructed temperatures were consistent with meteorological records and other proxy records from Tasmania during their period of overlap. Temperature changes were greatest around the north-east coast and decreased towards the centre of Tasmania. The extension of the East Australian Current (EAC) further south and its strengthening around the north-east coast of Tasmania over the past century was considered a prime driver of warmer temperatures observed in north-east Tasmania.


2000 ◽  
Vol 50 (4) ◽  
pp. 361-383 ◽  
Author(s):  
Prem S. Fry

Three hundred and thirty-one older adults participated in a study designed to examine their perceptions of what constitutes a reasonable quality of life. Participants responded to an open-ended questionnaire in which they were asked to state their priorities, preferences, aspirations, and concerns about their present and future quality of life. Responses were subjected to a principal components factor analysis which yielded four factors: 1) respondents' demands for specific guarantees; 2) respondents' aspirations and expectations for future quality of life; 3) fears and anxieties; and 4) external factors presenting a threat to quality of life. These factors accounted for 15 percent, 12 percent, 9.2 percent, and 7.1 percent, respectively, of the total variance. Additionally, data obtained from in-depth interviews with thirty-seven older adults were analyzed using a qualitative approach. Contrary to stereotypic notions that elderly persons are frail, vulnerable, and resigned to deteriorating conditions of well-being in late life, the results of both the qualitative and quantitative components of the study showed the majority of respondents as having clear demands for autonomy, control, and independence in making decisions, including the decision to terminate life. Implications are discussed in terms of future research on quality of life of older adults.


Energies ◽  
2020 ◽  
Vol 13 (6) ◽  
pp. 1495 ◽  
Author(s):  
Mariusz Jerzy Stolarski ◽  
Kazimierz Warmiński ◽  
Michał Krzyżaniak

Bioenergy accounts for 61.7% of all renewable energy sources, with solid fuels accounting for 43% of this amount. Poplar plantations can deliver woody biomass for energy purposes. A field experiment with poplar was located in the north-east of Poland on good quality soil formed from medium loam. The study aimed to determine the yield, the energy value of the yield and the thermophysical properties and elemental composition of the biomass of four poplar clones harvested in two consecutive 4-year harvest rotations. The highest biomass energy value was determined in the UWM 2 clone in the second harvest rotation (231 GJ ha−1·year−1). This value was 27–47% lower for the other clones. The biomass quality showed that poplar wood contained high levels of moisture and low levels of ash, sulphur, nitrogen and chlorine. This indicates that poplar can be grown in the north-east of Poland and that it gives a yield with a high energy value and beneficial biomass properties from the energy generation perspective.


2020 ◽  
pp. 109634802097855
Author(s):  
Paula Danby ◽  
Dasha Grajfoner

This article critically explores insights into human–equine touristic experiences and acknowledges how such interconnectivity underline nature-based solutions (NBS) to mutually enhance psychological well-being. Despite the growing interest in NBS limited accounts have explored human–animal relations within the realm of touristic encounters. Drawing upon multispecies ethnographic accounts, participant observations, diaries, and in-depth interviews were held with 21 participants, with topics themed around human–equine experiences, relational encounters, and well-being. The sample was taken from participants located in the North East of England who engaged in equestrian tourism. Findings revealed life-changing transformations as a result of multispecies encounters. Deep emotional elements were experienced through intersubjectivity where participants spoke of the psychological benefits of being immersed in natural landscapes with their equine companions. This article demonstrates human–equine experiences as a positive NBS and illustrates that for the two species to effectively interact in equine-assisted psychological interventions requires mutual trust, empathy, and effective communication.


Social Change ◽  
2016 ◽  
Vol 46 (4) ◽  
pp. 544-559
Author(s):  
Sangram Charan Panigrahi

The quality of elementary education plays a critical role in an individual’s growth. Thus it has the capacity to develop a nation’s human resources. This study has examined the capabilities of young students who enrolled at the elementary level in schools located in India’s rural areas and their proficiency in different subjects, specifically their own regional language, mathematics and their knowledge of English. In order to measure the performances of students enrolled in Classes 1–VIII, the study used the principal component analysis (PCA) on original, 12 correlated variables. A standardised regression score of two factors, generated from PCA, was used to measure the status of education at the elementary level for different states. By considering the total score of two factors, using the PCA, it was found that most of the states in the southern parts of the country, that is, Kerala, Andhra Pradesh, Telangana, Karnataka and Tamil Nadu, and the North-East region, that is, Assam, Mizoram, Tripura, Sikkim, Meghalaya, Nagaland and Arunachal Pradesh, exhibited better academic performances as compared to other states.


2017 ◽  
Vol 34 (1) ◽  
pp. 21-32 ◽  
Author(s):  
Faiza Balla ◽  
Nabil Kabouche ◽  
Kamel Khanchoul ◽  
Hamza Bouguerra

Abstract Erosion is a major phenomenon that causes damage not only to soil and agriculture, but also to the quality of the water amounting to tonnes of matter annually transported on the earth's surface. This fact has attracted the interest of researchers to understand its mechanism and explain its causes and consequences. This work is a comparative study of water erosion in the two semi-arid catchments of Wadi Soultez and Wadi Reboa; located in the North-East of Algeria. The approach adopted for the quantification of sediment transport consists on researching the best regressive model to represent the statistical relation between the sediment yield and the measured water discharge at different scales: annual, seasonal and monthly. The available data cover 27 years from 1985-2012. The results show that the power model has given the best correlation coefficient. Results have indicated that Wadi Reboa transported an average of 14.66 hm3 of water and 0.25 million tonnes of sediments annually. While Wadi Soultez has transported 4.2 hm3 of water and 0.11 million tonnes of sediments annually. At a seasonal scale, sediment amounts have showed significant water erosion in autumn with around 44% and secondarily in the spring with 29% in Wadi Soultez. Unlike Wadi Reboa, sediment transport represents 32% and 46% in autumn and spring respectively. Based on the obtained sediment amounts; it is found that the physical factors: such as steep reliefs, vulnerable lithological nature of rocks and poor vegetal cover, have significantly contributed in accelerating soil erosion.


2009 ◽  
Vol 60 (12) ◽  
pp. 3069-3082 ◽  
Author(s):  
C. Fall ◽  
J. Loaiza-Navia ◽  
M. Esparza-Soto

As part of the efforts done to introduce the practice of modeling in Latin America, this research carried out at the North-East WWTP of Monterrey represents the first comprehensive modeling case in Mexico. The main objective was to reproduce the organic carbon removal and sludge production rates of the plant, based on ASM1. Different intermediate studies were performed prior to the calibration of the model: influent characterization, tracer tests and hydraulics modeling, sludge settling tests and respirometry. Two fractionation methods (STOWA protocol and Influent-advisor) were compared, showing no equivalent patterns. A stepwise sequence of calibration was developed and successfully applied. The hydraulics of the reactors at the plant was reproduced by use of a series of 3 to 5 CSTRs. The waste and return activated sludge flowrates (QWAS and QRAS) were corrected based on the inorganic and total suspended solids mass balances. The Vesilind settling constants were measured (Vo and rhind), while the flocculent zone settling parameter (rfloc) was adjusted to calibrate the secondary clarifier. In ASM1, the adjusted parameters were the COD soluble inert fraction (frSI) and the particulate substrate fraction (FrXS). All other ASM1 parameters were kept at their default values. The steady-state calibrated model (in GPS-X) adequately described the quality of the effluent (carbon and nitrogen) as well as the sludge composition (M. Liquor and WAS). This case study provides voluntarily detailed data to allow its wide use for training and teaching purposes.


Sign in / Sign up

Export Citation Format

Share Document