scholarly journals Young Women Stroke Survivors and Their Desire for Peer Support

ISRN Stroke ◽  
2014 ◽  
Vol 2014 ◽  
pp. 1-8
Author(s):  
Sharon-Dale Stone
Keyword(s):  
Peer Support ◽  
Young Women ◽  
Hemorrhagic Stroke ◽  
Well Being ◽  
Stroke Survivors ◽  
Psychological Well Being ◽  
Young Stroke ◽  
Widespread Access

The concerns of young stroke survivors are not well known. The aim of this paper is to draw on data from a larger study to show that young women who survived a hemorrhagic stroke desire access to peer support, but there is not widespread access to peer support. Open-ended interviews were conducted with an international sample of 28 women to learn about their poststroke experiences and were analyzed qualitatively for common issues and themes. A prominent theme across the interviews was the significance of age-similar peer support. Participants discussed feeling alone and misunderstood and wanting to have access to peer support. In conclusion, peer support may help to enhance psychological well-being, but the survivor’s own understanding of her peers must be centrally considered.

scholarly journals SELECTED CORRELATES OF PSYCHOLOGICAL WELL-BEING IN CANDIDATES FOR THE PEER SUPPORT WORKERS

2019 ◽  
Vol 24 (3) ◽  
Author(s):  
Karolina Zalewska-Łunkiewicz ◽  
◽  
Agata Chudzicka-Czupała ◽  
Keyword(s):  
Peer Support ◽  
Self Efficacy ◽  
Psychiatric Hospitalization ◽  
Well Being ◽  
Subjective Well Being ◽  
Post Discharge ◽  
Coping With Stress ◽  
Psychological Well Being ◽  
Brief Cope ◽  
And Coping

The situation of mental crisis and psychiatric hospitalization is a difficult one, which may be described in the category of stress that affects individuals’ subjective well-being. Also the post-discharge period, the time of recovery, is related to the necessity of coping with many difficulties-stigma, treatment, occupational problems. The aim of the study was to assess the levels of perceived distress during the time of psychiatric hospitalisation and in post-discharge period, coping strategies, self- efficacy and also associations of these variables with subjective well-being in people who prepare to the role of peer support workers. The pilot study covered a group of 35 subjects -participants of one of the first realised in Poland workshop for peer support workers. The following questionnaires were used: Psychological Well-Being PWB, The General Self-Efficacy Scale GSES, Distress Thermometer DT, Brief-COPE. The results point to the existence of the associations of subjective well-being in future peer support workers and their difference of distress appraisal between the time of crisis and the time of recovery, self-efficacy and the complex set of coping with stress strategies. The research demonstrates that further empirical explorations are justified of the subjective well-being and coping of individuals after a psychiatric hospitalization crisis, who wish to help other mental disorder sufferers. Key words: health assistants, subjective well-being, self-efficacy, coping with stress

The psychological well-being of renal peer support volunteers

2002 ◽  
Vol 38 (1) ◽  
pp. 40-49 ◽  
Author(s):  
Gillian Brunier ◽  
Jane Graydon ◽  
Barbara Rothman ◽  
Charline Sherman ◽  
Roselyn Liadsky
Keyword(s):  
Peer Support ◽  
Well Being ◽  
Psychological Well Being

scholarly journals A randomised controlled trial of expressive arts-based intervention for young stroke survivors

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Caitlin Kar Pui Chan ◽  
Temmy Lee Ting Lo ◽  
Adrian Ho Yin Wan ◽  
Pamela Pui Yu Leung ◽  
Marco Yiu Chung Pang ◽  
...  
Keyword(s):  
Intervention Group ◽  
Well Being ◽  
Expressive Arts ◽  
Stroke Survivors ◽  
Waitlist Control ◽  
Young Stroke ◽  
Link Type ◽  
The Arts ◽  
Spiritual Well Being ◽  
Young Survivors

Abstract Background Stroke causes lasting brain damage that has numerous impacts on the survivor’s physical, psychosocial, and spiritual well-being. Young survivors (< 65 years old) tend to suffer more because of their longer overall survival time. Expressive arts-based intervention is considered a holistic approach for stroke rehabilitation because it allows participants to express their thoughts and emotions through the arts. The group environment also promotes mutual support among participants. The creative art-making process helps expand participants’ creativity and imagination as well as promote a sense of aesthetic appreciation. Previous studies have shown the effectiveness of the arts-based intervention in managing stroke and its psychosocial-spiritual comorbidities. Nevertheless, a systematic study has not been conducted, including in young survivors. This trial plans to investigate the effectiveness of an expressive arts-based intervention on bio-psychosocial-spiritual outcomes in young Chinese stroke survivors. Methods/design A single-blind, two-arm cluster randomised control trial with a waitlist control design will be adopted. One hundred and fifty-four stroke survivors, aged 18–64 years with modified Rankin Scale scores of 1–4, will be screened and randomised to either an expressive arts-based intervention group or a treatment-as-usual waitlist control group. The intervention group will receive a 90-min session once a week for a total of 8 weeks. All participants will be assessed three times: at baseline, 8 weeks, and 8 months after the baseline. Study outcomes include measures of depression and anxiety, perceived stress, perceived social support, hope, spiritual well-being, quality of life, salivary cortisol, blood pressure, and heart rate. Discussion This study is expected to contribute to the current knowledge on the effectiveness of an arts-based intervention on the holistic wellness of young stroke survivors. The findings will help stroke survivors and healthcare professionals make better choices in selecting practices that will yield maximum benefits, satisfaction, adherence, and sustainability. In addition, the examination of the relationships between bio-psychosocial-spiritual variables will help contribute to the development of holistic care for the survivors. Trial registration ClinicalTrials.gov, NCT03729648. Registered 31 October 2018 - Retrospectively registered, (329 words)

scholarly journals Qualitative Study of Chinese Stroke Caregivers’ Caregiving Experience During the COVID-19 Pandemic

Stroke ◽  
2021 ◽  
Author(s):  
Jung Jae Lee ◽  
Wing Nga Tsang ◽  
Sook Ching Yang ◽  
Jojo Yan Yan Kwok ◽  
Vivian W.Q. Lou ◽  
...  
Keyword(s):  
Care Service ◽  
Health Care Service ◽  
Well Being ◽  
Stroke Survivor ◽  
Stroke Survivors ◽  
Psychological Well Being ◽  
Telephone Interviews ◽  
Chinese Adult ◽  
Difficult Time ◽  
Caregiving Roles

Background and Purpose: The coronavirus disease 2019 (COVID-19) outbreak has led to disruptions in health care service delivery worldwide, inevitably affecting stroke survivors requiring ongoing rehabilitation and chronic illness management. To date, no published research has been found on stroke caregiving during the COVID-19 pandemic. This study aimed to explore Hong Kong stroke caregivers’ caregiving experiences in the midst of this difficult time. Methods: Individual semistructured interviews were conducted with 25 Chinese adult primary stroke caregivers from May to June 2020 via telephone. Interviews were transcribed verbatim and analyzed using an interpretive description approach and constant comparison strategy. Results: Five themes of the stroke caregiving experience during the COVID-19 pandemic emerged: care service adversities, additional caregiving workload and strain, threatened relationship between caregiver and stroke survivors, threats to caregivers’ physical and psychological well-being, and needs for continuing caregiving roles. Our findings suggested that caregivers have worsened physical and psychological well-being because of increases in care burden with simultaneously reduced formal and informal support. The relationship between caregiver and stroke survivor was subsequently affected, placing some survivors at heightened risk of abuse. Conclusions: Our study provides valuable findings about stroke caregiving experiences and needs during the pandemic. Delivery of psychological support, telemedicine, and household hygiene resources would be useful to mitigate caregivers’ psychological distress during the COVID-19 pandemic.

scholarly journals El desempleo juvenil: un estudio comparado Brasil España

2018 ◽  
Vol 6 (2) ◽  
Author(s):  
Alicia Garrido ◽  
Sabrina Cavalcanti Barros ◽  
Sonia Maria Guedes Gondim
Keyword(s):  
Mental Health ◽  
Young Women ◽  
Youth Unemployment ◽  
Well Being ◽  
Point Of View ◽  
Psychological Well Being ◽  
Brazilian Sample ◽  
Salud Mental ◽  
Transnational Study ◽  
Bienestar Psicologico

RESUMEN: En esta investigación se realizó un estudio comparado entre una muestra de jóvenes brasileños y españoles en las que se analizó la relación entre estatus de empleo (empleados versus desempleados) y bienestar psicológico. Se constata una asociación entre desempleo juvenil y deterioro en la salud mental, tanto en la muestra española como en la muestra brasileña. Las diferencias observadas son mayores en el caso de los jóvenes desempleados que en el caso de las jóvenes desempleadas, quienes parecen beneficiarse menos, desde el punto de vista del bienestar psicológico del hecho de tener un empleo. Estas diferencias podrían deberse a la sobrecarga de roles que experimentan las jóvenes, si bien este es un factor que debe ser analizado en futuras investigaciones.Palabras claves: desempleo juvenil; bienestar psicológico; salud mental; estudio transnacional.ABSTRACT: In this research, a comparative study was conducted among a sample of young Brazilians and Spaniards in which the relationship between employment status (employed versus unemployed) and psychological well-being was analyzed. There is an association between youth unemployment and deterioration in mental health, both in the Spanish sample and in the Brazilian sample. The differences observed are greater in the case of unemployed young men than in the case of unemployed young women, who seem to benefit less, from the point of view of the psychological well-being, of having a job. These differences could be due to the overload of roles that young women experience, although this is a factor that should be analyzed in future research.Keywords: youth unemployment; psychological well-being; mental health; transnational study.

scholarly journals Development of an online Langerian mindfulness program for stroke survivors and caregivers

2021 ◽  
Author(s):  
Marika Demers ◽  
Francesco Pagnini ◽  
Deborah Phillips ◽  
Brianna Chang ◽  
Carolee Winstein ◽  
...  
Keyword(s):  
Neurological Disorders ◽  
Well Being ◽  
Structured Interview ◽  
Small Sample ◽  
Stroke Survivors ◽  
Mixed Methods Design ◽  
Psychological Well Being ◽  
Mindfulness Intervention ◽  
Symptom Variability ◽  
User Friendly

Background: Mindfulness is promising for individuals with neurological disorders and caregivers to improve psychological well-being. The potential application of a Langerian mindfulness intervention, focused on the attention to symptom variability, however, is still unknown. Objective: To determine the usability and satisfaction towards an online mindfulness intervention for stroke survivors and caregivers, and the potential effectiveness on psychological well-being. Methodology: Using a mixed-methods design, 11 stroke survivors and 3 caregivers participated in a three-week, online, Langerian mindfulness intervention promoting attention to variability. A semi-structured interview assessed the intervention's usability and gathered feedback. Self-reported measures about psychological well-being were documented remotely three times (pre, post, one-month). Results: Participants were highly satisfied with the intervention. None of the outcome measures changed over time, yet participants reported subjective benefits. Conclusion: Valuable insights were gained from a small sample of stroke survivors and caregivers for the development of a user-friendly and relevant online mindfulness intervention.

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