scholarly journals From (Un)Willingness to InvolveMENt: Development of a Successful Study Brand for Recruitment of Diverse MSM to a Longitudinal HIV Research

2013 ◽  
Vol 2013 ◽  
pp. 1-9 ◽  
Author(s):  
Paula M. Frew ◽  
Victoria A. Williams ◽  
Eve T. Shapiro ◽  
Travis Sanchez ◽  
Eli S. Rosenberg ◽  
...  
Keyword(s):  
Hiv Prevention ◽  
Brand Strategy ◽  
Black Msm ◽  
Prevention Research ◽  
Chi Square ◽  
Active Involvement ◽  
Brand Development ◽  
Prevention Studies ◽  
Hiv Research ◽  
Behavioral Communication

Background. HIV continues to be a major concern among MSM, yet Black MSM have not been enrolled in HIV research studies in proportionate numbers to White MSM. We developed an HIV prevention research brand strategy for MSM. Methods. Questionnaires and focus groups were conducted with 54 participants. Descriptive statistics and chi-square analyses were performed and qualitative data were transcribed and content analyzed to identify common themes. Results. Formative research results indicated that younger Black MSM (18–29 years) were less likely to think about joining prevention studies compared to older (≥30 years) Black MSM (x2=5.92, P=0.015). Qualitative and quantitative results indicate four prominent themes related to brand development: (1) communication sources (message deliverer), (2) message (impact of public health messaging on perceptions of HIV research), (3) intended audience (underlying issues that influence personal relevance of HIV research), and (4) communication channels (reaching intended audiences). Conclusion. The findings highlight the importance of behavioral communication translational research to effectively engage hard-to-reach populations. Despite reservations, MSM in our formative study expressed a need for active involvement and greater education to facilitate their engagement in HIV prevention research. Thus, the brand concept of “InvolveMENt” emerged.

scholarly journals Child privacy rights: A ‘Cinderella’ issue in HIV-prevention research

2013 ◽  
Vol 14 (3) ◽  
pp. 108-110 ◽  
Author(s):  
Ann Elaine Strode ◽  
Catherine Slack
Keyword(s):  
Hiv Prevention ◽  
South African ◽  
Research Participation ◽  
Children's Rights ◽  
Mandatory Reporting ◽  
Children’S Rights ◽  
Best Interests ◽  
Prevention Research ◽  
Privacy Rights ◽  
Hiv Research

Legal debates regarding child participation in HIV research have tended to focus on issues of informed consent. However, much less attention has been given to privacy; accordingly, we classify this as a ‘Cinderella issue’ that has been excluded from ‘the ball’ (academic debate). Here we argue that privacy issues are as important as consent issues in HIV-prevention research. We describe a child’s right to privacy regarding certain health interventions in South African law, and identify four key norms that flow from the law and that could be applied to HIV-prevention research: (i) children cannot have an expectation of privacy regarding research participation if they have not given independent consent to the study; (ii) children may have an expectation of privacy regarding certain components of the study, such as HIV testing, if they consent independently to such services; (iii) children’s rights to privacy in health research are limited by mandatory reporting obligations; (iv) children’s rights to privacy in HIV-prevention research may be justifiably limited by the concept of the best interests of the child. We conclude with guidelines for researchers on how to implement these principles in HIV-related research studies.

scholarly journals Ethical considerations for involving adolescents in biomedical HIV prevention research

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Rita Nakalega ◽  
Carolyne Akello ◽  
Brenda Gati ◽  
Clemensia Nakabiito ◽  
Monica Nolan ◽  
...  
Keyword(s):  
Hiv Prevention ◽  
Sexual Activity ◽  
Adolescent Girls ◽  
Biomedical Research ◽  
Stakeholder Engagement ◽  
Prevention Research ◽  
Ethical Considerations ◽  
Community Perspectives ◽  
Hiv Research ◽  
Adolescent Participation

Abstract Background Involvement of adolescent girls in biomedical HIV research is essential to better understand efficacy and safety of new prevention interventions in this key population at high risk of HIV infection. However, there are many ethical issues to consider prior to engaging them in pivotal biomedical research. In Uganda, 16–17-year-old adolescents can access sexual and reproductive health services including for HIV or other sexually transmitted infections, contraception, and antenatal care without parental consent. In contrast, participation in HIV prevention research involving investigational new drugs requires adolescents to have parental or guardian consent. Thus, privacy and confidentiality concerns may deter adolescent participation. We describe community perspectives on ethical considerations for involving adolescent girls in the MTN 034 study in Uganda. Methods From August 2017 to March 2018, we held five stakeholder engagement meetings in preparation for the MTN 034 study in Kampala, Uganda (NCT03593655): two with 140 community representatives, two with 125 adolescents, and one with 50 adolescents and parents. Discussions were moderated by the study team. Proceedings were documented by notetakers. Summary notes described community perspectives of adolescent participation in HIV research including convergent, divergent or minority views, challenges, and proposed solutions. Results Most community members perceived parental or guardian consent as a principal barrier to study participation due to concerns about adolescent disclosure of pre-marital sex, which is a cultural taboo. Of 125 adolescent participants, 119 (95%) feared inadvertent disclosure of sexual activity to their parents. Community stakeholders identified the following critical considerations for ethical involvement of adolescents in HIV biomedical research: (1) involving key stakeholders in recruitment, (2) ensuring confidentiality of sensitive information about adolescent sexual activity, (3) informing adolescents about information to be disclosed to parents or guardians, (4) offering youth friendly services by appropriately trained staff, and (5) partnering with community youth organizations to maximize recruitment and retention. Conclusions Stakeholder engagement with diverse community representatives prior to conducting adolescent HIV prevention research is critical to collectively shaping the research agenda, successfully recruiting and retaining adolescents in HIV clinical trials and identifying practical strategies to ensure high ethical standards during trial implementation.

Organizational psychology perspectives on enhancing national HIV prevention research among drug abusers.

1994 ◽  
Vol 8 (3) ◽  
pp. 191-197 ◽  
Author(s):  
William C. Grace ◽  
M. Isabel Fernandez ◽  
Robert J. Battjes ◽  
Zili Sloboda ◽  
et al
Keyword(s):  
Hiv Prevention ◽  
Organizational Psychology ◽  
Drug Abusers ◽  
Prevention Research

The ABCs and beyond: Developing an operations research agenda on comprehensive behavior change approaches for HIV prevention: Report from a technical meeting

2003 ◽  
Keyword(s):  
Hiv Prevention ◽  
Behavior Change ◽  
Hiv Risk ◽  
Operations Research ◽  
Research Agenda ◽  
Prevention Research ◽  
Change Strategies ◽  
Structural Factors ◽  
Working Together ◽  
Research Questions

In April 2003, the Horizons Program sponsored a one-day technical meeting to develop and set priorities for an operations research agenda to study effective behavior change strategies for HIV risk reduction, particularly those that focus on the “ABC” behaviors: abstinence or delaying sex, being faithful or partner reduction, and condom use. Representatives from more than 20 organizations and programs involved in prevention research and programming discussed epidemiological, behavioral, psychosocial, and structural factors that may help determine the effectiveness of promoting the ABCs and other prevention programs. During the meeting, specific opportunities for collaborations and areas of particular interest for each group were discussed, with the goal of permitting each organization to focus on its strengths while working together toward similar outcomes. As noted in this report, the Horizons partnership plans to pursue some of the key operations research questions that were identified by the technical experts.

scholarly journals Speculations on Quasi-Experimental Design in HIV/AIDS Prevention Research

2012 ◽  
Vol 3 (1) ◽  
pp. 52
Author(s):  
Donald T. Campbell ◽  
Beatrice J. Krauss
Keyword(s):  
Experimental Design ◽  
Hiv Prevention ◽  
Research Design ◽  
Research Community ◽  
Experimental Designs ◽  
Prevention Research ◽  
Quasi Experimental ◽  
Aids Research ◽  
Speculative Discussion ◽  
Hiv Aids

This paper provides a speculative discussion on what quasi-experimental designs might be useful in various aspects of HIV/AIDS research. The first author’s expertise is in research design, not HIV, while the second author has been active in HIV prevention research. It is hoped that it may help the HIV/AIDS research community in discovering and inventing an expanded range of possibilities for valid causal inference. DOI:10.2458/azu_jmmss_v3i1_campbell

Saying ‘No’ to PrEP research in Malawi: what constitutes ‘failure’ in offshored HIV prevention research?

2015 ◽  
Vol 22 (3) ◽  
pp. 278-294 ◽  
Author(s):  
Kristin Peterson ◽  
Morenike Oluwatoyin Folayan ◽  
Edward Chigwedere ◽  
Evaristo Nthete
Keyword(s):  
Hiv Prevention ◽  
Prevention Research
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