scholarly journals Physical, Cognitive, and Psychosocial Predictors of Functional Disability and Health-Related Quality of Life in Adolescents with Neurofibromatosis-1

2012 ◽  
Vol 2012 ◽  
pp. 1-8 ◽  
Author(s):  
Molly M. Garwood ◽  
Jessica M. Bernacki ◽  
Kathi M. Fine ◽  
Keri R. Hainsworth ◽  
W. Hobart Davies ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Complex Disease ◽  
Functional Disability ◽  
Emotional Functioning ◽  
Neurofibromatosis 1 ◽  
Social Emotional ◽  
Social And Emotional ◽  
Related Quality ◽  
Health Related

Objective. To examine physical, cognitive, and social-emotional predictors of quality of life (HRQOL) and functional disability (FD) in adolescents diagnosed with Neurofibromatosis-1. Methods. Participants were twenty-seven adolescents with a diagnosis of NF-1 who were recruited through an NF-1 specialty clinic at a large Midwestern children’s hospital. Measurements of the adolescents’ cognitive functioning, pain, FD, HRQOL, and social and emotional functioning were obtained with corresponding parent measures. Results. Emotional functioning significantly predicted youth-reported and parent-reported HRQOL, whereas days of pain significantly predicted youth-reported FD. Conclusions. NF-1 is a complex disease. Measurements of the overall impact of the disease tap into different aspects of the effects of NF-1 on daily life. Global outcomes such as HRQOL appear to be influenced especially by emotional functioning, whereas outcomes such as FD appear to be influenced by the physical/organic aspects of NF-1.

scholarly journals Health Related Quality of Life of Children Infected with HIV in Agra Region, India

2021 ◽  
pp. 18-26
Author(s):  
Abhishek Kumar ◽  
Dipti Agarwal ◽  
N.C. Prajapati
Keyword(s):  
Quality Of Life ◽  
Clinical Stage ◽  
Health Related Quality ◽  
Social Emotional ◽  
Medical College ◽  
Related Quality ◽  
Health Related ◽  
Valid Instrument ◽  
The Impact

Objective and Methods: HIV specific health related quality of life (HRQOL) instrument based on PedQLTM4.0 generic scale was prepared and named HIV-QOL. It was validated and used to evaluate HRQOL in HIV infected children in an observational,crossectional study conducted in the Department of Pediatrics, Sarojini Naidu Medical College, Agra, India. Results:Cronbach’s alpha score > 0.7,supported acceptable internal consistency of the instrument.The correlation coefficient of more than 0.8 indicated that the instrument was valid for application. Study included 40 HIV infected children between age 8 to 18 years.Their mean scores were calculated in all four domains (viz physical, social, emotional and school functioning) and comparison of HRQOL scores was done with respect to various social and demographic parameters. CD4 counts, clinical stage of the disease and living status of the parents and anti retroviral therapy (ART) had significant influence on the HRQOL scores. Conclusion: HIV QOL is a valid instrument to assess the health related quality of life of HIV infected children in India. It can help in assessing their health status, as well as in evaluating the impact of various medical and social programmes aimed at improving their quality of life.

scholarly journals Assessment of health-related quality of life in children with cancer using PedsQL™ (a preliminary study)

2009 ◽  
Vol 49 (6) ◽  
pp. 330
Author(s):  
Lvony Yuyu Susanto ◽  
Soedjatmiko Soedjatmiko ◽  
Sukman Tulus Putra
Keyword(s):  
Quality Of Life ◽  
Solid Organ ◽  
Social Emotional ◽  
Social Functions ◽  
Children With Cancer ◽  
Tumor Group ◽  
Related Quality ◽  
Health Related ◽  
Age Of Diagnosis

Background Cancer in children can adversely affect theirdevelopments and growth. The assessment of health-relatedquality of life (HRQL) will justifY its physical and psychologicaleffects.Methods Seventy-seven subjects who underwent therapy wereassessed using the PedsQL™, which consisted of parent-proxyreports and or child-self reports. PedsQL™ is assessments ofphysical, social, emotional and role functions. The controlgroup was students with the same number and age as the sample group.Results Children with cancer had lower HRQL than normalhealthy children (odds ratio 3. 7). Children with cancer who camefrom low socio-economic families had lower social functions andgirls had tendencies to have lower quality oflife. Fathers' education had strong influence in children's quality of life. Leukemic patients had better quality of life than those of lymphoma and solid organ tumor. Group with age of diagnosis at 6-9 year old had lower HRQL compared with younger or older groups. The longer period of illness was, the more emotional function would improved. Despite of a good accordance between parents' and child's reports, parents usually had reports about having lower quality of life.Conclusions Children's HRQL is influenced by clinicalcharacteristics and social-demographic variables differently.Assessment of the children's HRQL is better done with parentsand or child as the source of information.

scholarly journals Impact of Malocclusion on Oral Health-Related Quality of Life of 8-12 Years Old Schoolchildren in Southern Brazil

2017 ◽  
Vol 28 (1) ◽  
pp. 105-112 ◽  
Author(s):  
Roberto Cuchiara Simões ◽  
Marília Leão Goettems ◽  
Helena Silveira Schuch ◽  
Dione Dias Torriani ◽  
Flávio Fernando Demarco
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Orthodontic Treatment ◽  
Southern Brazil ◽  
Health Related Quality ◽  
Treatment Need ◽  
Social And Emotional ◽  
Related Quality ◽  
Health Related

Abstract The aim of this study was to estimate the impact of malocclusion on the oral health-related quality of life (OHRQoL) of schoolchildren aged 8-12 years old in Southern Brazil. A two-stage cluster procedure was used to select 1,199 children in 20 public and private schools in Pelotas/Brazil. Cross-sectional data was collected, consisting of a socioeconomic questionnaire to parents, children’s interview and clinical oral examination. The clinical variables were obtained from clinical examination, and the Child Perceptions Questionnaire (CPQ) was assessed during children’s interview. To measure malocclusion and orthodontic treatment need the Dental Aesthetic Index was used. For data analysis multiple Poisson regression models estimating the rate ratios (RR) and their respective confidence intervals (95%CI) were used. Among 1,206 participants, 789 were aged 8-10 years and 417 between 11-12 years. The orthodontic treatment need was higher among the younger children (44.6%) than in the older ones (35.0%) (p value ≤0.05). There was a significant association in the CPQ social and emotional domains with malocclusion in the older schoolchildren. In the adjusted analysis (for socioeconomics and clinical variables) the effect of very severe malocclusion on OHRQoL was confirmed in both 8-10 and 11-12 age groups (RR(95%CI) of 1.24(1.02;1.51) and 1.28(1.01;1.62), respectively). The findings demonstrated that children with very severe malocclusion experienced greater negative impact on OHRQoL compared to those with mild or no malocclusion. The results suggest that malocclusion impacts the quality of life. The higher impact occurs in the social and emotional well-being domains.

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