scholarly journals Validation of a New Questionnaire with Generic and Disease-Specific Qualities: The Mcgill Copd Quality of Life Questionnaire

2012 ◽  
Vol 19 (6) ◽  
pp. 367-372 ◽  
Author(s):  
Smita Pakhale ◽  
Sharon Wood-Dauphinee ◽  
Adriana Spahija ◽  
Jean-Paul Collet ◽  
François Maltais ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Chronic Obstructive ◽  
Life Questionnaire ◽  
Short Form Health Survey ◽  
Related Quality ◽  
Health Related ◽  
Test Retest Reliability ◽  
Short Form Health

BACKGROUND: A validated health-related quality of life questionnaire in chronic obstructive pulmonary disease (COPD) with advantages of both generic- and disease-specific questionnaires is needed to capture patients’ perspectives of severity and impact of the disease. The McGill COPD questionnaire was created to include these advantages in English and French. It assesses three domains: symptoms, physical function and feelings with 29 items (12 from the 36-item Short-Form Health Survey with 17 from the previously developed COPD-specific module).OBJECTIVE: To evaluate the psychometric properties of this newly developed hybrid questionnaire in subjects with COPD.METHODS: Data from a multicentre, prospective cohort study involving four hospitals with COPD subjects undergoing pulmonary rehabilitation were used. Patient evaluations included health-related quality of life (the new McGill COPD questionnaire, the St Georges Respiratory Questionnaire and the 36-item Short-Form Health Survey) and pulmonary function tests pre-and postrehabilitation. Reliability, validity and responsiveness were tested.RESULTS: The study included 246 COPD subjects (111 females) with a mean age of 66 years, 87% ex- and 8% current smokers (mean 61 pack-years) and mean forced expiratory volume in 1 s of 1.12 L (Global initiative for chronic Obstructive Lung Disease stages: 2, 27%; 3, 33%; and 4, 37%). Missing data were <2% and floor and ceiling effects were <5%. Internal consistency (Cronbach’s alpha) was 0.68 to 0.82. Test-retest reliability (intracorrelation coefficients) ranged from 0.74 to 0.96 for the sub-scales, and 0.95 for the total score. Correlation with the St George’s Respiratory Questionnaire was moderately high (r=− 0.88 [95% CI −0.91 to −0.84]), consistent with the a priori hypothesis for convergent validity. The effect size was 0.33 (pre-postrehabilitation mean score difference = 6), suggesting a small to moderate change.CONCLUSIONS: The new McGill COPD questionnaire showed high internal consistency, test-retest reliability, validity and moderate responsiveness in COPD subjects.

scholarly journals Is SF-12 a valid and reliable measurement of health-related quality of life among adults with Marfan syndrome? A confirmatory study

PLoS ONE ◽  
2021 ◽  
Vol 16 (6) ◽  
pp. e0252864
Author(s):  
Nathasha Udugampolage ◽  
Rosario Caruso ◽  
Mariangela Panetta ◽  
Edward Callus ◽  
Federica Dellafiore ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Concurrent Validity ◽  
Short Form ◽  
Health Related Quality ◽  
Short Form Health Survey ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related ◽  
Short Form Health

Introduction The structural validity and reliability of the Short-Form Health Survey 12 (SF-12) has not yet been tested in adults with the Marfan syndrome (MFS). This gap could undermine an evidence-grounded practice and research, especially considering that the need to assess health-related quality of life in patients with MFS has increased due to the improved life expectancy of these patients and the need to identify their determinants of quality of life. For this reason, this study aimed to confirm the dimensionality (structural validity) of the SF-12, its concurrent validity, and its reliability (internal consistency). Methods We performed a cross-sectional study in a convenience sample of 111 Italian adults with MFS, collecting anamnestic and socio-demographic information, the SF-12, and short-form Health Survey 36 (SF-36). A confirmatory factor analysis was performed to verify whether the items of SF-12 related to physical restrictions, physical functioning, and bodily pain were retained by the physical summary component of the SF-12. The items referred to the role limitations due to emotional issues, social functioning, and mental health were retained by the mental summary component (MCS12). SF-36 was used to assess the concurrent validity of SF-12, hypothesizing positive correlations among the equivalent summary scores. Results The two-factor structural solution resulted in fitting the sample statistics adequately. The internal consistency was adequate for the two factors. Furthermore, the physical and mental summary scores of the SF-36 were positively correlated with their equivalent summary scores derived from the SF-12. Conclusions This study confirmed the factor structure of the SF-12. Therefore, the use of SF-12 in clinical practice and research for assessing the health-related quality of life among adults with MFS is evidence-grounded. Future research is recommended to determine whether the SF-12 shows measurement invariance in different national contexts and determine eventual demographic variation in the SF-12 scores among patients with MFS.

Leisure Lifestyle and Health-Related Quality of Life of Taiwanese Adults

2012 ◽  
Vol 40 (2) ◽  
pp. 301-317 ◽  
Author(s):  
Ming-Ching Yang ◽  
Jen-Son Cheng ◽  
Shu-Wen Yu
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Health Related Quality ◽  
Short Form Health Survey ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related ◽  
The Relationship ◽  
Short Form Health

The relationship between various leisure lifestyles (LLS) and health-related quality of life (HRQoL) was analyzed. The 36-Item Short-Form Health Survey (SF-36; Ware, Kosinski, & Keller, 1994) was completed by 622 residents of Taiwan. Factor analysis resulted in 6 dimensions of leisure lifestyle: preferred travel, self-realization, morning action, exercise loving, homebody, and social support. The scores for self-realization were the highest and the scores for morning action the lowest. Cluster analysis was applied to categorize the respondents into 4 leisure lifestyle groups: morning exercisers, traveling and social people, static recreation people, and active exercisers. In general, those groups of people for whom their LLS included more exercise had a better HRQoL.

scholarly journals Medida do impacto da doença: validade de constructo de instrumento entre coronariopatas

2013 ◽  
Vol 47 (4) ◽  
pp. 843-851 ◽  
Author(s):  
Rafaela Batista dos Santos Pedrosa ◽  
Roberta Cunha Matheus Rodrigues ◽  
Kátia Melissa Padilha ◽  
Maria Cecília B.J. Gallani ◽  
Neusa Maria Costa Alexandre
Keyword(s):  
Short Form ◽  
Health Related Quality ◽  
Short Form Health Survey ◽  
Medical Study ◽  
Form Health ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related ◽  
Short Form Health

Este estudo estimou a validade de constructo pelo teste de grupos conhecidos do Instrumento para Mensuração do Impacto da Doença no Cotidiano do Valvopata (IDCV) quanto a sinais e sintomas, função ventricular sistólica, fração de ejeção do ventrículo esquerdo (FEVE) e qualidade de vida relacionada à saúde (QVRS) em 153 coronariopatas em seguimento ambulatorial. Os dados foram obtidos pela aplicação do IDCV e das versões brasileiras do The Medical Study 36-item Short Form Health Survey – SF-36 e MacNew Heart Disease Health-related Quality of Life Questionnair e. Foi utilizado o teste de Mann-Whitney para verificar a capacidade do IDCV em discriminar o impacto quanto a sinais e sintomas, FEVE e disfunção sistólica ventricular, bem como o teste de Kruskal-Wallis para verificar seu poder de discriminação em relação à QVRS. Constatou-se que o IDCV discriminou o impacto entre aqueles que pontuaram nos quartis (≤Q1, Q1-Q3, ≥Q3) de QVRS. Os achados deste estudo contribuem para o refinamento do IDCV na mensuração do impacto da doença entre coronariopatas.

scholarly journals Health-Related Quality of Life in Exclusively Breastfed Filipino Mother-Infant Dyads (P11-059-19)

2019 ◽  
Vol 3 (Supplement_1) ◽  
Author(s):  
Elvira Estorninos ◽  
Rachel Lawenko ◽  
Katherine Buluran ◽  
Yipu Chen ◽  
Jowena Lebumfacil ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Gastrointestinal Symptoms ◽  
Well Being ◽  
The Philippines ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Objectives Health-related quality of life (QoL) is an important component of overall wellbeing. The study aimed to describe the parent-perceived infant quality of life of exclusively breastfed infants along with their mother's physical and mental health in a Filipino cohort. Methods Healthy term infants, who were exclusively breastfed since birth and whose mothers had decided to exclusively breastfeed until 6 months (m) of age, were enrolled at 21–26 days of age from a single center in the Philippines. Parents completed the Infant Toddler Quality of Life Questionnaire (ITQoL) and the Short Form Health Survey (SF-36v2) (assessing maternal QoL) at enrollment and when infants were 2.5 m, 4 m, and 6 m of age. Infants’ anthropometrics were measured and parents completed gastrointestinal (GI) diaries and Infant Gastrointestinal Symptoms Questionnaire (IGSQ) throughout the study. Results Among 75 enrolled infants, 70 completed the study at age 6 m. Infant QoL mean scores were high throughout the study (range 0–100 for each concept; Table 1). Nonetheless, noticeable improvements were observed between enrollment and 2.5 m, especially in the infant-focused concept of Temperament and Moods as well as in all three parent-focused concepts (Emotional, Time, and Family Cohesion) which measure impact of child's health on parents. Between 2.5 and 6 m, the scores remained relatively stable. For maternal QoL mean scores (scores standardized to Mean = 50, SD = 10 for each scale; Table 1), noticeable improvements were observed between enrollment and 2.5 m, with Physical Health showing more pronounced improvements. The Role-Emotional scale, which measures role limitations due to emotional problems, showed the lowest scores. From enrollment to age 6 m, mean z-scores for weight-for-age, length-for-age and head circumference-for-age stably tracked WHO Growth Standards. Additionally, infant stool consistency became more formed, and incidences of spitting up/vomiting and flatulence decreased. The overall GI burden also decreased (IGSQ index score: range 13–65; 15.8 ± 3.2 at enrollment and 14.0 ± 1.2 at 6 m). Conclusions In a cohort of exclusively breastfed Filipino mother-infant dyads, parent-perceived infant health-related quality of life was high and comparable to that reported in literature1. Maternal quality of life, particularly their perceived state of emotional well-being, warrants further investigation. Funding Sources Nestec Ltd. Supporting Tables, Images and/or Graphs

scholarly journals Validity of the Spanish 8-item Short-form Generic Health-related Quality-of-Life Questionnaire in Surgical Patients

2010 ◽  
Vol 112 (5) ◽  
pp. 1164-1174 ◽  
Author(s):  
Jordi Vallès ◽  
Magda Guilera ◽  
Zahara Briones ◽  
Carmen Gomar ◽  
Jaume Canet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Component Summary ◽  
Short Form ◽  
Population Based ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Quality Of Life Questionnaire ◽  
Related Quality ◽  
Health Related

Background Health-related quality of life is usually reported for specific rather than heterogeneous populations such as those treated in routine anesthesia practice. The 8-item short-form generic health-related quality-of-life questionnaire (SF-8) is a candidate instrument for this setting. The authors evaluated the feasibility, reliability, validity, and responsiveness to change of the Spanish version of SF-8 in a population-based surgical cohort. Methods Recruiting patients from a large population-based study of risk factors for pulmonary complications, before surgery, the authors administered the 1-week recall SF-8 to 2,991 patients undergoing nonobstetric elective or emergency surgery in 59 hospitals, each of which collected data on seven randomly assigned days in 2006. The SF-8 was administered again 3 months later. Reliability was evaluated using the Cronbach alpha coefficient and validity by comparing physical and mental component summary SF-8 scores with clinical variables. Responsiveness after surgery was evaluated using the standardized response mean. Results Cronbach alpha for the overall test was 0.92. Physical and mental component summary scores and all individual scores were lower (worse quality of life) in women (P &lt; 0. 01) and decreased with age (P &lt; 0.01). Preoperative scores were lower for those in worse clinical condition (higher body mass index, American Society of Anesthesiologists physical status class, or surgical risk scores), with preoperative respiratory symptoms, and in emergency situations (P &lt; 0.01). The standardized response mean ranged from 0.1 to 0.5. Conclusions The SF-8 is a feasible, reliable, valid, and responsive instrument for assessing health-related quality of life in a broad-spectrum surgical population.

scholarly journals Responsiveness of the 36-item Short Form Health Survey and the Lupus Quality of Life questionnaire in SLE

Rheumatology ◽  
2014 ◽  
Vol 54 (5) ◽  
pp. 940-949 ◽  
Author(s):  
H. Devilliers ◽  
Z. Amoura ◽  
J.-F. Besancenot ◽  
B. Bonnotte ◽  
J.-L. Pasquali ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Survey ◽  
Short Form ◽  
Life Questionnaire ◽  
Short Form Health Survey ◽  
Quality Of Life Questionnaire ◽  
Form Health ◽  
Short Form Health
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