scholarly journals Facets of Parenting a Child with Hypoplastic Left Heart Syndrome

2012 ◽  
Vol 2012 ◽  
pp. 1-9 ◽  
Author(s):  
Gwen R. Rempel ◽  
Laura G. Rogers ◽  
Vinitha Ravindran ◽  
Joyce Magill-Evans
Keyword(s):  
Young Children ◽  
Hypoplastic Left Heart Syndrome ◽  
Theoretical Framework ◽  
Complex Congenital Heart Disease ◽  
Interpretive Description ◽  
Left Heart ◽  
Hypoplastic Left Heart ◽  
Life Threatening ◽  
Parent Interventions ◽  
Left Heart Syndrome

The purpose of the study was to conceptualize the needs of parents of young children with hypoplastic left heart syndrome (HLHS) to provide a theoretical framework to inform the development of future parent interventions. Participants were parents and grandparents (n=53) of 15 young children who had undergone the Sano surgical approach for HLHS. Analysis of recorded and transcribed single interviews with each participant was done as directed by interpretive description methodology. A model of five facets of parenting was conceptualized. These included survival parenting, “hands-off” parenting, expert parenting, uncertain parenting, and supported parenting. The facets of parenting delineated through this study provide a theoretical framework that can be used to guide the development and evaluation of interventions for parents of children with complex congenital heart disease and potentially other life-threatening conditions. Each facet constitutes a critical component for educational or psychosocial intervention for parents.

Staged reconstructive surgery – the most appropriate therapy for hypoplastic left heart syndrome

2004 ◽  
Vol 14 (S1) ◽  
pp. 105-108 ◽  
Author(s):  
Marshall L. Jacobs
Keyword(s):  
Hypoplastic Left Heart Syndrome ◽  
Reconstructive Surgery ◽  
Congenital Heart ◽  
Supportive Therapy ◽  
Complex Congenital Heart Disease ◽  
Left Heart ◽  
Hypoplastic Left Heart ◽  
Surgical Strategies ◽  
Appropriate Therapy ◽  
Left Heart Syndrome

I am grateful for the opportunity to participate in this debate forum, and for the honor of exchanging concepts with Len Bailey. This debate, fortunately, represents a “win-win” situation. The innovations and evolution of both replacement of the heart and reconstructive surgery for hypoplastic left heart syndrome are stories with lots of winners. The entire field of transplantation biology, the entire scope of management of the newborn with complex congenital heart disease, including both medical and supportive therapy and surgical strategies, has each been advanced tremendously as a consequence of the introduction and refinement of these two very different therapies for hypoplastic left heart syndrome. So, it is a debate that cannot be lost.

Coronary Arterial Abnormalities in Hypoplastic Left Heart Syndrome: Pathologic Characteristics of Archived Specimens

2020 ◽  
Vol 32 (3) ◽  
pp. 531-538
Author(s):  
Elizabeth H. Stephens ◽  
Dipankar Gupta ◽  
Mark Bleiweis ◽  
Carl L. Backer ◽  
Robert H. Anderson ◽  
...  
Keyword(s):  
Hypoplastic Left Heart Syndrome ◽  
Left Heart ◽  
Hypoplastic Left Heart ◽  
Archived Specimens ◽  
Left Heart Syndrome

Re-coarctation after Norwood I Procedure for Hypoplastic Left Heart Syndrome - Impact of Patch Material

2016 ◽  
Vol 64 (S 01) ◽  
Author(s):  
K. Vitanova ◽  
J. Cleuziou ◽  
C. Schreiber ◽  
J. Kasnar-Samprec ◽  
Z. Prodan ◽  
...  
Keyword(s):  
Hypoplastic Left Heart Syndrome ◽  
Left Heart ◽  
Hypoplastic Left Heart ◽  
Left Heart Syndrome
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