scholarly journals A Web-Based Programme for Person-Centred Learning and Support Designed for Preschool Children with Long-Term Illness: A Pilot Study of a New Intervention

2012 ◽  
Vol 2012 ◽  
pp. 1-8 ◽  
Author(s):  
Anna-Lena Hellström ◽  
Agneta Simeonsdotter Svensson ◽  
Ingrid Pramling Samuelsson ◽  
Margaretha Jenholt Nolbris
Keyword(s):  
Preschool Children ◽  
Well Being ◽  
Daily Lives ◽  
Web Based ◽  
Learning Content ◽  
Intervention Process ◽  
Risk Period ◽  
The Right

For children living with long-term illness, school age is a risk period with regard to psychosocial ill health and poor compliance with treatment. There is a need for methods to promote health, well-being, and self-esteem. This study describes a new concept for supporting children, person-centred web-based learning and support, which has been tested in 12 preschool children and incorporates learning about feelings, relationships, and the right to integrity. SKYPE was used for conversations between the child and the web teacher.Methods. The programme was developed and tested in two steps. The conversations were tape-recorded and analysed using phenomenography. The questions addressed concerned the quality of the intervention process: accessibility of intervention, learning content and support, and identification of measurable items and patterns.Findings. The children found it interesting to communicate with their web teacher using SKYPE. The story about Max and Sara served as a good basis for discussion, and development was found in the learning process. The children were able to talk about relations and feelings and developed an understanding for use in new situations in their daily lives. Items and patterns that are useful for research and documentation were identified, for example, well-being, resources, needs, and wishes.

scholarly journals Children Are Back to School, but Is Play Still in Lockdown? Play Experiences, Social Interactions, and Children’s Quality of Life in Primary Education in the COVID-19 Pandemic in 2020

2021 ◽  
Vol 18 (23) ◽  
pp. 12454
Author(s):  
Ana Lourenço ◽  
Fernando Martins ◽  
Beatriz Pereira ◽  
Rui Mendes
Keyword(s):  
Quality Of Life ◽  
Social Interactions ◽  
Primary Education ◽  
Formal Education ◽  
Well Being ◽  
Daily Lives ◽  
Related Quality ◽  
Health Related ◽  
The Right

The right to play is crucial for the overall development of children. Several studies highlight the need to have time and space to play, especially at school where children spend much of their time. Unfortunately, in formal education the obsession with academic achievements sidelines and ignores the importance of play. The neglection of play had already reached a critical stage before the pandemic, so data are needed to realize how the right to play in school is presently affected. This paper aims to understand children’s play experience in primary education during the pandemic. It investigates what activities children participated in and what materials were used, and provides insight into the social interactions between peers. Furthermore, children’s quality of life is explored. A group of 370 Portuguese children answered a questionnaire on play and social interactions, alongside with Peds 4.0TM on health-related quality of life (HRQOL). The results showed that recess still emerges as a significant element of children’s daily lives, but COVID-19 has brought limitations on play experiences and peer-interaction. It might also have impacted HRQOL, especially in emotional functioning. Since play, health and well-being are closely connected, play opportunities at school are crucial in helping children to thrive in the pandemic, and should be invested in.

scholarly journals Stoma Location and Ostomy-Related Quality of Life Among Cancer Survivors with Ostomies: A Pooled Analysis

2021 ◽  
Author(s):  
Julia Mo ◽  
Virginia Sun ◽  
Mark C. Hornbrook ◽  
Marcia Grant ◽  
Elizabeth Ercolano ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Skin Irritation ◽  
Well Being ◽  
Pooled Analysis ◽  
Weight Changes ◽  
Daily Lives ◽  
Related Quality ◽  
The Right

Abstract INTRODUCTION Ostomies have substantial impacts on many aspects of cancer survivors’ daily lives. We sought to describe how stoma location may affect clothing style, ostomy appliance leakage, skin irritation around the stoma, weight changes after ostomy surgery, and health-related quality of life (HRQOL). METHODS A pooled dataset was obtained from three multi-site studies that had used the modified City of Hope Quality of Life-Ostomy questionnaire to measure HRQOL and ostomy-specific concerns in cancer survivors with ostomies. Questions pertaining to stoma location, clothing issues, weight change since ostomy surgery, and HRQOL were analyzed. Ostomy bag change frequency was assessed in two of the three studies. Respondents were categorized by self-reported stoma location quadrant: lower left side, upper left side, lower right side, or upper right side. Predicted means for HRQOL and individual items were generated for every stoma location, adjusting for sex, ostomy type (fecal or urinary), and body mass index (BMI). RESULTS Of 607 cancer survivors included in this analysis, abdominal quadrant ostomy groups were: 138 (23%) upper left, 298 (49%) lower left, 51 (8%) upper right, and 120 (20%) lower right. The majority of participants (>50%) reported changing their clothing styles due to their ostomies. Cancer survivors with ostomies on the lower right side had significantly more weight gain after ostomy surgery (p=0.02) and reported more frequent ostomy bag changes or emptying over a 24-hour period. Overall HRQOL did not vary by stoma location, with predicted means of 6.90 to 7.18 (out of 10). Survivors with ostomies on the right half of the abdomen reported statistically significantly different QOL scores spiritual well-being (p=0.031), sleep disruptions (p=0.03), satisfaction with appearance (p<0.001) and interference with social activities (p=0.005) compared to survivors with ostomies on the left half of the abdomen. DISCUSSION Stoma location is associated with HRQOL, ostomy bag usage, and difficulties related to adjusting to the ostomy, which may affect long-term survivorship and QOL. Moreover, even after controlling for ostomy type, there were sustained significant differences in ostomy-related QOL associated with stoma location. Our results indicate that stoma location should be considered when designing interventions for cancer survivors with ostomies.

Monitoring and Promoting Old Age Health Stabilization in Real Life

GeroPsych ◽  
2016 ◽  
Vol 29 (4) ◽  
pp. 173-175 ◽  
Author(s):  
Mike Martin ◽  
Lutz Jäncke ◽  
Christina Röcke
Keyword(s):  
Old Age ◽  
New Technologies ◽  
Real Life ◽  
Well Being ◽  
Subjective Health ◽  
Daily Lives ◽  
Healthy Older Adults ◽  
Age Related

Abstract. Research on aging in different domains largely focuses on age-related decrements or intervention-related improvements, often in controlled laboratory conditions or with psychometric tests of maximum ability or traits. This special issue on monitoring and promoting old-age health stabilization in real life focuses on the short-term and long-term age-related stabilization and maintenance in diverse psychological areas, including well-being, self-esteem, subjective health, and social interactions. One central focus in all studies is the clear focus on behaviors in real-life contexts. The papers both review and present ways in which new technologies and research approaches can provide novel opportunities for monitoring and promoting the stabilization of various aspects of health and quality of life in the daily lives of healthy older adults.

scholarly journals The Psychological Impact of Strict and Prolonged Confinement on Business Students during the COVID-19 Pandemic at a Spanish University

2021 ◽  
Vol 18 (4) ◽  
pp. 1710 ◽  
Author(s):  
Anne Marie Garvey ◽  
Inmaculada Jimeno García ◽  
Sara Helena Otal Franco ◽  
Carlos Mir Fernández
Keyword(s):  
University Students ◽  
Interpersonal Relationships ◽  
Personal Development ◽  
Business Students ◽  
Psychological Impact ◽  
Well Being ◽  
Web Based ◽  
Anxiety Levels ◽  
Severe Anxiety

The study was carried out to examine the situation of university students from one month after the beginning of a very strict confinement process in Spain during the COVID-19 pandemic. Students responded to a survey which included the 7-item Generalized Anxiety Disorder Scale (GAD-7) together with other questions relating to their general well-being from the European Quality of Life Survey (EQLS). A total of 198 university students answered the web-based survey. The questionnaire was generated using Microsoft Forms and was explained and distributed online. The results indicated that around 18.7% of students were suffering from severe anxiety and 70.2% were suffering either mild or moderate anxiety at this point of the strict confinement process. The findings show that when emotional well-being (quality of sleep, the perception of feeling fear, death of a relative) is reduced and material well-being is negatively affected (income level) anxiety levels are increased. On the other hand, the results show that having good interpersonal relationships with family members and taking care of personal development (routines and habits that make them feel good) help reduce anxiety levels. The female students in the sample also suffered higher levels of anxiety than males during strict confinement.

scholarly journals FEDERAL POLICY SUPPORTS AND GAPS IN ADDRESSING RACIAL-ETHNIC HEALTH DISPARITIES IN U.S. LONG-TERM CARE FACILITIES

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S161-S161
Author(s):  
Rebecca L Mauldin ◽  
Kathy Lee ◽  
Antwan Williams
Keyword(s):  
Long Term Care ◽  
Federal Policy ◽  
Care Facility ◽  
Well Being ◽  
The United States ◽  
Term Care ◽  
Long Term Care Facility ◽  
Care Facilities

Abstract Older adults from racial and ethnic minority groups face health inequities in long-term care facilities such as nursing homes and assisted living facilities just as they do in the United States as a whole. In spite of federal policy to support minority health and ensure the well-being of long-term care facility residents, disparities persist in residents’ quality of care and quality of life. This poster presents current federal policy in the United States to reduce racial and ethnic health disparities and to support long-term care facility residents’ health and well-being. It includes legislation enacted by the Patient Protection and Affordable Care Act of 2010 (ACA), regulations of the U.S. Department of Health and Human Services (DHHS) for health care facilities receiving Medicare or Medicare funds, and policies of the Long-term Care Ombudsman Program. Recommendations to address threats to or gaps in these policies include monitoring congressional efforts to revise portions of the ACA, revising DHHS requirements for long-term care facilities staff training and oversight, and amending requirements for the Long-term Care Ombudsman Program to mandate collection, analysis, and reporting of resident complaint data by race and ethnicity.

Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being

2004 ◽  
Vol 13 (1) ◽  
pp. 49-56 ◽  
Author(s):  
Sigrid Pemberger ◽  
Reinhold Jagsch ◽  
Eva Frey ◽  
Rosemarie Felder-Puig ◽  
Helmut Gadner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Late Effects ◽  
Well Being ◽  
Childhood Cancer Survivors ◽  
Subjective Well Being

scholarly journals END-OF-LIFE CARE PREFERENCES AND WELL-BEING IN LONG-TERM CARE RESIDENTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S669-S669
Author(s):  
Kelly Shryock ◽  
Jacinta Dickens ◽  
Anisha Thomas ◽  
Suzanne Meeks
Keyword(s):  
Quality Of Life ◽  
Positive Affect ◽  
End Of Life ◽  
End Of Life Care ◽  
Long Term Care ◽  
Well Being ◽  
Life Care ◽  
Term Care

Abstract Research on end-of-life care in nursing homes comes largely from the viewpoint of staff or family members. We examined patient perspectives on end-of-life care, preferences for care, and quality of life in long-term care settings. We hypothesized that fulfillment of the Self Determination Theory (SDT) needs of autonomy, competence, and relatedness would be related to better well-being and that the degree to which end-of-life care preferences are seen as possible in the setting would be related to SDT need fulfillment and well-being. Preliminary data, collected from older individuals at the end of life (over 55, presence of significant chronic disease, in long term care setting) (n= 72), demonstrated that autonomy, competence, and relatedness measures were moderately and significantly correlated with well-being as measured by life satisfaction, higher positive affect, lower negative affect, and overall quality of life measures The degree to which residents believed that their end-of-life care preferences could be honored in the setting was also significantly correlated with autonomy, competence, relatedness, positive affect, and psychological quality of life. These results are consistent with SDT and suggest that if long term care settings can promote autonomy, connection, and competence in making end of life decisions, possibly by discovering and fulfilling preferences for end of life care, individuals who end their lives on those settings have potential for greater satisfaction and happiness. These results suggest that SDT is a useful framework for ongoing research on how to improve the end of life experiences of older adults in long term care.

scholarly journals Quality of life in patients with mild acute brain injury and their carers’ needs in Greece

2021 ◽  
Vol 9 (1) ◽  
pp. 39
Author(s):  
Evgenia Stasinopoulou ◽  
Margarita Giannakopoulou ◽  
Georgios Fildisis ◽  
Maria Kalafati ◽  
Chryssoula Leomonidou
Keyword(s):  
Quality Of Life ◽  
Brain Injury ◽  
Social Life ◽  
Well Being ◽  
Acute Brain Injury ◽  
Support Network ◽  
Family Needs ◽  
Rehabilitation Centers

Background: Investigating quality of life (QoL) is of crucial importance for the scientific community as it could function not only as an indicator of prognosis and post-traumatic clinical and psychological changes in patients who have suffered from acute brain injury (ABI), but also as an indicator of the effectiveness of their treatment and social rehabilitation. In addition, it can highlight changes in the carer’s health, social life and well-being. This study examined the QoL of patients following ABI and the needs of their carers.Material and methodology: This study was conducted in patients suffering from ABI, who were admitted to the General Hospital of Attica “KAT” and to the National Rehabilitation Center and on their carers. Data collection including demographics and Quality of Life After Brain Injury Questionnaire (QOLIBRI) and the Family Needs Questionnaire (FNQ) was performed during patients’ rehabilitation, while six months after release, a follow-up survey was conducted using the same questionnaires. Statistical analysis of data was performed using SPSS.Results: We analysed 50 patients with mild ABI (GCS ≥ of 13/15) during rehabilitation and six months after release and found that their QoL improves and is positively related to improvement of health status (i.e. in terms of thinking ability, QoL improves from r = 2.33, p < .01 to r = 3.37, p < .001). We also found that “Age” has the greatest impact on the patient’s progress for recovery and the general QoL after ABI (r = -0.423, p < .01). In addition, it was found that carers of patients with ABI are confronted with the burden of care, while they record both fulfilled and unmet needs regarding their individual needs (i.e. only for 30% of the sample the need for help in preparing them for the worst is met).Conclusions: Our study confirms previous findings that underline that ABI has a major impact on QoL of both patients and their carers providing them with long-term daily care. Although it has been found that over time there is an improvement in the QoL of patients with ABI, the absence of an official support network for carers from public health system, hospitals and rehabilitation centers may adversely affect the QoL of patients and their carers. Therefore, more structured, long-term family-wide monitoring and support is needed, focusing on identifying those at risk of social isolation and incomplete social networking.

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