Meeting the need for better end of life care

2020 ◽  
Vol 186 (5) ◽  
pp. i-ii
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Life Experience ◽  
Life Care ◽  
Pet Owners ◽  
Set Up

Years of contact with pet owners inspired Suzen Gregersen to set up the UK’s first dedicated in-home euthanasia service, helping owners to give their pets a good end-of-life experience.

Pediatric End of Life Care: Impact of Islamic Faith

2021 ◽  
pp. 019394592110165
Author(s):  
Shahad A. Hafez ◽  
Julia A. Snethen ◽  
Emmanuel Ngui ◽  
Julie Ellis ◽  
Murad Taani
Keyword(s):  
Saudi Arabia ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Experience ◽  
Primary Caregivers ◽  
Positive Influence ◽  
Future Research ◽  
Life Care ◽  
Beliefs And Practices ◽  
Education Practice

Studies investigating children and families’ experiences at end of life in Saudi Arabia are limited. However, one factor found to have an impact on patient and primary caregiver end of life care is Islam. Since women are the primary caregivers for children in Saudi Arabia, the purpose of this study was to explore the perceptions of Muslim women caring for a child at end of life. Using a qualitative approach, interviews were conducted with 24 female primary caregivers caring for a child at end of life. Thematic analysis was used to analyze the data. The researchers found that Islamic beliefs and practices had a positive influence on primary caregivers’ experiences. Islamic beliefs and practices helped support participants through their child’s end of life experience. Results have implications for health care education, practice, policy, and future research on end of life in Saudi Arabia other Muslim countries.

scholarly journals TRANSFORMING END OF LIFE CARE IN ACUTE HOSPITALS – HOW TO SET UP A TRUST WIDE PROJECT WITH BOARD LEVEL SUPPORT

2014 ◽  
Vol 4 (Suppl 1) ◽  
pp. A103.3-A104
Author(s):  
Elizabeth Rees ◽  
Suzanne Kite ◽  
Karen Henry ◽  
Melanie Larder
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Acute Hospitals ◽  
Set Up ◽  
Board Level

Can We Use Design Approaches to Increase Comfort and Reduce Suffering at End-of-Life: A Focused Literature Review

2021 ◽  
Vol 10 (1) ◽  
pp. 324-330
Author(s):  
Meg Schwellnus ◽  
Chantal Trudel ◽  
Zsofia Orosz
Keyword(s):  
Literature Review ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Experience ◽  
Life Care ◽  
Care Providers ◽  
Experience Design ◽  
Future Directions ◽  
Eol Care

End-of-life (EoL) care is often a difficult period for all involved: the person who is dying, their family and friends, and care providers. A review and analysis of literature on design for end-of-life care led to identifying common themes that may influence end-of-life experience, design categories which aim to support EoL care, and continuing challenges that may undermine EoL experience. An additional review researched impacts of the COVID-19 pandemic on EoL experiences. The results of both reviews are presented here, as well as some suggestions for future directions in EoL design.

Empowering Residents and Families for Care Decisions at End of Life

2017 ◽  
Author(s):  
Eva L. Barnett ◽  
Susan Reese
Keyword(s):  
Nursing Students ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Experience ◽  
Life Care ◽  
Term Care ◽  
Health Crisis ◽  
Centered Care

Emphasis on client‐centred care is the philosophy for most health care institutions. Long‐term care nursing homes have adopted this philosophy as well, with added emphasis on quality End‐of‐Life Care. Medical advancements have made End‐of‐Life care more complex and individuals and families are often asked to make crucial care decisions in the midst of crisis for their loved ones that may not be in accordance with the actual wishes of their loved ones.  Fairmount Nursing Home in Glenburnie has been a leader in their expertise in client centered care. This setting provided a welcoming environment for two of the Queen’s 4 th year nursing students to complete a practicum in Community Health Promotion. Our goal was to increase quality of care at End‐of‐Life by stimulating conversations around advanced decision‐ making. The focus was on expanding the knowledge of residents and their families and Substitute Decision Makers and thereby prompting thoughts about discussion before acute illness or crisis. A social assessment and literature search revealed that everyone has “a story to tell” about a personal End‐of‐Life experience. Through the development of a toolkit, reminders in the Fairmount monthly newsletter to advise readers of resources, and a presentation of information and resources at“Family Night”, we intended to encourage earlier important and focused conversations between residents, families and staff. We found that the information we presented promoted both discussion and questions regarding End‐of‐ Life. Strategic work must continue in order to assist people of all ages and stages of life to talk about their values and wishes before a health crisis intervenes and the opportunity for thoughtful choice is lost.

scholarly journals Dying like a dog: the convergence of concepts of a good death in human and veterinary medicine

2021 ◽  
Author(s):  
Felicitas Selter ◽  
Kirsten Persson ◽  
Johanna Risse ◽  
Peter Kunzmann ◽  
Gerald Neitzke
Keyword(s):  
Veterinary Medicine ◽  
End Of Life ◽  
End Of Life Care ◽  
Hospice Care ◽  
Good Death ◽  
Life Care ◽  
Negative Consequences ◽  
Pet Owners ◽  
Recent Developments ◽  
The One

AbstractStandard views of good death in human and veterinary medicine considerably differ from one another. Whereas the good death ideal in palliative medicine emphasizes the positive aspects of non-induced dying, veterinarians typically promote a quick and painless killing with the aim to end suffering. Recent developments suggest a convergence of both professions and professional attitudes, however. Palliative physicians are confronted with patients wishing to be ‘put to sleep’, while veterinarians have begun to integrate principles and practices from hospice care. We will argue that the discourses on good human and animal deaths are not distinct, but that they interact and influence each other. On the one hand, veterinary medicine adapts techniques like chemotherapy or sedation from palliative end-of-life care. On the other hand, philosophers, veterinarians, pet owners, patients and the general public alike make certain assumptions about the (dis)analogy of human and animal dying or killing. Unfortunately, these interactions have only scarcely been reflected normatively, especially on the part of human medicine. Conflicts and misattributions with potential serious negative consequences for the (animal and human) patients’ wellbeing are provoked. For these reasons, palliative physicians and veterinarians are invited to engage in the debate around human and animal end-of-life care.

Improving End-of-Life Care for Ventricular Assist Devices (VAD) Patients: Paradox or Protocol?

2013 ◽  
Vol 67 (1-2) ◽  
pp. 161-166 ◽  
Author(s):  
Peg McGonigal
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Hospital Admissions ◽  
Life Experience ◽  
Care Service ◽  
Palliative Care Service ◽  
Ventricular Assist Devices ◽  
Life Care ◽  
Ventricular Assist

When a person consents to have a ventricular assist device (VAD) implanted in one's heart, the intention is to extend life toward a new heart or toward more time. Complications may develop followed by frequent hospital admissions—most often in an intensive care unit (ICU) setting—rendering a transplant a distant reality and to discontinue the device means certain death. Emotional support for patient and family is critical. Regardless of the original goal for the device, palliative care provides assistance in communication, goal setting, and symptom management and yet its consultation is often more for brink-of-death care than end-of-life care provided at the time of diagnosis of a life-threatening disease such as heart failure. This study examined the recent deaths of hospitalized patients with VADs and the use of the palliative care service. Understanding the benefit and timing of palliative care for VAD patients—particularly in the ICU setting—may improve the end-of-life experience for patients, families, and healthcare providers.

Dysphagia in Hospice Care: The Roles of Social Work and Speech-Language Pathologists

2014 ◽  
Vol 23 (4) ◽  
pp. 173-186 ◽  
Author(s):  
Deborah Hinson ◽  
Aaron J. Goldsmith ◽  
Joseph Murray
Keyword(s):  
Social Work ◽  
End Of Life ◽  
Case Studies ◽  
End Of Life Care ◽  
Hospice Care ◽  
Patient Communication ◽  
Life Care ◽  
Speech Language Pathologists ◽  
Four Levels

This article addresses the unique roles of social work and speech-language pathologists (SLPs) in end-of-life and hospice care settings. The four levels of hospice care are explained. Suggested social work and SLP interventions for end-of-life nutrition and approaches to patient communication are offered. Case studies are used to illustrate the specialized roles that social work and SLP have in end-of-life care settings.

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