scholarly journals Proxy and self-report agreement on the Stroke and Aphasia Quality of Life Scale-39

2007 ◽  
Vol 78 (10) ◽  
pp. 1072-1075 ◽  
Author(s):  
K. Hilari ◽  
S. Owen ◽  
S. J. Farrelly
2013 ◽  
Vol 27 (1) ◽  
pp. 95-103 ◽  
Author(s):  
Andrea E. Cavanna ◽  
Chiara Luoni ◽  
Claudia Selvini ◽  
Rosanna Blangiardo ◽  
Clare M. Eddy ◽  
...  

Background:Gilles de la Tourette syndrome (GTS) is a chronic childhood-onset neuropsychiatric disorder with a significant impact on patients’ health-related quality of life (HR-QOL). Cavanna et al. (Neurology 2008; 71: 1410–1416) developed and validated the first disease-specific HR-QOL assessment tool for adults with GTS (Gilles de la Tourette Syndrome-Quality of Life Scale, GTS-QOL). This paper presents the translation, adaptation and validation of the GTS-QOL for young Italian patients with GTS.Methods:A three-stage process involving 75 patients with GTS recruited through three Departments of Child and Adolescent Neuropsychiatry in Italy led to the development of a 27-item instrument (Gilles de la Tourette Syndrome-Quality of Life Scale in children and adolescents, C&A-GTS-QOL) for the assessment of HR-QOL through a clinician-rated interview for 6–12 year-olds and a self-report questionnaire for 13–18 year-olds.Results:The C&A-GTS-QOL demonstrated satisfactory scaling assumptions and acceptability. Internal consistency reliability was high (Cronbach’s alpha > 0.7) and validity was supported by interscale correlations (range 0.4–0.7), principal-component factor analysis and correlations with other rating scales and clinical variables.Conclusions:The present version of the C&A-GTS-QOL is the first disease-specific HR-QOL tool for Italian young patients with GTS, satisfying criteria for acceptability, reliability and validity.


2020 ◽  
Vol 29 (1) ◽  
pp. 34-52
Author(s):  
Tanya Park ◽  
Saima Hirani

Background and PurposeEvidence is lacking with regard to the most suitable instrument for measuring quality of life (QOL) in patients with schizophrenia. The researchers carried out a methodological review of literature pertaining to scales used to measure QOL in this population.MethodsTwenty-eight studies, assessing nine different QOL scales, were reviewed using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist.ResultsWhile the content of most scales proved valid, the Lancashire Quality of Life Profile (LQOLP), Self-Report Quality of Life Scale (SQOL), and Quality of Life in Schizophrenia (QLiS) outscored the other scales in almost every other domain measured by COSMIN.ConclusionLQOLP and SQOL stand out among QOL scales for patients with schizophrenia, but further evidence is required to verify this finding, and no one scale appears ideal for all patients with schizophrenia.


CoDAS ◽  
2015 ◽  
Vol 27 (6) ◽  
pp. 534-540 ◽  
Author(s):  
Bianca Miguel Jorge ◽  
Cilmara Cristina Alves da Costa Levy ◽  
Lídio Granato

RESUMO Objetivo Adaptar culturalmente a Escala de Qualidade de Vida Familiar (Family Quality of Life Scale - FQOLS) para a versão em Português Brasileiro (PB), avaliar a confiabilidade do instrumento e a qualidade de vida familiar (QVF) das famílias que possuem filhos com deficiência auditiva. Métodos: O processo de adaptação cultural da escala seguiu os passos doGuidelines for the Process of Cross-Cultural Adaptation of Self-Report Measure. Realizada em três momentos: tradução, retrotradução e aplicação na amostra piloto como forma de verificar dificuldades de compreensão dos itens. Quando finalizada foi aplicada em 41 famílias que possuem filhos com deficiência auditiva e, com os seus resultados, foram analisadas a qualidade de vida (QV) e a confiabilidade, a partir do teste estatístico alfa de Cronbach (α). Resultados: Na primeira versão (tradução), dentre os 25 itens presentes, apenas em 4 houve divergências entre as tradutoras; após as correções, houve a segunda versão (retrotradução), em que foram identificadas mais 4 divergências. Por fim, após as correções finais, a última versão foi elaborada e usada na amostra piloto sem divergências, e, dessa forma, foi aplicada nas famílias de filhos surdos, as quais se consideraram satisfeitas em relação à QV. Com o teste alfa de Cronbach (α) foi verificado que a escala tem confiabilidade satisfatória. Conclusão: A versão em PB da FQOLS é um instrumento de fácil aplicação e com confiabilidade satisfatória. As famílias estão satisfeitas com sua QVF.


1999 ◽  
Vol 16 (2) ◽  
pp. 127-139 ◽  
Author(s):  
Eleonora Gullone ◽  
Robert A. Cummins

AbstractThe term quality of life (QOL) generally refers to the overall evaluation of an individual's life condition, on both objective and subjective dimensions. Quality of life research has focused on global evaluations of life satisfaction in adults. The life quality of adolescents and the performance of central life domains have largely been ignored. This study describes the psychometric properties of the Comprehensive Quality of Life Scale (ComQol) with an adolescent sample. In line with recent conceptualisations of QOL, ComQol assesses subjective and objective QOL on seven life domains. ComQol was administered along with two other self-report instruments (measuring fear and anxiety) to a sample of 264 school-based adolescents aged between 12 and 18 years. The scale yielded life satisfaction data that lay within the normative range for adults. Test-retest reliability and internal consistency analyses indicated that the scale has adequate reliability. In support of convergent validity, fear and anxiety were generally found to be significantly associated with lower levels of life quality. The present study supports the psychometric adequacy of ComQol as an instrument to measure the life quality of adolescents.


2018 ◽  
Author(s):  
Nicolas Legris ◽  
Hervé Devilliers ◽  
Anaïs Daumas ◽  
Didier Carnet ◽  
Jean-Pierre Charpy ◽  
...  

1998 ◽  
Author(s):  
Madhulika A. Gupta ◽  
Andrew M. Johnson ◽  
Aditya K. Gupta

2006 ◽  
Author(s):  
A. Schrag ◽  
C. Selai ◽  
N. Quinn ◽  
A. Lees ◽  
I. Litvan ◽  
...  

2019 ◽  
Author(s):  
María Fernández ◽  
Laura E. Gómez ◽  
Víctor B. Arias ◽  
Virginia Aguayo ◽  
Antonio M. Amor ◽  
...  

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