scholarly journals Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation? A survey of patients from the Ontario Familial Colon Cancer Registry

2007 ◽  
Vol 44 (6) ◽  
pp. 404-407 ◽  
Author(s):  
K. Kohut ◽  
M. Manno ◽  
S. Gallinger ◽  
M. J. Esplen
Keyword(s):  
Colon Cancer ◽  
Cancer Registry ◽  
Healthcare Providers ◽  
Family Members ◽  
Duty To Warn ◽  
Familial Colon Cancer

scholarly journals Association between known risk factors and colorectal cancer risk among Indigenous people participating in the Ontario Familial Colon Cancer Registry

2020 ◽  
Vol 27 (4) ◽  
Author(s):  
S. Jamal ◽  
A.J. Sheppard ◽  
M. Cotterchio ◽  
S. Gallinger
Keyword(s):  
Colorectal Cancer ◽  
Risk Factors ◽  
Colon Cancer ◽  
Risk Factor ◽  
Cancer Risk ◽  
Cigarette Smoking ◽  
Cancer Registry ◽  
Colorectal Cancer Risk ◽  
Indigenous Populations ◽  
Familial Colon Cancer

Introduction: Colorectal cancer is one of the most common cancers in Ontario and poses a high burden among many Indigenous populations. There are two aims for this short communication: (1) highlight colorectal risk factor findings from a population-based case-control study, (2) highlight trends and challenges of colorectal cancer research among Indigenous populations in Ontario.Methods: Prevalence of cigarette smoking, obesity, diet  and family history of colorectal cancer were estimated using the Indigenous identifier in the Ontario Familial Colon Cancer Registry (OFCCR) from 1999-2007 and then compared using age-adjusted odds ratio (with 95% confidence intervals) between cases and controls.Results: There were 66 Indigenous cases and 23 Indigenous controls. Cigarette smoking and obesity were higher in cases, but not statistically significant.Discussion and Conclusions: Findings were consistent with previous literature among Indigenous populations. Colorectal cancer risk factor and screening uptake information is limited among Indigenous populations; however, self-reported screening data suggest low colorectal screening uptake. Small sample size and poor Indigenous identification questions make it challenging to comprehensively understand cancer risk factors and burden in these populations.

scholarly journals Completeness and accuracy of the registration of recurrences in the Swedish Colorectal Cancer Registry (SCRCR) and an update of recurrence risk in colon cancer

2021 ◽  
pp. 1-8
Author(s):  
Erik Osterman ◽  
Klara Hammarström ◽  
Israa Imam ◽  
Emerik Osterlund ◽  
Tobias Sjöblom ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Colon Cancer ◽  
Cancer Registry ◽  
Recurrence Risk

Attitudes Toward and Beliefs About Family Presence: A Survey of Healthcare Providers, Patients’ Families, and Patients

2007 ◽  
Vol 16 (3) ◽  
pp. 270-279 ◽  
Author(s):  
Christine R. Duran ◽  
Kathleen S. Oman ◽  
Jenni Jordan Abel ◽  
Virginia M. Koziel ◽  
Deborah Szymanski
Keyword(s):  
Neonatal Intensive Care ◽  
Healthcare Providers ◽  
Family Members ◽  
Emotional Responses ◽  
Neonatal Intensive Care Units ◽  
Family Presence ◽  
Positive Attitudes ◽  
The Family ◽  
And Performance ◽  
Accepted Practice

Background Although some healthcare providers remain hesitant, family presence, defined as the presence of patients’ family members during resuscitation and/or invasive procedures, is becoming an accepted practice. Evidence indicates that family presence is beneficial to patients and their families. Objectives To describe and compare the beliefs about and attitudes toward family presence of clinicians, patients’ families, and patients. Methods Clinicians, patients’ families, and patients in the emergency department and adult and neonatal intensive care units of a 300-bed urban academic hospital were surveyed. Results Surveys were completed by 202 clinicians, 72 family members, and 62 patients. Clinicians had positive attitudes toward family presence but had concerns about safety, the emotional responses of the family members, and performance anxiety. Nurses had more favorable attitudes toward family presence than physicians did. Patients and their families had positive attitudes toward family presence. Conclusions Family presence is beneficial to patients, patients’ families, and healthcare providers. As family presence becomes a more accepted practice, healthcare providers will need to accommodate patients’ families at the bedside and address the barriers that impede the practice.

The Vortex: Families’ Experiences With Death in the Intensive Care Unit

2002 ◽  
Vol 11 (3) ◽  
pp. 200-209 ◽  
Author(s):  
Karin T. Kirchhoff ◽  
Lee Walker ◽  
Ann Hutton ◽  
Vicki Spuhler ◽  
Beth Vaughan Cole ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Life Experiences ◽  
Healthcare Providers ◽  
Family Members ◽  
Terminal Condition ◽  
Loved One ◽  
The Family ◽  
Downward Spiral ◽  
Eventual Loss

• Background Lack of communication from healthcare providers contributes to the anxiety and distress reported by patients’ families after a patient’s death in the intensive care unit.• Objective To obtain a detailed picture of the experiences of family members during the hospitalization and death of a loved one in the intensive care unit.• Methods A qualitative study with 4 focus groups was used. All eligible family members from 8 intensive care units were contacted by telephone; 8 members agreed to participate.• Results The experiences of the family members resembled a vortex: a downward spiral of prognoses, difficult decisions, feelings of inadequacy, and eventual loss despite the members’ best efforts, and perhaps no good-byes. Communication, or its lack, was a consistent theme. The participants relied on nurses to keep informed about the patients’ condition and reactions. Although some participants were satisfied with this information, they wished for more detailed explanations of procedures and consequences. Those family members who thought that the best possible outcome had been achieved had had a physician available to them, options for treatment presented and discussed, and family decisions honored.• Conclusions Uncertainty about the prognosis of the patient, decisions that families make before a terminal condition, what to expect during dying, and the extent of a patient’s suffering pervade families’ end-of-life experiences in the intensive care unit. Families’ information about the patient is often lacking or inadequate. The best antidote for families’ uncertainty is effective communication.

A Review of the Perceptions of Healthcare Providers and Family Members Toward Family Involvement in Active Adult Patient Care in the ICU

2016 ◽  
Vol 44 (6) ◽  
pp. 1191-1197 ◽  
Author(s):  
Shea A. Liput ◽  
Sandra L. Kane-Gill ◽  
Amy L. Seybert ◽  
Pamela L. Smithburger
Keyword(s):  
Patient Care ◽  
Adult Patient ◽  
Family Involvement ◽  
Healthcare Providers ◽  
Family Members

Relational influences on experiences with assisted dying: A scoping review

2020 ◽  
Vol 27 (7) ◽  
pp. 1501-1516
Author(s):  
Caroline Variath ◽  
Elizabeth Peter ◽  
Lisa Cranley ◽  
Dianne Godkin ◽  
Danielle Just
Keyword(s):  
Scoping Review ◽  
Healthcare Providers ◽  
Family Members ◽  
Assisted Dying ◽  
Roles And Responsibilities ◽  
Integral Role ◽  
Unique Experience ◽  
Collaboration And Communication ◽  
Relational Framework ◽  
Sociopolitical Influences

Background: Family members and healthcare providers play an integral role in a person’s assisted dying journey. Their own needs during the assisted dying journey are often, however, unrecognized and underrepresented in policies and guidelines. Circumstances under which people choose assisted dying, and relational contexts such as the sociopolitical environment, may influence the experiences of family members and healthcare providers. Ethical considerations: Ethics approval was not required to conduct this review. Aim: This scoping review aims to identify the relational influences on the experiences of family members and healthcare providers of adults who underwent assisted dying and of those unable to access assisted dying due to the loss of capacity to consent. Methods: A literature search was conducted in four databases, including MEDLINE, EMBASE, Cumulative Index to Nursing and Allied Health Literature (CINAHL) and PsycINFO. The search retrieved 12,074 articles, a number narrowed down to 172 articles for full-text screening. Thirty-six articles met the established inclusion criteria. A feminist relational framework guided the data analysis. Results: Five key themes on the influences of family members’ and healthcare providers’ experiences throughout the assisted dying process were synthesized from the data. They include (1) relationships as central to beginning the process, (2) social and political influences on decision making, (3) complex roles and responsibilities of family members and healthcare providers, (4) a unique experience of death, and (5) varying experiences following death. Conclusion: The feminist relational lens, used to guide analysis, shed light on the effect of the sociopolitical influences and the relationships among patients, families, and healthcare providers on each other’s experiences. Addressing the needs of the family members and healthcare providers is vital to improving the assisted dying process. Including families’ and healthcare providers’ needs within institutional policies and enhancing collaboration and communication among those involved could improve the overall experience.

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