EastMedAtlas: online data access system

Author(s):  
Elena Zhuk ◽  
George Zodiatis
2008 ◽  
pp. 49-60
Author(s):  
Ziad Hunaiti ◽  
Zayed Huneiti ◽  
Wamadeva Balachandran ◽  
Gregory Savelis ◽  
Ammar Rahman
Keyword(s):  

2020 ◽  
pp. injuryprev-2020-043677
Author(s):  
Anita Radovnikovic ◽  
Otmar Geiss ◽  
Stylianos Kephalopoulos ◽  
Vittorio Reina ◽  
Josefa Barrero ◽  
...  

The availability of data on consumer products-related accidents and injuries is of interest to a wide range of stakeholders, such as consumer product safety and injury prevention policymakers, market surveillance authorities, consumer organisations, standardisation organisations, manufacturers and the public. While the amount of information available and potentially of use for product safety is considerable in some European Union (EU) countries, its usability at EU level is difficult due to high fragmentation of the data sources, the diversity of data collection methods and increasing data protection concerns. To satisfy the policy need for more timely information on consumer product-related incidents, apart from injury data that have been historically collected by the public health sector, a number of 'alternative' data sources were assessed as potential sources of interest. This study explores the opportunities for enhancing the availability of data of consumer product-related injuries, arising from selected existing and 'alternative' data sources, widely present in Europe, such as firefighters’ and poison centres’ records, mortality statistics, consumer complaints, insurance companies’ registers, manufacturers’ incident registers and online news sources. These data sources, coupled with the use of IT technologies, such as interlinking by remote data access, could fill in the existing information gap. Strengths and weaknesses of selected data sources, with a view to support a common data platform, are evaluated and presented. Conducting the study relied on the literature review, extensive use of the surveys, interviews, workshops with experts and online data-mining pilot study.


Author(s):  
Kerina Jones ◽  
David Ford ◽  
Caroline Brooks

ABSTRACT ObjectivesWhilst the current expansion of health-related big data and data linkage research are exciting developments with great potential, they bring a major challenge. This is how to strike an appropriate balance between making the data accessible for beneficial uses, whilst respecting the rights of individuals, the duty of confidentiality and protecting the privacy of person-level data, without undue burden to research. ApproachUsing a case study approach, we describe how the UK Secure Research Platform (UKSeRP) for the Secure Anonymised Information Linkage (SAIL) databank addresses this challenge. We outline the principles, features and operating model of the SAIL UKSeRP, and how we are addressing the challenges of making health-related data safely accessible to increasing numbers of research users within a secure environment. ResultsThe SAIL UKSeRP has four basic principles to ensure that it is able to meet the needs of the growing data user community, and these are to: A) operate a remote access system that provides secure data access to approved data users; B) host an environment that provides a powerful platform for data analysis activities; (C) have a robust mechanism for the safe transfer of approved files in and out of the system; and (D) ensure that the system is efficient and scalable to accommodate a growing data user base. Subject to independent Information Governance approval and within a robust, proportionate Governance framework, the SAIL UKSeRP provides data users with a familiar Windows interface and their usual toolsets to access anonymously-linked datasets for research and evaluation. ConclusionThe SAIL UKSeRP represents a powerful analytical environment within a privacy-protecting safe haven and secure remote access system which has been designed to be scalable and adaptable to meet the needs of the rapidly growing data linkage community. Further challenges lie ahead as the landscape develops and emerging data types become more available. UKSeRP technology is available and customisable for other use cases within the UK and international jurisdictions, to operate within their respective governance frameworks.


2019 ◽  
Vol 6 (6) ◽  
pp. 9545-9554 ◽  
Author(s):  
Luis M. Vela ◽  
Hyeuknam Kwon ◽  
Seward B. Rutkove ◽  
Benjamin Sanchez
Keyword(s):  

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