Using an Electronic Self-Management Tool to Support Patients with Chronic Kidney Disease (CKD): A CKD Clinic Self-Care Model

2013 ◽  
Vol 26 (2) ◽  
pp. 195-202 ◽  
Author(s):  
Stephanie W. Ong ◽  
Sarbjit V. Jassal ◽  
Eveline Porter ◽  
Alexander G. Logan ◽  
Judith A. Miller
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Self Care ◽  
Management Tool ◽  
Self Management ◽  
Care Model

scholarly journals A Mobile App to Support Self-management of Chronic Kidney Disease: Development Study

10.2196/29197 ◽  
2021 ◽  
Vol 8 (4) ◽  
pp. e29197
Author(s):  
Talar W Markossian ◽  
Jason Boyda ◽  
Jennifer Taylor ◽  
Bella Etingen ◽  
François Modave ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Primary Care Physicians ◽  
Self Care ◽  
Health Data ◽  
Mobile App ◽  
Self Management ◽  
Smart Device ◽  
Care Providers

Background Chronic kidney disease (CKD) is a common and costly condition that is usually accompanied by multiple comorbidities including type 2 diabetes, hypertension, and obesity. Proper management of CKD can delay or prevent kidney failure and help mitigate cardiovascular disease risk, which increases as kidney function declines. Smart device apps hold potential to enhance patient self-management of chronic conditions including CKD. Objective The objective of this study was to develop a mobile app to facilitate self-management of nondialysis-dependent CKD. Methods Our stakeholder team included 4 patients with stage 3-4 nondialysis-dependent CKD; a kidney transplant recipient; a caretaker; CKD care providers (pharmacists, a nurse, primary care physicians, a nephrologist, and a cardiologist); 2 health services and CKD researchers; a researcher in biomedical informatics, nutrition, and obesity; a system developer; and 2 programmers. Focus groups and in-person interviews with the patients and providers were conducted using a focus group and interview guide based on existing literature on CKD self-management and the mobile app quality criteria from the Mobile App Rating Scale. Qualitative analytic methods including the constant comparative method were used to analyze the focus group and interview data. Results Patients and providers identified and discussed a list of requirements and preferences regarding the content, features, and technical aspects of the mobile app, which are unique for CKD self-management. Requirements and preferences centered along themes of communication between patients and caregivers, partnership in care, self-care activities, adherence to treatment regimens, and self-care self-efficacy. These identified themes informed the features and content of our mobile app. The mobile app user can enter health data including blood pressure, weight, and blood glucose levels. Symptoms and their severity can also be entered, and users are prompted to contact a physician as indicated by the symptom and its severity. Next, mobile app users can select biweekly goals from a set of predetermined goals with the option to enter customized goals. The user can also keep a list of medications and track medication use. Our app includes feedback mechanisms where in-range values for health data are depicted in green and out-of-range values are depicted in red. We ensured that data entered by patients could be downloaded into a user-friendly report, which could be emailed or uploaded to an electronic health record. The mobile app also includes a mechanism that allows either group or individualized video chat meetings with a provider to facilitate either group support, education, or even virtual clinic visits. The CKD app also includes educational material on CKD and its symptoms. Conclusions Patients with CKD and CKD care providers believe that a mobile app can enhance CKD self-management by facilitating patient-provider communication and enabling self-care activities including treatment adherence.

scholarly journals A Mobile App to Support Self-management of Chronic Kidney Disease: Development Study (Preprint)

2021 ◽  
Author(s):  
Talar W Markossian ◽  
Jason Boyda ◽  
Jennifer Taylor ◽  
Bella Etingen ◽  
François Modave ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Primary Care Physicians ◽  
Self Care ◽  
Health Data ◽  
Mobile App ◽  
Self Management ◽  
Smart Device ◽  
Care Providers

BACKGROUND Chronic kidney disease (CKD) is a common and costly condition that is usually accompanied by multiple comorbidities including type 2 diabetes, hypertension, and obesity. Proper management of CKD can delay or prevent kidney failure and help mitigate cardiovascular disease risk, which increases as kidney function declines. Smart device apps hold potential to enhance patient self-management of chronic conditions including CKD. OBJECTIVE The objective of this study was to develop a mobile app to facilitate self-management of nondialysis-dependent CKD. METHODS Our stakeholder team included 4 patients with stage 3-4 nondialysis-dependent CKD; a kidney transplant recipient; a caretaker; CKD care providers (pharmacists, a nurse, primary care physicians, a nephrologist, and a cardiologist); 2 health services and CKD researchers; a researcher in biomedical informatics, nutrition, and obesity; a system developer; and 2 programmers. Focus groups and in-person interviews with the patients and providers were conducted using a focus group and interview guide based on existing literature on CKD self-management and the mobile app quality criteria from the Mobile App Rating Scale. Qualitative analytic methods including the constant comparative method were used to analyze the focus group and interview data. RESULTS Patients and providers identified and discussed a list of requirements and preferences regarding the content, features, and technical aspects of the mobile app, which are unique for CKD self-management. Requirements and preferences centered along themes of communication between patients and caregivers, partnership in care, self-care activities, adherence to treatment regimens, and self-care self-efficacy. These identified themes informed the features and content of our mobile app. The mobile app user can enter health data including blood pressure, weight, and blood glucose levels. Symptoms and their severity can also be entered, and users are prompted to contact a physician as indicated by the symptom and its severity. Next, mobile app users can select biweekly goals from a set of predetermined goals with the option to enter customized goals. The user can also keep a list of medications and track medication use. Our app includes feedback mechanisms where in-range values for health data are depicted in green and out-of-range values are depicted in red. We ensured that data entered by patients could be downloaded into a user-friendly report, which could be emailed or uploaded to an electronic health record. The mobile app also includes a mechanism that allows either group or individualized video chat meetings with a provider to facilitate either group support, education, or even virtual clinic visits. The CKD app also includes educational material on CKD and its symptoms. CONCLUSIONS Patients with CKD and CKD care providers believe that a mobile app can enhance CKD self-management by facilitating patient-provider communication and enabling self-care activities including treatment adherence.

scholarly journals Patients’ and healthcare professionals’ beliefs, perceptions and needs towards chronic kidney disease self-management in China: a qualitative study

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e044059
Author(s):  
Hongxia Shen ◽  
Rianne M J J van der Kleij ◽  
Paul J M van der Boog ◽  
Wenjiao Wang ◽  
Xiaoyue Song ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Healthcare Professionals ◽  
Illness Perceptions ◽  
Chinese Patients ◽  
Self Management ◽  
Tertiary Referral Hospital ◽  
Chinese Context ◽  
Management Interventions

ObjectivesTo support the adaptation and translation of an evidence-based chronic kidney disease (CKD) self-management intervention to the Chinese context, we examined the beliefs, perceptions and needs of Chinese patients with CKD and healthcare professionals (HCPs) towards CKD self-management.DesignA basic interpretive, cross-sectional qualitative study comprising semistructured interviews and observations.SettingOne major tertiary referral hospital in Henan province, China.Participants11 adults with a diagnosis of CKD with CKD stages G1–G5 and 10 HCPs who worked in the Department of Nephrology.ResultsFour themes emerged: (1) CKD illness perceptions, (2) understanding of and motivation towards CKD self-management, (3) current CKD practice and (4) barriers, (anticipated) facilitators and needs towards CKD self-management. Most patients and HCPs solely mentioned medical management of CKD, and self-management was largely unknown or misinterpreted as adherence to medical treatment. Also, the majority of patients only mentioned performing disease-specific acts of control and not, for instance, behaviour for coping with emotional problems. A paternalistic patient–HCP relationship was often present. Finally, the barriers, facilitators and needs towards CKD self-management were frequently related to knowledge and environmental context and resources.ConclusionsThe limited understanding of CKD self-management, as observed, underlines the need for educational efforts on the use and benefits of self-management before intervention implementation. Also, specific characteristics and needs within the Chinese context need to guide the development or tailoring of CKD self-management interventions. Emphasis should be placed on role management and emotional coping skills, while self-management components should be tailored by addressing the existing paternalistic patient–HCP relationship. The use of electronic health innovations can be an essential facilitator for implementation.

Facilitators and barriers to self-management of patients chronic kidney disease

2021 ◽  
Vol 31 ◽  
pp. S37-S40
Author(s):  
Irsanty Collein ◽  
Ratna Sitorus ◽  
Krisna Yetti ◽  
Sutanto Priyo Hastono
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Self Management ◽  
Facilitators And Barriers

Aplicabilidade da teoria do autocuidado na sistematização da assistência de enfermagem à pessoa com doença renal crônica / Applicability of self-care theory in the systematization of nursing care to people with chronic kidney disease

2021 ◽  
Vol 7 (6) ◽  
pp. 56446-56461
Author(s):  
Gleice Kely Santos Da Silva ◽  
Andressa Camille Sampaio Peixoto ◽  
Katarina Soares Morais ◽  
Lívia de Souza e Souza ◽  
Laís Lopes Gonçalves ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Nursing Care ◽  
Self Care ◽  
Care Theory

scholarly journals HUBUNGAN JENIS KANKER DENGAN FATIGUE PADA PASIEN KEMOTERAPI DI RSUD. ABDUL WAHAB SJAHRANIE SAMARINDA

2020 ◽  
Vol 2 (1) ◽  
pp. 1-8
Author(s):  
Bonifasius Hat ◽  
Rufina Hurai
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Self Care ◽  
P Value ◽  
Test Design ◽  
Purposive Sampling ◽  
Post Test

Chronic Kidney Disease merupakan  gangguan fungsi ginjal yang progresif dan ireversibel, salah satu penanganannya dengan hemodialisa, keluhan yang sering pada pasien hemodialisa adalah kelelahan. Tujuan penelitian ini melihat pengaruh edukasi berbasis self care terhadap perubahan tingkat kelelahan pada pasien hemodialisa, merupakan penelitian kuantitatif dengan metode kuasi eksperimen pre post test design di RSUD A. Wahab Sjahranie periode Mei-Juni 2017, pengambilan sampel dilakukan  dengan cara purposive sampling melibatkan 111 responden yang dibagi menjadi 2 kelompok intervensi edukasi berbasis self care 83 orang dan kelompok kontrol 28 orang. Hasil penelitian ini didapatkan setelah dilakukan intervensi selama 6 minggu, Uji Beda Berpasangan Non Parametrik Independent menunjukan bahwa nilai Asymp Sig (2 tailed) = 0,000 atau p-value <  0,05  ada pebedaan tingkat kelelahan antara kelompok intervensi terhadap kelompok kontrol, nilai OR menunjukkan kelompok intervensi edukasi berbasis self care memiliki kecenderungan mengalami perubahan tingkat kelelahan 1,22 kali lebih besar dibandingkan dengan kelompok kontrol. Pada analisis uji logistik ordinal hasil menunjukkan nilai p = 0,00 atau p-value <0,05  ada pengaruh yang signifikan intervensi edukasi berbasis self care yang diberikan terhadap perubahan tingkat kelelahan. Simpulan penelitian edukasi berbasis self care mempunyai pengaruh terhadap perubahan tingkat kelelahan dan direkomendasikan intervensi ini dapat diaplikasikan sebagai salah satu edukasi yang diberikan pada pasien menjalani hemodialisa

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