Evaluation of a multimodal rehabilitative palliative care programme for patients with high‐grade glioma and their family caregivers

2021 ◽  
Author(s):  
Sara Nordentoft ◽  
Karin B. Dieperink ◽  
Susan D. Johansson ◽  
Mary Jarden ◽  
Karin Piil
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
High Grade Glioma ◽  
High Grade ◽  
Care Programme ◽  
Palliative Care Programme

The evaluation of a palliative care programme for people suffering from life-limiting diseases

2013 ◽  
Vol 23 (1-2) ◽  
pp. 113-123 ◽  
Author(s):  
Carmen WH Chan ◽  
Ying Yu Chui ◽  
Sek Ying Chair ◽  
Michael MK Sham ◽  
Raymond SK Lo ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Programme ◽  
Palliative Care Programme

Factors affecting decisional conflict for parents with children enrolled in a paediatric palliative care programme

2010 ◽  
Vol 16 (11) ◽  
pp. 542-547 ◽  
Author(s):  
Caprice Knapp ◽  
Vanessa Madden ◽  
Hua Wang ◽  
Charlotte Curtis ◽  
Phyllis Sloyer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Decisional Conflict ◽  
Care Programme ◽  
Factors Affecting ◽  
Paediatric Palliative Care ◽  
Palliative Care Programme

scholarly journals Palliative Care in High-Grade Glioma: A Review

2020 ◽  
Vol 10 (10) ◽  
pp. 723
Author(s):  
Rita C. Crooms ◽  
Nathan E. Goldstein ◽  
Eli L. Diamond ◽  
Barbara G. Vickrey
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
End Of Life ◽  
Care Delivery ◽  
High Grade Glioma ◽  
Functional Independence ◽  
High Grade ◽  
Care Needs ◽  
Palliative Care Needs

High-grade glioma (HGG) is characterized by debilitating neurologic symptoms and poor prognosis. Some of the suffering this disease engenders may be ameliorated through palliative care, which improves quality of life for seriously ill patients by optimizing symptom management and psychosocial support, which can be delivered concurrently with cancer-directed treatments. In this article, we review palliative care needs associated with HGG and identify opportunities for primary and specialty palliative care interventions. Patients with HGG and their caregivers experience high levels of distress due to physical, emotional, and cognitive symptoms that negatively impact quality of life and functional independence, all in the context of limited life expectancy. However, patients typically have limited contact with specialty palliative care until the end of life, and there is no established model for ensuring their palliative care needs are met throughout the disease course. We identify low rates of advance care planning, misconceptions about palliative care being synonymous with end-of-life care, and the unique neurologic needs of this patient population as some of the potential barriers to increased palliative interventions. Further research is needed to define the optimal roles of neuro-oncologists and palliative care specialists in the management of this illness and to establish appropriate timing and models for palliative care delivery.

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