‘Living Together With Dementia’: preliminary results of a training programme for family caregivers

2020 ◽  
Author(s):  
Lia Sousa ◽  
Carlos Sequeira ◽  
Carme Ferré‐Grau ◽  
Luís Graça
Keyword(s):  
Family Caregivers ◽  
Training Programme ◽  
Preliminary Results ◽  
Living Together

scholarly journals ‘Living together with dementia’ – Conceptual validation of training programme for family caregivers: Innovative practice

Dementia ◽  
2018 ◽  
Vol 19 (4) ◽  
pp. 1333-1342 ◽  
Author(s):  
Lia Sousa ◽  
Carlos Sequeira ◽  
Carme Ferré-Grau
Keyword(s):  
Family Caregivers ◽  
Delphi Study ◽  
Daily Living ◽  
Skill Training ◽  
Community Support ◽  
Training Programme ◽  
Physical And Mental Health ◽  
Living Together ◽  
Problem Solving Strategies ◽  
Caregiver Role

This article presents results from a conceptual validation of the programme ‘Living Together with Dementia’, through an e-Delphi study carried out during April/May, 2015 with 26 Portuguese and Spanish experts. The programme consists of seven individual weekly sessions and two group sessions over a seven-week period. It covers dementia, communication and behaviour; demands and expectations of the caregiver role; basic activities of daily living; coping and problem solving strategies; physical and mental health of the caregiver and community support. The programme methods mainly consist of discussion sessions, practical examples/simulations and skill training.

scholarly journals “Living together with dementia”: Training programme for family caregivers – A study protocol

2017 ◽  
Vol 2 (6) ◽  
pp. 282-286
Author(s):  
Lia Sousa ◽  
Carlos Sequeira ◽  
Carme Ferré-Grau ◽  
Pedro Neves ◽  
Mar Lleixá-Fortuño ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Study Protocol ◽  
Training Programme ◽  
Living Together

“Living Together with Dementia”—A psychoeducational group programme for family caregivers

2022 ◽  
Author(s):  
Lia Sousa ◽  
Carlos Sequeira ◽  
Carme Ferré‐Grau ◽  
Rita Costa ◽  
Sérgio Pimenta ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Psychoeducational Group ◽  
Living Together ◽  
Group Programme

scholarly journals Preliminary Results of Caregiver Speaks: A Storytelling Intervention for Bereaved Family Caregivers

2020 ◽  
Vol 25 (5) ◽  
pp. 438-453
Author(s):  
Abigail J. Rolbiecki ◽  
Debra Parker Oliver ◽  
Karla Washington ◽  
Jacquelyn J. Benson ◽  
Lucas Jorgensen
Keyword(s):  
Family Caregivers ◽  
Preliminary Results ◽  
Bereaved Family

scholarly journals The effect of a multimodal comprehensive care methodology for family caregivers of people with dementia

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Masaki Kobayashi ◽  
Miwako Honda
Keyword(s):  
Family Caregivers ◽  
Training Programme ◽  
Comprehensive Care ◽  
Secondary Outcome ◽  
Short Version ◽  
Care Burden ◽  
People With Dementia ◽  
Quasi Experimental ◽  
The Mean ◽  
The Difference

Abstract Background Caregivers experience social, physical and psychological burdens in caring for people with dementia. A study was conducted to assess the efficacy of a multimodal comprehensive care methodology training programme for the family caregivers of people with dementia. Methods This research was an intervention trial with a quasi-experimental design. A total of 148 family caregivers of people with dementia participated in a multimodal comprehensive care methodology training programme for 6 hours (three times for 2 hours) in 3 months, which was followed by weekly delivery of information via postcard. The care burden of the caregivers was evaluated by the Japanese short version of the Zarit Burden Interview (J-ZBI) before the training, 1 month post-training and 3 months post-training (primary outcome). Each caregiver assessed the symptoms of the people with dementia for whom they provided care with the Behavioral Pathology in Alzheimer’s Disease (Behave-AD) (secondary outcome). Results A total of 117 family caregivers (79%) were assessed 3 months after training. Over the course of the programme, the care burden significantly decreased from pre-training to 3 months post-training (P < 0.001). The mean care burden scores before, 1 month after, and 3 months after the intervention were 13.3, 10.9 and 10.6, respectively. The mean Behave-AD score of 101 people with dementia (68%) 3 months post-training was lower than that at pre-training, but the difference was not statistically significant (from 13.6 to 11.8, P = 0.005). Conclusions The multimodal comprehensive care methodology training was associated with a reduction in the care burden of family caregivers. These findings suggest that randomized controlled trials with larger sample sizes are needed. Trial registration UMIN Clinical Trials Registry (UMIN-CTR), UMIN000043245. Registered 4 February 2021 – Retrospectively registered

A simplified 10-step Tai-chi programme to enable people with dementia to improve their motor performance: a feasibility study

2018 ◽  
Vol 32 (12) ◽  
pp. 1609-1623 ◽  
Author(s):  
Justina Yat Wa Liu ◽  
Rick Yiu Cho Kwan ◽  
Claudia KY Lai ◽  
Keith D Hill
Keyword(s):  
Family Caregivers ◽  
Motor Performance ◽  
Tai Chi ◽  
Controlled Trial ◽  
Training Programme ◽  
Recruitment Rate ◽  
Attrition Rate ◽  
Control Group ◽  
Feasibility Assessment ◽  
People With Dementia

Objective: To evaluate the feasibility and preliminary effects of a simplified 10-step Tai-chi programme to improve the motor performance of people with dementia. Design: A two-arm, single-blinded cluster randomized controlled trial, registered with ClinicalTrials.gov (NCT03341091). Setting: Community health centres. Participants: Twenty-six dyads of people with dementia and their family caregivers were recruited, with mean (SD) ages of 82.2 (7.43) and 51.3 (18.97), respectively. Interventions: The experimental group underwent a 16 week 10-step simplified Tai-chi training programme, with additional measures to enhance engagement. The control group joined recreational activities organized by the centres. Main outcome measure(s): The feasibility assessment included recruitment, attrition, adherence to, and engagement in the Tai-chi programme. The preliminary effects were assessed by the participants’ performance in mobility tests. Results: Preliminary feasibility was established, with an acceptable recruitment rate of 58% (26 out of 45 assessed dyads) and a high attendance rate of 81% (25.88 out of 32 Tai-chi sessions). There was positive engagement in the training sessions, and no adverse incidents. However, five participants withdrew from the Tai-chi group, for a high attrition rate of 38%, and the mean home practice time decreased between weeks 8 and 16. In most of the motor performance tests, a slight but insignificant improvement was observed in the Tai-chi group compared to the control group. Conclusion: A tailored Tai-chi programme for people with dementia using a dyadic approach has been found to be feasible. However, stronger support must be provided to family caregivers to improve the participants’ sustained participation.

Using Telehealth Technology to Support Family Caregivers: Description of a Pilot Intervention and Preliminary Results

2010 ◽  
Vol 28 (4) ◽  
pp. 307-320 ◽  
Author(s):  
Patricia C. Griffiths ◽  
Nicole Davis ◽  
James Lin ◽  
Daniel Wachtel ◽  
Sabrina Ward ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Preliminary Results ◽  
Pilot Intervention ◽  
Support Family
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