Care professional's experiences about using Liverpool Care Pathway in end-of-life care in residential care homes

2017 ◽  
Vol 32 (1) ◽  
pp. 299-308 ◽  
Author(s):  
Sofia Andersson ◽  
Olav Lindqvist ◽  
Carl-Johan Fürst ◽  
Margareta Brännström
Keyword(s):  
End Of Life ◽  
Residential Care ◽  
End Of Life Care ◽  
Care Pathway ◽  
Care Homes ◽  
Life Care

scholarly journals Factors Associated With Symptom Relief in End-of-Life Care in Residential Care Homes: A National Register-Based Study

2018 ◽  
Vol 55 (5) ◽  
pp. 1304-1312 ◽  
Author(s):  
Sofia Andersson ◽  
Kristofer Årestedt ◽  
Olav Lindqvist ◽  
Carl-Johan Fürst ◽  
Margareta Brännström
Keyword(s):  
End Of Life ◽  
Residential Care ◽  
End Of Life Care ◽  
Symptom Relief ◽  
Care Homes ◽  
Life Care ◽  
National Register ◽  
Factors Associated

Developing, implementing and sustaining an end-of-life care programme in residential care homes

2017 ◽  
Vol 23 (4) ◽  
pp. 186-193 ◽  
Author(s):  
Julie Kinley ◽  
Louisa Stone ◽  
Anna Butt ◽  
Barbara Kenyon ◽  
Nuno Santos Lopes
Keyword(s):  
End Of Life ◽  
Residential Care ◽  
End Of Life Care ◽  
Care Homes ◽  
Life Care ◽  
Care Programme

Exploring resource use and associated costs in end-of-life care for older people with dementia in residential care homes

2013 ◽  
Vol 29 (7) ◽  
pp. 758-766 ◽  
Author(s):  
Sarah Amador ◽  
Claire Goodman ◽  
Derek King ◽  
Yi Ting Ng ◽  
Natasha Elmore ◽  
...  
Keyword(s):  
Older People ◽  
End Of Life ◽  
Residential Care ◽  
Resource Use ◽  
End Of Life Care ◽  
Care Homes ◽  
Life Care ◽  
People With Dementia ◽  
Care For Older People

scholarly journals “A good death but there was all this tension around”- perspectives of residential managers on the experience of delivering end of life care for people living with dementia

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Jessica A. L. Borbasi ◽  
Allison Tong ◽  
Alison Ritchie ◽  
Christopher J. Poulos ◽  
Josephine M. Clayton
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Aged Care ◽  
Care Staff ◽  
Care Homes ◽  
Residential Aged Care ◽  
Life Care ◽  
Advanced Dementia ◽  
Front Line ◽  
Care Managers

Abstract Background End of life care for residents with advanced dementia in the aged care setting is complex. There is prolonged and progressive cognitive decline, uncertain disease trajectory, significant symptom burden and infrequent access to specialist palliative care. Residential aged care managers offer a unique perspective in understanding the experience of providing end of life care for residents with advanced dementia. They bring insight from the coalface to the broader policy context. The aim of this study was to describe the experience and perspectives of residential aged care managers on providing end of life care for residents living with dementia. Methods Focus groups and semi-structured interviews were conducted with residential or care managers from various care homes from one dementia specific aged care organisation in Australia. A comprehensive sampling strategy was used in participating care homes. Transcripts were analysed using thematic analysis. Results 20 residential or care managers from 11 aged care homes in two states of Australia participated in two focus groups (total 16 participants) or individual interviews (4 participants). Six themes were identified: laying the ground work to establish what families understand about dementia, playing the peacemaker in the face of unrealistic family demands and expectations, chipping away at denial and cultivating a path towards acceptance of death, recruiting general practitioners as allies, supporting and strengthening the front line, and dedication to optimal care is relentless but rewarding. Conclusion Aged care manager participants described provision of end of life dementia care as a rewarding but sometimes fraught experience requiring persistent personalisation of care and communication to enable family acceptance of the resident’s terminal condition. The findings suggest that continuous front line aged care staff skill development, iterative family discussions, and partnership building between aged care staff and general practitioners, are all required to promote optimal end of life dementia care in residential aged care settings.

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